Vulvodynia Support
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» Hope to all my suffering ladies
Aloe Vera Gel Drink!  EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Aloe Vera Gel Drink!  EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Aloe Vera Gel Drink!  EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Aloe Vera Gel Drink!  EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Aloe Vera Gel Drink!  EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Aloe Vera Gel Drink!  EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Aloe Vera Gel Drink!  EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Aloe Vera Gel Drink!  EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Aloe Vera Gel Drink!  EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Aloe Vera Gel Drink!

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Post  naomi Sun Jun 07, 2015 8:07 am

This week I have decided to save any social money I have for the next few months (6 months) and start drinking that Forever Living Aloe.

Along with the holistic treatment I am already receiving (reiki, kinesiology testing for vitamins and supplements), NES scans and ditching gluten, lactose (my intolerances) and sugar (as it's an evil bastard anyway and fed the candida (which helped my yeast infections).

Wish me luck girls!!! Man this body healing is expensive business
naomi
naomi
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Join date : 2010-04-09
Location : Cheltenham

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Post  mikan92 Sun Jun 07, 2015 8:33 am

Hi!

Aloe vera drink sounds interesting! Am personally a fan of aloe vera too Smile I had a check of the product you have mentioned and it's not cheap Sad 32AUD for 1L.
Just wondering if the gel form better than the normally aloe vera drink? Do you think the quality of the drink we get matters?

mikan92

Posts : 36
Join date : 2015-04-22

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Post  naomi Sun Jun 07, 2015 1:56 pm

I'm just going with the 'quality not quantity' theory
naomi
naomi
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Post  naomi Sun Jun 07, 2015 2:00 pm

Arghhhh!!! Anyone else writing long replies on here and it's cutting off from the first sentence?!!! So frustrating!!
naomi
naomi
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Location : Cheltenham

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Post  naomi Sun Jun 07, 2015 2:02 pm

I can't remember what I wrote now!!

Basically it was that I'm considering registering with Forever Living - not to sell stuff but to get the 15% off RRP.

I'm gradually phasing out my products I use to the aloe stuff as it just seems less toxic and chemical free compared to my usual stuff
naomi
naomi
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Posts : 262
Join date : 2010-04-09
Location : Cheltenham

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Post  mikan92 Mon Jun 08, 2015 8:22 am

Hope aloe works for you Smile I might try it too! it really takes lots of patience though, esp with natural products cause their effects usually kicks in gradually & slowly, always makes me wonder & doubt it while I'm using.

mikan92

Posts : 36
Join date : 2015-04-22

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Post  let's kick this Fri May 27, 2016 3:29 pm

I just got both the gel o put on the vjj and the drink. I used the gel twice yesterday and it did help!! I am drinking 2oz twice a day I am so hoping that this helps I will keep you all posted!!

let's kick this

Posts : 29
Join date : 2016-03-29
Location : USA

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Post  emalita Fri May 27, 2016 4:33 pm

let's kick this - That's great news! Keep us updated on if it keeps helping sunny

emalita

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Post  let's kick this Sun May 29, 2016 11:59 pm

Not helping to much maybe it was in my head the first day. I'm going to stay on it though we all need relief

let's kick this

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Post  emalita Mon May 30, 2016 12:37 am

Oh bummer, that stinks! Maybe it will help in the long run. I will keep my fingers crossed for you Very Happy

emalita

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Post  let's kick this Mon Jun 06, 2016 9:29 pm

It is helping I have had a week of tolerable burning, not completely gone. I am also putting vitamin E on my Vjj 3 times a day.

let's kick this

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Post  let's kick this Mon Jun 06, 2016 9:30 pm

Thanks Emalita!!

let's kick this

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