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» Acupuncture advice please
Yesterday at 6:08 pm by fairlight10

» Please tell me this can get better
Yesterday at 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

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NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


Aloe Vera Gel Drink!

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Aloe Vera Gel Drink!

Post  naomi on Sun Jun 07, 2015 8:07 am

This week I have decided to save any social money I have for the next few months (6 months) and start drinking that Forever Living Aloe.

Along with the holistic treatment I am already receiving (reiki, kinesiology testing for vitamins and supplements), NES scans and ditching gluten, lactose (my intolerances) and sugar (as it's an evil bastard anyway and fed the candida (which helped my yeast infections).

Wish me luck girls!!! Man this body healing is expensive business
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Re: Aloe Vera Gel Drink!

Post  mikan92 on Sun Jun 07, 2015 8:33 am

Hi!

Aloe vera drink sounds interesting! Am personally a fan of aloe vera too Smile I had a check of the product you have mentioned and it's not cheap Sad 32AUD for 1L.
Just wondering if the gel form better than the normally aloe vera drink? Do you think the quality of the drink we get matters?

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Re: Aloe Vera Gel Drink!

Post  naomi on Sun Jun 07, 2015 1:56 pm

I'm just going with the 'quality not quantity' theory
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Re: Aloe Vera Gel Drink!

Post  naomi on Sun Jun 07, 2015 2:00 pm

Arghhhh!!! Anyone else writing long replies on here and it's cutting off from the first sentence?!!! So frustrating!!
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Re: Aloe Vera Gel Drink!

Post  naomi on Sun Jun 07, 2015 2:02 pm

I can't remember what I wrote now!!

Basically it was that I'm considering registering with Forever Living - not to sell stuff but to get the 15% off RRP.

I'm gradually phasing out my products I use to the aloe stuff as it just seems less toxic and chemical free compared to my usual stuff
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Re: Aloe Vera Gel Drink!

Post  mikan92 on Mon Jun 08, 2015 8:22 am

Hope aloe works for you Smile I might try it too! it really takes lots of patience though, esp with natural products cause their effects usually kicks in gradually & slowly, always makes me wonder & doubt it while I'm using.

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Aloe gel & drink

Post  let's kick this on Fri May 27, 2016 3:29 pm

I just got both the gel o put on the vjj and the drink. I used the gel twice yesterday and it did help!! I am drinking 2oz twice a day I am so hoping that this helps I will keep you all posted!!

let's kick this

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Re: Aloe Vera Gel Drink!

Post  emalita on Fri May 27, 2016 4:33 pm

let's kick this - That's great news! Keep us updated on if it keeps helping sunny

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Aloe gel & drink

Post  let's kick this on Sun May 29, 2016 11:59 pm

Not helping to much maybe it was in my head the first day. I'm going to stay on it though we all need relief

let's kick this

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Re: Aloe Vera Gel Drink!

Post  emalita on Mon May 30, 2016 12:37 am

Oh bummer, that stinks! Maybe it will help in the long run. I will keep my fingers crossed for you Very Happy

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Aloe vera drink

Post  let's kick this on Mon Jun 06, 2016 9:29 pm

It is helping I have had a week of tolerable burning, not completely gone. I am also putting vitamin E on my Vjj 3 times a day.

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Aloe

Post  let's kick this on Mon Jun 06, 2016 9:30 pm

Thanks Emalita!!

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Re: Aloe Vera Gel Drink!

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