Log in

I forgot my password

Latest topics
» Just Diagnosed with Vulvadynia
Today at 1:57 am by angelique2016

» Vulvadynia
Yesterday at 7:45 am by mary jane

» Constant pain, I want to die.
Sat Jul 22, 2017 9:41 pm by Meggiemay

» What is Vulvodynia?
Sat Jul 22, 2017 9:21 pm by mary jane

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV

» anyone from southern california in here?
Tue Jul 18, 2017 2:38 am by crypticcalico

Just Diagnosed with Vulvadynia

Tue Aug 02, 2016 9:11 pm by CherryTree23

Well, I was just diagnosed today, yay...my symptoms are just burning pain in vaginal opening. This all came about after taking Bactrim, Monistat, Clindomycin and Diflucan. This doctor was extremely confident I have Vulvadynia. Also told me my vaginal skin isn't red. Yes, it is, mine isn't typically electric red. He prescribed Ampytripline (sp) said, I have a very mild case, and worse case …

Comments: 7

Vulvadynia

Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

Comments: 3

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 21

Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12


Vulvodynia- What's helping me get better

View previous topic View next topic Go down

Vulvodynia- What's helping me get better

Post  Ellen1112 on Sun Jun 21, 2015 4:03 pm

Hi guys, i've been battling with vulvodynia the last 9 months, I am 17 ans it's been a hard journey and i've been following this forum all through this, it was a great help, I loved seeing positive posts, so I decided to make one with the things that are helping my symthoms (burning/irritaed uncomfortable vulva, around urethra and clitoris). I had this first when I was 11, I was so young and I didn't tell my parents because I was embarrassed, but when I finally did I was brought to plenty of different doctors and gynaecologista but they did absoloutly nothing, but thankfully it went away on it's own, untill now! But I expect this will go to! Anyways, i've seen loads of doctors recently and gynaecologists and I hd a cystoscope done, and this is what is helping me right now.

-25mg of Lyrica two times a day
-500mg of Evening Primrose taken orally once a day
-When i'm having a bad flare up, I burst open an Evening Primrose tablet and rub the oil on my vulva, instant help.
-Multi-gyn Actigel, it burns when first applied but it does offer relief
-No underwear and loose clothing
-No hot baths (I was adviced this by my gynaecologist, but hot baths give me relief while in them..)

I hope some of this helps you, honestly I believe the Lyrica and Evening Primrose is helping most.
I know how awful this thing is but please everybody stay strong, if an 17 year old like me can do it, i'm sure all you beautiful women can do it too!!!

Ellen1112

Posts : 4
Join date : 2015-06-21
Age : 19
Location : Ireland

View user profile

Back to top Go down

Re: Vulvodynia- What's helping me get better

Post  Hfronckowiak on Sun Jun 28, 2015 12:13 am

I wish any of the medication I was given helped. I tried everything they thought of over the course of 5 years with no luck. I'm 21 now and had a vestibulectomy two days ago. Im really sore but i'm praying this will finally be the end.
I'm glad you found something thats working for you, everyones different. This condition has been tearing me down for years and I hope this is the end. Its a little comforting knowing there are other people out there coming together to discuss experiences and ideas.
Best of luck Smile

Hfronckowiak

Posts : 4
Join date : 2015-06-26

View user profile

Back to top Go down

Re: Vulvodynia- What's helping me get better

Post  Lagrn on Sat Jul 04, 2015 9:53 pm

Hey ladies! Just found this group last night. ( up late unable to sleep with my burning hoo-hoo)...

Lagrn

Posts : 2
Join date : 2015-07-04

View user profile

Back to top Go down

Re: Vulvodynia- What's helping me get better

Post  Sponsored content


Sponsored content


Back to top Go down

View previous topic View next topic Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum