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» I don't know what to do anymore
Yesterday at 5:05 am by SinclairSassy

» Social Security Disability Benefits
Tue May 22, 2018 7:22 pm by SinclairSassy

» Cleveland Clinic - Pain Management, Weston, FL
Tue May 22, 2018 7:13 pm by SinclairSassy

» Finally found a place for me...
Mon May 21, 2018 4:08 am by mtsp

» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Vulvodynia/vestibulectomy

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Vulvodynia/vestibulectomy

Post  Hfronckowiak on Fri Jun 26, 2015 6:02 pm

This is my first post. I never really opened up about having vulvodynia because I was so embarressd by it. I think I just need some support from someone who understands what its like to have this condition.
My problems started 5 years ago when I first started having sex. It was painful everytime and wasn't getting any better. The first doctor I went to told me there was nothing wrong with me and it was all in my head. I got my diagnosis from the second doctor I saw. In the end I ended uo at 5 different doctors to get to where I am today. I tried every medicine and procedure for this condition with no success. Two months ago my doctor said the only thing left to do is to have a vestibulectomy. This scared me a lot. To think this is the only option I have left to get a shot at a pain free life. And I never had surgery before so I didnt know what to expect.
Yesterday I had the surgery. They put a nerve block in so I didnt feel much of anything until this morning. Yes, its painful and the amount of blood that was coming out was a but scary. I took two percocets which helped with the pain but I feel dizzy. I'm praying this to be a success in the end. I've been so depressed for 5 years and I just want a pain free happy life.

Hfronckowiak

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Re: Vulvodynia/vestibulectomy

Post  x_chelss@live.com on Fri Jun 26, 2015 10:25 pm

I hope the surgery works for you and I hope you have a speedy recovery. I had the surgery in January so I know how nervous and anxious you must feel, it was my first surgery too. I had my second on Monday. Let me know if you have any questions but all the best for your recovery and the rest of your pain free life hopefully! Xx

x_chelss@live.com

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Re: Vulvodynia/vestibulectomy

Post  elednor on Fri Jun 26, 2015 11:50 pm

good luck with your recovery! I was lucky with mine, it hardly hurt at all following the surgery, but it did not get rid of my problem. the main bit of advice i could give you is once you've healed more, massage the scar tissue with oil to keep the skin supple.

elednor

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Re: Vulvodynia/vestibulectomy

Post  Hfronckowiak on Sat Jun 27, 2015 11:45 pm

Does it look any different down there? I tried looking at it today and i couldnt see much, but theres something poking out that looks weird. The pain was pretty bad earlier but i took some painkillers and slept all day. Its at the stage where it feels like it will never get better

Hfronckowiak

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Re: Vulvodynia/vestibulectomy

Post  Hfronckowiak on Sat Jun 27, 2015 11:58 pm

And why do you need two surgeries?

Hfronckowiak

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Re: Vulvodynia/vestibulectomy

Post  x_chelss@live.com on Sun Jun 28, 2015 8:22 pm

I didn't really experience any pain, I think I was quite lucky! I wouldn't judge anything until you have your stitches out. I looked at mine the day after, it was every colour you could imagine, swollen and bruised. From how it looked then, to how it looks now you'd think it was a different vagina all together.
My vagina does look different, but I think it looks better to how it used to but that's my personal opinion- my boyfriend says he wouldn't know I'd off had surgery down there if he never knew I'd had it.

I had to have a second surgery to remove my paraurethral glands, there the glands either side of the urethra because I was still experiencing burning from that area but so far so good Smile.

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Re: Vulvodynia/vestibulectomy

Post  Cami90 on Wed Aug 26, 2015 8:15 am

Hey, I see you got your surgery 2 months ago… how are you feeling?
I just wanted to add my experience.. I suffered for a couple of years until I finally had surgery (about 3 years ago I think).. it really takes a couple months to know if it worked.. it worked for me, but I still had a little bit of pain.. then i started doing physical therapy and that's what made me pain free! She showed me how to massage the little scar I had and that was very helpful. Anyway, I think the combination of surgery and PT is perfect! I've been pretty much pain free since then, the only exceptions being a couple of sex positions.. I hope you get to be pain free too!!

Cami90

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Re: Vulvodynia/vestibulectomy

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