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Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 2

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6


Vulvodynia/vestibulectomy

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Vulvodynia/vestibulectomy

Post  Hfronckowiak on Fri Jun 26, 2015 6:02 pm

This is my first post. I never really opened up about having vulvodynia because I was so embarressd by it. I think I just need some support from someone who understands what its like to have this condition.
My problems started 5 years ago when I first started having sex. It was painful everytime and wasn't getting any better. The first doctor I went to told me there was nothing wrong with me and it was all in my head. I got my diagnosis from the second doctor I saw. In the end I ended uo at 5 different doctors to get to where I am today. I tried every medicine and procedure for this condition with no success. Two months ago my doctor said the only thing left to do is to have a vestibulectomy. This scared me a lot. To think this is the only option I have left to get a shot at a pain free life. And I never had surgery before so I didnt know what to expect.
Yesterday I had the surgery. They put a nerve block in so I didnt feel much of anything until this morning. Yes, its painful and the amount of blood that was coming out was a but scary. I took two percocets which helped with the pain but I feel dizzy. I'm praying this to be a success in the end. I've been so depressed for 5 years and I just want a pain free happy life.

Hfronckowiak

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Re: Vulvodynia/vestibulectomy

Post  x_chelss@live.com on Fri Jun 26, 2015 10:25 pm

I hope the surgery works for you and I hope you have a speedy recovery. I had the surgery in January so I know how nervous and anxious you must feel, it was my first surgery too. I had my second on Monday. Let me know if you have any questions but all the best for your recovery and the rest of your pain free life hopefully! Xx

x_chelss@live.com

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Re: Vulvodynia/vestibulectomy

Post  elednor on Fri Jun 26, 2015 11:50 pm

good luck with your recovery! I was lucky with mine, it hardly hurt at all following the surgery, but it did not get rid of my problem. the main bit of advice i could give you is once you've healed more, massage the scar tissue with oil to keep the skin supple.

elednor

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Re: Vulvodynia/vestibulectomy

Post  Hfronckowiak on Sat Jun 27, 2015 11:45 pm

Does it look any different down there? I tried looking at it today and i couldnt see much, but theres something poking out that looks weird. The pain was pretty bad earlier but i took some painkillers and slept all day. Its at the stage where it feels like it will never get better

Hfronckowiak

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Re: Vulvodynia/vestibulectomy

Post  Hfronckowiak on Sat Jun 27, 2015 11:58 pm

And why do you need two surgeries?

Hfronckowiak

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Re: Vulvodynia/vestibulectomy

Post  x_chelss@live.com on Sun Jun 28, 2015 8:22 pm

I didn't really experience any pain, I think I was quite lucky! I wouldn't judge anything until you have your stitches out. I looked at mine the day after, it was every colour you could imagine, swollen and bruised. From how it looked then, to how it looks now you'd think it was a different vagina all together.
My vagina does look different, but I think it looks better to how it used to but that's my personal opinion- my boyfriend says he wouldn't know I'd off had surgery down there if he never knew I'd had it.

I had to have a second surgery to remove my paraurethral glands, there the glands either side of the urethra because I was still experiencing burning from that area but so far so good Smile.

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Re: Vulvodynia/vestibulectomy

Post  Cami90 on Wed Aug 26, 2015 8:15 am

Hey, I see you got your surgery 2 months ago… how are you feeling?
I just wanted to add my experience.. I suffered for a couple of years until I finally had surgery (about 3 years ago I think).. it really takes a couple months to know if it worked.. it worked for me, but I still had a little bit of pain.. then i started doing physical therapy and that's what made me pain free! She showed me how to massage the little scar I had and that was very helpful. Anyway, I think the combination of surgery and PT is perfect! I've been pretty much pain free since then, the only exceptions being a couple of sex positions.. I hope you get to be pain free too!!

Cami90

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Re: Vulvodynia/vestibulectomy

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