Vulvodynia Support
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» Hope to all my suffering ladies
Vulvodynia/vestibulectomy  EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Vulvodynia/vestibulectomy  EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Vulvodynia/vestibulectomy  EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Vulvodynia/vestibulectomy  EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Vulvodynia/vestibulectomy  EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Vulvodynia/vestibulectomy  EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Vulvodynia/vestibulectomy  EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Vulvodynia/vestibulectomy  EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Vulvodynia/vestibulectomy  EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Vulvodynia/vestibulectomy

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Post  Hfronckowiak Fri Jun 26, 2015 6:02 pm

This is my first post. I never really opened up about having vulvodynia because I was so embarressd by it. I think I just need some support from someone who understands what its like to have this condition.
My problems started 5 years ago when I first started having sex. It was painful everytime and wasn't getting any better. The first doctor I went to told me there was nothing wrong with me and it was all in my head. I got my diagnosis from the second doctor I saw. In the end I ended uo at 5 different doctors to get to where I am today. I tried every medicine and procedure for this condition with no success. Two months ago my doctor said the only thing left to do is to have a vestibulectomy. This scared me a lot. To think this is the only option I have left to get a shot at a pain free life. And I never had surgery before so I didnt know what to expect.
Yesterday I had the surgery. They put a nerve block in so I didnt feel much of anything until this morning. Yes, its painful and the amount of blood that was coming out was a but scary. I took two percocets which helped with the pain but I feel dizzy. I'm praying this to be a success in the end. I've been so depressed for 5 years and I just want a pain free happy life.

Hfronckowiak

Posts : 4
Join date : 2015-06-26

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Post  x_chelss@live.com Fri Jun 26, 2015 10:25 pm

I hope the surgery works for you and I hope you have a speedy recovery. I had the surgery in January so I know how nervous and anxious you must feel, it was my first surgery too. I had my second on Monday. Let me know if you have any questions but all the best for your recovery and the rest of your pain free life hopefully! Xx

x_chelss@live.com

Posts : 50
Join date : 2014-02-12

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Post  elednor Fri Jun 26, 2015 11:50 pm

good luck with your recovery! I was lucky with mine, it hardly hurt at all following the surgery, but it did not get rid of my problem. the main bit of advice i could give you is once you've healed more, massage the scar tissue with oil to keep the skin supple.

elednor

Posts : 5
Join date : 2014-12-06
Location : UK

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Post  Hfronckowiak Sat Jun 27, 2015 11:45 pm

Does it look any different down there? I tried looking at it today and i couldnt see much, but theres something poking out that looks weird. The pain was pretty bad earlier but i took some painkillers and slept all day. Its at the stage where it feels like it will never get better

Hfronckowiak

Posts : 4
Join date : 2015-06-26

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Post  Hfronckowiak Sat Jun 27, 2015 11:58 pm

And why do you need two surgeries?

Hfronckowiak

Posts : 4
Join date : 2015-06-26

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Post  x_chelss@live.com Sun Jun 28, 2015 8:22 pm

I didn't really experience any pain, I think I was quite lucky! I wouldn't judge anything until you have your stitches out. I looked at mine the day after, it was every colour you could imagine, swollen and bruised. From how it looked then, to how it looks now you'd think it was a different vagina all together.
My vagina does look different, but I think it looks better to how it used to but that's my personal opinion- my boyfriend says he wouldn't know I'd off had surgery down there if he never knew I'd had it.

I had to have a second surgery to remove my paraurethral glands, there the glands either side of the urethra because I was still experiencing burning from that area but so far so good Smile.

x_chelss@live.com

Posts : 50
Join date : 2014-02-12

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Post  Cami90 Wed Aug 26, 2015 8:15 am

Hey, I see you got your surgery 2 months ago… how are you feeling?
I just wanted to add my experience.. I suffered for a couple of years until I finally had surgery (about 3 years ago I think).. it really takes a couple months to know if it worked.. it worked for me, but I still had a little bit of pain.. then i started doing physical therapy and that's what made me pain free! She showed me how to massage the little scar I had and that was very helpful. Anyway, I think the combination of surgery and PT is perfect! I've been pretty much pain free since then, the only exceptions being a couple of sex positions.. I hope you get to be pain free too!!

Cami90

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Join date : 2012-10-30

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