Log in

I forgot my password

Latest topics
» Looking to meet up in LA/OC CA
Yesterday at 3:43 am by crypticcalico

» Vulvadynia
Mon Jul 24, 2017 11:35 pm by Linda Williams

» Just Diagnosed with Vulvadynia
Mon Jul 24, 2017 1:57 am by angelique2016

» Constant pain, I want to die.
Sat Jul 22, 2017 9:41 pm by Meggiemay

» What is Vulvodynia?
Sat Jul 22, 2017 9:21 pm by mary jane

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV

Vulvadynia

Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

Comments: 4

Just Diagnosed with Vulvadynia

Tue Aug 02, 2016 9:11 pm by CherryTree23

Well, I was just diagnosed today, yay...my symptoms are just burning pain in vaginal opening. This all came about after taking Bactrim, Monistat, Clindomycin and Diflucan. This doctor was extremely confident I have Vulvadynia. Also told me my vaginal skin isn't red. Yes, it is, mine isn't typically electric red. He prescribed Ampytripline (sp) said, I have a very mild case, and worse case …

Comments: 7

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 21

Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12


Hi Im from Australia :)

Page 2 of 2 Previous  1, 2

View previous topic View next topic Go down

Re: Hi Im from Australia :)

Post  Mouse on Tue Feb 15, 2011 11:16 pm

Hey everyone,

I think PT is the American version, we kiwis have physio.... if we are really lucky!

Stompy, mine has gone the same way with the lovely pelvic floor probe and not even dinner and a movie first!!! Awkward because she watches my face to see when the pain tapers off. Hmmmm. I get REALLY anxious before I go.

I have now aggravated my sciatic nerve which runs from the backside down the leg. This is because I had to adjust the way I sit to accommodate the V and it made my other parts angry. I get physio on both now, I'm not sure which is worse to be honest. I've also found I really tense everything up and it's a process to relax when she says. I think I've relaxed but it's not even half way there.

Louise I'll meet you at the Melbourne clinic =)

Mouse

Posts : 303
Join date : 2010-09-09
Location : New Zealand

View user profile

Back to top Go down

Re: Hi Im from Australia :)

Post  Sebby (Admin) on Tue Feb 15, 2011 11:50 pm


Thanks for the book title stompy I will deff look into it!

I do wish we uk girls had such a clinic!!

_________________
Sebby
XxX

admin@vulvodyniasupportforum.com
avatar
Sebby (Admin)
Admin

Posts : 749
Join date : 2009-12-03
Age : 36
Location : London UK

View user profile http://vulvodyniasupport.forumotion.net

Back to top Go down

Re: Hi Im from Australia :)

Post  noni on Wed Feb 16, 2011 12:03 am

Haha...sorry about the PT ref...<<

Just wondering...what does it mean when they say to ``drop your pelvic floor``??? Anyone know?

How about at home techniques? Or is it a must to see a therapist one on one?

Thx Smile
avatar
noni

Posts : 242
Join date : 2011-01-10
Age : 29
Location : Ontario

View user profile

Back to top Go down

Re: Hi Im from Australia :)

Post  jules on Wed Feb 16, 2011 3:01 am

welcome to the new ladies. i'm so busy visiting our Vulvodynia Facebook group page that i don't make it to this forum as often as i used to. i'm glad you all are finding commonalities. here in the US we do call "it" physical therapy. i had no idea what a physio was when i first joined this site. they do the same thing as your people..biofeedback, dilators, fingers...etc. Me not so interested in it anymore..didn't like for my "area" to be messed with. today, i'm just dealing w/ the raw skin feeling and it's bright read...now you have a visual. hmm..maybe it will get better soon...it goes in waves. if you ladies are not on facebook w/ us...please join. it's nice to have friends who "understand" your pain. k...ttyl

jules

Posts : 225
Join date : 2010-03-17

View user profile

Back to top Go down

Re: Hi Im from Australia :)

Post  Sarah001 on Wed Feb 16, 2011 8:23 pm

Noni when they say drop the pelvic floor it's the same as when you relax it to pee, takes a bit of getting used to and hard to do it all the time like we're supposed to but practice makes perfect.
avatar
Sarah001

Posts : 1163
Join date : 2010-06-11
Age : 44
Location : UK

View user profile

Back to top Go down

Re: Hi Im from Australia :)

Post  noni on Thu Feb 17, 2011 1:56 am

thx!
avatar
noni

Posts : 242
Join date : 2011-01-10
Age : 29
Location : Ontario

View user profile

Back to top Go down

Re: Hi Im from Australia :)

Post  Frustrated and had enough on Tue Aug 23, 2011 10:18 am

Hi Emma,

How are you going with the cream you are trying? I have heard of it and would like to get my hands on it, just having a little trouble (got a referral to a specialist that knows nothing about Vulvodynia..not so helpful). Is it worth trying it?

I'm 30 and have had Vulvodynia for about 10 years now! It took a few years before I was diagnosed and then some unsuccessful treatments. I keep getting thrush which means I can't treat the pain I am having until I'm clear. Every time the thrush goes, sure enough it comes back. I found that physio helped the pain, but gave me thrush. So had given up and just dealt with it all for a few more years. Recently I realised I'm not getting any younger!! I got engaged a couple of months ago. I have a lovely man who has been really understanding, even though I know it's very frustrating for him as I have no desire to have sex..it just hurts too much and then I just get depressed! We would like to start a family in the next couple of years so really wanna get rid of this pain!!!! I think I'll try get a referral to angelique's dermatologist, she's like 3 mins from my house!!!!

Frustrated and had enough

Posts : 3
Join date : 2011-08-21

View user profile

Back to top Go down

Re: Hi Im from Australia :)

Post  Sarah001 on Tue Aug 23, 2011 5:10 pm

Sorry if I'm being a bit dim but how did physio give you thrush??
avatar
Sarah001

Posts : 1163
Join date : 2010-06-11
Age : 44
Location : UK

View user profile

Back to top Go down

Re: Hi Im from Australia :)

Post  Frustrated and had enough on Fri Aug 26, 2011 7:46 am

Hi Sarah001,

That's a great question..if only I knew the answer!! It seems after any little bit of exercise or movement down there the thrush flares up again. It may not actually have anything to do with it, it may just have been coincidence?

Frustrated and had enough

Posts : 3
Join date : 2011-08-21

View user profile

Back to top Go down

Re: Hi Im from Australia :)

Post  emma on Thu Nov 24, 2011 11:47 am

Hey ladies,

Sorry that it has taken me so long to reply. I forgot that i had started this thread and can i just say that although as frustrating as this condition is, i think it has definitely made all of us better people! Im strong and confident and im sure you all have that strength too!

So, I have recently had the surgery. I was fed up with having absolutely minimal or no results from various treatments and i noticed some of you have asked if the cream worked, well as you can guess - it didnt make a difference, only frustrated me more. You know what, I was sick of getting excited over a new revalation that could cure me and it didnt. When i first went to a doctor and mentioned that i had a problem to this day has been about 4 years. Long process, a lot learnt.

So yes i have had a surgery. Could hardly walk/sit/lay/sleep/breath without my body feeling like it was being ripped apart for 3 weeks.

Totally worth it. Ive had great results and the pain in that particular area - gone! i have a bit of pain higher up but it is getting better as i have just started using the dialators to stretch it out.

Im still wary as i havent got a partner (which is good because im no where near 100%) but Im so glad ive had it done.

I have a question to ask you... How do you handle friends - have you told them what you have?, because the only people who know that i have this condition are my family.... so when my friends start talking about sex, i just hate it. What do you do in those situations because i never lie but its something i just feel i have to lie and make stuff up about otherwise conversation gets akward.

Em xo





emma

Posts : 10
Join date : 2010-12-29
Location : Melbourne/Australia

View user profile

Back to top Go down

Re: Hi Im from Australia :)

Post  Sponsored content


Sponsored content


Back to top Go down

Page 2 of 2 Previous  1, 2

View previous topic View next topic Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum