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» Dating with Vulvodynia and Vaginismus advice
Sun Mar 17, 2019 4:46 pm by Lemonade_lemons

» Lyrica has been classed as a Class C drug in UK
Mon Mar 11, 2019 9:20 pm by mary jane

» Long Time No Talk... What's been going on with my V pain the past few years...
Mon Mar 11, 2019 9:15 pm by mary jane

» An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990

» I'm sorry im rambling
Fri Mar 08, 2019 7:34 pm by scrumptuous

» New member need advice please
Fri Mar 08, 2019 7:11 pm by scrumptuous

» MonaLisa Touch
Fri Mar 08, 2019 4:46 pm by rl2091

» Diagnosed Recently
Thu Feb 14, 2019 6:35 pm by davesjen

» New and need advice and help
Wed Feb 13, 2019 12:42 pm by feeling desperate

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3

New member desperate need of other vulvadynia sufferers

Fri Feb 08, 2019 6:55 pm by Tfc13

Hi there hope some1 reading this is going through the same shit as me!, I'm new to this so don't really know where to start , I'm Teresa , I've just been diagnosed with vestibular vulvadynia , after countless appointments with GPS being misdiagnosed, tested for god knows everything , eventually under my gynochologist ,who done all her necessary tests, I now have been given a diagnosis I'm in …

Comments: 5

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 7


Hi Im from Australia :)

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Re: Hi Im from Australia :)

Post  Mouse on Tue Feb 15, 2011 11:16 pm

Hey everyone,

I think PT is the American version, we kiwis have physio.... if we are really lucky!

Stompy, mine has gone the same way with the lovely pelvic floor probe and not even dinner and a movie first!!! Awkward because she watches my face to see when the pain tapers off. Hmmmm. I get REALLY anxious before I go.

I have now aggravated my sciatic nerve which runs from the backside down the leg. This is because I had to adjust the way I sit to accommodate the V and it made my other parts angry. I get physio on both now, I'm not sure which is worse to be honest. I've also found I really tense everything up and it's a process to relax when she says. I think I've relaxed but it's not even half way there.

Louise I'll meet you at the Melbourne clinic =)

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Re: Hi Im from Australia :)

Post  Sebby (Admin) on Tue Feb 15, 2011 11:50 pm


Thanks for the book title stompy I will deff look into it!

I do wish we uk girls had such a clinic!!

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Re: Hi Im from Australia :)

Post  noni on Wed Feb 16, 2011 12:03 am

Haha...sorry about the PT ref...<<

Just wondering...what does it mean when they say to ``drop your pelvic floor``??? Anyone know?

How about at home techniques? Or is it a must to see a therapist one on one?

Thx Smile
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Re: Hi Im from Australia :)

Post  jules on Wed Feb 16, 2011 3:01 am

welcome to the new ladies. i'm so busy visiting our Vulvodynia Facebook group page that i don't make it to this forum as often as i used to. i'm glad you all are finding commonalities. here in the US we do call "it" physical therapy. i had no idea what a physio was when i first joined this site. they do the same thing as your people..biofeedback, dilators, fingers...etc. Me not so interested in it anymore..didn't like for my "area" to be messed with. today, i'm just dealing w/ the raw skin feeling and it's bright read...now you have a visual. hmm..maybe it will get better soon...it goes in waves. if you ladies are not on facebook w/ us...please join. it's nice to have friends who "understand" your pain. k...ttyl

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Re: Hi Im from Australia :)

Post  Sarah001 on Wed Feb 16, 2011 8:23 pm

Noni when they say drop the pelvic floor it's the same as when you relax it to pee, takes a bit of getting used to and hard to do it all the time like we're supposed to but practice makes perfect.
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Re: Hi Im from Australia :)

Post  noni on Thu Feb 17, 2011 1:56 am

thx!
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Re: Hi Im from Australia :)

Post  Frustrated and had enough on Tue Aug 23, 2011 10:18 am

Hi Emma,

How are you going with the cream you are trying? I have heard of it and would like to get my hands on it, just having a little trouble (got a referral to a specialist that knows nothing about Vulvodynia..not so helpful). Is it worth trying it?

I'm 30 and have had Vulvodynia for about 10 years now! It took a few years before I was diagnosed and then some unsuccessful treatments. I keep getting thrush which means I can't treat the pain I am having until I'm clear. Every time the thrush goes, sure enough it comes back. I found that physio helped the pain, but gave me thrush. So had given up and just dealt with it all for a few more years. Recently I realised I'm not getting any younger!! I got engaged a couple of months ago. I have a lovely man who has been really understanding, even though I know it's very frustrating for him as I have no desire to have sex..it just hurts too much and then I just get depressed! We would like to start a family in the next couple of years so really wanna get rid of this pain!!!! I think I'll try get a referral to angelique's dermatologist, she's like 3 mins from my house!!!!

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Re: Hi Im from Australia :)

Post  Sarah001 on Tue Aug 23, 2011 5:10 pm

Sorry if I'm being a bit dim but how did physio give you thrush??
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Re: Hi Im from Australia :)

Post  Frustrated and had enough on Fri Aug 26, 2011 7:46 am

Hi Sarah001,

That's a great question..if only I knew the answer!! It seems after any little bit of exercise or movement down there the thrush flares up again. It may not actually have anything to do with it, it may just have been coincidence?

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Re: Hi Im from Australia :)

Post  emma on Thu Nov 24, 2011 11:47 am

Hey ladies,

Sorry that it has taken me so long to reply. I forgot that i had started this thread and can i just say that although as frustrating as this condition is, i think it has definitely made all of us better people! Im strong and confident and im sure you all have that strength too!

So, I have recently had the surgery. I was fed up with having absolutely minimal or no results from various treatments and i noticed some of you have asked if the cream worked, well as you can guess - it didnt make a difference, only frustrated me more. You know what, I was sick of getting excited over a new revalation that could cure me and it didnt. When i first went to a doctor and mentioned that i had a problem to this day has been about 4 years. Long process, a lot learnt.

So yes i have had a surgery. Could hardly walk/sit/lay/sleep/breath without my body feeling like it was being ripped apart for 3 weeks.

Totally worth it. Ive had great results and the pain in that particular area - gone! i have a bit of pain higher up but it is getting better as i have just started using the dialators to stretch it out.

Im still wary as i havent got a partner (which is good because im no where near 100%) but Im so glad ive had it done.

I have a question to ask you... How do you handle friends - have you told them what you have?, because the only people who know that i have this condition are my family.... so when my friends start talking about sex, i just hate it. What do you do in those situations because i never lie but its something i just feel i have to lie and make stuff up about otherwise conversation gets akward.

Em xo





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Also in Melbourne!

Post  sophiarp on Wed Apr 04, 2018 12:03 pm

Hi everyone,

I know this post is from years ago - but if any of you are still online, I'm also in Melbourne and got diagnosed late last year. I'd love to catch up with others in Melbourne.

Love and painlessness to you all!


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Re: Hi Im from Australia :)

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