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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci


I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

i dont like this!!!

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i dont like this!!!

Post  Hannah on Thu Feb 04, 2010 10:19 am

my name is Hannah and believe me i have been through it the last couple of years!
in April 08 i had a burning feeling inbetween my vagina and my wee hole. i went backwards and forwards to doctors for a few days and noone could help me. i got myself down and down. i went to the GU clinic and found out i had thrush in an unusal area and i got it sorted.
Ever since then i would feel a burning, rawness and sore feeling in my vulvar. i got anxiety from it and very depressed, i couldnt eat and lost 3 stone in a matter of weeks.

i managed to pick myself up away from those feelings, but i will still feel the burning sensation every now and again and i will not let it get me down, i went again to the GU clinic and they told me it was unprovoked Vulvodynia.

i am on amtitripaline and have lidocane as well when needed. i do suffer alot with thrush as well, so sometimes its hard to tell the difference, if its thrush or vulvodynia. it does my head in! so i go to the docs where she does a swab for thrush and in a couple of days i will know. sometimes is constantly on my mind but its got better for me and i will only have my moments with it.

ive been told its in my head, when it clearly isant. its not nice but i dont have it all the time and eventually one day it will go all together!


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Welcome Hannah

Post  Sebby (Admin) on Sun Feb 14, 2010 11:16 am

Welcome Hannah

I know what you mean about not being able to tell sometimes whether its thursh or Vulvodynia. I had recurrent thrush before I had vulvodynia and many women do have a similar story.

Articles I have read suggest it could either be the treatment for thrush i.e the cream that eventually makes the skin react and casue vulvodynia or the thrush itself. To be the the safe side I try to aviod the creams and take the oral pill if I think I have thrush.

Im not on any treatment at present as the cerezette mini pill did not work and will see the gynea in a couple of weeks so will see what he says.

I have posted before about my washing routine that seems to help the pain. I dont let any soap get onto my vulva area so I kneel in the bath wash the rest of my body with a sensitive soap being carefull to not let any get onto mhy vulva then with a shower spray just spray my vulva area with warm water.

Take care and please continue to post.

Sebby (Admin)
Sebby (Admin)

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Location : London UK

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