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» It feels like I’m going to have pain forever
Yesterday at 12:11 pm by mhhh

» It feels like I’m going to have pain forever
Yesterday at 10:01 am by dunkelma

» It feels like I’m going to have pain forever
Yesterday at 8:51 am by dunkelma

» Honey decreased my pain considerably!
Sun Jul 15, 2018 12:53 pm by mhhh

» Birth control pills can cause vestibulitis
Sun Jul 15, 2018 1:15 am by MDias

» Gabapentin gel and pregnancy
Sat Jul 14, 2018 4:15 pm by Georgie 121212

» From a concerned husband
Fri Jul 13, 2018 6:02 pm by emalita

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Fri Jul 13, 2018 2:58 pm by Gaby

» Hi girls! New in this forum
Fri Jul 13, 2018 2:31 pm by Gaby

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 9

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 0

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 1

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 5

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0


i dont like this!!!

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i dont like this!!!

Post  Hannah on Thu Feb 04, 2010 10:19 am

my name is Hannah and believe me i have been through it the last couple of years!
in April 08 i had a burning feeling inbetween my vagina and my wee hole. i went backwards and forwards to doctors for a few days and noone could help me. i got myself down and down. i went to the GU clinic and found out i had thrush in an unusal area and i got it sorted.
Ever since then i would feel a burning, rawness and sore feeling in my vulvar. i got anxiety from it and very depressed, i couldnt eat and lost 3 stone in a matter of weeks.

i managed to pick myself up away from those feelings, but i will still feel the burning sensation every now and again and i will not let it get me down, i went again to the GU clinic and they told me it was unprovoked Vulvodynia.

i am on amtitripaline and have lidocane as well when needed. i do suffer alot with thrush as well, so sometimes its hard to tell the difference, if its thrush or vulvodynia. it does my head in! so i go to the docs where she does a swab for thrush and in a couple of days i will know. sometimes is constantly on my mind but its got better for me and i will only have my moments with it.

ive been told its in my head, when it clearly isant. its not nice but i dont have it all the time and eventually one day it will go all together!

Hannah

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Welcome Hannah

Post  Sebby (Admin) on Sun Feb 14, 2010 11:16 am

Welcome Hannah

I know what you mean about not being able to tell sometimes whether its thursh or Vulvodynia. I had recurrent thrush before I had vulvodynia and many women do have a similar story.

Articles I have read suggest it could either be the treatment for thrush i.e the cream that eventually makes the skin react and casue vulvodynia or the thrush itself. To be the the safe side I try to aviod the creams and take the oral pill if I think I have thrush.

Im not on any treatment at present as the cerezette mini pill did not work and will see the gynea in a couple of weeks so will see what he says.

I have posted before about my washing routine that seems to help the pain. I dont let any soap get onto my vulva area so I kneel in the bath wash the rest of my body with a sensitive soap being carefull to not let any get onto mhy vulva then with a shower spray just spray my vulva area with warm water.

Take care and please continue to post.

Sebby (Admin)
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Sebby (Admin)
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