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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

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Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

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Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 9

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 12

Can A Cut In Vestibule cause Vulvodynia?

Thu Mar 01, 2018 1:07 am by rockylife

Can a cut in the vestibule area cause vulvodynia? Is it possible that some nerve a were damaged that’s why I feel this pain in my area without visible lesions?

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Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

Comments: 3

i dont like this!!!

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i dont like this!!!

Post  Hannah on Thu Feb 04, 2010 10:19 am

my name is Hannah and believe me i have been through it the last couple of years!
in April 08 i had a burning feeling inbetween my vagina and my wee hole. i went backwards and forwards to doctors for a few days and noone could help me. i got myself down and down. i went to the GU clinic and found out i had thrush in an unusal area and i got it sorted.
Ever since then i would feel a burning, rawness and sore feeling in my vulvar. i got anxiety from it and very depressed, i couldnt eat and lost 3 stone in a matter of weeks.

i managed to pick myself up away from those feelings, but i will still feel the burning sensation every now and again and i will not let it get me down, i went again to the GU clinic and they told me it was unprovoked Vulvodynia.

i am on amtitripaline and have lidocane as well when needed. i do suffer alot with thrush as well, so sometimes its hard to tell the difference, if its thrush or vulvodynia. it does my head in! so i go to the docs where she does a swab for thrush and in a couple of days i will know. sometimes is constantly on my mind but its got better for me and i will only have my moments with it.

ive been told its in my head, when it clearly isant. its not nice but i dont have it all the time and eventually one day it will go all together!


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Welcome Hannah

Post  Sebby (Admin) on Sun Feb 14, 2010 11:16 am

Welcome Hannah

I know what you mean about not being able to tell sometimes whether its thursh or Vulvodynia. I had recurrent thrush before I had vulvodynia and many women do have a similar story.

Articles I have read suggest it could either be the treatment for thrush i.e the cream that eventually makes the skin react and casue vulvodynia or the thrush itself. To be the the safe side I try to aviod the creams and take the oral pill if I think I have thrush.

Im not on any treatment at present as the cerezette mini pill did not work and will see the gynea in a couple of weeks so will see what he says.

I have posted before about my washing routine that seems to help the pain. I dont let any soap get onto my vulva area so I kneel in the bath wash the rest of my body with a sensitive soap being carefull to not let any get onto mhy vulva then with a shower spray just spray my vulva area with warm water.

Take care and please continue to post.

Sebby (Admin)
Sebby (Admin)

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Location : London UK

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