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Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 4

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5


Where do I go from here?

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Where do I go from here?

Post  sailor_moon on Sun Jul 05, 2015 5:43 am

Hi ladies.

I had a laproscopy at the start of the week to see if there were any internal causes of my vulvodynia.

Nothing the doctor could see would be causing it or my messed up hormones Sad

But...he did find endometriosis on the back of my cervix and treated it. He also found a weird discovery. ..my bowel is 7-9 inches longer than it should be! He said he isn't a bowel specialist but he does work in conjunction with one so he is going to send the photos to this guy and consult with him and we will chat about everything in 6 weeks. God, they

In the meantime where the hell do I go from here? I take Lyrica 150mg. ..can up it to 300mg and it still does nothing! Tried every lotion and potion available and they irritate me even more, steroids make it worse. I have not tried Amitryptilene so maybe that's next? But if Lyrica does not work I can not see why ami would....I know they work differently but you would think if it was nerves Lyrica would have helped a bit.

I am scared when I go back the doctor is going to tell me he can't help me and ship me out the door Sad I am trying everything. ...nothing works. My marriage is really starting to feel it too.....

I am currently trying a mixture of Evening Primrose Oil applied topically mixed with some Manuka Honey...has helped a bit with my itching. This combo has been much better for me than coconut oil, which doesn't do much for me except irritate.

Another thing, from being in hospital, the bastards put my frigging back out, now I am getting nerve throbbing pain in one vestibule all the way down my buttons cheek and my thigh...any suggestions on what could help with this? I had this nerve thing which comes and goes about 3 times a week, now it's constant almost. It is driving me insane.

For those who haven't followed my story, my main symptoms are itching all over, every day just about, with inflammation and vestibule burning that comes and goes and rawness.

Sorry for any misspelled sentences, I'm on my mobile.

Any advice would be so so appreciated. I feel like I am losing my mind. Sad
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