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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 19

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6


Where do I go from here?

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Where do I go from here?

Post  sailor_moon on Sun Jul 05, 2015 5:43 am

Hi ladies.

I had a laproscopy at the start of the week to see if there were any internal causes of my vulvodynia.

Nothing the doctor could see would be causing it or my messed up hormones Sad

But...he did find endometriosis on the back of my cervix and treated it. He also found a weird discovery. ..my bowel is 7-9 inches longer than it should be! He said he isn't a bowel specialist but he does work in conjunction with one so he is going to send the photos to this guy and consult with him and we will chat about everything in 6 weeks. God, they

In the meantime where the hell do I go from here? I take Lyrica 150mg. ..can up it to 300mg and it still does nothing! Tried every lotion and potion available and they irritate me even more, steroids make it worse. I have not tried Amitryptilene so maybe that's next? But if Lyrica does not work I can not see why ami would....I know they work differently but you would think if it was nerves Lyrica would have helped a bit.

I am scared when I go back the doctor is going to tell me he can't help me and ship me out the door Sad I am trying everything. ...nothing works. My marriage is really starting to feel it too.....

I am currently trying a mixture of Evening Primrose Oil applied topically mixed with some Manuka Honey...has helped a bit with my itching. This combo has been much better for me than coconut oil, which doesn't do much for me except irritate.

Another thing, from being in hospital, the bastards put my frigging back out, now I am getting nerve throbbing pain in one vestibule all the way down my buttons cheek and my thigh...any suggestions on what could help with this? I had this nerve thing which comes and goes about 3 times a week, now it's constant almost. It is driving me insane.

For those who haven't followed my story, my main symptoms are itching all over, every day just about, with inflammation and vestibule burning that comes and goes and rawness.

Sorry for any misspelled sentences, I'm on my mobile.

Any advice would be so so appreciated. I feel like I am losing my mind. Sad
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