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» I'm sorry im rambling
Today at 5:49 am by Jet227

» Diagnosed Recently
Thu Feb 14, 2019 6:35 pm by davesjen

» New and need advice and help
Wed Feb 13, 2019 12:42 pm by feeling desperate

» New here would very much appreciate advice at the end of my rope
Wed Feb 13, 2019 12:33 pm by feeling desperate

» MonaLisa Touch
Sat Feb 09, 2019 3:46 pm by Julquint

» New member desperate need of other vulvadynia sufferers
Sat Feb 09, 2019 10:09 am by Tfc13

» The pain CAN get better - What's worked for me
Sat Feb 09, 2019 8:17 am by Ginger

» Remission and relapse and again and again
Thu Feb 07, 2019 1:10 pm by mary jane

» Long term pain after partial vestibulectomy?
Wed Feb 06, 2019 1:56 pm by mary jane

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 0

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 1

New member desperate need of other vulvadynia sufferers

Fri Feb 08, 2019 6:55 pm by Tfc13

Hi there hope some1 reading this is going through the same shit as me!, I'm new to this so don't really know where to start , I'm Teresa , I've just been diagnosed with vestibular vulvadynia , after countless appointments with GPS being misdiagnosed, tested for god knows everything , eventually under my gynochologist ,who done all her necessary tests, I now have been given a diagnosis I'm in …

Comments: 5

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 7

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0

Can anybody help me!!!

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Can anybody help me!!!

Post  mandy20 on Wed Jul 08, 2015 3:22 pm

Hello.. I was just looking for some support. I'm feeling really distressed and lost. I've never been on a forum before but I'm feeling really desperate. I had a severe yeast infection 3 months ago and the symptoms have never really gone. I have vulva burning that comes and goes and my area feels sore and sort of gritty (don't know how to explain it) last night I was awake and it was awful! I had burning and it was on my legs and near my bum.. It can sort of feel numb.. on top of this just near the entrance of my vagina, maybe near my pelvic floor muscles feels weird. . When it started I felt like I was wetting myself and even my underwear felt wet, maybe because of the burning sensation. It's so weird and no one knows what I'm talking about. It's been like mental torture because it all comes and goes and goes better then flares up.. almost like it's all over the place. I am just waiting for an ap with a gyno but I just know it's vulvydonia and I'm feeling so distressed at the moment and feel like I'm going to lose my mind


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Re: Can anybody help me!!!

Post  BpCookie on Wed Jul 08, 2015 4:08 pm

Hello sweetie, I am so sorry your going through this. I totally understand what your going through. I used to feel so depressed, wanted to die and would lay in bed crying all the time. I let this terrible thing take over my life. I was miserable to be around. I was angry at the world and when I wasn't yelling, I was crying. After seeing countless Dr.s and specialists and using countless ointments and trying different pain meds., I finally found a Dr. who knew what to do. After 4 yrs of hell, two surgeries and 4 procedures I'm finally am feeling 50% better. I used to have burning inside the opening of my vagina, around my vagina, along my episiotomy scar (sp), down my butt cheeks and inner thighs. Now I only have burning around the opening of my vagina and a little ways inside but its not as bad as it was before. I still have to take Lyrica every day and that usually lowers the other burning. I still have some bad days but I have learned to live with it.

When you see your gyno make sure she does a YI, BI and UTI test and also ask her to do a biopsy. For now, use an ice pack to help ease the burning. About 20 mins. on and 20 mins off. You don't want to freeze the skin. Also try A and D ointment. I re-aply it after every time I urinate. Also you can try some products over the counter that will help with the symptoms that you have.

Hang in there honey. We all know what your going through.

Big hugs to you


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Re: Can anybody help me!!!

Post  mandy20 on Wed Jul 08, 2015 4:22 pm

Hi cookie thankyou so much for your reply. I'm so glad you have had some success in your awful journey. It truly is an awful illness! I feel so lost and despairing it's unreal. I live in hull.. England and I can't find any support networks or anything. When all this started I also had burning inside my vagina but it went (well I hope it has) you can't ever get your hopes up about a symptom going because it returns.. If you know what I mean. I just don't know were to turn and I'm sure everyone with this feels like that or has at some point

Love mandy xx


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Any better?

Post  jennyk2 on Fri Jul 17, 2015 10:53 am

Hi Mandy, hope you are feeling a bit better. It's over a week since you posted. I also live in UK, near Leeds. I am quite a lot older than you but suffered a lot from thrush in the past. I assume you have already tried Canesten pessaries ot taken Diflucan tablets? You can get both over the counter at the chemist or on prescription.
Have you tried applying plain yogurt straight from the fridge? It's very soothing. Also I used to immerse a tampon in plain yogurt until it swelled up and then I would insert it. Change it regularly for a freshly soaked tampon.
Best wishes


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Re: Can anybody help me!!!

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