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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

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What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

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Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Can anybody help me!!!

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Can anybody help me!!!

Post  mandy20 on Wed Jul 08, 2015 3:22 pm

Hello.. I was just looking for some support. I'm feeling really distressed and lost. I've never been on a forum before but I'm feeling really desperate. I had a severe yeast infection 3 months ago and the symptoms have never really gone. I have vulva burning that comes and goes and my area feels sore and sort of gritty (don't know how to explain it) last night I was awake and it was awful! I had burning and it was on my legs and near my bum.. It can sort of feel numb.. on top of this just near the entrance of my vagina, maybe near my pelvic floor muscles feels weird. . When it started I felt like I was wetting myself and even my underwear felt wet, maybe because of the burning sensation. It's so weird and no one knows what I'm talking about. It's been like mental torture because it all comes and goes and goes better then flares up.. almost like it's all over the place. I am just waiting for an ap with a gyno but I just know it's vulvydonia and I'm feeling so distressed at the moment and feel like I'm going to lose my mind


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Re: Can anybody help me!!!

Post  BpCookie on Wed Jul 08, 2015 4:08 pm

Hello sweetie, I am so sorry your going through this. I totally understand what your going through. I used to feel so depressed, wanted to die and would lay in bed crying all the time. I let this terrible thing take over my life. I was miserable to be around. I was angry at the world and when I wasn't yelling, I was crying. After seeing countless Dr.s and specialists and using countless ointments and trying different pain meds., I finally found a Dr. who knew what to do. After 4 yrs of hell, two surgeries and 4 procedures I'm finally am feeling 50% better. I used to have burning inside the opening of my vagina, around my vagina, along my episiotomy scar (sp), down my butt cheeks and inner thighs. Now I only have burning around the opening of my vagina and a little ways inside but its not as bad as it was before. I still have to take Lyrica every day and that usually lowers the other burning. I still have some bad days but I have learned to live with it.

When you see your gyno make sure she does a YI, BI and UTI test and also ask her to do a biopsy. For now, use an ice pack to help ease the burning. About 20 mins. on and 20 mins off. You don't want to freeze the skin. Also try A and D ointment. I re-aply it after every time I urinate. Also you can try some products over the counter that will help with the symptoms that you have.

Hang in there honey. We all know what your going through.

Big hugs to you


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Re: Can anybody help me!!!

Post  mandy20 on Wed Jul 08, 2015 4:22 pm

Hi cookie thankyou so much for your reply. I'm so glad you have had some success in your awful journey. It truly is an awful illness! I feel so lost and despairing it's unreal. I live in hull.. England and I can't find any support networks or anything. When all this started I also had burning inside my vagina but it went (well I hope it has) you can't ever get your hopes up about a symptom going because it returns.. If you know what I mean. I just don't know were to turn and I'm sure everyone with this feels like that or has at some point

Love mandy xx


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Any better?

Post  jennyk2 on Fri Jul 17, 2015 10:53 am

Hi Mandy, hope you are feeling a bit better. It's over a week since you posted. I also live in UK, near Leeds. I am quite a lot older than you but suffered a lot from thrush in the past. I assume you have already tried Canesten pessaries ot taken Diflucan tablets? You can get both over the counter at the chemist or on prescription.
Have you tried applying plain yogurt straight from the fridge? It's very soothing. Also I used to immerse a tampon in plain yogurt until it swelled up and then I would insert it. Change it regularly for a freshly soaked tampon.
Best wishes


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Re: Can anybody help me!!!

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