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» Can you guys tell me your experiences with diflucan/Fluconazole?
Today at 1:29 am by ryn207

» So frustrating!!
Today at 1:25 am by ryn207

» Looking for suggestions or encouragement
Today at 1:19 am by ryn207

» Looking for a friend..... and new problems
Yesterday at 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Can anybody help me!!!

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Can anybody help me!!!

Post  mandy20 on Wed Jul 08, 2015 3:22 pm

Hello.. I was just looking for some support. I'm feeling really distressed and lost. I've never been on a forum before but I'm feeling really desperate. I had a severe yeast infection 3 months ago and the symptoms have never really gone. I have vulva burning that comes and goes and my area feels sore and sort of gritty (don't know how to explain it) last night I was awake and it was awful! I had burning and it was on my legs and near my bum.. It can sort of feel numb.. on top of this just near the entrance of my vagina, maybe near my pelvic floor muscles feels weird. . When it started I felt like I was wetting myself and even my underwear felt wet, maybe because of the burning sensation. It's so weird and no one knows what I'm talking about. It's been like mental torture because it all comes and goes and goes better then flares up.. almost like it's all over the place. I am just waiting for an ap with a gyno but I just know it's vulvydonia and I'm feeling so distressed at the moment and feel like I'm going to lose my mind


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Re: Can anybody help me!!!

Post  BpCookie on Wed Jul 08, 2015 4:08 pm

Hello sweetie, I am so sorry your going through this. I totally understand what your going through. I used to feel so depressed, wanted to die and would lay in bed crying all the time. I let this terrible thing take over my life. I was miserable to be around. I was angry at the world and when I wasn't yelling, I was crying. After seeing countless Dr.s and specialists and using countless ointments and trying different pain meds., I finally found a Dr. who knew what to do. After 4 yrs of hell, two surgeries and 4 procedures I'm finally am feeling 50% better. I used to have burning inside the opening of my vagina, around my vagina, along my episiotomy scar (sp), down my butt cheeks and inner thighs. Now I only have burning around the opening of my vagina and a little ways inside but its not as bad as it was before. I still have to take Lyrica every day and that usually lowers the other burning. I still have some bad days but I have learned to live with it.

When you see your gyno make sure she does a YI, BI and UTI test and also ask her to do a biopsy. For now, use an ice pack to help ease the burning. About 20 mins. on and 20 mins off. You don't want to freeze the skin. Also try A and D ointment. I re-aply it after every time I urinate. Also you can try some products over the counter that will help with the symptoms that you have.

Hang in there honey. We all know what your going through.

Big hugs to you


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Re: Can anybody help me!!!

Post  mandy20 on Wed Jul 08, 2015 4:22 pm

Hi cookie thankyou so much for your reply. I'm so glad you have had some success in your awful journey. It truly is an awful illness! I feel so lost and despairing it's unreal. I live in hull.. England and I can't find any support networks or anything. When all this started I also had burning inside my vagina but it went (well I hope it has) you can't ever get your hopes up about a symptom going because it returns.. If you know what I mean. I just don't know were to turn and I'm sure everyone with this feels like that or has at some point

Love mandy xx


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Any better?

Post  jennyk2 on Fri Jul 17, 2015 10:53 am

Hi Mandy, hope you are feeling a bit better. It's over a week since you posted. I also live in UK, near Leeds. I am quite a lot older than you but suffered a lot from thrush in the past. I assume you have already tried Canesten pessaries ot taken Diflucan tablets? You can get both over the counter at the chemist or on prescription.
Have you tried applying plain yogurt straight from the fridge? It's very soothing. Also I used to immerse a tampon in plain yogurt until it swelled up and then I would insert it. Change it regularly for a freshly soaked tampon.
Best wishes


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Re: Can anybody help me!!!

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