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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 19

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

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New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider


I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6

narcotics for pain

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narcotics for pain

Post  meelie on Sun Jul 26, 2015 3:15 pm

Has anyone with this horrible condition ever been given Percocet or some other narcotic for, say, back pain or surgery and found it that helps?  I had back surgery Dec.31, and was on Percocet for the pain. My V disappeared while on it. I figured it out and figured I didn't really need to take it so often cause my back pain was less and less so I held off on the Percocent and started taking only when the V got so bad I was starting to be the daily bitch to my husband. I can just about tolerate anything except this damn V. I am a monster to be around when I am burning. So, I've been taking just one 5mg a day when it gets to really burning and it takes it away sometimes for the rest of the day sometimes just until around bed time depending on how active I am. I going to run out soon and I am terrified that I won't be able to talk my regular dr. into giving me a Rx. for them. I know they are addictive. I also know I am 68 and I had rather die now than continue to live with this pain that destroys any happiness left in my very boring not happy life. Was wondering if anyone else has tried narcotics. Life here on earth just isn't worth living when you are miserable.


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Re: narcotics for pain

Post  PainBlogger on Mon Jul 27, 2015 12:23 pm

I take tramadol every day. I was started on it for back pain so already on it when my pelvic area pain started. It takes the edge off the pain for me, but certainly doesn't get rid of it. I do sometimes wonder if I took the maximum daily dose if my pain would go completely, but I know I could then develop an addiction problem. My doctors prefer me to keep trying all the various antidepressants/anticonvulsants to see if eventualy one of them will work.


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Re: narcotics for pain

Post  meelie on Mon Jul 27, 2015 1:33 pm

Trammadol is less addictive than Percocet. I have taken 100 mg of it and it really helped. I'd rather be addicted than live like this. I am going to tell my dr. to imagine his penis and scrotum being covered with acid all day when he's trying to help other people, just imagine and ask him what he would do. Anyone who has not experienced this shit has NO NO NO idea what it is like to live with. Twisted Evil


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Re: narcotics for pain

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