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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1


narcotics for pain

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narcotics for pain

Post  meelie on Sun Jul 26, 2015 3:15 pm

Has anyone with this horrible condition ever been given Percocet or some other narcotic for, say, back pain or surgery and found it that helps?  I had back surgery Dec.31, and was on Percocet for the pain. My V disappeared while on it. I figured it out and figured I didn't really need to take it so often cause my back pain was less and less so I held off on the Percocent and started taking only when the V got so bad I was starting to be the daily bitch to my husband. I can just about tolerate anything except this damn V. I am a monster to be around when I am burning. So, I've been taking just one 5mg a day when it gets to really burning and it takes it away sometimes for the rest of the day sometimes just until around bed time depending on how active I am. I going to run out soon and I am terrified that I won't be able to talk my regular dr. into giving me a Rx. for them. I know they are addictive. I also know I am 68 and I had rather die now than continue to live with this pain that destroys any happiness left in my very boring not happy life. Was wondering if anyone else has tried narcotics. Life here on earth just isn't worth living when you are miserable.

meelie

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Re: narcotics for pain

Post  PainBlogger on Mon Jul 27, 2015 12:23 pm

I take tramadol every day. I was started on it for back pain so already on it when my pelvic area pain started. It takes the edge off the pain for me, but certainly doesn't get rid of it. I do sometimes wonder if I took the maximum daily dose if my pain would go completely, but I know I could then develop an addiction problem. My doctors prefer me to keep trying all the various antidepressants/anticonvulsants to see if eventualy one of them will work.

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Re: narcotics for pain

Post  meelie on Mon Jul 27, 2015 1:33 pm

Trammadol is less addictive than Percocet. I have taken 100 mg of it and it really helped. I'd rather be addicted than live like this. I am going to tell my dr. to imagine his penis and scrotum being covered with acid all day when he's trying to help other people, just imagine and ask him what he would do. Anyone who has not experienced this shit has NO NO NO idea what it is like to live with. Twisted Evil

meelie

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Re: narcotics for pain

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