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» Just Diagnosed with Vulvadynia
Today at 1:57 am by angelique2016

» Vulvadynia
Yesterday at 7:45 am by mary jane

» Constant pain, I want to die.
Sat Jul 22, 2017 9:41 pm by Meggiemay

» What is Vulvodynia?
Sat Jul 22, 2017 9:21 pm by mary jane

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV

» anyone from southern california in here?
Tue Jul 18, 2017 2:38 am by crypticcalico

Just Diagnosed with Vulvadynia

Tue Aug 02, 2016 9:11 pm by CherryTree23

Well, I was just diagnosed today, yay...my symptoms are just burning pain in vaginal opening. This all came about after taking Bactrim, Monistat, Clindomycin and Diflucan. This doctor was extremely confident I have Vulvadynia. Also told me my vaginal skin isn't red. Yes, it is, mine isn't typically electric red. He prescribed Ampytripline (sp) said, I have a very mild case, and worse case …

Comments: 7

Vulvadynia

Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

Comments: 3

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 21

Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12


Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

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Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Post  Fielder on Sat Aug 01, 2015 4:17 pm

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies liking the Putnams 'bony parts' cushion and another lady called Jess who liked the Putnams 'Dr Huff' cushion a lot. (I tried to post a link to the two cushions but I understand that as I'm a new member I can't post links for 7 days - however, they're both on the Putnams' website under 'pressure relief cushions' if anyone wants to take a look.)

Any further views/experiences with these cushions would be gratefully received....I'm also not sure what depth of cushion to go for, i.e. the 3" or 4" of either of the two cushions.....The intention is for the cushion to be as portable as possible for me use it at hospital and GP appointments etc.  (Whereas at home I'm on a bed for most of the day due to my vulvodynia and fibromyalgia plus chronic fatigue.)

Thanks in advance for any advice you can give.  (Any other new cushion ideas also gratefully received Very Happy )

Fielder

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Re: Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Post  Fielder on Sat Aug 22, 2015 2:31 pm

I didn't get any replies re the Putnams cushions...So I just took a chance and ordered one; and it's really good.

I sent for the Dr Huff cushion because the cut out in it was smaller than in the Bony Parts cushion - I decided that to save money I could cut into the foam and make the hole larger and the same shape as the hole in the Bony Parts cushion if necessary.  I haven't needed to alter it though.

I bought the smaller of the two sizes available and opted for the 3" thickness; the 4" thick version would probably raise me up too high for most chairs in hospital and doctors' waiting rooms I think, although I do think the 4" might be even more comfortable and could be good on an armchair.

Putnams are in the UK but also ship to many parts of the world to include the USA http://putnams.co.uk/collections/pressure-relief/products/sero-pressure-cushion-dr-huff-cut-out  (All of their cushions with the various placed cut outs are shown at the bottom of the webpage - to include one that has a cut out for the coccyx.)


Last edited by Fielder on Sat Aug 22, 2015 4:04 pm; edited 1 time in total

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Re: Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Post  PainBlogger on Sat Aug 22, 2015 3:56 pm

Good to know. Thanks for the info Smile

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Re: Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Post  Fielder on Sat Aug 22, 2015 4:06 pm

You're welcome Smile

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Re: Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Post  PainBlogger on Mon Aug 24, 2015 9:04 am

I decided to order one of these cushions (the same one as you, Fielder, 3 inches, standard, Dr Huff). At the moment I use a ring cushion when I have to sit on a hard chair that I can't slouch in (which is only for the occasional meal out or in other people's houses). The ring cushion isn't quite the right shape and leaves me with sore thighs. Hopefully this one will spread the pressure more evenly. I like the fact that it comes with a discreet cover.

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Re: Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Post  Fielder on Mon Aug 24, 2015 9:13 am

Hi PB

I've only just seen that Putnams do a version that's shaped for office type chairs which comes with the cut out shape of the buyer's choice (or no cut out at all if wished) http://putnams.co.uk/collections/pressure-relief/products/sero-pressure-office-cushion  I'm thinking of buying one with the Dr Huff cut out to use in the car as I think it will fit the seat better.  

I really hope it helps you PB.  Cushions aren't a 'one size fits all' but I've found this one good and have read elsewhere that others with vulvodynia and pudendal nerve neuralgia have too.

Fielder

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Re: Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Post  PainBlogger on Thu Aug 27, 2015 2:36 pm

My cushion has arrived. I'm really impressed with the delivery speed, packaging and discreetness of the supplied cover, which means the cut out isn't obvious unless the cushion is held up close or sat on (obviously!). Very Happy

I definitely think it will be kinder on the backs of my legs/pelvis. I'll try it out properly next week when out for a meal. The integral air pockets surface texture may take a bit of getting used to but I can see how it lets air circulate and won't be so hot as foam can be otherwise. I assume the bumpy eggbox type side is supposed to be uppermost?

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Re: Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Post  Fielder on Thu Aug 27, 2015 3:02 pm

Hi PB,

Yes the bumpy 'eggbox' side does go uppermost - I'm finding that the eggbox undulations help spread my weight and thus the pressure - a bit like castellated foam does on mattresses and cushions used for pressure/bed sores.  This illustrates what I mean re 'castellations', in case you haven't come across them before : http://directhealthcareservices.co.uk/products/dyna-pad-cushion

I hope you find it good and you enjoy your meal out.  I wouldn't be without my 'Dr Huff' now Smile

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Re: Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Post  Fielder on Wed Oct 07, 2015 7:22 pm

Just thought I'd post a general follow up to say that a few weeks back I bought another Putnams Dr Huff cushion to use as a spare and ordered the 4" thick one (instead of another 3") and I'm finding it to be even more comfortable.  I don't think that any cushion is going to be perfect for this **** condition or, for that matter, suit everyone - not in my experience anyway - but I've found the Dr Huff cut out cushion to be pretty good for my vulvodynia (my pain being midline running from vagina to clitoris - excuse the detail, but I thought I'd mention the latter just in case it helps anyone decide whether or not a Dr Huff cushion might be right for them).


Last edited by Fielder on Wed Oct 07, 2015 11:09 pm; edited 1 time in total

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Re: Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Post  PainBlogger on Wed Oct 07, 2015 7:56 pm

Good to hear some feedback and that you're getting on well with the 4" cushion. I'll add that I've used mine (the thinner version) a few more times since I last posted, and it's a lot more comfortable than the doughnut cushion I had before Smile

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Re: Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Post  Fielder on Wed Oct 07, 2015 11:08 pm

That's good to know, PB - so glad it's of help Very Happy

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Re: Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

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