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» Acupuncture advice please
Today at 2:25 am by ryn207

» New and need some help
Today at 12:49 am by Sad

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

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MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

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NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4


Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

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Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Post  Fielder on Sat Aug 01, 2015 4:17 pm

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies liking the Putnams 'bony parts' cushion and another lady called Jess who liked the Putnams 'Dr Huff' cushion a lot. (I tried to post a link to the two cushions but I understand that as I'm a new member I can't post links for 7 days - however, they're both on the Putnams' website under 'pressure relief cushions' if anyone wants to take a look.)

Any further views/experiences with these cushions would be gratefully received....I'm also not sure what depth of cushion to go for, i.e. the 3" or 4" of either of the two cushions.....The intention is for the cushion to be as portable as possible for me use it at hospital and GP appointments etc.  (Whereas at home I'm on a bed for most of the day due to my vulvodynia and fibromyalgia plus chronic fatigue.)

Thanks in advance for any advice you can give.  (Any other new cushion ideas also gratefully received Very Happy )

Fielder

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Re: Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Post  Fielder on Sat Aug 22, 2015 2:31 pm

I didn't get any replies re the Putnams cushions...So I just took a chance and ordered one; and it's really good.

I sent for the Dr Huff cushion because the cut out in it was smaller than in the Bony Parts cushion - I decided that to save money I could cut into the foam and make the hole larger and the same shape as the hole in the Bony Parts cushion if necessary.  I haven't needed to alter it though.

I bought the smaller of the two sizes available and opted for the 3" thickness; the 4" thick version would probably raise me up too high for most chairs in hospital and doctors' waiting rooms I think, although I do think the 4" might be even more comfortable and could be good on an armchair.

Putnams are in the UK but also ship to many parts of the world to include the USA http://putnams.co.uk/collections/pressure-relief/products/sero-pressure-cushion-dr-huff-cut-out  (All of their cushions with the various placed cut outs are shown at the bottom of the webpage - to include one that has a cut out for the coccyx.)


Last edited by Fielder on Sat Aug 22, 2015 4:04 pm; edited 1 time in total

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Re: Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Post  PainBlogger on Sat Aug 22, 2015 3:56 pm

Good to know. Thanks for the info Smile

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Re: Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Post  Fielder on Sat Aug 22, 2015 4:06 pm

You're welcome Smile

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Re: Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Post  PainBlogger on Mon Aug 24, 2015 9:04 am

I decided to order one of these cushions (the same one as you, Fielder, 3 inches, standard, Dr Huff). At the moment I use a ring cushion when I have to sit on a hard chair that I can't slouch in (which is only for the occasional meal out or in other people's houses). The ring cushion isn't quite the right shape and leaves me with sore thighs. Hopefully this one will spread the pressure more evenly. I like the fact that it comes with a discreet cover.

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Re: Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Post  Fielder on Mon Aug 24, 2015 9:13 am

Hi PB

I've only just seen that Putnams do a version that's shaped for office type chairs which comes with the cut out shape of the buyer's choice (or no cut out at all if wished) http://putnams.co.uk/collections/pressure-relief/products/sero-pressure-office-cushion  I'm thinking of buying one with the Dr Huff cut out to use in the car as I think it will fit the seat better.  

I really hope it helps you PB.  Cushions aren't a 'one size fits all' but I've found this one good and have read elsewhere that others with vulvodynia and pudendal nerve neuralgia have too.

Fielder

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Re: Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Post  PainBlogger on Thu Aug 27, 2015 2:36 pm

My cushion has arrived. I'm really impressed with the delivery speed, packaging and discreetness of the supplied cover, which means the cut out isn't obvious unless the cushion is held up close or sat on (obviously!). Very Happy

I definitely think it will be kinder on the backs of my legs/pelvis. I'll try it out properly next week when out for a meal. The integral air pockets surface texture may take a bit of getting used to but I can see how it lets air circulate and won't be so hot as foam can be otherwise. I assume the bumpy eggbox type side is supposed to be uppermost?

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Re: Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Post  Fielder on Thu Aug 27, 2015 3:02 pm

Hi PB,

Yes the bumpy 'eggbox' side does go uppermost - I'm finding that the eggbox undulations help spread my weight and thus the pressure - a bit like castellated foam does on mattresses and cushions used for pressure/bed sores.  This illustrates what I mean re 'castellations', in case you haven't come across them before : http://directhealthcareservices.co.uk/products/dyna-pad-cushion

I hope you find it good and you enjoy your meal out.  I wouldn't be without my 'Dr Huff' now Smile

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Re: Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Post  Fielder on Wed Oct 07, 2015 7:22 pm

Just thought I'd post a general follow up to say that a few weeks back I bought another Putnams Dr Huff cushion to use as a spare and ordered the 4" thick one (instead of another 3") and I'm finding it to be even more comfortable.  I don't think that any cushion is going to be perfect for this **** condition or, for that matter, suit everyone - not in my experience anyway - but I've found the Dr Huff cut out cushion to be pretty good for my vulvodynia (my pain being midline running from vagina to clitoris - excuse the detail, but I thought I'd mention the latter just in case it helps anyone decide whether or not a Dr Huff cushion might be right for them).


Last edited by Fielder on Wed Oct 07, 2015 11:09 pm; edited 1 time in total

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Re: Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Post  PainBlogger on Wed Oct 07, 2015 7:56 pm

Good to hear some feedback and that you're getting on well with the 4" cushion. I'll add that I've used mine (the thinner version) a few more times since I last posted, and it's a lot more comfortable than the doughnut cushion I had before Smile

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Re: Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Post  Fielder on Wed Oct 07, 2015 11:08 pm

That's good to know, PB - so glad it's of help Very Happy

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Re: Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

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