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» Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia
Yesterday at 8:15 pm by WVR00

» What helped (and practically cured) my Vulvodynia
Yesterday at 4:43 pm by Katiej

» How I cured my Vulvodynia!
Yesterday at 8:24 am by Katiej

» Amitriptyline given for vulvodyina pain
Sat Nov 18, 2017 11:33 pm by WVR00

» Needing some reassurance
Sat Nov 18, 2017 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Sat Nov 18, 2017 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Sat Nov 18, 2017 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4


Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

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Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Post  Fielder on Sat Aug 01, 2015 4:17 pm

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies liking the Putnams 'bony parts' cushion and another lady called Jess who liked the Putnams 'Dr Huff' cushion a lot. (I tried to post a link to the two cushions but I understand that as I'm a new member I can't post links for 7 days - however, they're both on the Putnams' website under 'pressure relief cushions' if anyone wants to take a look.)

Any further views/experiences with these cushions would be gratefully received....I'm also not sure what depth of cushion to go for, i.e. the 3" or 4" of either of the two cushions.....The intention is for the cushion to be as portable as possible for me use it at hospital and GP appointments etc.  (Whereas at home I'm on a bed for most of the day due to my vulvodynia and fibromyalgia plus chronic fatigue.)

Thanks in advance for any advice you can give.  (Any other new cushion ideas also gratefully received Very Happy )

Fielder

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Re: Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Post  Fielder on Sat Aug 22, 2015 2:31 pm

I didn't get any replies re the Putnams cushions...So I just took a chance and ordered one; and it's really good.

I sent for the Dr Huff cushion because the cut out in it was smaller than in the Bony Parts cushion - I decided that to save money I could cut into the foam and make the hole larger and the same shape as the hole in the Bony Parts cushion if necessary.  I haven't needed to alter it though.

I bought the smaller of the two sizes available and opted for the 3" thickness; the 4" thick version would probably raise me up too high for most chairs in hospital and doctors' waiting rooms I think, although I do think the 4" might be even more comfortable and could be good on an armchair.

Putnams are in the UK but also ship to many parts of the world to include the USA http://putnams.co.uk/collections/pressure-relief/products/sero-pressure-cushion-dr-huff-cut-out  (All of their cushions with the various placed cut outs are shown at the bottom of the webpage - to include one that has a cut out for the coccyx.)


Last edited by Fielder on Sat Aug 22, 2015 4:04 pm; edited 1 time in total

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Re: Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Post  PainBlogger on Sat Aug 22, 2015 3:56 pm

Good to know. Thanks for the info Smile

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Re: Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Post  Fielder on Sat Aug 22, 2015 4:06 pm

You're welcome Smile

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Re: Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Post  PainBlogger on Mon Aug 24, 2015 9:04 am

I decided to order one of these cushions (the same one as you, Fielder, 3 inches, standard, Dr Huff). At the moment I use a ring cushion when I have to sit on a hard chair that I can't slouch in (which is only for the occasional meal out or in other people's houses). The ring cushion isn't quite the right shape and leaves me with sore thighs. Hopefully this one will spread the pressure more evenly. I like the fact that it comes with a discreet cover.

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Re: Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Post  Fielder on Mon Aug 24, 2015 9:13 am

Hi PB

I've only just seen that Putnams do a version that's shaped for office type chairs which comes with the cut out shape of the buyer's choice (or no cut out at all if wished) http://putnams.co.uk/collections/pressure-relief/products/sero-pressure-office-cushion  I'm thinking of buying one with the Dr Huff cut out to use in the car as I think it will fit the seat better.  

I really hope it helps you PB.  Cushions aren't a 'one size fits all' but I've found this one good and have read elsewhere that others with vulvodynia and pudendal nerve neuralgia have too.

Fielder

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Re: Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Post  PainBlogger on Thu Aug 27, 2015 2:36 pm

My cushion has arrived. I'm really impressed with the delivery speed, packaging and discreetness of the supplied cover, which means the cut out isn't obvious unless the cushion is held up close or sat on (obviously!). Very Happy

I definitely think it will be kinder on the backs of my legs/pelvis. I'll try it out properly next week when out for a meal. The integral air pockets surface texture may take a bit of getting used to but I can see how it lets air circulate and won't be so hot as foam can be otherwise. I assume the bumpy eggbox type side is supposed to be uppermost?

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Re: Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Post  Fielder on Thu Aug 27, 2015 3:02 pm

Hi PB,

Yes the bumpy 'eggbox' side does go uppermost - I'm finding that the eggbox undulations help spread my weight and thus the pressure - a bit like castellated foam does on mattresses and cushions used for pressure/bed sores.  This illustrates what I mean re 'castellations', in case you haven't come across them before : http://directhealthcareservices.co.uk/products/dyna-pad-cushion

I hope you find it good and you enjoy your meal out.  I wouldn't be without my 'Dr Huff' now Smile

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Re: Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Post  Fielder on Wed Oct 07, 2015 7:22 pm

Just thought I'd post a general follow up to say that a few weeks back I bought another Putnams Dr Huff cushion to use as a spare and ordered the 4" thick one (instead of another 3") and I'm finding it to be even more comfortable.  I don't think that any cushion is going to be perfect for this **** condition or, for that matter, suit everyone - not in my experience anyway - but I've found the Dr Huff cut out cushion to be pretty good for my vulvodynia (my pain being midline running from vagina to clitoris - excuse the detail, but I thought I'd mention the latter just in case it helps anyone decide whether or not a Dr Huff cushion might be right for them).


Last edited by Fielder on Wed Oct 07, 2015 11:09 pm; edited 1 time in total

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Re: Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Post  PainBlogger on Wed Oct 07, 2015 7:56 pm

Good to hear some feedback and that you're getting on well with the 4" cushion. I'll add that I've used mine (the thinner version) a few more times since I last posted, and it's a lot more comfortable than the doughnut cushion I had before Smile

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Re: Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Post  Fielder on Wed Oct 07, 2015 11:08 pm

That's good to know, PB - so glad it's of help Very Happy

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Re: Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

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