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» What's next?
Yesterday at 4:01 pm by jennyk2

» Pain management - what works for me
Yesterday at 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

» Custom made leggings?
Sun Apr 22, 2018 4:52 am by CatJones

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

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Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Post  Fielder on Sat Aug 01, 2015 4:17 pm

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies liking the Putnams 'bony parts' cushion and another lady called Jess who liked the Putnams 'Dr Huff' cushion a lot. (I tried to post a link to the two cushions but I understand that as I'm a new member I can't post links for 7 days - however, they're both on the Putnams' website under 'pressure relief cushions' if anyone wants to take a look.)

Any further views/experiences with these cushions would be gratefully received....I'm also not sure what depth of cushion to go for, i.e. the 3" or 4" of either of the two cushions.....The intention is for the cushion to be as portable as possible for me use it at hospital and GP appointments etc.  (Whereas at home I'm on a bed for most of the day due to my vulvodynia and fibromyalgia plus chronic fatigue.)

Thanks in advance for any advice you can give.  (Any other new cushion ideas also gratefully received Very Happy )

Fielder

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Re: Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Post  Fielder on Sat Aug 22, 2015 2:31 pm

I didn't get any replies re the Putnams cushions...So I just took a chance and ordered one; and it's really good.

I sent for the Dr Huff cushion because the cut out in it was smaller than in the Bony Parts cushion - I decided that to save money I could cut into the foam and make the hole larger and the same shape as the hole in the Bony Parts cushion if necessary.  I haven't needed to alter it though.

I bought the smaller of the two sizes available and opted for the 3" thickness; the 4" thick version would probably raise me up too high for most chairs in hospital and doctors' waiting rooms I think, although I do think the 4" might be even more comfortable and could be good on an armchair.

Putnams are in the UK but also ship to many parts of the world to include the USA http://putnams.co.uk/collections/pressure-relief/products/sero-pressure-cushion-dr-huff-cut-out  (All of their cushions with the various placed cut outs are shown at the bottom of the webpage - to include one that has a cut out for the coccyx.)


Last edited by Fielder on Sat Aug 22, 2015 4:04 pm; edited 1 time in total

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Re: Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Post  PainBlogger on Sat Aug 22, 2015 3:56 pm

Good to know. Thanks for the info Smile

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Re: Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Post  Fielder on Sat Aug 22, 2015 4:06 pm

You're welcome Smile

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Re: Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Post  PainBlogger on Mon Aug 24, 2015 9:04 am

I decided to order one of these cushions (the same one as you, Fielder, 3 inches, standard, Dr Huff). At the moment I use a ring cushion when I have to sit on a hard chair that I can't slouch in (which is only for the occasional meal out or in other people's houses). The ring cushion isn't quite the right shape and leaves me with sore thighs. Hopefully this one will spread the pressure more evenly. I like the fact that it comes with a discreet cover.

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Re: Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Post  Fielder on Mon Aug 24, 2015 9:13 am

Hi PB

I've only just seen that Putnams do a version that's shaped for office type chairs which comes with the cut out shape of the buyer's choice (or no cut out at all if wished) http://putnams.co.uk/collections/pressure-relief/products/sero-pressure-office-cushion  I'm thinking of buying one with the Dr Huff cut out to use in the car as I think it will fit the seat better.  

I really hope it helps you PB.  Cushions aren't a 'one size fits all' but I've found this one good and have read elsewhere that others with vulvodynia and pudendal nerve neuralgia have too.

Fielder

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Re: Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Post  PainBlogger on Thu Aug 27, 2015 2:36 pm

My cushion has arrived. I'm really impressed with the delivery speed, packaging and discreetness of the supplied cover, which means the cut out isn't obvious unless the cushion is held up close or sat on (obviously!). Very Happy

I definitely think it will be kinder on the backs of my legs/pelvis. I'll try it out properly next week when out for a meal. The integral air pockets surface texture may take a bit of getting used to but I can see how it lets air circulate and won't be so hot as foam can be otherwise. I assume the bumpy eggbox type side is supposed to be uppermost?

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Re: Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Post  Fielder on Thu Aug 27, 2015 3:02 pm

Hi PB,

Yes the bumpy 'eggbox' side does go uppermost - I'm finding that the eggbox undulations help spread my weight and thus the pressure - a bit like castellated foam does on mattresses and cushions used for pressure/bed sores.  This illustrates what I mean re 'castellations', in case you haven't come across them before : http://directhealthcareservices.co.uk/products/dyna-pad-cushion

I hope you find it good and you enjoy your meal out.  I wouldn't be without my 'Dr Huff' now Smile

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Re: Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Post  Fielder on Wed Oct 07, 2015 7:22 pm

Just thought I'd post a general follow up to say that a few weeks back I bought another Putnams Dr Huff cushion to use as a spare and ordered the 4" thick one (instead of another 3") and I'm finding it to be even more comfortable.  I don't think that any cushion is going to be perfect for this **** condition or, for that matter, suit everyone - not in my experience anyway - but I've found the Dr Huff cut out cushion to be pretty good for my vulvodynia (my pain being midline running from vagina to clitoris - excuse the detail, but I thought I'd mention the latter just in case it helps anyone decide whether or not a Dr Huff cushion might be right for them).


Last edited by Fielder on Wed Oct 07, 2015 11:09 pm; edited 1 time in total

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Re: Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Post  PainBlogger on Wed Oct 07, 2015 7:56 pm

Good to hear some feedback and that you're getting on well with the 4" cushion. I'll add that I've used mine (the thinner version) a few more times since I last posted, and it's a lot more comfortable than the doughnut cushion I had before Smile

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Re: Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Post  Fielder on Wed Oct 07, 2015 11:08 pm

That's good to know, PB - so glad it's of help Very Happy

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Re: Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

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