Log in

I forgot my password

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 19

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6


GABAPENTIN CREAM IN THE UK?

View previous topic View next topic Go down

GABAPENTIN CREAM IN THE UK?

Post  A2015 on Sat Aug 01, 2015 5:24 pm

Hello anyone in the UK,

I wanted to ask if anyone has been prescribed Gabapentin cream in the UK?

I found this PDF online, a presentation by Dr. Goldstein about how to treat VVS depending on what caused it (hormonal / infection):
Medical and Surgical Treatment of Sexual Pain http://www.issmsmsna2012.org/present/_pdf/1050.pdf

I am suffering with VVS for a second time. I have provoked VVS, my skin is red & subtly inflammed in the whole area that is sore, with occasional itching of the vulva area.

I had the same symptoms of VVS from 2012-13 when I was on the Pill. When I eventually came off it, I was 100% cured back to normal within a month.
After 18 perfect months, this February I developed infections & now have had VVS again since. Unfortunately, it doesn't look to be hormonal this time.

Gabapentin 2 - 6% topical is listed as one of the advised treatments for 'Acquired Neuroproliferative Vestibulodynia', when women report an onset after severe or recurrent candidaisis.

I know Dr. Goldstein is in the US & I gather different medications are offered in the US and UK, we seem to be a bit behind on treatments/knowledge of this condition I think.

Has anyone been prescribed this in the UK? I am based in London.

Thank you so much for any responses.

A2015


A2015

Posts : 53
Join date : 2015-05-21

View user profile

Back to top Go down

Re: GABAPENTIN CREAM IN THE UK?

Post  PainBlogger on Sat Aug 01, 2015 7:25 pm

I've not been offered any topical 'nerve calming creams' at any appointments. Furthermore, until I had to give up work I was employed in pharmacy and I've never seen a prescription for any creams containing antidepressants or gabapentin/pregabalin and the like. It's possible they could be obtained in the UK on a specific patient basis - i.e. would be made up specifically for a patient by a specials manufacturing company that the chemist would order it from. But to my knowledge (albeit a couple of years out of date now) there are no ready made creams of such like available in the UK. If anyone knows differently, hopefully they can chime in. Sorry that's probably not the answer you are looking for Neutral I agree that the medical professional in the UK does seem to be behind the states. But at least we can get most things prescribed on the NHS rather than have to worry about insurane coverage or paying cost price. That must be extra stressful.

I hope you find something that helps soon.

PainBlogger

Posts : 212
Join date : 2015-07-27

View user profile

Back to top Go down

Re: GABAPENTIN CREAM IN THE UK?

Post  MensRea on Sun Aug 02, 2015 10:51 am

If you go private the doctor can write you the prescription. However, a small tube of that cream costs 100 pounds :/ I have ordered my own cream from my country, i have a friend who is a pharmacist, but he couldn't obtain the main substance, and he just smashed the gabapentin's pills and put it in the cream. The cream didn't help much with my provoked pain, but it reduced the unprovoked pain a lot. However, i applied it only for a month. If you are able to find someone who can make the cream with the main substance it would be much more effective. You can show to your doctor this article: http://www.ncbi.nlm.nih.gov/pubmed/18757655

MensRea

Posts : 29
Join date : 2015-04-20

View user profile

Back to top Go down

Re: GABAPENTIN CREAM IN THE UK?

Post  MensRea on Wed Aug 12, 2015 2:22 am

UPDATE: The unprovoked pain is almost gone! Also, i don't feel pain during urination anymore and the provoked pain is much better! I will continue applying the cream for another 4 months to see how far will go.

MensRea

Posts : 29
Join date : 2015-04-20

View user profile

Back to top Go down

Re: GABAPENTIN CREAM IN THE UK?

Post  Sponsored content


Sponsored content


Back to top Go down

View previous topic View next topic Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum