Log in

I forgot my password

Latest topics
» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Vestibulectomy
Sun Aug 13, 2017 9:54 am by infinitelywondering

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


GABAPENTIN CREAM IN THE UK?

View previous topic View next topic Go down

GABAPENTIN CREAM IN THE UK?

Post  A2015 on Sat Aug 01, 2015 5:24 pm

Hello anyone in the UK,

I wanted to ask if anyone has been prescribed Gabapentin cream in the UK?

I found this PDF online, a presentation by Dr. Goldstein about how to treat VVS depending on what caused it (hormonal / infection):
Medical and Surgical Treatment of Sexual Pain http://www.issmsmsna2012.org/present/_pdf/1050.pdf

I am suffering with VVS for a second time. I have provoked VVS, my skin is red & subtly inflammed in the whole area that is sore, with occasional itching of the vulva area.

I had the same symptoms of VVS from 2012-13 when I was on the Pill. When I eventually came off it, I was 100% cured back to normal within a month.
After 18 perfect months, this February I developed infections & now have had VVS again since. Unfortunately, it doesn't look to be hormonal this time.

Gabapentin 2 - 6% topical is listed as one of the advised treatments for 'Acquired Neuroproliferative Vestibulodynia', when women report an onset after severe or recurrent candidaisis.

I know Dr. Goldstein is in the US & I gather different medications are offered in the US and UK, we seem to be a bit behind on treatments/knowledge of this condition I think.

Has anyone been prescribed this in the UK? I am based in London.

Thank you so much for any responses.

A2015


A2015

Posts : 53
Join date : 2015-05-21

View user profile

Back to top Go down

Re: GABAPENTIN CREAM IN THE UK?

Post  PainBlogger on Sat Aug 01, 2015 7:25 pm

I've not been offered any topical 'nerve calming creams' at any appointments. Furthermore, until I had to give up work I was employed in pharmacy and I've never seen a prescription for any creams containing antidepressants or gabapentin/pregabalin and the like. It's possible they could be obtained in the UK on a specific patient basis - i.e. would be made up specifically for a patient by a specials manufacturing company that the chemist would order it from. But to my knowledge (albeit a couple of years out of date now) there are no ready made creams of such like available in the UK. If anyone knows differently, hopefully they can chime in. Sorry that's probably not the answer you are looking for Neutral I agree that the medical professional in the UK does seem to be behind the states. But at least we can get most things prescribed on the NHS rather than have to worry about insurane coverage or paying cost price. That must be extra stressful.

I hope you find something that helps soon.

PainBlogger

Posts : 214
Join date : 2015-07-27

View user profile

Back to top Go down

Re: GABAPENTIN CREAM IN THE UK?

Post  MensRea on Sun Aug 02, 2015 10:51 am

If you go private the doctor can write you the prescription. However, a small tube of that cream costs 100 pounds :/ I have ordered my own cream from my country, i have a friend who is a pharmacist, but he couldn't obtain the main substance, and he just smashed the gabapentin's pills and put it in the cream. The cream didn't help much with my provoked pain, but it reduced the unprovoked pain a lot. However, i applied it only for a month. If you are able to find someone who can make the cream with the main substance it would be much more effective. You can show to your doctor this article: http://www.ncbi.nlm.nih.gov/pubmed/18757655

MensRea

Posts : 29
Join date : 2015-04-20

View user profile

Back to top Go down

Re: GABAPENTIN CREAM IN THE UK?

Post  MensRea on Wed Aug 12, 2015 2:22 am

UPDATE: The unprovoked pain is almost gone! Also, i don't feel pain during urination anymore and the provoked pain is much better! I will continue applying the cream for another 4 months to see how far will go.

MensRea

Posts : 29
Join date : 2015-04-20

View user profile

Back to top Go down

Re: GABAPENTIN CREAM IN THE UK?

Post  Sponsored content


Sponsored content


Back to top Go down

View previous topic View next topic Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum