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Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

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7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5


GABAPENTIN CREAM IN THE UK?

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GABAPENTIN CREAM IN THE UK?

Post  A2015 on Sat Aug 01, 2015 5:24 pm

Hello anyone in the UK,

I wanted to ask if anyone has been prescribed Gabapentin cream in the UK?

I found this PDF online, a presentation by Dr. Goldstein about how to treat VVS depending on what caused it (hormonal / infection):
Medical and Surgical Treatment of Sexual Pain http://www.issmsmsna2012.org/present/_pdf/1050.pdf

I am suffering with VVS for a second time. I have provoked VVS, my skin is red & subtly inflammed in the whole area that is sore, with occasional itching of the vulva area.

I had the same symptoms of VVS from 2012-13 when I was on the Pill. When I eventually came off it, I was 100% cured back to normal within a month.
After 18 perfect months, this February I developed infections & now have had VVS again since. Unfortunately, it doesn't look to be hormonal this time.

Gabapentin 2 - 6% topical is listed as one of the advised treatments for 'Acquired Neuroproliferative Vestibulodynia', when women report an onset after severe or recurrent candidaisis.

I know Dr. Goldstein is in the US & I gather different medications are offered in the US and UK, we seem to be a bit behind on treatments/knowledge of this condition I think.

Has anyone been prescribed this in the UK? I am based in London.

Thank you so much for any responses.

A2015


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Re: GABAPENTIN CREAM IN THE UK?

Post  PainBlogger on Sat Aug 01, 2015 7:25 pm

I've not been offered any topical 'nerve calming creams' at any appointments. Furthermore, until I had to give up work I was employed in pharmacy and I've never seen a prescription for any creams containing antidepressants or gabapentin/pregabalin and the like. It's possible they could be obtained in the UK on a specific patient basis - i.e. would be made up specifically for a patient by a specials manufacturing company that the chemist would order it from. But to my knowledge (albeit a couple of years out of date now) there are no ready made creams of such like available in the UK. If anyone knows differently, hopefully they can chime in. Sorry that's probably not the answer you are looking for Neutral I agree that the medical professional in the UK does seem to be behind the states. But at least we can get most things prescribed on the NHS rather than have to worry about insurane coverage or paying cost price. That must be extra stressful.

I hope you find something that helps soon.

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Re: GABAPENTIN CREAM IN THE UK?

Post  MensRea on Sun Aug 02, 2015 10:51 am

If you go private the doctor can write you the prescription. However, a small tube of that cream costs 100 pounds :/ I have ordered my own cream from my country, i have a friend who is a pharmacist, but he couldn't obtain the main substance, and he just smashed the gabapentin's pills and put it in the cream. The cream didn't help much with my provoked pain, but it reduced the unprovoked pain a lot. However, i applied it only for a month. If you are able to find someone who can make the cream with the main substance it would be much more effective. You can show to your doctor this article: http://www.ncbi.nlm.nih.gov/pubmed/18757655

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Re: GABAPENTIN CREAM IN THE UK?

Post  MensRea on Wed Aug 12, 2015 2:22 am

UPDATE: The unprovoked pain is almost gone! Also, i don't feel pain during urination anymore and the provoked pain is much better! I will continue applying the cream for another 4 months to see how far will go.

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Re: GABAPENTIN CREAM IN THE UK?

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