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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 7

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6


GABAPENTIN CREAM IN THE UK?

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GABAPENTIN CREAM IN THE UK?

Post  A2015 on Sat Aug 01, 2015 5:24 pm

Hello anyone in the UK,

I wanted to ask if anyone has been prescribed Gabapentin cream in the UK?

I found this PDF online, a presentation by Dr. Goldstein about how to treat VVS depending on what caused it (hormonal / infection):
Medical and Surgical Treatment of Sexual Pain http://www.issmsmsna2012.org/present/_pdf/1050.pdf

I am suffering with VVS for a second time. I have provoked VVS, my skin is red & subtly inflammed in the whole area that is sore, with occasional itching of the vulva area.

I had the same symptoms of VVS from 2012-13 when I was on the Pill. When I eventually came off it, I was 100% cured back to normal within a month.
After 18 perfect months, this February I developed infections & now have had VVS again since. Unfortunately, it doesn't look to be hormonal this time.

Gabapentin 2 - 6% topical is listed as one of the advised treatments for 'Acquired Neuroproliferative Vestibulodynia', when women report an onset after severe or recurrent candidaisis.

I know Dr. Goldstein is in the US & I gather different medications are offered in the US and UK, we seem to be a bit behind on treatments/knowledge of this condition I think.

Has anyone been prescribed this in the UK? I am based in London.

Thank you so much for any responses.

A2015


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Re: GABAPENTIN CREAM IN THE UK?

Post  PainBlogger on Sat Aug 01, 2015 7:25 pm

I've not been offered any topical 'nerve calming creams' at any appointments. Furthermore, until I had to give up work I was employed in pharmacy and I've never seen a prescription for any creams containing antidepressants or gabapentin/pregabalin and the like. It's possible they could be obtained in the UK on a specific patient basis - i.e. would be made up specifically for a patient by a specials manufacturing company that the chemist would order it from. But to my knowledge (albeit a couple of years out of date now) there are no ready made creams of such like available in the UK. If anyone knows differently, hopefully they can chime in. Sorry that's probably not the answer you are looking for Neutral I agree that the medical professional in the UK does seem to be behind the states. But at least we can get most things prescribed on the NHS rather than have to worry about insurane coverage or paying cost price. That must be extra stressful.

I hope you find something that helps soon.

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Re: GABAPENTIN CREAM IN THE UK?

Post  MensRea on Sun Aug 02, 2015 10:51 am

If you go private the doctor can write you the prescription. However, a small tube of that cream costs 100 pounds :/ I have ordered my own cream from my country, i have a friend who is a pharmacist, but he couldn't obtain the main substance, and he just smashed the gabapentin's pills and put it in the cream. The cream didn't help much with my provoked pain, but it reduced the unprovoked pain a lot. However, i applied it only for a month. If you are able to find someone who can make the cream with the main substance it would be much more effective. You can show to your doctor this article: http://www.ncbi.nlm.nih.gov/pubmed/18757655

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Re: GABAPENTIN CREAM IN THE UK?

Post  MensRea on Wed Aug 12, 2015 2:22 am

UPDATE: The unprovoked pain is almost gone! Also, i don't feel pain during urination anymore and the provoked pain is much better! I will continue applying the cream for another 4 months to see how far will go.

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Re: GABAPENTIN CREAM IN THE UK?

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