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Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

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7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5


pudental neuralgia

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pudental neuralgia

Post  sailor_moon on Sat Aug 08, 2015 9:48 pm

Hi ladies;

Has anyone suffered pudental neuralgia? My doctor is thinking I may have it given my symptoms. It kind of makes sense coz my back is f*cked, I get hip and back pain. I was doing a lot of exercise to try and lose weight when all this started so I could have easily injured myself.

I said how does it work for me to have pudental neuralgia if I get the most relief on my period? He said on your period the nerves change (makes sense, your body would have to relax more to release the period itself) and the PH levels change which also affects nerves. Apart from nerves he said I might need some progesterone for my screwed up hormone levels.

Anyway, I'm getting a nerve block next week to test the theory. Not nice...but hey, I have had 2 biopsies done there so this should be a breeze in comparison. ..I hope!

Any advice would be much appreciated. Xo

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Re: pudental neuralgia

Post  mikan92 on Mon Aug 10, 2015 8:45 am

Hey,

Suspecting pudental neuralgia for myself too! Going to see a specialist (hopefully soon) and ask her about that. Hopefully the nerve block goes well and please keep me updated on how it goes Smile It shouldn't be too uncomfortable I hope?

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Re: pudental neuralgia

Post  sailor_moon on Mon Aug 10, 2015 8:48 am

Well I looked up what generally happens and it is an injection INSIDE the vagina!! :l not looking forward to it if that is what exactly is going to happen! I'll let you know how it goes!
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Re: pudental neuralgia

Post  WaahwaahUK on Thu Aug 13, 2015 5:30 pm

Hi sailor moon. I have suspected pudendal nerve irritation. Unsure if this is similar or same as pudendal neuralgia.... However osteopathy is a route I'm trying in conjunction with nortriptyline. Early days, but seems promising. I can totally understand your fear around the nerve block. But if it helps you'll know what you're dealing with.

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Re: pudental neuralgia

Post  mikan92 on Fri Aug 14, 2015 6:08 am

Hi ladies!

I've seen a physio yesterday and she suspects pudental neuralgia for me too, but am waiting to see a specialist to get confirmed diagnosis. She said the doctor would probably give me endep (ami) in low dose to calm down the nerves first before doing stretches.

To Waahwaah, how's your treatment going? Do you mind sharing what does osteopathy do? Am thinking of doing acupuncture too if that helps with pain related to nerves.

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Re: pudental neuralgia

Post  sailor_moon on Fri Aug 14, 2015 10:33 am

Well, no nerve block today because.....I have tested positive for yeast!! For the first time in 2 and a half years, I have tested positive for candida.

He can't do a nerve block with candida present.

Now, here's the thing, in the past I took fluconazole for 6 weeks straight, every single day. Made no difference to my symptoms. However I was vomiting almost every day due to chronic gastritis, so maybe it did not work for that reason?

Doctor said this could be the cause for my vulvodynia or I could have just gotten a yeast infection on top of vulvodynia, but my symptoms have still been the same as always.

On top of fluconazole once a week for 2 weeks, after that I have to try Valium up the vag to see if that makes a difference.

But I truly feel a severe deep rooted yeast is the culprit! It's just treating it that's gonna be hard!
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Re: pudental neuralgia

Post  WaahwaahUK on Fri Aug 14, 2015 5:43 pm

Wow that's an interesting development! I took Fluconazole 3 doses one every 72 hours but it didn't help me. I've never tested positive for yeast though. Good luck!

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Re: pudental neuralgia

Post  WaahwaahUK on Fri Aug 14, 2015 5:47 pm

Hi mikan92 I really hope the Ami works for you. I'm on nortriptyline which is same drug family I believe. Only been on it for a few days though. My osteopath is working on my pelvis and the pudendal nerve specifically. I'm finding I'm in a lot of pain after treatment but its a different pain - hard to describe. Almost muscle pain. I think he's finally getting to points that have been so tense for so long. I'm also doing stretches. Finding them easier each day. I do feel it's doing something. Haven't tried accupuncture but certainly curious about it.

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Re: pudental neuralgia

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