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» What's next?
Tue Apr 24, 2018 4:01 pm by jennyk2

» Pain management - what works for me
Tue Apr 24, 2018 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

» Custom made leggings?
Sun Apr 22, 2018 4:52 am by CatJones

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


pudental neuralgia

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pudental neuralgia

Post  sailor_moon on Sat Aug 08, 2015 9:48 pm

Hi ladies;

Has anyone suffered pudental neuralgia? My doctor is thinking I may have it given my symptoms. It kind of makes sense coz my back is f*cked, I get hip and back pain. I was doing a lot of exercise to try and lose weight when all this started so I could have easily injured myself.

I said how does it work for me to have pudental neuralgia if I get the most relief on my period? He said on your period the nerves change (makes sense, your body would have to relax more to release the period itself) and the PH levels change which also affects nerves. Apart from nerves he said I might need some progesterone for my screwed up hormone levels.

Anyway, I'm getting a nerve block next week to test the theory. Not nice...but hey, I have had 2 biopsies done there so this should be a breeze in comparison. ..I hope!

Any advice would be much appreciated. Xo

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Re: pudental neuralgia

Post  mikan92 on Mon Aug 10, 2015 8:45 am

Hey,

Suspecting pudental neuralgia for myself too! Going to see a specialist (hopefully soon) and ask her about that. Hopefully the nerve block goes well and please keep me updated on how it goes Smile It shouldn't be too uncomfortable I hope?

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Re: pudental neuralgia

Post  sailor_moon on Mon Aug 10, 2015 8:48 am

Well I looked up what generally happens and it is an injection INSIDE the vagina!! :l not looking forward to it if that is what exactly is going to happen! I'll let you know how it goes!
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Re: pudental neuralgia

Post  WaahwaahUK on Thu Aug 13, 2015 5:30 pm

Hi sailor moon. I have suspected pudendal nerve irritation. Unsure if this is similar or same as pudendal neuralgia.... However osteopathy is a route I'm trying in conjunction with nortriptyline. Early days, but seems promising. I can totally understand your fear around the nerve block. But if it helps you'll know what you're dealing with.

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Re: pudental neuralgia

Post  mikan92 on Fri Aug 14, 2015 6:08 am

Hi ladies!

I've seen a physio yesterday and she suspects pudental neuralgia for me too, but am waiting to see a specialist to get confirmed diagnosis. She said the doctor would probably give me endep (ami) in low dose to calm down the nerves first before doing stretches.

To Waahwaah, how's your treatment going? Do you mind sharing what does osteopathy do? Am thinking of doing acupuncture too if that helps with pain related to nerves.

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Re: pudental neuralgia

Post  sailor_moon on Fri Aug 14, 2015 10:33 am

Well, no nerve block today because.....I have tested positive for yeast!! For the first time in 2 and a half years, I have tested positive for candida.

He can't do a nerve block with candida present.

Now, here's the thing, in the past I took fluconazole for 6 weeks straight, every single day. Made no difference to my symptoms. However I was vomiting almost every day due to chronic gastritis, so maybe it did not work for that reason?

Doctor said this could be the cause for my vulvodynia or I could have just gotten a yeast infection on top of vulvodynia, but my symptoms have still been the same as always.

On top of fluconazole once a week for 2 weeks, after that I have to try Valium up the vag to see if that makes a difference.

But I truly feel a severe deep rooted yeast is the culprit! It's just treating it that's gonna be hard!
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Re: pudental neuralgia

Post  WaahwaahUK on Fri Aug 14, 2015 5:43 pm

Wow that's an interesting development! I took Fluconazole 3 doses one every 72 hours but it didn't help me. I've never tested positive for yeast though. Good luck!

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Re: pudental neuralgia

Post  WaahwaahUK on Fri Aug 14, 2015 5:47 pm

Hi mikan92 I really hope the Ami works for you. I'm on nortriptyline which is same drug family I believe. Only been on it for a few days though. My osteopath is working on my pelvis and the pudendal nerve specifically. I'm finding I'm in a lot of pain after treatment but its a different pain - hard to describe. Almost muscle pain. I think he's finally getting to points that have been so tense for so long. I'm also doing stretches. Finding them easier each day. I do feel it's doing something. Haven't tried accupuncture but certainly curious about it.

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Re: pudental neuralgia

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