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» Acupuncture advice please
Today at 2:25 am by ryn207

» New and need some help
Today at 12:49 am by Sad

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

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MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

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NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4


pudental neuralgia

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pudental neuralgia

Post  sailor_moon on Sat Aug 08, 2015 9:48 pm

Hi ladies;

Has anyone suffered pudental neuralgia? My doctor is thinking I may have it given my symptoms. It kind of makes sense coz my back is f*cked, I get hip and back pain. I was doing a lot of exercise to try and lose weight when all this started so I could have easily injured myself.

I said how does it work for me to have pudental neuralgia if I get the most relief on my period? He said on your period the nerves change (makes sense, your body would have to relax more to release the period itself) and the PH levels change which also affects nerves. Apart from nerves he said I might need some progesterone for my screwed up hormone levels.

Anyway, I'm getting a nerve block next week to test the theory. Not nice...but hey, I have had 2 biopsies done there so this should be a breeze in comparison. ..I hope!

Any advice would be much appreciated. Xo

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Re: pudental neuralgia

Post  mikan92 on Mon Aug 10, 2015 8:45 am

Hey,

Suspecting pudental neuralgia for myself too! Going to see a specialist (hopefully soon) and ask her about that. Hopefully the nerve block goes well and please keep me updated on how it goes Smile It shouldn't be too uncomfortable I hope?

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Re: pudental neuralgia

Post  sailor_moon on Mon Aug 10, 2015 8:48 am

Well I looked up what generally happens and it is an injection INSIDE the vagina!! :l not looking forward to it if that is what exactly is going to happen! I'll let you know how it goes!
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Re: pudental neuralgia

Post  WaahwaahUK on Thu Aug 13, 2015 5:30 pm

Hi sailor moon. I have suspected pudendal nerve irritation. Unsure if this is similar or same as pudendal neuralgia.... However osteopathy is a route I'm trying in conjunction with nortriptyline. Early days, but seems promising. I can totally understand your fear around the nerve block. But if it helps you'll know what you're dealing with.

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Re: pudental neuralgia

Post  mikan92 on Fri Aug 14, 2015 6:08 am

Hi ladies!

I've seen a physio yesterday and she suspects pudental neuralgia for me too, but am waiting to see a specialist to get confirmed diagnosis. She said the doctor would probably give me endep (ami) in low dose to calm down the nerves first before doing stretches.

To Waahwaah, how's your treatment going? Do you mind sharing what does osteopathy do? Am thinking of doing acupuncture too if that helps with pain related to nerves.

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Re: pudental neuralgia

Post  sailor_moon on Fri Aug 14, 2015 10:33 am

Well, no nerve block today because.....I have tested positive for yeast!! For the first time in 2 and a half years, I have tested positive for candida.

He can't do a nerve block with candida present.

Now, here's the thing, in the past I took fluconazole for 6 weeks straight, every single day. Made no difference to my symptoms. However I was vomiting almost every day due to chronic gastritis, so maybe it did not work for that reason?

Doctor said this could be the cause for my vulvodynia or I could have just gotten a yeast infection on top of vulvodynia, but my symptoms have still been the same as always.

On top of fluconazole once a week for 2 weeks, after that I have to try Valium up the vag to see if that makes a difference.

But I truly feel a severe deep rooted yeast is the culprit! It's just treating it that's gonna be hard!
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Re: pudental neuralgia

Post  WaahwaahUK on Fri Aug 14, 2015 5:43 pm

Wow that's an interesting development! I took Fluconazole 3 doses one every 72 hours but it didn't help me. I've never tested positive for yeast though. Good luck!

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Re: pudental neuralgia

Post  WaahwaahUK on Fri Aug 14, 2015 5:47 pm

Hi mikan92 I really hope the Ami works for you. I'm on nortriptyline which is same drug family I believe. Only been on it for a few days though. My osteopath is working on my pelvis and the pudendal nerve specifically. I'm finding I'm in a lot of pain after treatment but its a different pain - hard to describe. Almost muscle pain. I think he's finally getting to points that have been so tense for so long. I'm also doing stretches. Finding them easier each day. I do feel it's doing something. Haven't tried accupuncture but certainly curious about it.

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Re: pudental neuralgia

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