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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6


pudental neuralgia

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pudental neuralgia

Post  sailor_moon on Sat Aug 08, 2015 9:48 pm

Hi ladies;

Has anyone suffered pudental neuralgia? My doctor is thinking I may have it given my symptoms. It kind of makes sense coz my back is f*cked, I get hip and back pain. I was doing a lot of exercise to try and lose weight when all this started so I could have easily injured myself.

I said how does it work for me to have pudental neuralgia if I get the most relief on my period? He said on your period the nerves change (makes sense, your body would have to relax more to release the period itself) and the PH levels change which also affects nerves. Apart from nerves he said I might need some progesterone for my screwed up hormone levels.

Anyway, I'm getting a nerve block next week to test the theory. Not nice...but hey, I have had 2 biopsies done there so this should be a breeze in comparison. ..I hope!

Any advice would be much appreciated. Xo

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Re: pudental neuralgia

Post  mikan92 on Mon Aug 10, 2015 8:45 am

Hey,

Suspecting pudental neuralgia for myself too! Going to see a specialist (hopefully soon) and ask her about that. Hopefully the nerve block goes well and please keep me updated on how it goes Smile It shouldn't be too uncomfortable I hope?

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Re: pudental neuralgia

Post  sailor_moon on Mon Aug 10, 2015 8:48 am

Well I looked up what generally happens and it is an injection INSIDE the vagina!! :l not looking forward to it if that is what exactly is going to happen! I'll let you know how it goes!
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Re: pudental neuralgia

Post  WaahwaahUK on Thu Aug 13, 2015 5:30 pm

Hi sailor moon. I have suspected pudendal nerve irritation. Unsure if this is similar or same as pudendal neuralgia.... However osteopathy is a route I'm trying in conjunction with nortriptyline. Early days, but seems promising. I can totally understand your fear around the nerve block. But if it helps you'll know what you're dealing with.

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Re: pudental neuralgia

Post  mikan92 on Fri Aug 14, 2015 6:08 am

Hi ladies!

I've seen a physio yesterday and she suspects pudental neuralgia for me too, but am waiting to see a specialist to get confirmed diagnosis. She said the doctor would probably give me endep (ami) in low dose to calm down the nerves first before doing stretches.

To Waahwaah, how's your treatment going? Do you mind sharing what does osteopathy do? Am thinking of doing acupuncture too if that helps with pain related to nerves.

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Re: pudental neuralgia

Post  sailor_moon on Fri Aug 14, 2015 10:33 am

Well, no nerve block today because.....I have tested positive for yeast!! For the first time in 2 and a half years, I have tested positive for candida.

He can't do a nerve block with candida present.

Now, here's the thing, in the past I took fluconazole for 6 weeks straight, every single day. Made no difference to my symptoms. However I was vomiting almost every day due to chronic gastritis, so maybe it did not work for that reason?

Doctor said this could be the cause for my vulvodynia or I could have just gotten a yeast infection on top of vulvodynia, but my symptoms have still been the same as always.

On top of fluconazole once a week for 2 weeks, after that I have to try Valium up the vag to see if that makes a difference.

But I truly feel a severe deep rooted yeast is the culprit! It's just treating it that's gonna be hard!
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Re: pudental neuralgia

Post  WaahwaahUK on Fri Aug 14, 2015 5:43 pm

Wow that's an interesting development! I took Fluconazole 3 doses one every 72 hours but it didn't help me. I've never tested positive for yeast though. Good luck!

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Re: pudental neuralgia

Post  WaahwaahUK on Fri Aug 14, 2015 5:47 pm

Hi mikan92 I really hope the Ami works for you. I'm on nortriptyline which is same drug family I believe. Only been on it for a few days though. My osteopath is working on my pelvis and the pudendal nerve specifically. I'm finding I'm in a lot of pain after treatment but its a different pain - hard to describe. Almost muscle pain. I think he's finally getting to points that have been so tense for so long. I'm also doing stretches. Finding them easier each day. I do feel it's doing something. Haven't tried accupuncture but certainly curious about it.

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Re: pudental neuralgia

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