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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

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Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

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New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6


pudental neuralgia

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pudental neuralgia

Post  sailor_moon on Sat Aug 08, 2015 9:48 pm

Hi ladies;

Has anyone suffered pudental neuralgia? My doctor is thinking I may have it given my symptoms. It kind of makes sense coz my back is f*cked, I get hip and back pain. I was doing a lot of exercise to try and lose weight when all this started so I could have easily injured myself.

I said how does it work for me to have pudental neuralgia if I get the most relief on my period? He said on your period the nerves change (makes sense, your body would have to relax more to release the period itself) and the PH levels change which also affects nerves. Apart from nerves he said I might need some progesterone for my screwed up hormone levels.

Anyway, I'm getting a nerve block next week to test the theory. Not nice...but hey, I have had 2 biopsies done there so this should be a breeze in comparison. ..I hope!

Any advice would be much appreciated. Xo

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Re: pudental neuralgia

Post  mikan92 on Mon Aug 10, 2015 8:45 am

Hey,

Suspecting pudental neuralgia for myself too! Going to see a specialist (hopefully soon) and ask her about that. Hopefully the nerve block goes well and please keep me updated on how it goes Smile It shouldn't be too uncomfortable I hope?

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Re: pudental neuralgia

Post  sailor_moon on Mon Aug 10, 2015 8:48 am

Well I looked up what generally happens and it is an injection INSIDE the vagina!! :l not looking forward to it if that is what exactly is going to happen! I'll let you know how it goes!
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Re: pudental neuralgia

Post  WaahwaahUK on Thu Aug 13, 2015 5:30 pm

Hi sailor moon. I have suspected pudendal nerve irritation. Unsure if this is similar or same as pudendal neuralgia.... However osteopathy is a route I'm trying in conjunction with nortriptyline. Early days, but seems promising. I can totally understand your fear around the nerve block. But if it helps you'll know what you're dealing with.

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Re: pudental neuralgia

Post  mikan92 on Fri Aug 14, 2015 6:08 am

Hi ladies!

I've seen a physio yesterday and she suspects pudental neuralgia for me too, but am waiting to see a specialist to get confirmed diagnosis. She said the doctor would probably give me endep (ami) in low dose to calm down the nerves first before doing stretches.

To Waahwaah, how's your treatment going? Do you mind sharing what does osteopathy do? Am thinking of doing acupuncture too if that helps with pain related to nerves.

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Re: pudental neuralgia

Post  sailor_moon on Fri Aug 14, 2015 10:33 am

Well, no nerve block today because.....I have tested positive for yeast!! For the first time in 2 and a half years, I have tested positive for candida.

He can't do a nerve block with candida present.

Now, here's the thing, in the past I took fluconazole for 6 weeks straight, every single day. Made no difference to my symptoms. However I was vomiting almost every day due to chronic gastritis, so maybe it did not work for that reason?

Doctor said this could be the cause for my vulvodynia or I could have just gotten a yeast infection on top of vulvodynia, but my symptoms have still been the same as always.

On top of fluconazole once a week for 2 weeks, after that I have to try Valium up the vag to see if that makes a difference.

But I truly feel a severe deep rooted yeast is the culprit! It's just treating it that's gonna be hard!
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Re: pudental neuralgia

Post  WaahwaahUK on Fri Aug 14, 2015 5:43 pm

Wow that's an interesting development! I took Fluconazole 3 doses one every 72 hours but it didn't help me. I've never tested positive for yeast though. Good luck!

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Re: pudental neuralgia

Post  WaahwaahUK on Fri Aug 14, 2015 5:47 pm

Hi mikan92 I really hope the Ami works for you. I'm on nortriptyline which is same drug family I believe. Only been on it for a few days though. My osteopath is working on my pelvis and the pudendal nerve specifically. I'm finding I'm in a lot of pain after treatment but its a different pain - hard to describe. Almost muscle pain. I think he's finally getting to points that have been so tense for so long. I'm also doing stretches. Finding them easier each day. I do feel it's doing something. Haven't tried accupuncture but certainly curious about it.

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Re: pudental neuralgia

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