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» What's next?
Yesterday at 4:01 pm by jennyk2

» Pain management - what works for me
Yesterday at 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

» Custom made leggings?
Sun Apr 22, 2018 4:52 am by CatJones

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


Please Help! Only 16.

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Please Help! Only 16.

Post  SoHelpless on Sat Aug 15, 2015 1:06 am

Hello. Now I am new to this site and reading all these posts really make me want to burst into tears. Two years ago I started to feel a burning sensation down below. I thought it was urinal track infections. I was too scared to even step foot into the doctors then. So about three months ago I visited the doctor and told her all my symptoms. She just gave me some tablets for an infection even though my sample came back negative. I went again two weeks after from the most horrific pain I have ever experienced to the point where I would cry and have suicidal thoughts. She gave me a swab which I personally did myself and the tests came back all good. I was practical avoiding a physical but a month after that it got so bad that I just. I could not take it. I was severely depressed. I had a doctor examine me and she said she saw nothing!! I was so upset and angry because I feel it! I feel like something is there. I was given ibuprofen and paracetamol and took 12 in total a day which helped with the pain. The pain then went but a couple of days it came back. I can't do this anymore I really cant. I am going for a hospital examination from a urologist soon but I feel as if she will not find anything. I am on the verge of breaking. Please somebody give me advice anybody!! I feel all alone
..

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Re: Please Help! Only 16.

Post  MensRea on Sat Aug 15, 2015 3:55 am

Hey SoHelpless,
I am really sorry for what you are going through. It seems that your pain is unprovoked right? It's a constant pain no matter if its touched or not. Can you tell me where your pain is located? You said you thought is a urine infection, does this mean that the pain is located around the urethra? I am not a doctor Razz but i am asking you because my mother had exactly the same symptoms. She is currently in remission, since she managed to change her eating habits.

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Re: Please Help! Only 16.

Post  SoHelpless on Sat Aug 15, 2015 8:42 am

The pain seems to be located around my urethra and just below it.

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Re: Please Help! Only 16.

Post  SoHelpless on Sat Aug 15, 2015 9:01 am

Yes I believe my pain is unprovoked definitely. A lot of people here seem to find changing their diet helps but im only 16 and still live with my family and have to eat the same things as my Mum believes that the problem is mentally as there is nothing physically to see that could be wrong.

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Re: Please Help! Only 16.

Post  MensRea on Sun Aug 16, 2015 3:26 am

Ok, you told me the pain is unprovoked, but if you touch the area near of the urethra, does the pain increase? Do you have also painful urination? Sorry for the questions:P but i have also unprovoked pain near the urethra [my mother's pain is little bit different] and i try to understand whether you are experiencing the same problem.

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Re: Please Help! Only 16.

Post  SoHelpless on Sun Aug 16, 2015 4:47 am

Yes painful Urination and When I touch the area thr pain increases.

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Re: Please Help! Only 16.

Post  MensRea on Sun Aug 16, 2015 3:23 pm

We have exactly the same symptoms and believe me it's not in your mind. I have vestibulodynia, and my doctor told me that also the area near of my urethra is part of the problem. I don't know whether your diagnosis will be same as mine, but i suggest you to see urogynecologist. What helps me, is drinking a lot of water, i also take calcium magnesium citrate pills, you can find them online and also amitriptyline [you need a prescription from your doctor]. Amitriptyline pills helps a lot with the unprovoked pain. You only need to find someone who also believes that your pain is real.

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Re: Please Help! Only 16.

Post  SoHelpless on Sun Aug 16, 2015 7:56 pm

Thanks a lot! I have made a appointment to see one in November, a long wait but I will definitely try and see if those pills work. Quick question did your doctor straight away realise what it was? If so what signs was there?

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Re: Please Help! Only 16.

Post  MensRea on Sun Aug 16, 2015 8:47 pm

Yes she did! It was very easy for her to realise what the problem was, since i have also provoked vulvodynia in the opening of my vagina. However, i have vestibulodynia for 10 years, but the unprovoked pain near of my urethra appeared three years ago [steroid creams are killers!]. If i haven't provoked vulvodynia, it would be more difficult for her to understand the nature of my pain. I am using also a cream, gapabentin 6%, it helps a lot with the unprovoked pain, but you need to ask your doctor to include it in the medical prescription. Btw, don't forget, DRINK A LOT OF WATER.

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Re: Please Help! Only 16.

Post  SoHelpless on Sun Aug 16, 2015 9:03 pm

Thanks a lot. How do you feel now? Does it still effect you as much as it did? I'm only 16 and don't want to have to be in large amounts of pain constantly.

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Re: Please Help! Only 16.

Post  MensRea on Sun Aug 16, 2015 9:23 pm

Before the treatments it was very difficult to sleep or concentrate. I had constant pain all the time, it's been two months since i started the treatments and i don't experience any unprovoked pain anymore, only provoked. But even the provoked pain is not like before at all. I have to put a lot of pressure in that area in order to feel any pain. I am trying now to reduce to the minimum the provoked pain, it needs time, but at least it does not interfere with my daily routine.

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Re: Please Help! Only 16.

Post  SoHelpless on Sun Aug 16, 2015 9:27 pm

Wow that is amazing. I only wish I could hopefully become the same. I will deifnetely try those Pills and do all I can to get better. Thank you a lot, Really gave me hope that I can solve this problem. Smile.

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Re: Please Help! Only 16.

Post  MensRea on Sun Aug 16, 2015 9:35 pm

Ah and something else!! Don't wear underwear in bed! This is a very good advice not only for people who have vulvar pain, but for everybody. Btw if you live in London i can recommend you some doctors.

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Re: Please Help! Only 16.

Post  SoHelpless on Sun Aug 16, 2015 9:52 pm

I live very close to London! Please give me the centres and doctors names I would love to get some help if These symptoms persist.

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Re: Please Help! Only 16.

Post  MensRea on Sun Aug 16, 2015 10:12 pm

Inbox! Smile

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Helpless

Post  BpCookie on Fri Aug 21, 2015 3:26 pm

Hello hun, I totally feel for you. To be so young and have to go through this. Never give up hope. Fight on until you find a Dr. who can help you. I have a different problem called Vulva Lichen Simplex Chronicus which causes constant burning. At first I would lay in bed crying and wanting to die. I had went from Dr. to Dr., tried lotion, oils, ointments, meds............but I had no relief. So, I decided to do my own research on line. This helped a lot!!! I would bring the names of different medications that I hadn't yet tried and would give the list to my gyno to get her opinion. In doing on line research I found a really good specialist. So, never, ever give up because there is a Dr. out there that can help you.

Here are some of the things that I have had to do to help my pain. I ONLY use free and clear detergents (no perfumes or dyes) do not use bleach, I use sensitive skin body wash (no perfumes or dyes) and only use water to clean my vulva area. Do not use powders, deodorants or douches. USE A and D ointment after every time you use the restroom. This protects the skin. Sit on an ice pack for about 20 mins at a time. If possible wear skirts. Also I have a prescription ointment called Lidocaine 5% and it numbs the skin.

I hope this helps honey. Your not alone.

hugs to you

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Re: Please Help! Only 16.

Post  SoHelpless on Sat Aug 22, 2015 8:47 am

Thanks that means a lot to me. I won't give up as I refuse to continually live with this pain. Yes it is quite upsetting due to how young I am and I just feel conatantly depressed about it. I hope to solve this problem soon and thanks to this support and website I never feel alone no more and I am dealing with it a lot better. x

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16 TOO

Post  EverythingIsDifferentNow on Wed Sep 09, 2015 10:40 pm

I'm 16 too, I had vulvadnynia like you.
Things that are causing ur vulvadynia:
-something is physically wrong with your spine or pelvis
-your diet

I have wayyyy more advice if u want reply back and email me

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Re: Please Help! Only 16.

Post  KajalMehta on Mon Sep 14, 2015 9:13 am

Hey SoHelpless,
I thing this may cause of kidney stone. I suggest you to have Sonography test.
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Re: Please Help! Only 16.

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