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» Acupuncture advice please
Today at 2:25 am by ryn207

» New and need some help
Today at 12:49 am by Sad

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

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MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

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NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

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Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



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Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

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Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

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So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

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Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

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Please Help! Only 16.

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Please Help! Only 16.

Post  SoHelpless on Sat Aug 15, 2015 1:06 am

Hello. Now I am new to this site and reading all these posts really make me want to burst into tears. Two years ago I started to feel a burning sensation down below. I thought it was urinal track infections. I was too scared to even step foot into the doctors then. So about three months ago I visited the doctor and told her all my symptoms. She just gave me some tablets for an infection even though my sample came back negative. I went again two weeks after from the most horrific pain I have ever experienced to the point where I would cry and have suicidal thoughts. She gave me a swab which I personally did myself and the tests came back all good. I was practical avoiding a physical but a month after that it got so bad that I just. I could not take it. I was severely depressed. I had a doctor examine me and she said she saw nothing!! I was so upset and angry because I feel it! I feel like something is there. I was given ibuprofen and paracetamol and took 12 in total a day which helped with the pain. The pain then went but a couple of days it came back. I can't do this anymore I really cant. I am going for a hospital examination from a urologist soon but I feel as if she will not find anything. I am on the verge of breaking. Please somebody give me advice anybody!! I feel all alone
..

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Re: Please Help! Only 16.

Post  MensRea on Sat Aug 15, 2015 3:55 am

Hey SoHelpless,
I am really sorry for what you are going through. It seems that your pain is unprovoked right? It's a constant pain no matter if its touched or not. Can you tell me where your pain is located? You said you thought is a urine infection, does this mean that the pain is located around the urethra? I am not a doctor Razz but i am asking you because my mother had exactly the same symptoms. She is currently in remission, since she managed to change her eating habits.

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Re: Please Help! Only 16.

Post  SoHelpless on Sat Aug 15, 2015 8:42 am

The pain seems to be located around my urethra and just below it.

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Re: Please Help! Only 16.

Post  SoHelpless on Sat Aug 15, 2015 9:01 am

Yes I believe my pain is unprovoked definitely. A lot of people here seem to find changing their diet helps but im only 16 and still live with my family and have to eat the same things as my Mum believes that the problem is mentally as there is nothing physically to see that could be wrong.

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Re: Please Help! Only 16.

Post  MensRea on Sun Aug 16, 2015 3:26 am

Ok, you told me the pain is unprovoked, but if you touch the area near of the urethra, does the pain increase? Do you have also painful urination? Sorry for the questions:P but i have also unprovoked pain near the urethra [my mother's pain is little bit different] and i try to understand whether you are experiencing the same problem.

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Re: Please Help! Only 16.

Post  SoHelpless on Sun Aug 16, 2015 4:47 am

Yes painful Urination and When I touch the area thr pain increases.

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Re: Please Help! Only 16.

Post  MensRea on Sun Aug 16, 2015 3:23 pm

We have exactly the same symptoms and believe me it's not in your mind. I have vestibulodynia, and my doctor told me that also the area near of my urethra is part of the problem. I don't know whether your diagnosis will be same as mine, but i suggest you to see urogynecologist. What helps me, is drinking a lot of water, i also take calcium magnesium citrate pills, you can find them online and also amitriptyline [you need a prescription from your doctor]. Amitriptyline pills helps a lot with the unprovoked pain. You only need to find someone who also believes that your pain is real.

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Re: Please Help! Only 16.

Post  SoHelpless on Sun Aug 16, 2015 7:56 pm

Thanks a lot! I have made a appointment to see one in November, a long wait but I will definitely try and see if those pills work. Quick question did your doctor straight away realise what it was? If so what signs was there?

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Re: Please Help! Only 16.

Post  MensRea on Sun Aug 16, 2015 8:47 pm

Yes she did! It was very easy for her to realise what the problem was, since i have also provoked vulvodynia in the opening of my vagina. However, i have vestibulodynia for 10 years, but the unprovoked pain near of my urethra appeared three years ago [steroid creams are killers!]. If i haven't provoked vulvodynia, it would be more difficult for her to understand the nature of my pain. I am using also a cream, gapabentin 6%, it helps a lot with the unprovoked pain, but you need to ask your doctor to include it in the medical prescription. Btw, don't forget, DRINK A LOT OF WATER.

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Re: Please Help! Only 16.

Post  SoHelpless on Sun Aug 16, 2015 9:03 pm

Thanks a lot. How do you feel now? Does it still effect you as much as it did? I'm only 16 and don't want to have to be in large amounts of pain constantly.

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Re: Please Help! Only 16.

Post  MensRea on Sun Aug 16, 2015 9:23 pm

Before the treatments it was very difficult to sleep or concentrate. I had constant pain all the time, it's been two months since i started the treatments and i don't experience any unprovoked pain anymore, only provoked. But even the provoked pain is not like before at all. I have to put a lot of pressure in that area in order to feel any pain. I am trying now to reduce to the minimum the provoked pain, it needs time, but at least it does not interfere with my daily routine.

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Re: Please Help! Only 16.

Post  SoHelpless on Sun Aug 16, 2015 9:27 pm

Wow that is amazing. I only wish I could hopefully become the same. I will deifnetely try those Pills and do all I can to get better. Thank you a lot, Really gave me hope that I can solve this problem. Smile.

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Re: Please Help! Only 16.

Post  MensRea on Sun Aug 16, 2015 9:35 pm

Ah and something else!! Don't wear underwear in bed! This is a very good advice not only for people who have vulvar pain, but for everybody. Btw if you live in London i can recommend you some doctors.

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Re: Please Help! Only 16.

Post  SoHelpless on Sun Aug 16, 2015 9:52 pm

I live very close to London! Please give me the centres and doctors names I would love to get some help if These symptoms persist.

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Re: Please Help! Only 16.

Post  MensRea on Sun Aug 16, 2015 10:12 pm

Inbox! Smile

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Helpless

Post  BpCookie on Fri Aug 21, 2015 3:26 pm

Hello hun, I totally feel for you. To be so young and have to go through this. Never give up hope. Fight on until you find a Dr. who can help you. I have a different problem called Vulva Lichen Simplex Chronicus which causes constant burning. At first I would lay in bed crying and wanting to die. I had went from Dr. to Dr., tried lotion, oils, ointments, meds............but I had no relief. So, I decided to do my own research on line. This helped a lot!!! I would bring the names of different medications that I hadn't yet tried and would give the list to my gyno to get her opinion. In doing on line research I found a really good specialist. So, never, ever give up because there is a Dr. out there that can help you.

Here are some of the things that I have had to do to help my pain. I ONLY use free and clear detergents (no perfumes or dyes) do not use bleach, I use sensitive skin body wash (no perfumes or dyes) and only use water to clean my vulva area. Do not use powders, deodorants or douches. USE A and D ointment after every time you use the restroom. This protects the skin. Sit on an ice pack for about 20 mins at a time. If possible wear skirts. Also I have a prescription ointment called Lidocaine 5% and it numbs the skin.

I hope this helps honey. Your not alone.

hugs to you

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Re: Please Help! Only 16.

Post  SoHelpless on Sat Aug 22, 2015 8:47 am

Thanks that means a lot to me. I won't give up as I refuse to continually live with this pain. Yes it is quite upsetting due to how young I am and I just feel conatantly depressed about it. I hope to solve this problem soon and thanks to this support and website I never feel alone no more and I am dealing with it a lot better. x

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16 TOO

Post  EverythingIsDifferentNow on Wed Sep 09, 2015 10:40 pm

I'm 16 too, I had vulvadnynia like you.
Things that are causing ur vulvadynia:
-something is physically wrong with your spine or pelvis
-your diet

I have wayyyy more advice if u want reply back and email me

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Re: Please Help! Only 16.

Post  KajalMehta on Mon Sep 14, 2015 9:13 am

Hey SoHelpless,
I thing this may cause of kidney stone. I suggest you to have Sonography test.
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Re: Please Help! Only 16.

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