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» Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia
Yesterday at 8:15 pm by WVR00

» What helped (and practically cured) my Vulvodynia
Yesterday at 4:43 pm by Katiej

» How I cured my Vulvodynia!
Yesterday at 8:24 am by Katiej

» Amitriptyline given for vulvodyina pain
Sat Nov 18, 2017 11:33 pm by WVR00

» Needing some reassurance
Sat Nov 18, 2017 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Sat Nov 18, 2017 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Sat Nov 18, 2017 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

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Please Help! Only 16.

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Please Help! Only 16.

Post  SoHelpless on Sat Aug 15, 2015 1:06 am

Hello. Now I am new to this site and reading all these posts really make me want to burst into tears. Two years ago I started to feel a burning sensation down below. I thought it was urinal track infections. I was too scared to even step foot into the doctors then. So about three months ago I visited the doctor and told her all my symptoms. She just gave me some tablets for an infection even though my sample came back negative. I went again two weeks after from the most horrific pain I have ever experienced to the point where I would cry and have suicidal thoughts. She gave me a swab which I personally did myself and the tests came back all good. I was practical avoiding a physical but a month after that it got so bad that I just. I could not take it. I was severely depressed. I had a doctor examine me and she said she saw nothing!! I was so upset and angry because I feel it! I feel like something is there. I was given ibuprofen and paracetamol and took 12 in total a day which helped with the pain. The pain then went but a couple of days it came back. I can't do this anymore I really cant. I am going for a hospital examination from a urologist soon but I feel as if she will not find anything. I am on the verge of breaking. Please somebody give me advice anybody!! I feel all alone
..

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Re: Please Help! Only 16.

Post  MensRea on Sat Aug 15, 2015 3:55 am

Hey SoHelpless,
I am really sorry for what you are going through. It seems that your pain is unprovoked right? It's a constant pain no matter if its touched or not. Can you tell me where your pain is located? You said you thought is a urine infection, does this mean that the pain is located around the urethra? I am not a doctor Razz but i am asking you because my mother had exactly the same symptoms. She is currently in remission, since she managed to change her eating habits.

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Re: Please Help! Only 16.

Post  SoHelpless on Sat Aug 15, 2015 8:42 am

The pain seems to be located around my urethra and just below it.

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Re: Please Help! Only 16.

Post  SoHelpless on Sat Aug 15, 2015 9:01 am

Yes I believe my pain is unprovoked definitely. A lot of people here seem to find changing their diet helps but im only 16 and still live with my family and have to eat the same things as my Mum believes that the problem is mentally as there is nothing physically to see that could be wrong.

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Re: Please Help! Only 16.

Post  MensRea on Sun Aug 16, 2015 3:26 am

Ok, you told me the pain is unprovoked, but if you touch the area near of the urethra, does the pain increase? Do you have also painful urination? Sorry for the questions:P but i have also unprovoked pain near the urethra [my mother's pain is little bit different] and i try to understand whether you are experiencing the same problem.

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Re: Please Help! Only 16.

Post  SoHelpless on Sun Aug 16, 2015 4:47 am

Yes painful Urination and When I touch the area thr pain increases.

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Re: Please Help! Only 16.

Post  MensRea on Sun Aug 16, 2015 3:23 pm

We have exactly the same symptoms and believe me it's not in your mind. I have vestibulodynia, and my doctor told me that also the area near of my urethra is part of the problem. I don't know whether your diagnosis will be same as mine, but i suggest you to see urogynecologist. What helps me, is drinking a lot of water, i also take calcium magnesium citrate pills, you can find them online and also amitriptyline [you need a prescription from your doctor]. Amitriptyline pills helps a lot with the unprovoked pain. You only need to find someone who also believes that your pain is real.

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Re: Please Help! Only 16.

Post  SoHelpless on Sun Aug 16, 2015 7:56 pm

Thanks a lot! I have made a appointment to see one in November, a long wait but I will definitely try and see if those pills work. Quick question did your doctor straight away realise what it was? If so what signs was there?

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Re: Please Help! Only 16.

Post  MensRea on Sun Aug 16, 2015 8:47 pm

Yes she did! It was very easy for her to realise what the problem was, since i have also provoked vulvodynia in the opening of my vagina. However, i have vestibulodynia for 10 years, but the unprovoked pain near of my urethra appeared three years ago [steroid creams are killers!]. If i haven't provoked vulvodynia, it would be more difficult for her to understand the nature of my pain. I am using also a cream, gapabentin 6%, it helps a lot with the unprovoked pain, but you need to ask your doctor to include it in the medical prescription. Btw, don't forget, DRINK A LOT OF WATER.

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Re: Please Help! Only 16.

Post  SoHelpless on Sun Aug 16, 2015 9:03 pm

Thanks a lot. How do you feel now? Does it still effect you as much as it did? I'm only 16 and don't want to have to be in large amounts of pain constantly.

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Re: Please Help! Only 16.

Post  MensRea on Sun Aug 16, 2015 9:23 pm

Before the treatments it was very difficult to sleep or concentrate. I had constant pain all the time, it's been two months since i started the treatments and i don't experience any unprovoked pain anymore, only provoked. But even the provoked pain is not like before at all. I have to put a lot of pressure in that area in order to feel any pain. I am trying now to reduce to the minimum the provoked pain, it needs time, but at least it does not interfere with my daily routine.

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Re: Please Help! Only 16.

Post  SoHelpless on Sun Aug 16, 2015 9:27 pm

Wow that is amazing. I only wish I could hopefully become the same. I will deifnetely try those Pills and do all I can to get better. Thank you a lot, Really gave me hope that I can solve this problem. Smile.

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Re: Please Help! Only 16.

Post  MensRea on Sun Aug 16, 2015 9:35 pm

Ah and something else!! Don't wear underwear in bed! This is a very good advice not only for people who have vulvar pain, but for everybody. Btw if you live in London i can recommend you some doctors.

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Re: Please Help! Only 16.

Post  SoHelpless on Sun Aug 16, 2015 9:52 pm

I live very close to London! Please give me the centres and doctors names I would love to get some help if These symptoms persist.

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Re: Please Help! Only 16.

Post  MensRea on Sun Aug 16, 2015 10:12 pm

Inbox! Smile

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Helpless

Post  BpCookie on Fri Aug 21, 2015 3:26 pm

Hello hun, I totally feel for you. To be so young and have to go through this. Never give up hope. Fight on until you find a Dr. who can help you. I have a different problem called Vulva Lichen Simplex Chronicus which causes constant burning. At first I would lay in bed crying and wanting to die. I had went from Dr. to Dr., tried lotion, oils, ointments, meds............but I had no relief. So, I decided to do my own research on line. This helped a lot!!! I would bring the names of different medications that I hadn't yet tried and would give the list to my gyno to get her opinion. In doing on line research I found a really good specialist. So, never, ever give up because there is a Dr. out there that can help you.

Here are some of the things that I have had to do to help my pain. I ONLY use free and clear detergents (no perfumes or dyes) do not use bleach, I use sensitive skin body wash (no perfumes or dyes) and only use water to clean my vulva area. Do not use powders, deodorants or douches. USE A and D ointment after every time you use the restroom. This protects the skin. Sit on an ice pack for about 20 mins at a time. If possible wear skirts. Also I have a prescription ointment called Lidocaine 5% and it numbs the skin.

I hope this helps honey. Your not alone.

hugs to you

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Re: Please Help! Only 16.

Post  SoHelpless on Sat Aug 22, 2015 8:47 am

Thanks that means a lot to me. I won't give up as I refuse to continually live with this pain. Yes it is quite upsetting due to how young I am and I just feel conatantly depressed about it. I hope to solve this problem soon and thanks to this support and website I never feel alone no more and I am dealing with it a lot better. x

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16 TOO

Post  EverythingIsDifferentNow on Wed Sep 09, 2015 10:40 pm

I'm 16 too, I had vulvadnynia like you.
Things that are causing ur vulvadynia:
-something is physically wrong with your spine or pelvis
-your diet

I have wayyyy more advice if u want reply back and email me

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Re: Please Help! Only 16.

Post  KajalMehta on Mon Sep 14, 2015 9:13 am

Hey SoHelpless,
I thing this may cause of kidney stone. I suggest you to have Sonography test.
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Re: Please Help! Only 16.

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