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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


Obsessive Compulsive Disorder - OCD - and Vulvodynia

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Obsessive Compulsive Disorder - OCD - and Vulvodynia

Post  Sapphire21 on Sat Aug 15, 2015 9:45 am

Hi all,

I have been free from painful sex for nearly two years now, and wanted to share my experience in case I can help anyone.

I had pain during sex for around 4 years (18-22). I was very lucky as I had an extremely supportive boyfriend, but the condition still absolutely devastated me.

I went to such a variety of doctors and specialists, did a huge amount of my own research (which, can be good, can be bad - it's so hard to know which studies are good and which studies aren't when you don't have a medical background. I also found listening to other's theories could be helpful, but again there was a danger there, as fellow sufferers weren't medical experts). I eventually became convinced that my pain was linked to a hormonal imbalance.

However, I actually found out that my Vulvodynia was, if not caused, at least exasperated by my OCD. My OCD may even have caused it. My OCD makes me obsess about things, and sometimes it can make me obsess about things without me even realising it. When I spoke to a psycho-sexual counsellor, she taught me ways to overcome my problem, purely by using my mind. I am now one hundred per cent able to have fully pain free and enjoyable sex so I know that, for me, this was the answer.

I know that there are a lot of women out there who this will not help, but there may be some who could benefit from this post, which is why I have decided to share.


In my personal experience, being convinced that the problem was related to one thing or another didn't actually help me cure it in the end - but I do appreciate that some people make a correct diagnosis of themselves. I think it is really important to talk to your doctor about your theories, and make them test you for everything you think of and everything they think of. And really push for these tests and for help with various specialists if you can.

But, for me, listening to their insistence to speak to a psycho-sexual counsellor really helped me. I do think a lot of their insistence on this was because I had nothing physical to see, just a pain that I felt. Again, I appreciate that this may not be the case for a lot of you.

Good luck to anyone reading this, and I send you all my love and support.

Sapphire21

Posts : 22
Join date : 2012-02-11

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