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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 1

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 1

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

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Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 9

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 12

Can A Cut In Vestibule cause Vulvodynia?

Thu Mar 01, 2018 1:07 am by rockylife

Can a cut in the vestibule area cause vulvodynia? Is it possible that some nerve a were damaged that’s why I feel this pain in my area without visible lesions?

Comments: 0

Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

Comments: 3

Obsessive Compulsive Disorder - OCD - and Vulvodynia

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Obsessive Compulsive Disorder - OCD - and Vulvodynia

Post  Sapphire21 on Sat Aug 15, 2015 9:45 am

Hi all,

I have been free from painful sex for nearly two years now, and wanted to share my experience in case I can help anyone.

I had pain during sex for around 4 years (18-22). I was very lucky as I had an extremely supportive boyfriend, but the condition still absolutely devastated me.

I went to such a variety of doctors and specialists, did a huge amount of my own research (which, can be good, can be bad - it's so hard to know which studies are good and which studies aren't when you don't have a medical background. I also found listening to other's theories could be helpful, but again there was a danger there, as fellow sufferers weren't medical experts). I eventually became convinced that my pain was linked to a hormonal imbalance.

However, I actually found out that my Vulvodynia was, if not caused, at least exasperated by my OCD. My OCD may even have caused it. My OCD makes me obsess about things, and sometimes it can make me obsess about things without me even realising it. When I spoke to a psycho-sexual counsellor, she taught me ways to overcome my problem, purely by using my mind. I am now one hundred per cent able to have fully pain free and enjoyable sex so I know that, for me, this was the answer.

I know that there are a lot of women out there who this will not help, but there may be some who could benefit from this post, which is why I have decided to share.

In my personal experience, being convinced that the problem was related to one thing or another didn't actually help me cure it in the end - but I do appreciate that some people make a correct diagnosis of themselves. I think it is really important to talk to your doctor about your theories, and make them test you for everything you think of and everything they think of. And really push for these tests and for help with various specialists if you can.

But, for me, listening to their insistence to speak to a psycho-sexual counsellor really helped me. I do think a lot of their insistence on this was because I had nothing physical to see, just a pain that I felt. Again, I appreciate that this may not be the case for a lot of you.

Good luck to anyone reading this, and I send you all my love and support.


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