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» Vulvodynia is a secret
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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 6

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


Jeans that don't put pressure on my vulva

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Jeans that don't put pressure on my vulva

Post  meelie on Tue Aug 18, 2015 7:43 pm

Just wondering. I am a country girl and ride horses. I can't wear jeans anymore because of this hideous v thing going on down there. I don't hurt as much when I wear loose shorts in the summer and sweat pants in the winter but you can't do farm work or ride horses in shorts and sweat pants. And there is a heck of a lot to do outside when you have property and horses. Has anyone found any brand of jeans that do not press on your vulva area. I've had enough of this crap and really need to find something I can "work" in literally. Any advise is appreciated.

meelie

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Re: Jeans that don't put pressure on my vulva

Post  PainBlogger on Wed Aug 19, 2015 10:58 am

I've taken to wearing underwear and trousers/shorts that are a size too big for me. I get a lot of 'have you lost weight?' comments. Not ideal but better than the pressure from clothing. Unfortunately I still can't wear jeans. It only really works with waistbands that have a drawstring or some elastication. Jeans that are too big sit too low on my hips and the material is still too inflexible.

I don't know anything much about the practicalities of horse riding or the sort of work you are describing but have you tried the kind of trousers that they make for trekking and hiking? I don't know which country you are located in but here in the UK we have shops like Millets, Blacks and Mountain Warehouse and the kind of trousers I'm describing are of a more substantial fabric than sweat pants but don't have the hard seams that jeans have. I sometimes wear those in the cooler months of the year and find them comfortable and practical for wet weather and gardening-type work.

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Re: Jeans that don't put pressure on my vulva

Post  meelie on Wed Aug 19, 2015 2:28 pm

Thanks for your reply. I am in the US and haven't heard of these brands but will look them up on the net. I've tried wearing jeans too big but then I get tired of pulling them up on my waist. Not that I have a thin stomach and I hate belts cause I have to pee a lot cause I drink a lot of water.

meelie

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Re: Jeans that don't put pressure on my vulva

Post  PainBlogger on Wed Aug 19, 2015 2:36 pm

If you have outdoor clothing stores that sell brands like Berghaus, The North Face, Timberland that would be the kind of place that's equivalent to the shops I mentioned. I never know which of the brands we get here that you also have over there!

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Re: Jeans that don't put pressure on my vulva

Post  MensRea on Wed Aug 19, 2015 3:01 pm

Do you feel comfortable in soft leggings?

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Re: Jeans that don't put pressure on my vulva

Post  meelie on Wed Aug 19, 2015 3:09 pm

Hard to believe but I've never worn soft leggings. You mean like yoga pants or the ones people wear under big shirts. I have thought about jodpers but they look so tight on the vulva.

meelie

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Re: Jeans that don't put pressure on my vulva

Post  MensRea on Wed Aug 19, 2015 3:37 pm

What about this? : http://www.wallis.co.uk/en/wluk/product/clothing-265973/trousers-265996/stone-printed-tapered-trouser-4607643?bi=0&ps=20 You can find it in any colour, i bought three in different colours and are so comfortable and of course classy! Smile You can wear it with high heels, sport shoes, ballerina shoes, u name it. Also, you can apply a harmless cream (e.g bepanthol) in your vulvar to decrease the contact with the cloth.

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Re: Jeans that don't put pressure on my vulva

Post  JemimaSurrender on Wed Sep 16, 2015 3:31 pm

Hi Meelie,

I find that wearing 'jeggings' helps a lot. I'm not sure if you have them over there but they basically look like jeans, but they're a lot softer like leggings, however without the feeling of being as exposed as you would in normal gym type leggings.

I used to wear skinny jeans and the idea of not being able to wear them any more bothered me a lot so this type was the perfect happy medium for me.

Hope that helps!

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Re: Jeans that don't put pressure on my vulva

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