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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 19

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

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New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not. ¬†My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics. ¬†Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6


Jeans that don't put pressure on my vulva

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Jeans that don't put pressure on my vulva

Post  meelie on Tue Aug 18, 2015 7:43 pm

Just wondering. I am a country girl and ride horses. I can't wear jeans anymore because of this hideous v thing going on down there. I don't hurt as much when I wear loose shorts in the summer and sweat pants in the winter but you can't do farm work or ride horses in shorts and sweat pants. And there is a heck of a lot to do outside when you have property and horses. Has anyone found any brand of jeans that do not press on your vulva area. I've had enough of this crap and really need to find something I can "work" in literally. Any advise is appreciated.

meelie

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Re: Jeans that don't put pressure on my vulva

Post  PainBlogger on Wed Aug 19, 2015 10:58 am

I've taken to wearing underwear and trousers/shorts that are a size too big for me. I get a lot of 'have you lost weight?' comments. Not ideal but better than the pressure from clothing. Unfortunately I still can't wear jeans. It only really works with waistbands that have a drawstring or some elastication. Jeans that are too big sit too low on my hips and the material is still too inflexible.

I don't know anything much about the practicalities of horse riding or the sort of work you are describing but have you tried the kind of trousers that they make for trekking and hiking? I don't know which country you are located in but here in the UK we have shops like Millets, Blacks and Mountain Warehouse and the kind of trousers I'm describing are of a more substantial fabric than sweat pants but don't have the hard seams that jeans have. I sometimes wear those in the cooler months of the year and find them comfortable and practical for wet weather and gardening-type work.

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Re: Jeans that don't put pressure on my vulva

Post  meelie on Wed Aug 19, 2015 2:28 pm

Thanks for your reply. I am in the US and haven't heard of these brands but will look them up on the net. I've tried wearing jeans too big but then I get tired of pulling them up on my waist. Not that I have a thin stomach and I hate belts cause I have to pee a lot cause I drink a lot of water.

meelie

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Re: Jeans that don't put pressure on my vulva

Post  PainBlogger on Wed Aug 19, 2015 2:36 pm

If you have outdoor clothing stores that sell brands like Berghaus, The North Face, Timberland that would be the kind of place that's equivalent to the shops I mentioned. I never know which of the brands we get here that you also have over there!

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Re: Jeans that don't put pressure on my vulva

Post  MensRea on Wed Aug 19, 2015 3:01 pm

Do you feel comfortable in soft leggings?

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Re: Jeans that don't put pressure on my vulva

Post  meelie on Wed Aug 19, 2015 3:09 pm

Hard to believe but I've never worn soft leggings. You mean like yoga pants or the ones people wear under big shirts. I have thought about jodpers but they look so tight on the vulva.

meelie

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Re: Jeans that don't put pressure on my vulva

Post  MensRea on Wed Aug 19, 2015 3:37 pm

What about this? : http://www.wallis.co.uk/en/wluk/product/clothing-265973/trousers-265996/stone-printed-tapered-trouser-4607643?bi=0&ps=20 You can find it in any colour, i bought three in different colours and are so comfortable and of course classy! Smile You can wear it with high heels, sport shoes, ballerina shoes, u name it. Also, you can apply a harmless cream (e.g bepanthol) in your vulvar to decrease the contact with the cloth.

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Re: Jeans that don't put pressure on my vulva

Post  JemimaSurrender on Wed Sep 16, 2015 3:31 pm

Hi Meelie,

I find that wearing 'jeggings' helps a lot. I'm not sure if you have them over there but they basically look like jeans, but they're a lot softer like leggings, however without the feeling of being as exposed as you would in normal gym type leggings.

I used to wear skinny jeans and the idea of not being able to wear them any more bothered me a lot so this type was the perfect happy medium for me.

Hope that helps!

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Re: Jeans that don't put pressure on my vulva

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