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» Amitriptyline given for vulvodyina pain
Yesterday at 11:33 pm by WVR00

» Needing some reassurance
Yesterday at 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Yesterday at 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Yesterday at 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Thu Nov 16, 2017 12:06 am by Jgreen81

» Pain aftee vestibulectimy
Thu Nov 16, 2017 12:03 am by Jgreen81

» Freaking out because I don't think surgery worked HELP!!!!
Thu Nov 16, 2017 12:01 am by Jgreen81

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


Jeans that don't put pressure on my vulva

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Jeans that don't put pressure on my vulva

Post  meelie on Tue Aug 18, 2015 7:43 pm

Just wondering. I am a country girl and ride horses. I can't wear jeans anymore because of this hideous v thing going on down there. I don't hurt as much when I wear loose shorts in the summer and sweat pants in the winter but you can't do farm work or ride horses in shorts and sweat pants. And there is a heck of a lot to do outside when you have property and horses. Has anyone found any brand of jeans that do not press on your vulva area. I've had enough of this crap and really need to find something I can "work" in literally. Any advise is appreciated.

meelie

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Re: Jeans that don't put pressure on my vulva

Post  PainBlogger on Wed Aug 19, 2015 10:58 am

I've taken to wearing underwear and trousers/shorts that are a size too big for me. I get a lot of 'have you lost weight?' comments. Not ideal but better than the pressure from clothing. Unfortunately I still can't wear jeans. It only really works with waistbands that have a drawstring or some elastication. Jeans that are too big sit too low on my hips and the material is still too inflexible.

I don't know anything much about the practicalities of horse riding or the sort of work you are describing but have you tried the kind of trousers that they make for trekking and hiking? I don't know which country you are located in but here in the UK we have shops like Millets, Blacks and Mountain Warehouse and the kind of trousers I'm describing are of a more substantial fabric than sweat pants but don't have the hard seams that jeans have. I sometimes wear those in the cooler months of the year and find them comfortable and practical for wet weather and gardening-type work.

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Re: Jeans that don't put pressure on my vulva

Post  meelie on Wed Aug 19, 2015 2:28 pm

Thanks for your reply. I am in the US and haven't heard of these brands but will look them up on the net. I've tried wearing jeans too big but then I get tired of pulling them up on my waist. Not that I have a thin stomach and I hate belts cause I have to pee a lot cause I drink a lot of water.

meelie

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Re: Jeans that don't put pressure on my vulva

Post  PainBlogger on Wed Aug 19, 2015 2:36 pm

If you have outdoor clothing stores that sell brands like Berghaus, The North Face, Timberland that would be the kind of place that's equivalent to the shops I mentioned. I never know which of the brands we get here that you also have over there!

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Re: Jeans that don't put pressure on my vulva

Post  MensRea on Wed Aug 19, 2015 3:01 pm

Do you feel comfortable in soft leggings?

MensRea

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Re: Jeans that don't put pressure on my vulva

Post  meelie on Wed Aug 19, 2015 3:09 pm

Hard to believe but I've never worn soft leggings. You mean like yoga pants or the ones people wear under big shirts. I have thought about jodpers but they look so tight on the vulva.

meelie

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Re: Jeans that don't put pressure on my vulva

Post  MensRea on Wed Aug 19, 2015 3:37 pm

What about this? : http://www.wallis.co.uk/en/wluk/product/clothing-265973/trousers-265996/stone-printed-tapered-trouser-4607643?bi=0&ps=20 You can find it in any colour, i bought three in different colours and are so comfortable and of course classy! Smile You can wear it with high heels, sport shoes, ballerina shoes, u name it. Also, you can apply a harmless cream (e.g bepanthol) in your vulvar to decrease the contact with the cloth.

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Re: Jeans that don't put pressure on my vulva

Post  JemimaSurrender on Wed Sep 16, 2015 3:31 pm

Hi Meelie,

I find that wearing 'jeggings' helps a lot. I'm not sure if you have them over there but they basically look like jeans, but they're a lot softer like leggings, however without the feeling of being as exposed as you would in normal gym type leggings.

I used to wear skinny jeans and the idea of not being able to wear them any more bothered me a lot so this type was the perfect happy medium for me.

Hope that helps!

JemimaSurrender

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Re: Jeans that don't put pressure on my vulva

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