Vulvodynia Support
Would you like to react to this message? Create an account in a few clicks or log in to continue.
Log in

I forgot my password

Latest topics
» Hope to all my suffering ladies
NEW YEAR, NEW DOCTOR, NEW OUTLOOK EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
NEW YEAR, NEW DOCTOR, NEW OUTLOOK EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
NEW YEAR, NEW DOCTOR, NEW OUTLOOK EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
NEW YEAR, NEW DOCTOR, NEW OUTLOOK EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
NEW YEAR, NEW DOCTOR, NEW OUTLOOK EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
NEW YEAR, NEW DOCTOR, NEW OUTLOOK EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
NEW YEAR, NEW DOCTOR, NEW OUTLOOK EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
NEW YEAR, NEW DOCTOR, NEW OUTLOOK EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
NEW YEAR, NEW DOCTOR, NEW OUTLOOK EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


NEW YEAR, NEW DOCTOR, NEW OUTLOOK

5 posters

Go down

NEW YEAR, NEW DOCTOR, NEW OUTLOOK Empty NEW YEAR, NEW DOCTOR, NEW OUTLOOK

Post  shay Sun Jan 09, 2011 12:11 am

I HAVE RECENTLY SEEN A DOCTOR WHOSE SEEMS TO HAVE THE CARING AND PATIENT PERSONALITY THAT I NEED RIGHT NOW AND SHE HAS STARTED ME ON ELAVIL AT NIGHT TIME AND A COMPOUND CREAM MADE UP OF NERVE BLOCKING, MOISTURIZING AND PAIN NUMBING MEDICATIONS ALL IN ONE CREAM.

SO IM HOPING FOR THE BEST...............

P.S HOW DO I FIND THE FACEBOOK PAGE THE ONE THATS PRIVATE

shay

Posts : 7
Join date : 2010-12-30

Back to top Go down

NEW YEAR, NEW DOCTOR, NEW OUTLOOK Empty Re: NEW YEAR, NEW DOCTOR, NEW OUTLOOK

Post  Mouse Sun Jan 09, 2011 5:49 am

Hi Shay good luck with the new Doc, it sounds promising!

You need to send Sarah ie admin, your email address and she will add you Smile

Vicki

Mouse

Posts : 303
Join date : 2010-09-09
Location : New Zealand

Back to top Go down

NEW YEAR, NEW DOCTOR, NEW OUTLOOK Empty nervous about side effects of ami

Post  shay Sun Jan 09, 2011 7:50 pm

is it wierd for me to believe i will get better like im almost nervous to try this new treatment or maybe im afraid of it not working. Im seriously trying not to allowed my anxiety to overwhelm me because i believe that it is a mind over matter thing that requires faith.


idk.................. i started it last night and the cream didnt burn or irritate which is good and the little pill of ami only made me extremly sleep instantly and i know that weight gain is a side affect and i actually thought i can not gain weight however that quickly went out the window as a dumb moment lol like i would rather be 5000 pds and healthy versus my normal weight ( fingers crossed) .

is there any suggestion on how to keep the extra weight off

shay

Posts : 7
Join date : 2010-12-30

Back to top Go down

NEW YEAR, NEW DOCTOR, NEW OUTLOOK Empty Re: NEW YEAR, NEW DOCTOR, NEW OUTLOOK

Post  Sebby (Admin) Mon Jan 10, 2011 2:33 pm


Good luck with your new treatment Shay, I have messaged you back about the facebook group.

As for the weight, lots of exercise would be my advice..hard I know when you are dealing with pain. I find a good walk always does me good

I dont put weight on that easily cos I get anxiety and one of my symptoms is not eating much if Im anxious lol only good thing is I keep my figure but like you said I would rather put on a bit of weight and be healthy in mind and body

Take care
xx
Sebby (Admin)
Sebby (Admin)
Admin

Posts : 750
Join date : 2009-12-03
Age : 43
Location : London UK

https://vulvodyniasupport.forumotion.net

Back to top Go down

NEW YEAR, NEW DOCTOR, NEW OUTLOOK Empty Re: NEW YEAR, NEW DOCTOR, NEW OUTLOOK

Post  Sarah001 Mon Jan 10, 2011 7:49 pm

I've been on 50mg of Ami since August time last year and have put on about 6lbs. It slows your metabolism down and can also increase the appetite so not great! I haven't had any changes to my appetite but it's definitely done something so it must have slowed my metabolism down. It doesn't help that I can't do much though because of other problems so if you're able to exercise you may be able to avoid weight gain. Pay attention to what you eat while you're on it and you'll soon figure out if it's increased your appetite. For me it's been a disappointment because it hasn't got rid of the pain but I have to take it for Fibro so I get decent sleep.
Sarah001
Sarah001

Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK

Back to top Go down

NEW YEAR, NEW DOCTOR, NEW OUTLOOK Empty Re: NEW YEAR, NEW DOCTOR, NEW OUTLOOK

Post  [Sara] Tue Jan 11, 2011 4:34 am

I had a really bad reaction with Elavil and had to stop taking it within a few weeks. It actually made me extremely depressed and "robotic", and it really scared my husband. I mean I was already depressed having this condition but with the elavil I think it's safe to say it pushed me a little over the edge and I had suicidal thoughts and stuff.

But don't let that discourage you. I've read about plenty of women who did really well with it and it ended up helping their symptoms tremendously. I just don't think anti-depressants mix well with my body chemistry; I had a bad experience with them in high school when I went through a rough part of my past. Both times using anti-depressants I've had bad reactions. I did think it was odd that my gyno put me on anti-depressants for my hoo-ha, but she explained that it has been shown to help block the pain and relax the pelvic floor.

Hang in there. I pray that this is the answer for you! cheers

[Sara]

Posts : 26
Join date : 2011-01-01

Back to top Go down

NEW YEAR, NEW DOCTOR, NEW OUTLOOK Empty Re: NEW YEAR, NEW DOCTOR, NEW OUTLOOK

Post  Sarah001 Tue Jan 11, 2011 1:26 pm

Ami is best at blocking pure burning, when I told my vulvar specialist it wasn't helping me much because most of my pain is rawness she said anticonvulsants such as Gapapentin and Pregabalin are better options because they're more sophisticated and deal with various types of pain so if the Ami doesn't work there are other options. Ami made me woozy to start with but you can't actually tell I'm on it anymore except I find it hard to wake up in the mornings.
Sarah001
Sarah001

Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK

Back to top Go down

NEW YEAR, NEW DOCTOR, NEW OUTLOOK Empty Re: NEW YEAR, NEW DOCTOR, NEW OUTLOOK

Post  Sebby (Admin) Tue Jan 11, 2011 7:53 pm


Thats interesting most of my pain is rawness seems the anticonvulsants would be better suited.
Sebby (Admin)
Sebby (Admin)
Admin

Posts : 750
Join date : 2009-12-03
Age : 43
Location : London UK

https://vulvodyniasupport.forumotion.net

Back to top Go down

NEW YEAR, NEW DOCTOR, NEW OUTLOOK Empty Re: NEW YEAR, NEW DOCTOR, NEW OUTLOOK

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top


 
Permissions in this forum:
You cannot reply to topics in this forum