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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

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Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6


NEW YEAR, NEW DOCTOR, NEW OUTLOOK

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NEW YEAR, NEW DOCTOR, NEW OUTLOOK

Post  shay on Sun Jan 09, 2011 12:11 am

I HAVE RECENTLY SEEN A DOCTOR WHOSE SEEMS TO HAVE THE CARING AND PATIENT PERSONALITY THAT I NEED RIGHT NOW AND SHE HAS STARTED ME ON ELAVIL AT NIGHT TIME AND A COMPOUND CREAM MADE UP OF NERVE BLOCKING, MOISTURIZING AND PAIN NUMBING MEDICATIONS ALL IN ONE CREAM.

SO IM HOPING FOR THE BEST...............

P.S HOW DO I FIND THE FACEBOOK PAGE THE ONE THATS PRIVATE

shay

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Re: NEW YEAR, NEW DOCTOR, NEW OUTLOOK

Post  Mouse on Sun Jan 09, 2011 5:49 am

Hi Shay good luck with the new Doc, it sounds promising!

You need to send Sarah ie admin, your email address and she will add you Smile

Vicki

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nervous about side effects of ami

Post  shay on Sun Jan 09, 2011 7:50 pm

is it wierd for me to believe i will get better like im almost nervous to try this new treatment or maybe im afraid of it not working. Im seriously trying not to allowed my anxiety to overwhelm me because i believe that it is a mind over matter thing that requires faith.


idk.................. i started it last night and the cream didnt burn or irritate which is good and the little pill of ami only made me extremly sleep instantly and i know that weight gain is a side affect and i actually thought i can not gain weight however that quickly went out the window as a dumb moment lol like i would rather be 5000 pds and healthy versus my normal weight ( fingers crossed) .

is there any suggestion on how to keep the extra weight off

shay

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Re: NEW YEAR, NEW DOCTOR, NEW OUTLOOK

Post  Sebby (Admin) on Mon Jan 10, 2011 2:33 pm


Good luck with your new treatment Shay, I have messaged you back about the facebook group.

As for the weight, lots of exercise would be my advice..hard I know when you are dealing with pain. I find a good walk always does me good

I dont put weight on that easily cos I get anxiety and one of my symptoms is not eating much if Im anxious lol only good thing is I keep my figure but like you said I would rather put on a bit of weight and be healthy in mind and body

Take care
xx
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Re: NEW YEAR, NEW DOCTOR, NEW OUTLOOK

Post  Sarah001 on Mon Jan 10, 2011 7:49 pm

I've been on 50mg of Ami since August time last year and have put on about 6lbs. It slows your metabolism down and can also increase the appetite so not great! I haven't had any changes to my appetite but it's definitely done something so it must have slowed my metabolism down. It doesn't help that I can't do much though because of other problems so if you're able to exercise you may be able to avoid weight gain. Pay attention to what you eat while you're on it and you'll soon figure out if it's increased your appetite. For me it's been a disappointment because it hasn't got rid of the pain but I have to take it for Fibro so I get decent sleep.
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Re: NEW YEAR, NEW DOCTOR, NEW OUTLOOK

Post  [Sara] on Tue Jan 11, 2011 4:34 am

I had a really bad reaction with Elavil and had to stop taking it within a few weeks. It actually made me extremely depressed and "robotic", and it really scared my husband. I mean I was already depressed having this condition but with the elavil I think it's safe to say it pushed me a little over the edge and I had suicidal thoughts and stuff.

But don't let that discourage you. I've read about plenty of women who did really well with it and it ended up helping their symptoms tremendously. I just don't think anti-depressants mix well with my body chemistry; I had a bad experience with them in high school when I went through a rough part of my past. Both times using anti-depressants I've had bad reactions. I did think it was odd that my gyno put me on anti-depressants for my hoo-ha, but she explained that it has been shown to help block the pain and relax the pelvic floor.

Hang in there. I pray that this is the answer for you! cheers

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Re: NEW YEAR, NEW DOCTOR, NEW OUTLOOK

Post  Sarah001 on Tue Jan 11, 2011 1:26 pm

Ami is best at blocking pure burning, when I told my vulvar specialist it wasn't helping me much because most of my pain is rawness she said anticonvulsants such as Gapapentin and Pregabalin are better options because they're more sophisticated and deal with various types of pain so if the Ami doesn't work there are other options. Ami made me woozy to start with but you can't actually tell I'm on it anymore except I find it hard to wake up in the mornings.
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Re: NEW YEAR, NEW DOCTOR, NEW OUTLOOK

Post  Sebby (Admin) on Tue Jan 11, 2011 7:53 pm


Thats interesting most of my pain is rawness seems the anticonvulsants would be better suited.
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Re: NEW YEAR, NEW DOCTOR, NEW OUTLOOK

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