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» Acupuncture advice please
Yesterday at 6:08 pm by fairlight10

» Please tell me this can get better
Yesterday at 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

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NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

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Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

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So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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Did anti-depressants help anyone with generalized vulvodnia?

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Did anti-depressants help anyone with generalized vulvodnia?

Post  AspenMarie14 on Wed Sep 16, 2015 1:02 am

Just wondering!

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Re: Did anti-depressants help anyone with generalized vulvodnia?

Post  stewie on Sat Sep 19, 2015 4:06 am

I was wondering the same thing. I'd really like to know if they have helped anyone. I was just diagnosed with vulvar pain and was given zoloft. I had a lot of side effects and was only able to take half a pill. I took it for a month and had no results. On my return visit my doctor prescribed wellbrutrin and he wants me to take it with the zoloft. I haven't started it yet but I hope I don't have any more side effects. My doctor also told me you have to be weaned off anti depressants because you can have problems similar to withdrawal and I wish he had told me before I started.

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Types of Anti Depressants

Post  HealingandDealing on Sat Dec 05, 2015 12:42 pm

It sounds like the problem may be that you've been prescribed SSRIs, which are not as effective at managing chronic pain than SNRIs or Tricyclics. I don't know everything about this because I just started researching it, but I found a helpful article about it. I can't post a link because I'm a new member, but if you go to the Mayo Clinic website and search "antidepressants for pain" it should be the first one.

I'm planning on trying an SNRI soon, as I'm not ready to resort to something as intense as a Tricyclic anti depressant. I've tried anti depressants in the past and have had some pretty bad side effects, so I'm trying to find the one with minimal ones, which sounds like what you need too! I'm looking into Pristiq, which has great reviews so far but also doesn't seem to be covered by any insurance carrier so...we'll see. My second choice is Effexor, which I have reservations about because it's known to dampen some people's sex drive (I have to be honest, I'm holding out for a cure that lets me enjoy sex and life again, so this is a dilemna). The good news is that anti depressants can be prescribed in lower doses for pain than for depression, so that should help for those of us who are sensitive to side effects.

I'll keep you guys updated and please do that same. Hope that helps!

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Re: Did anti-depressants help anyone with generalized vulvodnia?

Post  PainBlogger on Sat Dec 05, 2015 3:47 pm

I'm having some success with duloxetine (an SNRI). I think I need a bigger dose than the 60mg per day I am on, but the specialist said I can go up to 120mg.

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Side Effects

Post  HealingandDealing on Sat Dec 05, 2015 4:01 pm

Ok, cool I just looked that up. Cymbalta is the brand name. Have you had any bad side effects with it? From what I'm reading, they seem pretty minimal in most people, but I prefer to ask people about their actual experiences with drugs.

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Re: Did anti-depressants help anyone with generalized vulvodnia?

Post  PainBlogger on Sat Dec 05, 2015 4:33 pm

No side effects - and I feel much better on it than I did on tricyclics. I have way more energy, no constipation, and no dry mouth. It's helped my low mood a lot as well.

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Re: Did anti-depressants help anyone with generalized vulvodnia?

Post  WaahwaahUK on Sat Dec 05, 2015 8:27 pm

I'm on a tricyclic called nortriptyline 30mg at the moment and haven't felt it ease my pain so far about 3 months in... I've also had side effects of agitation and anxiety through the roof for some reason, along with dry mouth. I'm hoping my GP may try me on pregabalin / lyrica this week.

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Re: Did anti-depressants help anyone with generalized vulvodnia?

Post  PainBlogger on Sat Dec 05, 2015 11:18 pm

Hope your GP agrees to a switch, Waahwaah. I'd say three months is long enough to know if something is promising or not. Pregabalin is actually also used for treating anxiety, so hopefully you wouldn't feel anxious on it.

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Re: Did anti-depressants help anyone with generalized vulvodnia?

Post  WaahwaahUK on Sun Dec 06, 2015 3:13 pm

Thanks PainBlogger. Yes I'm seeing him tomorrow and hoping he will let me switch. He said last time if 30mg doesn't work he will look at something stronger but didn't specify so I'm going to ask for pregabalin I think. The anxiety is awful, and making even slightly better days hard to handle as I'm so anxious all the time... Fingers crossed! Really glad to hear you're getting something from the duloxetine.

In respect of this post about antidepressants and this condition - you'll find some people have had success with drugs like amitriptyline or nortriptyline, while others haven't, or have had success with other drugs like lyrica / pregabalin etc.To anyone reading this post thinking of trying medication, I would say look at your options and give it a try. Lots of people have felt much better after finding the right meds, the right dosage. Don't be put off by one persons response to a particular drug. Vulvodynia is caused by so many different and combined, complex factors that we are all individuals and will respond in different ways. I say this because I have done this myself - looked at what did or didn't work for others and felt down about it. But I know, I just need to find what is right for me.

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Re: Did anti-depressants help anyone with generalized vulvodnia?

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