Log in

I forgot my password

Latest topics
» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Vestibulectomy
Sun Aug 13, 2017 9:54 am by infinitelywondering

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


Did anti-depressants help anyone with generalized vulvodnia?

View previous topic View next topic Go down

Did anti-depressants help anyone with generalized vulvodnia?

Post  AspenMarie14 on Wed Sep 16, 2015 1:02 am

Just wondering!

AspenMarie14

Posts : 1
Join date : 2015-09-16

View user profile

Back to top Go down

Re: Did anti-depressants help anyone with generalized vulvodnia?

Post  stewie on Sat Sep 19, 2015 4:06 am

I was wondering the same thing. I'd really like to know if they have helped anyone. I was just diagnosed with vulvar pain and was given zoloft. I had a lot of side effects and was only able to take half a pill. I took it for a month and had no results. On my return visit my doctor prescribed wellbrutrin and he wants me to take it with the zoloft. I haven't started it yet but I hope I don't have any more side effects. My doctor also told me you have to be weaned off anti depressants because you can have problems similar to withdrawal and I wish he had told me before I started.

stewie

Posts : 2
Join date : 2015-03-31

View user profile

Back to top Go down

Types of Anti Depressants

Post  HealingandDealing on Sat Dec 05, 2015 12:42 pm

It sounds like the problem may be that you've been prescribed SSRIs, which are not as effective at managing chronic pain than SNRIs or Tricyclics. I don't know everything about this because I just started researching it, but I found a helpful article about it. I can't post a link because I'm a new member, but if you go to the Mayo Clinic website and search "antidepressants for pain" it should be the first one.

I'm planning on trying an SNRI soon, as I'm not ready to resort to something as intense as a Tricyclic anti depressant. I've tried anti depressants in the past and have had some pretty bad side effects, so I'm trying to find the one with minimal ones, which sounds like what you need too! I'm looking into Pristiq, which has great reviews so far but also doesn't seem to be covered by any insurance carrier so...we'll see. My second choice is Effexor, which I have reservations about because it's known to dampen some people's sex drive (I have to be honest, I'm holding out for a cure that lets me enjoy sex and life again, so this is a dilemna). The good news is that anti depressants can be prescribed in lower doses for pain than for depression, so that should help for those of us who are sensitive to side effects.

I'll keep you guys updated and please do that same. Hope that helps!

HealingandDealing

Posts : 3
Join date : 2015-12-05

View user profile

Back to top Go down

Re: Did anti-depressants help anyone with generalized vulvodnia?

Post  PainBlogger on Sat Dec 05, 2015 3:47 pm

I'm having some success with duloxetine (an SNRI). I think I need a bigger dose than the 60mg per day I am on, but the specialist said I can go up to 120mg.

PainBlogger

Posts : 214
Join date : 2015-07-27

View user profile

Back to top Go down

Side Effects

Post  HealingandDealing on Sat Dec 05, 2015 4:01 pm

Ok, cool I just looked that up. Cymbalta is the brand name. Have you had any bad side effects with it? From what I'm reading, they seem pretty minimal in most people, but I prefer to ask people about their actual experiences with drugs.

HealingandDealing

Posts : 3
Join date : 2015-12-05

View user profile

Back to top Go down

Re: Did anti-depressants help anyone with generalized vulvodnia?

Post  PainBlogger on Sat Dec 05, 2015 4:33 pm

No side effects - and I feel much better on it than I did on tricyclics. I have way more energy, no constipation, and no dry mouth. It's helped my low mood a lot as well.

PainBlogger

Posts : 214
Join date : 2015-07-27

View user profile

Back to top Go down

Re: Did anti-depressants help anyone with generalized vulvodnia?

Post  WaahwaahUK on Sat Dec 05, 2015 8:27 pm

I'm on a tricyclic called nortriptyline 30mg at the moment and haven't felt it ease my pain so far about 3 months in... I've also had side effects of agitation and anxiety through the roof for some reason, along with dry mouth. I'm hoping my GP may try me on pregabalin / lyrica this week.

WaahwaahUK

Posts : 117
Join date : 2015-07-31

View user profile

Back to top Go down

Re: Did anti-depressants help anyone with generalized vulvodnia?

Post  PainBlogger on Sat Dec 05, 2015 11:18 pm

Hope your GP agrees to a switch, Waahwaah. I'd say three months is long enough to know if something is promising or not. Pregabalin is actually also used for treating anxiety, so hopefully you wouldn't feel anxious on it.

PainBlogger

Posts : 214
Join date : 2015-07-27

View user profile

Back to top Go down

Re: Did anti-depressants help anyone with generalized vulvodnia?

Post  WaahwaahUK on Sun Dec 06, 2015 3:13 pm

Thanks PainBlogger. Yes I'm seeing him tomorrow and hoping he will let me switch. He said last time if 30mg doesn't work he will look at something stronger but didn't specify so I'm going to ask for pregabalin I think. The anxiety is awful, and making even slightly better days hard to handle as I'm so anxious all the time... Fingers crossed! Really glad to hear you're getting something from the duloxetine.

In respect of this post about antidepressants and this condition - you'll find some people have had success with drugs like amitriptyline or nortriptyline, while others haven't, or have had success with other drugs like lyrica / pregabalin etc.To anyone reading this post thinking of trying medication, I would say look at your options and give it a try. Lots of people have felt much better after finding the right meds, the right dosage. Don't be put off by one persons response to a particular drug. Vulvodynia is caused by so many different and combined, complex factors that we are all individuals and will respond in different ways. I say this because I have done this myself - looked at what did or didn't work for others and felt down about it. But I know, I just need to find what is right for me.

WaahwaahUK

Posts : 117
Join date : 2015-07-31

View user profile

Back to top Go down

Re: Did anti-depressants help anyone with generalized vulvodnia?

Post  Sponsored content


Sponsored content


Back to top Go down

View previous topic View next topic Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum