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» What's next?
Tue Apr 24, 2018 4:01 pm by jennyk2

» Pain management - what works for me
Tue Apr 24, 2018 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

» Custom made leggings?
Sun Apr 22, 2018 4:52 am by CatJones

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


Did anti-depressants help anyone with generalized vulvodnia?

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Did anti-depressants help anyone with generalized vulvodnia?

Post  AspenMarie14 on Wed Sep 16, 2015 1:02 am

Just wondering!

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Re: Did anti-depressants help anyone with generalized vulvodnia?

Post  stewie on Sat Sep 19, 2015 4:06 am

I was wondering the same thing. I'd really like to know if they have helped anyone. I was just diagnosed with vulvar pain and was given zoloft. I had a lot of side effects and was only able to take half a pill. I took it for a month and had no results. On my return visit my doctor prescribed wellbrutrin and he wants me to take it with the zoloft. I haven't started it yet but I hope I don't have any more side effects. My doctor also told me you have to be weaned off anti depressants because you can have problems similar to withdrawal and I wish he had told me before I started.

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Types of Anti Depressants

Post  HealingandDealing on Sat Dec 05, 2015 12:42 pm

It sounds like the problem may be that you've been prescribed SSRIs, which are not as effective at managing chronic pain than SNRIs or Tricyclics. I don't know everything about this because I just started researching it, but I found a helpful article about it. I can't post a link because I'm a new member, but if you go to the Mayo Clinic website and search "antidepressants for pain" it should be the first one.

I'm planning on trying an SNRI soon, as I'm not ready to resort to something as intense as a Tricyclic anti depressant. I've tried anti depressants in the past and have had some pretty bad side effects, so I'm trying to find the one with minimal ones, which sounds like what you need too! I'm looking into Pristiq, which has great reviews so far but also doesn't seem to be covered by any insurance carrier so...we'll see. My second choice is Effexor, which I have reservations about because it's known to dampen some people's sex drive (I have to be honest, I'm holding out for a cure that lets me enjoy sex and life again, so this is a dilemna). The good news is that anti depressants can be prescribed in lower doses for pain than for depression, so that should help for those of us who are sensitive to side effects.

I'll keep you guys updated and please do that same. Hope that helps!

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Re: Did anti-depressants help anyone with generalized vulvodnia?

Post  PainBlogger on Sat Dec 05, 2015 3:47 pm

I'm having some success with duloxetine (an SNRI). I think I need a bigger dose than the 60mg per day I am on, but the specialist said I can go up to 120mg.

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Side Effects

Post  HealingandDealing on Sat Dec 05, 2015 4:01 pm

Ok, cool I just looked that up. Cymbalta is the brand name. Have you had any bad side effects with it? From what I'm reading, they seem pretty minimal in most people, but I prefer to ask people about their actual experiences with drugs.

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Re: Did anti-depressants help anyone with generalized vulvodnia?

Post  PainBlogger on Sat Dec 05, 2015 4:33 pm

No side effects - and I feel much better on it than I did on tricyclics. I have way more energy, no constipation, and no dry mouth. It's helped my low mood a lot as well.

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Re: Did anti-depressants help anyone with generalized vulvodnia?

Post  WaahwaahUK on Sat Dec 05, 2015 8:27 pm

I'm on a tricyclic called nortriptyline 30mg at the moment and haven't felt it ease my pain so far about 3 months in... I've also had side effects of agitation and anxiety through the roof for some reason, along with dry mouth. I'm hoping my GP may try me on pregabalin / lyrica this week.

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Re: Did anti-depressants help anyone with generalized vulvodnia?

Post  PainBlogger on Sat Dec 05, 2015 11:18 pm

Hope your GP agrees to a switch, Waahwaah. I'd say three months is long enough to know if something is promising or not. Pregabalin is actually also used for treating anxiety, so hopefully you wouldn't feel anxious on it.

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Re: Did anti-depressants help anyone with generalized vulvodnia?

Post  WaahwaahUK on Sun Dec 06, 2015 3:13 pm

Thanks PainBlogger. Yes I'm seeing him tomorrow and hoping he will let me switch. He said last time if 30mg doesn't work he will look at something stronger but didn't specify so I'm going to ask for pregabalin I think. The anxiety is awful, and making even slightly better days hard to handle as I'm so anxious all the time... Fingers crossed! Really glad to hear you're getting something from the duloxetine.

In respect of this post about antidepressants and this condition - you'll find some people have had success with drugs like amitriptyline or nortriptyline, while others haven't, or have had success with other drugs like lyrica / pregabalin etc.To anyone reading this post thinking of trying medication, I would say look at your options and give it a try. Lots of people have felt much better after finding the right meds, the right dosage. Don't be put off by one persons response to a particular drug. Vulvodynia is caused by so many different and combined, complex factors that we are all individuals and will respond in different ways. I say this because I have done this myself - looked at what did or didn't work for others and felt down about it. But I know, I just need to find what is right for me.

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Re: Did anti-depressants help anyone with generalized vulvodnia?

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