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Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

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7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5


Did anti-depressants help anyone with generalized vulvodnia?

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Did anti-depressants help anyone with generalized vulvodnia?

Post  AspenMarie14 on Wed Sep 16, 2015 1:02 am

Just wondering!

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Re: Did anti-depressants help anyone with generalized vulvodnia?

Post  stewie on Sat Sep 19, 2015 4:06 am

I was wondering the same thing. I'd really like to know if they have helped anyone. I was just diagnosed with vulvar pain and was given zoloft. I had a lot of side effects and was only able to take half a pill. I took it for a month and had no results. On my return visit my doctor prescribed wellbrutrin and he wants me to take it with the zoloft. I haven't started it yet but I hope I don't have any more side effects. My doctor also told me you have to be weaned off anti depressants because you can have problems similar to withdrawal and I wish he had told me before I started.

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Types of Anti Depressants

Post  HealingandDealing on Sat Dec 05, 2015 12:42 pm

It sounds like the problem may be that you've been prescribed SSRIs, which are not as effective at managing chronic pain than SNRIs or Tricyclics. I don't know everything about this because I just started researching it, but I found a helpful article about it. I can't post a link because I'm a new member, but if you go to the Mayo Clinic website and search "antidepressants for pain" it should be the first one.

I'm planning on trying an SNRI soon, as I'm not ready to resort to something as intense as a Tricyclic anti depressant. I've tried anti depressants in the past and have had some pretty bad side effects, so I'm trying to find the one with minimal ones, which sounds like what you need too! I'm looking into Pristiq, which has great reviews so far but also doesn't seem to be covered by any insurance carrier so...we'll see. My second choice is Effexor, which I have reservations about because it's known to dampen some people's sex drive (I have to be honest, I'm holding out for a cure that lets me enjoy sex and life again, so this is a dilemna). The good news is that anti depressants can be prescribed in lower doses for pain than for depression, so that should help for those of us who are sensitive to side effects.

I'll keep you guys updated and please do that same. Hope that helps!

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Re: Did anti-depressants help anyone with generalized vulvodnia?

Post  PainBlogger on Sat Dec 05, 2015 3:47 pm

I'm having some success with duloxetine (an SNRI). I think I need a bigger dose than the 60mg per day I am on, but the specialist said I can go up to 120mg.

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Side Effects

Post  HealingandDealing on Sat Dec 05, 2015 4:01 pm

Ok, cool I just looked that up. Cymbalta is the brand name. Have you had any bad side effects with it? From what I'm reading, they seem pretty minimal in most people, but I prefer to ask people about their actual experiences with drugs.

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Re: Did anti-depressants help anyone with generalized vulvodnia?

Post  PainBlogger on Sat Dec 05, 2015 4:33 pm

No side effects - and I feel much better on it than I did on tricyclics. I have way more energy, no constipation, and no dry mouth. It's helped my low mood a lot as well.

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Re: Did anti-depressants help anyone with generalized vulvodnia?

Post  WaahwaahUK on Sat Dec 05, 2015 8:27 pm

I'm on a tricyclic called nortriptyline 30mg at the moment and haven't felt it ease my pain so far about 3 months in... I've also had side effects of agitation and anxiety through the roof for some reason, along with dry mouth. I'm hoping my GP may try me on pregabalin / lyrica this week.

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Re: Did anti-depressants help anyone with generalized vulvodnia?

Post  PainBlogger on Sat Dec 05, 2015 11:18 pm

Hope your GP agrees to a switch, Waahwaah. I'd say three months is long enough to know if something is promising or not. Pregabalin is actually also used for treating anxiety, so hopefully you wouldn't feel anxious on it.

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Re: Did anti-depressants help anyone with generalized vulvodnia?

Post  WaahwaahUK on Sun Dec 06, 2015 3:13 pm

Thanks PainBlogger. Yes I'm seeing him tomorrow and hoping he will let me switch. He said last time if 30mg doesn't work he will look at something stronger but didn't specify so I'm going to ask for pregabalin I think. The anxiety is awful, and making even slightly better days hard to handle as I'm so anxious all the time... Fingers crossed! Really glad to hear you're getting something from the duloxetine.

In respect of this post about antidepressants and this condition - you'll find some people have had success with drugs like amitriptyline or nortriptyline, while others haven't, or have had success with other drugs like lyrica / pregabalin etc.To anyone reading this post thinking of trying medication, I would say look at your options and give it a try. Lots of people have felt much better after finding the right meds, the right dosage. Don't be put off by one persons response to a particular drug. Vulvodynia is caused by so many different and combined, complex factors that we are all individuals and will respond in different ways. I say this because I have done this myself - looked at what did or didn't work for others and felt down about it. But I know, I just need to find what is right for me.

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Re: Did anti-depressants help anyone with generalized vulvodnia?

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