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Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 3

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0


Lidocaine and Conception??

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Lidocaine and Conception??

Post  MrsP87 on Wed Sep 16, 2015 5:25 pm

Hi everybody,

Just after a little advice and I feel this may be the best place to find my answers. I have suffered with vulvodynia for many years now and can only have intercourse using lidocaine gel, it's incredibly painful without! Me and my husband are wanting to start a family but are very worried about the impact lidocaine may have on conception! There are no studies out there regarding its impact on sperm and I have recently been to a doctor and a specialist who said they didn't know the answer. Has anybody out there been successful in using lidocaine and conceiving? Thanks so much xxxx I love you

MrsP87

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LIDOCAINE AND CONCEPTION??

Post  netsirk83 on Sun May 29, 2016 11:01 am

Hey MrsP87, Did you happen to determine if Lidocaine is ok when trying to conceive? Have you had luck conceiving naturally and painlessly? We are about to start trying as well and I am currently using instillagel so you're input would be greatly appreciated! Thanks Smile

netsirk83

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Re: Lidocaine and Conception??

Post  PainBlogger on Sun May 29, 2016 12:39 pm

I can't answer your question directly, but I've been doing some research on this topic and the effect of lubricants. One of the things that I've discovered is that most lubricants have a negative effect on sperm motility. So, while not contraceptives, they can reduce the chances of conception. I'd imagine instillagel may also have a negative effect on sperm motility, depending on how much of the gel finds its way internally.

PainBlogger

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Re: Lidocaine and Conception??

Post  emalita on Sun May 29, 2016 7:16 pm

I was able to find the below, but I'm not sure if this is only specific to injections:

Effect While Trying to Conceive: Lidocaine is not shown to have any effect on fertility in animal studies. No human studies have been completed.

http://www.babymed.com/medications/lidocaine-during-pregnancy-and-breastfeeding


I agree with PainBlogger that the cream itself may negatively impact sperm since even something as innocent as the wrong pH can negatively impact them. I personally say give it a try with the lidocaine, and if you are finding it difficult to conceive, then consider trying without it if possible.

emalita

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Re: Lidocaine and Conception??

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