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» Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia
Yesterday at 8:15 pm by WVR00

» What helped (and practically cured) my Vulvodynia
Yesterday at 4:43 pm by Katiej

» How I cured my Vulvodynia!
Yesterday at 8:24 am by Katiej

» Amitriptyline given for vulvodyina pain
Sat Nov 18, 2017 11:33 pm by WVR00

» Needing some reassurance
Sat Nov 18, 2017 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Sat Nov 18, 2017 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Sat Nov 18, 2017 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 0

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4


MTV - i cant have sex. I am so disappointed in this episode

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MTV - i cant have sex. I am so disappointed in this episode

Post  emma on Mon Jan 10, 2011 2:11 pm

I don't know if anyone has seen this but mtv has made an episode labelled - i can have sex.

To be honest i dont think it portrays vulvodynia conditions very well.

These girls all ended up with a quick fix solution!! i have not had any relief from any of my treatments and it just doesn't show the extent of the emotions that you go through. The girls did a great job but i think mtv edited it the wrong way.

I have had many different treatments over the time span of about 4 years and seriously, when you realise that each treatment that you have put your heart and soul into hoping it will work, well it hasn't worked, its the worst feeling in the world.

Also in every day situations. I dont feel that i can discuss this condition with anyone except my family. My heart sinks when any of my friends bring up sex in conversation and ask for my opinion. I just make up answers because otherwise it gets awkward.

id love to know what you guys think of the topics ive raised here

em xo


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Re: MTV - i cant have sex. I am so disappointed in this episode

Post  Mouse on Mon Jan 10, 2011 7:12 pm

Hi Emma,

Welcome Smile

I don't think anyone outside the US can view the show. I read about it and tried to find it on youtube, no luck.

I read a review about it on the Susan Bilhiemer's secret suffering website, she said while it was great there was a show about vulvodynia the treatment options and how to get treatment weren't very well covered.

I've told my friends I have a chronic pain condition, not even my husband gets that it's 24/7 though. I didn't tell my family until last month (and then just the PG version) my Dad has cancer so they have enough to worry about. It's tricky! I was gobsmacked recently when a woman I know told me about her friend who has just had a breast removed. Apparently she goes on about it a bit. No shit!!! Maybe people are just too busy to care? Which is why we have online forums for likeminded people.

This year I'm going to try really hard not to be such a hermit. I can come on here and have a moan with people who understand. I'm seeing a PT for the first time and maybe a womens health specialist. Hmmm will also need to find a job!

Have you joined the FB group Emma? We are all real people and it's lovely to see peoples faces.

Take care xx.

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Re: MTV - i cant have sex. I am so disappointed in this episode

Post  Ellie on Tue Jan 11, 2011 1:14 am

I completely agree with you Em! It was portrayed as something that has a quick fix solution Sad It was nice to get the word out about issues like this, but it really didn't show the real frustration and that it effects more than just not being able to have sex.It effects your day to day living. But still nice to get the word out.
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Re: MTV - i cant have sex. I am so disappointed in this episode

Post  [Sara] on Tue Jan 11, 2011 4:15 am

I do agree that they edited the show pretty badly...they focused so much on sex (well, I guess that was in the title of the show Shocked ). Not surprising since this culture is so focused on sex, and having lots of it. It doesn't help me with my condition at all...

It was good that they got the word out about these conditions, but I do think they made it seem like it can just magically be cured. I was just amazed that MTV would do a special about it, so I posted it on the facebook group when I found out about it. They definitely left out a lot of crucial information.

I tried using a video-capture program to record it for the non-US ladies, but I still haven't figured out a way for them to watch it! Maybe I'll think of something else soon. cyclops

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Re: MTV - i cant have sex. I am so disappointed in this episode

Post  emma on Tue Jan 11, 2011 7:53 am

i added one of the girls from the video to facebook. Her name is Tali keteri and she has posted the videos on her facebook

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Re: MTV - i cant have sex. I am so disappointed in this episode

Post  Ellie on Tue Jan 11, 2011 8:01 am

I was going to say, I am getting the full episode very soon here (downloading) for others out of the states to see it. Smile I will post it here and/or somewhere on these forms so everyone can view them.
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Re: MTV - i cant have sex. I am so disappointed in this episode

Post  noni on Tue Jan 11, 2011 2:54 pm

Have not seen it, but as it is mtv....not a complete shocker that it focuses on sex
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Re: MTV - i cant have sex. I am so disappointed in this episode

Post  Sebby (Admin) on Tue Jan 11, 2011 7:42 pm


OOOh I may search for her on facebook. I subscribed to her videos on youtube.

I remember channel 4 doing their embarrasing illnesses programe on vulvodynia and the women went in there got prescribed some ami was given actupucture and would you belive it she was getting better! No mention on other meds, pelvic floor dysfunction, bio feedback, etc etc...

I dont understand at all how it all seems so simple from telly!

I emailed the programme...ignored..how suprising.. Mad

Im thinking we need to get this into the press more..I really dont know if any womens magazines have covered this topic properly? Not sensationalised mags like chat..sick of seeing the horrible cover stories they have like "my cat killed my husband then our house blew up and I got my legs cut off by the lawnmower" type stories Shocked

Like Cosmo or something? Hmmm I dont mind being interviewed if I knew they would portray it in the right way and I was anonymous lol but I dont really trust they would cover it properly with all its complexities and how it really effects our lives?

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how do I get onto the facebook forum?

Post  nadja on Tue Jan 11, 2011 8:16 pm

emmmielou wrote:i added one of the girls from the video to facebook. Her name is Tali keteri and she has posted the videos on her facebook

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Re: MTV - i cant have sex. I am so disappointed in this episode

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