Log in

I forgot my password

Latest topics
» Acupuncture advice please
Today at 2:25 am by ryn207

» New and need some help
Today at 12:49 am by Sad

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 1

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4


MTV - i cant have sex. I am so disappointed in this episode

Go down

MTV - i cant have sex. I am so disappointed in this episode

Post  emma on Mon Jan 10, 2011 2:11 pm

I don't know if anyone has seen this but mtv has made an episode labelled - i can have sex.

To be honest i dont think it portrays vulvodynia conditions very well.

These girls all ended up with a quick fix solution!! i have not had any relief from any of my treatments and it just doesn't show the extent of the emotions that you go through. The girls did a great job but i think mtv edited it the wrong way.

I have had many different treatments over the time span of about 4 years and seriously, when you realise that each treatment that you have put your heart and soul into hoping it will work, well it hasn't worked, its the worst feeling in the world.

Also in every day situations. I dont feel that i can discuss this condition with anyone except my family. My heart sinks when any of my friends bring up sex in conversation and ask for my opinion. I just make up answers because otherwise it gets awkward.

id love to know what you guys think of the topics ive raised here

em xo


emma

Posts : 10
Join date : 2010-12-29
Location : Melbourne/Australia

View user profile

Back to top Go down

Re: MTV - i cant have sex. I am so disappointed in this episode

Post  Mouse on Mon Jan 10, 2011 7:12 pm

Hi Emma,

Welcome Smile

I don't think anyone outside the US can view the show. I read about it and tried to find it on youtube, no luck.

I read a review about it on the Susan Bilhiemer's secret suffering website, she said while it was great there was a show about vulvodynia the treatment options and how to get treatment weren't very well covered.

I've told my friends I have a chronic pain condition, not even my husband gets that it's 24/7 though. I didn't tell my family until last month (and then just the PG version) my Dad has cancer so they have enough to worry about. It's tricky! I was gobsmacked recently when a woman I know told me about her friend who has just had a breast removed. Apparently she goes on about it a bit. No shit!!! Maybe people are just too busy to care? Which is why we have online forums for likeminded people.

This year I'm going to try really hard not to be such a hermit. I can come on here and have a moan with people who understand. I'm seeing a PT for the first time and maybe a womens health specialist. Hmmm will also need to find a job!

Have you joined the FB group Emma? We are all real people and it's lovely to see peoples faces.

Take care xx.

Mouse

Posts : 303
Join date : 2010-09-09
Location : New Zealand

View user profile

Back to top Go down

Re: MTV - i cant have sex. I am so disappointed in this episode

Post  Ellie on Tue Jan 11, 2011 1:14 am

I completely agree with you Em! It was portrayed as something that has a quick fix solution Sad It was nice to get the word out about issues like this, but it really didn't show the real frustration and that it effects more than just not being able to have sex.It effects your day to day living. But still nice to get the word out.
avatar
Ellie

Posts : 13
Join date : 2010-12-08
Location : Minnesota, USA

View user profile

Back to top Go down

Re: MTV - i cant have sex. I am so disappointed in this episode

Post  [Sara] on Tue Jan 11, 2011 4:15 am

I do agree that they edited the show pretty badly...they focused so much on sex (well, I guess that was in the title of the show Shocked ). Not surprising since this culture is so focused on sex, and having lots of it. It doesn't help me with my condition at all...

It was good that they got the word out about these conditions, but I do think they made it seem like it can just magically be cured. I was just amazed that MTV would do a special about it, so I posted it on the facebook group when I found out about it. They definitely left out a lot of crucial information.

I tried using a video-capture program to record it for the non-US ladies, but I still haven't figured out a way for them to watch it! Maybe I'll think of something else soon. cyclops

[Sara]

Posts : 26
Join date : 2011-01-01

View user profile

Back to top Go down

Re: MTV - i cant have sex. I am so disappointed in this episode

Post  emma on Tue Jan 11, 2011 7:53 am

i added one of the girls from the video to facebook. Her name is Tali keteri and she has posted the videos on her facebook

emma

Posts : 10
Join date : 2010-12-29
Location : Melbourne/Australia

View user profile

Back to top Go down

Re: MTV - i cant have sex. I am so disappointed in this episode

Post  Ellie on Tue Jan 11, 2011 8:01 am

I was going to say, I am getting the full episode very soon here (downloading) for others out of the states to see it. Smile I will post it here and/or somewhere on these forms so everyone can view them.
avatar
Ellie

Posts : 13
Join date : 2010-12-08
Location : Minnesota, USA

View user profile

Back to top Go down

Re: MTV - i cant have sex. I am so disappointed in this episode

Post  noni on Tue Jan 11, 2011 2:54 pm

Have not seen it, but as it is mtv....not a complete shocker that it focuses on sex
avatar
noni

Posts : 242
Join date : 2011-01-10
Age : 30
Location : Ontario

View user profile

Back to top Go down

Re: MTV - i cant have sex. I am so disappointed in this episode

Post  Sebby (Admin) on Tue Jan 11, 2011 7:42 pm


OOOh I may search for her on facebook. I subscribed to her videos on youtube.

I remember channel 4 doing their embarrasing illnesses programe on vulvodynia and the women went in there got prescribed some ami was given actupucture and would you belive it she was getting better! No mention on other meds, pelvic floor dysfunction, bio feedback, etc etc...

I dont understand at all how it all seems so simple from telly!

I emailed the programme...ignored..how suprising.. Mad

Im thinking we need to get this into the press more..I really dont know if any womens magazines have covered this topic properly? Not sensationalised mags like chat..sick of seeing the horrible cover stories they have like "my cat killed my husband then our house blew up and I got my legs cut off by the lawnmower" type stories Shocked

Like Cosmo or something? Hmmm I dont mind being interviewed if I knew they would portray it in the right way and I was anonymous lol but I dont really trust they would cover it properly with all its complexities and how it really effects our lives?

avatar
Sebby (Admin)
Admin

Posts : 750
Join date : 2009-12-03
Age : 37
Location : London UK

View user profile http://vulvodyniasupport.forumotion.net

Back to top Go down

how do I get onto the facebook forum?

Post  nadja on Tue Jan 11, 2011 8:16 pm

emmmielou wrote:i added one of the girls from the video to facebook. Her name is Tali keteri and she has posted the videos on her facebook

nadja

Posts : 12
Join date : 2011-01-11
Location : Banbury, Oxfordshire

View user profile

Back to top Go down

Re: MTV - i cant have sex. I am so disappointed in this episode

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum