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» Did going off antidepressants cause this?
Today at 2:08 am by ryn207

» 7 months since the diagnosis
Yesterday at 11:43 pm by agtoronto

» Sex after vulvodynia (husband edition)
Mon Aug 13, 2018 12:15 pm by emalita

» burning sensation and small cut? Maybe thrush?
Sun Aug 12, 2018 8:24 pm by emalita

» can v return after vestibulectomy?
Sun Aug 12, 2018 12:01 pm by Alana3

» Cleveland Clinic - Pain Management, Weston, FL
Sat Aug 11, 2018 12:37 pm by Alana3

» Hurting, Burning, Itching, and Worn Out
Fri Aug 10, 2018 7:55 pm by fairlight10

» GREATFULL FOR THIS WEBSITE
Thu Aug 09, 2018 8:37 pm by Nicola Jost

» Can you guys tell me your experiences with diflucan/Fluconazole?
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Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 1

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4


Flare ups from physio?

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Flare ups from physio?

Post  WaahwaahUK on Tue Sep 29, 2015 8:08 pm

I've been seeing an osteopath who specialises in female gynae pain over the last fee months. I've definitely noticed an improvement in my intermittent pelvic and back pain, and in my vulval pain. I do seem to have flare ups of pain after treatment and just wondered if others have experienced that too? Today it's been three weeks since I saw him last, and I had a few good days. But my back is soooo sore today and surprise surprise my vulvodynia is flaring! I really think there is a link with the pelvic issues I have and so does he... I guess I'm just curious if flare ups are part of the process before you see consistent improvement? Seeing him again tomorrow.

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Re: Flare ups from physio?

Post  PainBlogger on Wed Sep 30, 2015 9:24 pm

It's difficult to say. I've sometimes had flares after physio but then other times not. Sorry that's not very helpful!

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Re: Flare ups from physio?

Post  WaahwaahUK on Thu Oct 01, 2015 11:50 am

Thank you for replying. I saw my osteopath again last night and he seemed to understand why I was hurting more and after the session I really burned, but this morning feeling slightly improved. He seems to think there is nerve and ligament issues in my pelvis. So far I've seen the most improvement seeing him than anything else I've tried... I do feel like a combination of factors brought me to this place though in terms of the pain I've been in. About to increase the nortriptyline tonight to 20 mg. How are you doing?

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Re: Flare ups from physio?

Post  PainBlogger on Thu Oct 01, 2015 9:59 pm

I stopped my nortriptyline - bladder emptying problems and palpitations were getting intolerable. I've just started duloxetine two weeks ago. Fingers crossed it'll work. The nortriptyline was helping as the pain increased when I stopped it. I'm not on enough duloxetine yet to be effective, but upping to what the consultant thinks will help - 60mg/day - tomorrow. Hope you get on ok with 20mg nortriptyline. Don't let my experience worry you. I'm on other meds also, which complicates the situation.

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Re: Flare ups from physio?

Post  WaahwaahUK on Fri Oct 02, 2015 3:15 pm

I really hope the Duloxetine helps! Sounds like you've had a time of it with side effects. I'm a bit reluctant about the increase in nortriptyline but the pain was so bad last week I almost found I couldn't walk short distance again without feeling like I'm being stabbed repeatedly with little knives so decided to try it. I swear the anxiety this condition causes is almost as crippling as the pain sometimes. Wishing you lots of luck with the new meds.

WaahwaahUK

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Re: Flare ups from physio?

Post  PainBlogger on Fri Oct 02, 2015 4:27 pm

Thanks. Smile Yes, the anxiety can be crippling. And then that, of course, can make perception of pain worse and cause muscle tension which just feeds in to the vicious cycle. I really don't think I'd have had such bad side effects with the nortriptyline if a) I hadn't already had trouble emptying my bladder before I even started it (tricyclics have an anticholinergic effect so relax bladder muscle = slower emptying) and b) I wasn't already on another antidepressant and tramadol (which, in combination, probably made the cardiac side effects more likely and more troublesome). 20mg is still a tiny dose compared to the amount they used to prescribe when it was used for depression (for which it's not much used now), so hopefully you won't get anything too bothersome. I'll try to remember to update with any progress in a couple of weeks. Be good to see how you get on with the 20mg.

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Re: Flare ups from physio?

Post  WaahwaahUK on Fri Oct 02, 2015 7:26 pm

Anxiety is a cruel partner in crime to this condition for sure.... On the odd good day where my pain is say 4/10, the anxiety kicks in big time! I've noticed how tight I hold my pelvic floor recently. I think its from months of walking in agony and my muscles just tense up permanently now even when I'm resting! But being aware of it is helping me to try and relax them more. Sitting here now, exhaling and letting my pelvic floor go! Crazy!
Yes my GP said 20mg is still very low so I'm just biting the bullet. I take my hat off to you and everyone else here. No one really sees how strong you have to be silently to try and deal with this kind of pain. I think its near on impossible for anyone to imagine who hasn't felt it themselves. I'll keep posting my (hopefully) progress. Please do the same for you. Lots of luck.

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Re: Flare ups from physio?

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