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Today at 2:10 am by anon99

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Today at 12:00 am by Bx11

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

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NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


Flare ups from physio?

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Flare ups from physio?

Post  WaahwaahUK on Tue Sep 29, 2015 8:08 pm

I've been seeing an osteopath who specialises in female gynae pain over the last fee months. I've definitely noticed an improvement in my intermittent pelvic and back pain, and in my vulval pain. I do seem to have flare ups of pain after treatment and just wondered if others have experienced that too? Today it's been three weeks since I saw him last, and I had a few good days. But my back is soooo sore today and surprise surprise my vulvodynia is flaring! I really think there is a link with the pelvic issues I have and so does he... I guess I'm just curious if flare ups are part of the process before you see consistent improvement? Seeing him again tomorrow.

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Re: Flare ups from physio?

Post  PainBlogger on Wed Sep 30, 2015 9:24 pm

It's difficult to say. I've sometimes had flares after physio but then other times not. Sorry that's not very helpful!

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Re: Flare ups from physio?

Post  WaahwaahUK on Thu Oct 01, 2015 11:50 am

Thank you for replying. I saw my osteopath again last night and he seemed to understand why I was hurting more and after the session I really burned, but this morning feeling slightly improved. He seems to think there is nerve and ligament issues in my pelvis. So far I've seen the most improvement seeing him than anything else I've tried... I do feel like a combination of factors brought me to this place though in terms of the pain I've been in. About to increase the nortriptyline tonight to 20 mg. How are you doing?

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Re: Flare ups from physio?

Post  PainBlogger on Thu Oct 01, 2015 9:59 pm

I stopped my nortriptyline - bladder emptying problems and palpitations were getting intolerable. I've just started duloxetine two weeks ago. Fingers crossed it'll work. The nortriptyline was helping as the pain increased when I stopped it. I'm not on enough duloxetine yet to be effective, but upping to what the consultant thinks will help - 60mg/day - tomorrow. Hope you get on ok with 20mg nortriptyline. Don't let my experience worry you. I'm on other meds also, which complicates the situation.

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Re: Flare ups from physio?

Post  WaahwaahUK on Fri Oct 02, 2015 3:15 pm

I really hope the Duloxetine helps! Sounds like you've had a time of it with side effects. I'm a bit reluctant about the increase in nortriptyline but the pain was so bad last week I almost found I couldn't walk short distance again without feeling like I'm being stabbed repeatedly with little knives so decided to try it. I swear the anxiety this condition causes is almost as crippling as the pain sometimes. Wishing you lots of luck with the new meds.

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Re: Flare ups from physio?

Post  PainBlogger on Fri Oct 02, 2015 4:27 pm

Thanks. Smile Yes, the anxiety can be crippling. And then that, of course, can make perception of pain worse and cause muscle tension which just feeds in to the vicious cycle. I really don't think I'd have had such bad side effects with the nortriptyline if a) I hadn't already had trouble emptying my bladder before I even started it (tricyclics have an anticholinergic effect so relax bladder muscle = slower emptying) and b) I wasn't already on another antidepressant and tramadol (which, in combination, probably made the cardiac side effects more likely and more troublesome). 20mg is still a tiny dose compared to the amount they used to prescribe when it was used for depression (for which it's not much used now), so hopefully you won't get anything too bothersome. I'll try to remember to update with any progress in a couple of weeks. Be good to see how you get on with the 20mg.

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Re: Flare ups from physio?

Post  WaahwaahUK on Fri Oct 02, 2015 7:26 pm

Anxiety is a cruel partner in crime to this condition for sure.... On the odd good day where my pain is say 4/10, the anxiety kicks in big time! I've noticed how tight I hold my pelvic floor recently. I think its from months of walking in agony and my muscles just tense up permanently now even when I'm resting! But being aware of it is helping me to try and relax them more. Sitting here now, exhaling and letting my pelvic floor go! Crazy!
Yes my GP said 20mg is still very low so I'm just biting the bullet. I take my hat off to you and everyone else here. No one really sees how strong you have to be silently to try and deal with this kind of pain. I think its near on impossible for anyone to imagine who hasn't felt it themselves. I'll keep posting my (hopefully) progress. Please do the same for you. Lots of luck.

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Re: Flare ups from physio?

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