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» VULVODYNIA AND SUICIDE
Yesterday at 11:20 pm by Faezeh

» a video for you guys
Yesterday at 2:53 am by lavrose

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Yesterday at 2:45 am by lavrose

» New and need some help
Fri Feb 23, 2018 1:12 pm by fairlight10

» Acupuncture gave me my life back!
Thu Feb 22, 2018 11:25 pm by Bx11

» Anyone from New Jersey
Thu Feb 22, 2018 10:47 pm by LindafromNJ

» vaginal cream
Thu Feb 22, 2018 10:46 pm by LindafromNJ

» Acupuncture advice please
Thu Feb 22, 2018 2:25 am by ryn207

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

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Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

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vaginal cream

Thu Feb 22, 2018 10:46 pm by LindafromNJ

I have been given ABC cream to start using for my condition. This is gabapentin, amitriptyline and baclofen cream. Has anyone tried this. Also has anyone used lidocaine. My doctor told me not to use it. It is so sore at the vaginal opening. Has anyone used it there. Please respond!!

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MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0


Does anyone else have Endometriosis?

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Does anyone else have Endometriosis?

Post  CYF on Thu Oct 01, 2015 5:00 pm

Hi everyone,
I'm writing a new post because after 5 years of searching/struggling through my burning vaginal pain, I finally got a diagnosis. My Dr discovered that I have endometriosis and he surgically removed the misplaced tissue. But it doesn't end there. I have no idea how to proceed with treatment aka prevention of a future flare-up. My Dr. was wanting to put me on hormonal birth control (more specifically, the Depo-Provera shot) and I told him I wasn't comfortable with that. I have had horrible side effects to BC in the past.

If anyone has any advice/suggestions regarding what to try or what to avoid, I would really appreciate it. Thanks!

Also, FYI, these have been my main symptoms over the years:
-dull burning deep internal vaginal pain
-deep feeling of burning/inflammation/pain deep within my vagina during and after intercourse
-pain in vestibule during sex
-pinchy crawly contraction-type sensations in vagina
-digestive difficulties: alternating constipation and diarrhea
-for years i was having really heavy discharge but that has gotten better
****NOTE: Drs say that painful awful periods are the trademark symptom of Endometriosis, but that isn't always the case. My periods have been moderate. Years ago, I saw an Endometriosis specialist because I suspected that I had it, and he dismissed me after I told him that my periods were fine. 5 years later, and I realize I was right. Every woman is different and symptoms vary.

If you have any questions please feel free to let me know.

-C

CYF

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Re: Does anyone else have Endometriosis?

Post  sailor_moon on Fri Oct 02, 2015 8:31 pm

I had endometriosis removed 3 months ago. However it did not contribute to my vulva problem. I also have big digestive problems, I have chronic gastritis (chronic inflammation of the stomach, kinda like chrones disease but inflammation stomach instead of bowel). I suffer from severe reflux, I used to vomit every single day, nausea. Alternating constipation and diarrhea are classic endo sufferer symptoms, even after my surgery I still get this sometimes.

I recently read about digestive issues and vulvodynia and a link between the two being associated with candida overgrowth. I tested negative for candida every time until 4 weeks ago it came back positive. Problem is it seems to be resistant to fluconazole and clotrimazole.

Also has your PH been checked?

As for birth control I refuse to go back on it as I never had any problems until I came off it and all these problems showed up. If you have a hormone imbalance and want to have a blood test, birth control will hide any imbalance you may have and you will not get a true result. Have you had your hormones checked?
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Re: Does anyone else have Endometriosis?

Post  CYF on Fri Oct 02, 2015 11:24 pm

sailor_moon,

Thank you for your helpful reply. Like you, I never had any of these issues until after I went off birth control.

How did you find out that you have chronic gastritis? Does that show up on a CT scan? I had a CT scan a couple years ago and "nothing unusual" was detected - my Dr wanted to proceed with an endoscopy/colonoscopy but I didn't do so; it seemed too expensive/drastic at the time.

Do you have any issues with nutrient absorption? My Dr did a stool test and it indicated that I am not digesting/absorbing fats properly. I have no idea why this is the case. Dr thought it might be Celiac but then I tested negative.

Which type of Dr did you go to for your candida testing? In other words, was it a standard yeast test that a OB/GYN typically does, or was it a different type of candida test? I'm curious what my candida level is. It tested "normal" at the OB/GYN office but I'm wondering if there is a different/more comprehensive test.

My pH and my hormones have not been tested in years. Does a too high/too low pH contribute to these symptoms?

CYF

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Re: Does anyone else have Endometriosis?

Post  sailor_moon on Mon Dec 14, 2015 9:05 am

I literally only just saw your reply! So sorry I never got back to you! Hope things have improved, 2 months later.

Chronic gastritis showed up via endoscopy, it's the only way to diagnose it. Was meant to have colonoscopy too but it never happened due to the doctor on duty leaving and another doctor who did it didn't have authority to do the other end!

Hormones, candida and PH all tie in with one another. I've since been treated for candida and had 2 more swab tests done which have come back negative but I still have vulvodynia. I do not get extreme redness and as bad of a blistering feeling as I did previously but the itching and burning is still there
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Re: Does anyone else have Endometriosis?

Post  ringostarr26 on Wed Jan 20, 2016 6:48 pm

I also have/had endometriosis. Mine was scraped off back in 2006 when I had a dermoid cyst removed from my ovary. Honestly, I don't think my endometriosis contributed to my vulva pain but I could be wrong. Mine seems to be heavily related to Overly tight pelvic floor muscles that stemmed from a bad injury/fall to my tailbone in high school. My vulva specialist told me birth control can cause problems with vulvodynia. This probably isn't much help but I just wanted to say I'm in the same boat with endo. It definitely isn't a fun condition to have.

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Re: Does anyone else have Endometriosis?

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