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    Constant pain, I want to die.

    Fri Jun 02, 2017 4:29 am by Meggiemay

    I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

    For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

    Comments: 19

    Clitoris Issues

    Tue Apr 28, 2015 8:17 pm by January

    I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

    Comments: 1

    New member

    Sat Mar 18, 2017 7:37 pm by Lisa1627

    Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

    Comments: 12

    Post Full Vestibulectomy - 5 Years Later - Please Read

    Tue May 02, 2017 6:18 pm by jen007

    Hi All,

    It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

    For 4 years post …

    Comments: 3

    Recovered from Vulvodynia

    Thu May 04, 2017 9:42 pm by chancesunny

    Hey everyone,

    Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

    I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

    Comments: 2

    New here, my story and looking for advice

    Wed Apr 26, 2017 9:02 am by rachiecakes

    Hi All!

    I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

    Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

    Comments: 4

    New w/ Secondary Provoked Vestibuldynia

    Wed Apr 26, 2017 11:46 pm by Birdy

    Hi everyone,

    I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

    Comments: 2

    Male visitor

    Wed Jan 18, 2017 11:19 pm by outsider

    Hello!

    I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
    So I am interested in learning more about female sexual disorders. Do young …

    Comments: 3

    New Here: Question/My Story

    Mon Apr 03, 2017 2:00 am by overit14

    Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

    This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

    Comments: 6


    Does anyone else have Endometriosis?

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    Does anyone else have Endometriosis?

    Post  CYF on Thu Oct 01, 2015 5:00 pm

    Hi everyone,
    I'm writing a new post because after 5 years of searching/struggling through my burning vaginal pain, I finally got a diagnosis. My Dr discovered that I have endometriosis and he surgically removed the misplaced tissue. But it doesn't end there. I have no idea how to proceed with treatment aka prevention of a future flare-up. My Dr. was wanting to put me on hormonal birth control (more specifically, the Depo-Provera shot) and I told him I wasn't comfortable with that. I have had horrible side effects to BC in the past.

    If anyone has any advice/suggestions regarding what to try or what to avoid, I would really appreciate it. Thanks!

    Also, FYI, these have been my main symptoms over the years:
    -dull burning deep internal vaginal pain
    -deep feeling of burning/inflammation/pain deep within my vagina during and after intercourse
    -pain in vestibule during sex
    -pinchy crawly contraction-type sensations in vagina
    -digestive difficulties: alternating constipation and diarrhea
    -for years i was having really heavy discharge but that has gotten better
    ****NOTE: Drs say that painful awful periods are the trademark symptom of Endometriosis, but that isn't always the case. My periods have been moderate. Years ago, I saw an Endometriosis specialist because I suspected that I had it, and he dismissed me after I told him that my periods were fine. 5 years later, and I realize I was right. Every woman is different and symptoms vary.

    If you have any questions please feel free to let me know.

    -C

    CYF

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    Re: Does anyone else have Endometriosis?

    Post  sailor_moon on Fri Oct 02, 2015 8:31 pm

    I had endometriosis removed 3 months ago. However it did not contribute to my vulva problem. I also have big digestive problems, I have chronic gastritis (chronic inflammation of the stomach, kinda like chrones disease but inflammation stomach instead of bowel). I suffer from severe reflux, I used to vomit every single day, nausea. Alternating constipation and diarrhea are classic endo sufferer symptoms, even after my surgery I still get this sometimes.

    I recently read about digestive issues and vulvodynia and a link between the two being associated with candida overgrowth. I tested negative for candida every time until 4 weeks ago it came back positive. Problem is it seems to be resistant to fluconazole and clotrimazole.

    Also has your PH been checked?

    As for birth control I refuse to go back on it as I never had any problems until I came off it and all these problems showed up. If you have a hormone imbalance and want to have a blood test, birth control will hide any imbalance you may have and you will not get a true result. Have you had your hormones checked?
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    Re: Does anyone else have Endometriosis?

    Post  CYF on Fri Oct 02, 2015 11:24 pm

    sailor_moon,

    Thank you for your helpful reply. Like you, I never had any of these issues until after I went off birth control.

    How did you find out that you have chronic gastritis? Does that show up on a CT scan? I had a CT scan a couple years ago and "nothing unusual" was detected - my Dr wanted to proceed with an endoscopy/colonoscopy but I didn't do so; it seemed too expensive/drastic at the time.

    Do you have any issues with nutrient absorption? My Dr did a stool test and it indicated that I am not digesting/absorbing fats properly. I have no idea why this is the case. Dr thought it might be Celiac but then I tested negative.

    Which type of Dr did you go to for your candida testing? In other words, was it a standard yeast test that a OB/GYN typically does, or was it a different type of candida test? I'm curious what my candida level is. It tested "normal" at the OB/GYN office but I'm wondering if there is a different/more comprehensive test.

    My pH and my hormones have not been tested in years. Does a too high/too low pH contribute to these symptoms?

    CYF

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    Re: Does anyone else have Endometriosis?

    Post  sailor_moon on Mon Dec 14, 2015 9:05 am

    I literally only just saw your reply! So sorry I never got back to you! Hope things have improved, 2 months later.

    Chronic gastritis showed up via endoscopy, it's the only way to diagnose it. Was meant to have colonoscopy too but it never happened due to the doctor on duty leaving and another doctor who did it didn't have authority to do the other end!

    Hormones, candida and PH all tie in with one another. I've since been treated for candida and had 2 more swab tests done which have come back negative but I still have vulvodynia. I do not get extreme redness and as bad of a blistering feeling as I did previously but the itching and burning is still there
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    sailor_moon

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    Re: Does anyone else have Endometriosis?

    Post  ringostarr26 on Wed Jan 20, 2016 6:48 pm

    I also have/had endometriosis. Mine was scraped off back in 2006 when I had a dermoid cyst removed from my ovary. Honestly, I don't think my endometriosis contributed to my vulva pain but I could be wrong. Mine seems to be heavily related to Overly tight pelvic floor muscles that stemmed from a bad injury/fall to my tailbone in high school. My vulva specialist told me birth control can cause problems with vulvodynia. This probably isn't much help but I just wanted to say I'm in the same boat with endo. It definitely isn't a fun condition to have.

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    Re: Does anyone else have Endometriosis?

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