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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 19

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6


Young in pain

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Young in pain

Post  Future.Gyno on Sat Oct 03, 2015 11:09 pm

So I've been dealing with this anxiety about my probpems for a while, and I decided to share with people who will actually understand. I was just diagnosed with vulvodynia this summer. My gynecologist also suspects I have endometriosis. At twenty years old, I sometimes feel hopeless. I've been with my boyfriend for three and a half years, and for about the last two, we've been sexually "active." I've never been able to have sex with him successfully. Although he is patient and understanding, I have so much anxiety about it. How long will he be patient? If i don't find a magic cure, will he give up on me? And will i ever get to know what sex is really supposed to feel like? I talk about it with him sometimes, but he always tells me i should see if using my dilator will help. The thought of even using it makes me uncomfortable, and now that i know what the problem is, i don't even think it would help. But he's convinced, and he doesn't want me in pain so he keeps bringing it up. I feel like no matter what I'm going to always be in pain and always have this anxiety. I feel like I'm too young to be having these kinds of problems with sex. I just want us both to be happy, but i feel like this will always be a problem. Well at least if i do end up alone, I'll have an awesome career as an ob/gyn to focus on.

Future.Gyno

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Re: Young in pain

Post  WaahwaahUK on Sun Oct 04, 2015 7:18 pm

Don't give up on getting better. You're so young, and you never know, gently trying some of the suggestions you may find it helps. The most important thing is to try and relax. And talk to your boyfriend. You've been together a while, so tell him your fears. He doesn't have the chance to show you he's sticking around if you don't give him the opportunity to be there for you when you're feeling like this. Remember how brave you are, having gone to the doctors and sought help. Try and take some small steps. You never know, it could resolve quote quickly with the right approach. Not everyone who has this pain condition has it long term. It varies in each case. Stay strong.

WaahwaahUK

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Re: Young in pain

Post  Maple on Mon Nov 30, 2015 4:36 am

To me the thought of using a dilator just sounds like it'll hurt like hell as well. I know it works for some, but if your not comfortable trying it, it's likely going to cause more pain than good due to constricted muscles from anxiety of it.

As a less scary option, I find that sitz baths with epsom salt are extremely helpful, but I always make sure to dry thoroughly afterwards, with a hairdryer even. Self massage down there can also be very helpful, and can have a similar effect as a dilator if done well.

Good luck!

Maple

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Re: Young in pain

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