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» I don't know what to do anymore
Yesterday at 5:05 am by SinclairSassy

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Tue May 22, 2018 7:22 pm by SinclairSassy

» Cleveland Clinic - Pain Management, Weston, FL
Tue May 22, 2018 7:13 pm by SinclairSassy

» Finally found a place for me...
Mon May 21, 2018 4:08 am by mtsp

» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Young in pain

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Young in pain

Post  Future.Gyno on Sat Oct 03, 2015 11:09 pm

So I've been dealing with this anxiety about my probpems for a while, and I decided to share with people who will actually understand. I was just diagnosed with vulvodynia this summer. My gynecologist also suspects I have endometriosis. At twenty years old, I sometimes feel hopeless. I've been with my boyfriend for three and a half years, and for about the last two, we've been sexually "active." I've never been able to have sex with him successfully. Although he is patient and understanding, I have so much anxiety about it. How long will he be patient? If i don't find a magic cure, will he give up on me? And will i ever get to know what sex is really supposed to feel like? I talk about it with him sometimes, but he always tells me i should see if using my dilator will help. The thought of even using it makes me uncomfortable, and now that i know what the problem is, i don't even think it would help. But he's convinced, and he doesn't want me in pain so he keeps bringing it up. I feel like no matter what I'm going to always be in pain and always have this anxiety. I feel like I'm too young to be having these kinds of problems with sex. I just want us both to be happy, but i feel like this will always be a problem. Well at least if i do end up alone, I'll have an awesome career as an ob/gyn to focus on.

Future.Gyno

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Re: Young in pain

Post  WaahwaahUK on Sun Oct 04, 2015 7:18 pm

Don't give up on getting better. You're so young, and you never know, gently trying some of the suggestions you may find it helps. The most important thing is to try and relax. And talk to your boyfriend. You've been together a while, so tell him your fears. He doesn't have the chance to show you he's sticking around if you don't give him the opportunity to be there for you when you're feeling like this. Remember how brave you are, having gone to the doctors and sought help. Try and take some small steps. You never know, it could resolve quote quickly with the right approach. Not everyone who has this pain condition has it long term. It varies in each case. Stay strong.

WaahwaahUK

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Re: Young in pain

Post  Maple on Mon Nov 30, 2015 4:36 am

To me the thought of using a dilator just sounds like it'll hurt like hell as well. I know it works for some, but if your not comfortable trying it, it's likely going to cause more pain than good due to constricted muscles from anxiety of it.

As a less scary option, I find that sitz baths with epsom salt are extremely helpful, but I always make sure to dry thoroughly afterwards, with a hairdryer even. Self massage down there can also be very helpful, and can have a similar effect as a dilator if done well.

Good luck!

Maple

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Re: Young in pain

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