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Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 2

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6


Young in pain

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Young in pain

Post  Future.Gyno on Sat Oct 03, 2015 11:09 pm

So I've been dealing with this anxiety about my probpems for a while, and I decided to share with people who will actually understand. I was just diagnosed with vulvodynia this summer. My gynecologist also suspects I have endometriosis. At twenty years old, I sometimes feel hopeless. I've been with my boyfriend for three and a half years, and for about the last two, we've been sexually "active." I've never been able to have sex with him successfully. Although he is patient and understanding, I have so much anxiety about it. How long will he be patient? If i don't find a magic cure, will he give up on me? And will i ever get to know what sex is really supposed to feel like? I talk about it with him sometimes, but he always tells me i should see if using my dilator will help. The thought of even using it makes me uncomfortable, and now that i know what the problem is, i don't even think it would help. But he's convinced, and he doesn't want me in pain so he keeps bringing it up. I feel like no matter what I'm going to always be in pain and always have this anxiety. I feel like I'm too young to be having these kinds of problems with sex. I just want us both to be happy, but i feel like this will always be a problem. Well at least if i do end up alone, I'll have an awesome career as an ob/gyn to focus on.

Future.Gyno

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Re: Young in pain

Post  WaahwaahUK on Sun Oct 04, 2015 7:18 pm

Don't give up on getting better. You're so young, and you never know, gently trying some of the suggestions you may find it helps. The most important thing is to try and relax. And talk to your boyfriend. You've been together a while, so tell him your fears. He doesn't have the chance to show you he's sticking around if you don't give him the opportunity to be there for you when you're feeling like this. Remember how brave you are, having gone to the doctors and sought help. Try and take some small steps. You never know, it could resolve quote quickly with the right approach. Not everyone who has this pain condition has it long term. It varies in each case. Stay strong.

WaahwaahUK

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Re: Young in pain

Post  Maple on Mon Nov 30, 2015 4:36 am

To me the thought of using a dilator just sounds like it'll hurt like hell as well. I know it works for some, but if your not comfortable trying it, it's likely going to cause more pain than good due to constricted muscles from anxiety of it.

As a less scary option, I find that sitz baths with epsom salt are extremely helpful, but I always make sure to dry thoroughly afterwards, with a hairdryer even. Self massage down there can also be very helpful, and can have a similar effect as a dilator if done well.

Good luck!

Maple

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Re: Young in pain

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