Vulvodynia Support
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» Hope to all my suffering ladies
pudental neuralgia. HELP :( EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
pudental neuralgia. HELP :( EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
pudental neuralgia. HELP :( EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
pudental neuralgia. HELP :( EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
pudental neuralgia. HELP :( EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
pudental neuralgia. HELP :( EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
pudental neuralgia. HELP :( EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
pudental neuralgia. HELP :( EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
pudental neuralgia. HELP :( EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


pudental neuralgia. HELP :(

2 posters

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pudental neuralgia. HELP :( Empty pudental neuralgia. HELP :(

Post  sailor_moon Wed Dec 02, 2015 10:43 am

OK so I think I definitely now have some form of pudental neuralgia....I am now experiencing the most nerve like pain EVER. In 2 weeks I can now not sit down without pain going from my left vestibule/butt cheek area that feels like someone digging in their thumb really really hard..and it radiates down my leg. It is virtually constant but 10X worse when I sit. Along with my usual itching and burning. I am not overweight so this is not the cause. I believe the cause is from being forced to lift things at work that are too heavy [yes, forced, if i don't do it i risk losing my job which means losing my home!I live in a small town with very limited employment ] and perhaps from exercise as I used to be extremely fit and was when all this started.

This pain has graduallly gotten worse over time and has always been dismissed.....great, thanks doctors, due to your negligence I now have an even greater chance of permanent pain that can't be fixed. All at 27 years of age [this has ruined my life since I was 25]

The more I read the more I realise how hard it is to treat. I bought a doughnut cushion that does virtually sweet F.A and am trying to avoid sitting....hard when I travel 1/2 hour to work each way and suffer chronic fatigue and exhaustion.

I was on Lyrica for 6 months which did nothing.

My specialist is away til Jan. He suspected pudental neuralgia but because I have had so many other problems [endometriosis, PCOS, candida, low estrogen, pH imbalance, chronic gastritis] so he could not diagnose it without ruling out everything else. I am going to my GP in 4 days but I don't know what he can do besides scans which probably won't show anything.

Anyone else suffer from PN or similar? Any advice? I don't know any successful treatments besides surgery, and being in australia hardly anyone knows much about this problem Sad
sailor_moon
sailor_moon

Posts : 222
Join date : 2014-07-06
Location : Australia

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pudental neuralgia. HELP :( Empty Re: pudental neuralgia. HELP :(

Post  amyhp Mon Dec 07, 2015 12:07 am

Just private messaged you!

amyhp

Posts : 34
Join date : 2015-09-22

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