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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


Lyrica and side effects

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Lyrica and side effects

Post  Guest on Sun Oct 04, 2015 4:17 pm

Hello everyone, I've been using Lyrica for the last 2 months and noticed a lot of water retention. I think I'll start using 150 mg twice next month and slowly increase the dosage. So what I'm wondering is has anyone noticed weight gain? Is it because it increases appetite or it somehow makes you gain weight?

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Re: Lyrica and side effects

Post  PainBlogger on Sun Oct 04, 2015 6:27 pm

I did gain weight while I was on it (not sure exactly how much, probably about half to one stone i.e. between 3 and 6kg, so nothing crazy). However, I was also doing less exercise because I also have back and leg pain. I think my appetite increased with the Lyrica and so I ate more sugary foods. But the reduction in calories I was burning off no doubt also contributed. It may be worth just keeping an eye on weight and portion size/snacking, but, the way I see it, if it had stopped my pain I would happily have tolerated the weight gain (within reason.) I didn't notice water retention. No puffy ankles or anything like that.

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Lyrica

Post  let's kick this on Wed Apr 06, 2016 11:25 pm

I'm trying to get my doc to give me Lyrica. I am on amitriptyline 50mg twice a day and haven't noticed anything getting better except sleep. I am willing to try anything this pain is terrible

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Lyrica

Post  let's kick this on Thu Apr 14, 2016 2:30 pm

My Gyn won't give me Lyrica. Did your primary doc give it to you?

let's kick this

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Re: Lyrica and side effects

Post  BpCookie on Thu Apr 14, 2016 8:27 pm

Hi girls, Some Dr.s hate to give out any pain meds. because the FDA + DEA has made it really tough on Dr.s. Dr.s are afraid to get into trouble. There for the patients end up suffering. I am very very lucky. I have had two gyno's and my family Dr. willing to prescribe lyrica once a month for me. I have only had one gyno who had issues with it and I ended up dumping that useless Dr.

If you have issues trying to get lyrica, see another Dr. Even if you have to Dr. shop. If Lyrica will help with your pain, then you deserve to be able to get a prescription. You deserve to have less pain.

Good luck girls hugs
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Re: Lyrica and side effects

Post  PainBlogger on Thu Apr 14, 2016 9:00 pm

I was put on Lyrica by a pain management specialist rather than the gynaecologist. Here in the UK gynaecologists don't seem to be experienced in prescribing pain meds beyond maybe amitriptyline.

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Lyrica

Post  let's kick this on Thu Apr 14, 2016 9:47 pm

Does it help with your pain?

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Re: Lyrica and side effects

Post  PainBlogger on Thu Apr 14, 2016 10:51 pm

It didn't help much so I switched to nortriptyline then duloxetine. I'm finding the duloxetine very helpful.

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Lyrica

Post  let's kick this on Wed Apr 27, 2016 12:23 am

Is duloxetine a pain med?

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Re: Lyrica and side effects

Post  PainBlogger on Wed Apr 27, 2016 7:46 am

Duloxetine is an SSNRI antidepressant but is used for neuropathic pain too. In the US it's licensed for fibromyalgia. In the UK it's only actually licensed for diabetic neuropathic pain. I'm not diabetic, but my pain management consultant prescribed it to me anyway and it's really working very well for me. As well as much less pain I also have a lot more energy.

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Re: Lyrica and side effects

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