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» What's next?
Yesterday at 4:01 pm by jennyk2

» Pain management - what works for me
Yesterday at 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

» Custom made leggings?
Sun Apr 22, 2018 4:52 am by CatJones

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


Lyrica and side effects

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Lyrica and side effects

Post  Guest on Sun Oct 04, 2015 4:17 pm

Hello everyone, I've been using Lyrica for the last 2 months and noticed a lot of water retention. I think I'll start using 150 mg twice next month and slowly increase the dosage. So what I'm wondering is has anyone noticed weight gain? Is it because it increases appetite or it somehow makes you gain weight?

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Re: Lyrica and side effects

Post  PainBlogger on Sun Oct 04, 2015 6:27 pm

I did gain weight while I was on it (not sure exactly how much, probably about half to one stone i.e. between 3 and 6kg, so nothing crazy). However, I was also doing less exercise because I also have back and leg pain. I think my appetite increased with the Lyrica and so I ate more sugary foods. But the reduction in calories I was burning off no doubt also contributed. It may be worth just keeping an eye on weight and portion size/snacking, but, the way I see it, if it had stopped my pain I would happily have tolerated the weight gain (within reason.) I didn't notice water retention. No puffy ankles or anything like that.

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Lyrica

Post  let's kick this on Wed Apr 06, 2016 11:25 pm

I'm trying to get my doc to give me Lyrica. I am on amitriptyline 50mg twice a day and haven't noticed anything getting better except sleep. I am willing to try anything this pain is terrible

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Lyrica

Post  let's kick this on Thu Apr 14, 2016 2:30 pm

My Gyn won't give me Lyrica. Did your primary doc give it to you?

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Re: Lyrica and side effects

Post  BpCookie on Thu Apr 14, 2016 8:27 pm

Hi girls, Some Dr.s hate to give out any pain meds. because the FDA + DEA has made it really tough on Dr.s. Dr.s are afraid to get into trouble. There for the patients end up suffering. I am very very lucky. I have had two gyno's and my family Dr. willing to prescribe lyrica once a month for me. I have only had one gyno who had issues with it and I ended up dumping that useless Dr.

If you have issues trying to get lyrica, see another Dr. Even if you have to Dr. shop. If Lyrica will help with your pain, then you deserve to be able to get a prescription. You deserve to have less pain.

Good luck girls hugs
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Re: Lyrica and side effects

Post  PainBlogger on Thu Apr 14, 2016 9:00 pm

I was put on Lyrica by a pain management specialist rather than the gynaecologist. Here in the UK gynaecologists don't seem to be experienced in prescribing pain meds beyond maybe amitriptyline.

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Lyrica

Post  let's kick this on Thu Apr 14, 2016 9:47 pm

Does it help with your pain?

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Re: Lyrica and side effects

Post  PainBlogger on Thu Apr 14, 2016 10:51 pm

It didn't help much so I switched to nortriptyline then duloxetine. I'm finding the duloxetine very helpful.

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Lyrica

Post  let's kick this on Wed Apr 27, 2016 12:23 am

Is duloxetine a pain med?

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Re: Lyrica and side effects

Post  PainBlogger on Wed Apr 27, 2016 7:46 am

Duloxetine is an SSNRI antidepressant but is used for neuropathic pain too. In the US it's licensed for fibromyalgia. In the UK it's only actually licensed for diabetic neuropathic pain. I'm not diabetic, but my pain management consultant prescribed it to me anyway and it's really working very well for me. As well as much less pain I also have a lot more energy.

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Re: Lyrica and side effects

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