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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
Lyrica and side effects
3 posters
Page 1 of 1
Lyrica and side effects
Hello everyone, I've been using Lyrica for the last 2 months and noticed a lot of water retention. I think I'll start using 150 mg twice next month and slowly increase the dosage. So what I'm wondering is has anyone noticed weight gain? Is it because it increases appetite or it somehow makes you gain weight?
Guest- Guest
Re: Lyrica and side effects
I did gain weight while I was on it (not sure exactly how much, probably about half to one stone i.e. between 3 and 6kg, so nothing crazy). However, I was also doing less exercise because I also have back and leg pain. I think my appetite increased with the Lyrica and so I ate more sugary foods. But the reduction in calories I was burning off no doubt also contributed. It may be worth just keeping an eye on weight and portion size/snacking, but, the way I see it, if it had stopped my pain I would happily have tolerated the weight gain (within reason.) I didn't notice water retention. No puffy ankles or anything like that.
PainBlogger- Posts : 219
Join date : 2015-07-27
Lyrica
I'm trying to get my doc to give me Lyrica. I am on amitriptyline 50mg twice a day and haven't noticed anything getting better except sleep. I am willing to try anything this pain is terrible
let's kick this- Posts : 29
Join date : 2016-03-29
Location : USA
Lyrica
My Gyn won't give me Lyrica. Did your primary doc give it to you?
let's kick this- Posts : 29
Join date : 2016-03-29
Location : USA
Re: Lyrica and side effects
Hi girls, Some Dr.s hate to give out any pain meds. because the FDA + DEA has made it really tough on Dr.s. Dr.s are afraid to get into trouble. There for the patients end up suffering. I am very very lucky. I have had two gyno's and my family Dr. willing to prescribe lyrica once a month for me. I have only had one gyno who had issues with it and I ended up dumping that useless Dr.
If you have issues trying to get lyrica, see another Dr. Even if you have to Dr. shop. If Lyrica will help with your pain, then you deserve to be able to get a prescription. You deserve to have less pain.
Good luck girls hugs
If you have issues trying to get lyrica, see another Dr. Even if you have to Dr. shop. If Lyrica will help with your pain, then you deserve to be able to get a prescription. You deserve to have less pain.
Good luck girls hugs
BpCookie- Posts : 209
Join date : 2012-01-25
Location : Arizona
Re: Lyrica and side effects
I was put on Lyrica by a pain management specialist rather than the gynaecologist. Here in the UK gynaecologists don't seem to be experienced in prescribing pain meds beyond maybe amitriptyline.
PainBlogger- Posts : 219
Join date : 2015-07-27
Re: Lyrica and side effects
It didn't help much so I switched to nortriptyline then duloxetine. I'm finding the duloxetine very helpful.
PainBlogger- Posts : 219
Join date : 2015-07-27
Re: Lyrica and side effects
Duloxetine is an SSNRI antidepressant but is used for neuropathic pain too. In the US it's licensed for fibromyalgia. In the UK it's only actually licensed for diabetic neuropathic pain. I'm not diabetic, but my pain management consultant prescribed it to me anyway and it's really working very well for me. As well as much less pain I also have a lot more energy.
PainBlogger- Posts : 219
Join date : 2015-07-27
Similar topics
» Lyrica Side Effects...?
» Did anti-depressants help anyone with generalized vulvodnia?
» Side effects amitrimtlyine
» Did anti-depressants help anyone with generalized vulvodnia?
» Side effects amitrimtlyine
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Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
Sat Jun 15, 2019 5:07 pm by mary jane
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer