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Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

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Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

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Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1


Lyrica and side effects

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Lyrica and side effects

Post  Guest on Sun Oct 04, 2015 4:17 pm

Hello everyone, I've been using Lyrica for the last 2 months and noticed a lot of water retention. I think I'll start using 150 mg twice next month and slowly increase the dosage. So what I'm wondering is has anyone noticed weight gain? Is it because it increases appetite or it somehow makes you gain weight?

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Re: Lyrica and side effects

Post  PainBlogger on Sun Oct 04, 2015 6:27 pm

I did gain weight while I was on it (not sure exactly how much, probably about half to one stone i.e. between 3 and 6kg, so nothing crazy). However, I was also doing less exercise because I also have back and leg pain. I think my appetite increased with the Lyrica and so I ate more sugary foods. But the reduction in calories I was burning off no doubt also contributed. It may be worth just keeping an eye on weight and portion size/snacking, but, the way I see it, if it had stopped my pain I would happily have tolerated the weight gain (within reason.) I didn't notice water retention. No puffy ankles or anything like that.

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Lyrica

Post  let's kick this on Wed Apr 06, 2016 11:25 pm

I'm trying to get my doc to give me Lyrica. I am on amitriptyline 50mg twice a day and haven't noticed anything getting better except sleep. I am willing to try anything this pain is terrible

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Lyrica

Post  let's kick this on Thu Apr 14, 2016 2:30 pm

My Gyn won't give me Lyrica. Did your primary doc give it to you?

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Re: Lyrica and side effects

Post  BpCookie on Thu Apr 14, 2016 8:27 pm

Hi girls, Some Dr.s hate to give out any pain meds. because the FDA + DEA has made it really tough on Dr.s. Dr.s are afraid to get into trouble. There for the patients end up suffering. I am very very lucky. I have had two gyno's and my family Dr. willing to prescribe lyrica once a month for me. I have only had one gyno who had issues with it and I ended up dumping that useless Dr.

If you have issues trying to get lyrica, see another Dr. Even if you have to Dr. shop. If Lyrica will help with your pain, then you deserve to be able to get a prescription. You deserve to have less pain.

Good luck girls hugs
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Re: Lyrica and side effects

Post  PainBlogger on Thu Apr 14, 2016 9:00 pm

I was put on Lyrica by a pain management specialist rather than the gynaecologist. Here in the UK gynaecologists don't seem to be experienced in prescribing pain meds beyond maybe amitriptyline.

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Lyrica

Post  let's kick this on Thu Apr 14, 2016 9:47 pm

Does it help with your pain?

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Re: Lyrica and side effects

Post  PainBlogger on Thu Apr 14, 2016 10:51 pm

It didn't help much so I switched to nortriptyline then duloxetine. I'm finding the duloxetine very helpful.

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Lyrica

Post  let's kick this on Wed Apr 27, 2016 12:23 am

Is duloxetine a pain med?

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Re: Lyrica and side effects

Post  PainBlogger on Wed Apr 27, 2016 7:46 am

Duloxetine is an SSNRI antidepressant but is used for neuropathic pain too. In the US it's licensed for fibromyalgia. In the UK it's only actually licensed for diabetic neuropathic pain. I'm not diabetic, but my pain management consultant prescribed it to me anyway and it's really working very well for me. As well as much less pain I also have a lot more energy.

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Re: Lyrica and side effects

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