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» Just Diagnosed with Vulvadynia
Today at 1:57 am by angelique2016

» Vulvadynia
Yesterday at 7:45 am by mary jane

» Constant pain, I want to die.
Sat Jul 22, 2017 9:41 pm by Meggiemay

» What is Vulvodynia?
Sat Jul 22, 2017 9:21 pm by mary jane

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV

» anyone from southern california in here?
Tue Jul 18, 2017 2:38 am by crypticcalico

Just Diagnosed with Vulvadynia

Tue Aug 02, 2016 9:11 pm by CherryTree23

Well, I was just diagnosed today, yay...my symptoms are just burning pain in vaginal opening. This all came about after taking Bactrim, Monistat, Clindomycin and Diflucan. This doctor was extremely confident I have Vulvadynia. Also told me my vaginal skin isn't red. Yes, it is, mine isn't typically electric red. He prescribed Ampytripline (sp) said, I have a very mild case, and worse case …

Comments: 7

Vulvadynia

Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

Comments: 3

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 21

Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12


I am so glad I have found this site :)

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I am so glad I have found this site :)

Post  miss.panda on Sun Oct 04, 2015 8:14 pm

Hi everyone,

I'm 25 years old and I have suffered from vulvodynia for as long as I can remember. I spent most of my teen years being told I had some sort of eczema/skin problems down there - I tried all the creams out there which would never work and doctors would never believe me that I hadn't tried to use them as I still felt pain down there after. I felt really embarrased and hurt by this so I stopped seeking help for a while. Eventually I decided to go back to my doctor where I was sent to a different hospital and I was evetually diagnosed with vulvadynia a few years ago. Everything fell into place and made sense which was such a relief - but I have unsuccessfully had any improvements since then. I've tried various meds including amitriptiline and gabepentin which didn't work - however I sometimes wonder if I didn't use them for long enough which is why they never worked. I'm currently seeing a psychologist/counsellor who has told me the pain will never go away and that I need to learn to live with it - do you ladies on here agree with that? Should I give up on trying to find something that will work? Or should I keep trying to find new things? Vulvadynia effects my life greatly - I've only ever had one boyfriend and sex was usually painful and since then I have totally avoided relationships despite really wanting a boyfriend as I just can't deal with the sex side to it.

Any advice would be much appreciated and I am so glad I have found this site where there are lots of others who also share my pain - I look forward to talking to you Smile

Thanks
x

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Re: I am so glad I have found this site :)

Post  Guest on Sun Oct 04, 2015 10:27 pm

Hello lils.panda:) I really don't want to believe your doctor, I think we will all get better if we believe. So I think you should keep trying. By the way, how long did you use Gabapentin?

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Re: I am so glad I have found this site :)

Post  sailor_moon on Mon Oct 05, 2015 10:38 am

Hi there,

That's terrible being told you will be stuck with this forever and to deal with it. Sad
I have been told that many times too...but I refuse to believe it, and my current doctor doesn't think I will be stuck with this forever, it's just trying to find a solution that's hard.

Have you had your hormones and PH checked over a 4 week cycle? Have you had a biopsy done? And regular swab tests? Have you been food and chemical allergy tested? Do you have any other health issues?

Sounds like you need to find a new doctor and different form of psychological support. All the ladies on here are very lovely and helpful Smile



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Re: I am so glad I have found this site :)

Post  miss.panda on Mon Oct 05, 2015 1:51 pm

Thanks for your replies door12 and sailor_moon Smile

I'm so glad you have both said that I shouldn't just accept my problem and not keep trying. Reading other posts on here has given me hope that there are other things I can try.

Door12: tbh I can't remember how long I used gabapentin for.....maybe for a few months? Is this something that you have tried that has been successful?

Sailor_moon: I've never had my hormones and PH checked - could this be something that effects it? I used to suffer from vulvodynia before I started periods so that could rule that possibility out? I have had a biopsy done and it didn't come back showing anything. I think I've had swab tests in the past but not regularly or recently. I have been allergy tested and it showed nothing. I suffer from various mental health issues (depression and an eating disorder) and I also suffer from IBS and eczema. Whats your story - what stage are you currently at?

Thanks both Smile
x


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Re: I am so glad I have found this site :)

Post  Guest on Mon Oct 05, 2015 2:37 pm

Oh hi again:) No the reason I asked is because I'm on Lyrica now and it's been 2 months and people say that pregabalin and gabapentin takes a few months to be effective. I'm a little discouraged to be honest learning that it hasn't helped you..

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Re: I am so glad I have found this site :)

Post  miss.panda on Mon Oct 05, 2015 2:48 pm

It was a good few years ago I tried gabapentin and I don't remember much about it but I think I was only on a low dose - I am thinking about asking my doctor to try it again and go on a higher dose or maybe try Lyrica as I hadn't heard of that until coming on here. I just want to find something that work Crying or Very sad have you tried anything else other than Lyrica? Thanks for replying Smile

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Re: I am so glad I have found this site :)

Post  x_chelss@live.com on Sat Oct 10, 2015 6:10 pm

I just replied to your private message, but don't ever give up on trying to get better. You should never learn or accept a life living in pain. Most girls do get better so you need to believe you will be one of those girls.
Look forward to your reply xx

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Re: I am so glad I have found this site :)

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