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» Finally found a place for me...
Today at 4:08 am by mtsp

» UK Vulvodynia Clinics
Yesterday at 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

» There is hope after all!!
Wed May 16, 2018 2:50 am by Cbrimer28

» Getting to the point of wanting to End Everything ADVICE NEEDED
Mon May 14, 2018 6:49 pm by fairlight10

» Looking for advice!
Thu May 10, 2018 8:50 pm by KB365

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


I am so glad I have found this site :)

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I am so glad I have found this site :)

Post  miss.panda on Sun Oct 04, 2015 8:14 pm

Hi everyone,

I'm 25 years old and I have suffered from vulvodynia for as long as I can remember. I spent most of my teen years being told I had some sort of eczema/skin problems down there - I tried all the creams out there which would never work and doctors would never believe me that I hadn't tried to use them as I still felt pain down there after. I felt really embarrased and hurt by this so I stopped seeking help for a while. Eventually I decided to go back to my doctor where I was sent to a different hospital and I was evetually diagnosed with vulvadynia a few years ago. Everything fell into place and made sense which was such a relief - but I have unsuccessfully had any improvements since then. I've tried various meds including amitriptiline and gabepentin which didn't work - however I sometimes wonder if I didn't use them for long enough which is why they never worked. I'm currently seeing a psychologist/counsellor who has told me the pain will never go away and that I need to learn to live with it - do you ladies on here agree with that? Should I give up on trying to find something that will work? Or should I keep trying to find new things? Vulvadynia effects my life greatly - I've only ever had one boyfriend and sex was usually painful and since then I have totally avoided relationships despite really wanting a boyfriend as I just can't deal with the sex side to it.

Any advice would be much appreciated and I am so glad I have found this site where there are lots of others who also share my pain - I look forward to talking to you Smile

Thanks
x

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Re: I am so glad I have found this site :)

Post  Guest on Sun Oct 04, 2015 10:27 pm

Hello lils.panda:) I really don't want to believe your doctor, I think we will all get better if we believe. So I think you should keep trying. By the way, how long did you use Gabapentin?

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Re: I am so glad I have found this site :)

Post  sailor_moon on Mon Oct 05, 2015 10:38 am

Hi there,

That's terrible being told you will be stuck with this forever and to deal with it. Sad
I have been told that many times too...but I refuse to believe it, and my current doctor doesn't think I will be stuck with this forever, it's just trying to find a solution that's hard.

Have you had your hormones and PH checked over a 4 week cycle? Have you had a biopsy done? And regular swab tests? Have you been food and chemical allergy tested? Do you have any other health issues?

Sounds like you need to find a new doctor and different form of psychological support. All the ladies on here are very lovely and helpful Smile



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Re: I am so glad I have found this site :)

Post  miss.panda on Mon Oct 05, 2015 1:51 pm

Thanks for your replies door12 and sailor_moon Smile

I'm so glad you have both said that I shouldn't just accept my problem and not keep trying. Reading other posts on here has given me hope that there are other things I can try.

Door12: tbh I can't remember how long I used gabapentin for.....maybe for a few months? Is this something that you have tried that has been successful?

Sailor_moon: I've never had my hormones and PH checked - could this be something that effects it? I used to suffer from vulvodynia before I started periods so that could rule that possibility out? I have had a biopsy done and it didn't come back showing anything. I think I've had swab tests in the past but not regularly or recently. I have been allergy tested and it showed nothing. I suffer from various mental health issues (depression and an eating disorder) and I also suffer from IBS and eczema. Whats your story - what stage are you currently at?

Thanks both Smile
x


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Re: I am so glad I have found this site :)

Post  Guest on Mon Oct 05, 2015 2:37 pm

Oh hi again:) No the reason I asked is because I'm on Lyrica now and it's been 2 months and people say that pregabalin and gabapentin takes a few months to be effective. I'm a little discouraged to be honest learning that it hasn't helped you..

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Re: I am so glad I have found this site :)

Post  miss.panda on Mon Oct 05, 2015 2:48 pm

It was a good few years ago I tried gabapentin and I don't remember much about it but I think I was only on a low dose - I am thinking about asking my doctor to try it again and go on a higher dose or maybe try Lyrica as I hadn't heard of that until coming on here. I just want to find something that work Crying or Very sad have you tried anything else other than Lyrica? Thanks for replying Smile

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Re: I am so glad I have found this site :)

Post  x_chelss@live.com on Sat Oct 10, 2015 6:10 pm

I just replied to your private message, but don't ever give up on trying to get better. You should never learn or accept a life living in pain. Most girls do get better so you need to believe you will be one of those girls.
Look forward to your reply xx

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Re: I am so glad I have found this site :)

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