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» Can you guys tell me your experiences with diflucan/Fluconazole?
Yesterday at 1:29 am by ryn207

» So frustrating!!
Yesterday at 1:25 am by ryn207

» Looking for suggestions or encouragement
Yesterday at 1:19 am by ryn207

» Looking for a friend..... and new problems
Mon Jan 15, 2018 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


any advice please, I'm at my wits end :(

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any advice please, I'm at my wits end :(

Post  sailor_moon on Mon Oct 05, 2015 4:18 am

Does anyone else suffer visible redness/inflammation? I do, from my urethra down on my inner labia and either side of my inner labia where it meets the outer labia in the 'crevices' so to speak. It is always the same areas that are red and inflamed. And so so so itchy. My burning is confined to either vestibule but I itch worst from my vestibule up to my urethral opening.

Does anyone else suffer any redness at all ,and if so, does it get redder and more inflamed during a flare up?

I am at my wits end here, I feel like saying to the doctor just give me a nerve block and if that doesn't work cut the frigging affected skin out...but obviously my urethral skin and inner labia cannot be cut....it is a very scary thought, I don't want to be left looking deformed down there either. I feel like I am going insane. I think about my vulva 24/7.

I want to have a baby but with the possibility of pudental neuralgia, pregnancy would make it worse...I can barely cope day to day now.

Has anyone been pregnant with vulvadynia and inflammation down there? did it make things worse?

I also have white stuff that looks like little tiny bits of flaky wet toilet paper coming off me every day, stuck in my crevices where I itch . IT IS NOT LICHEN SCLEROSIS, I have had 2 biopsies that show only inflammation. I do not have white patches of skin either. And steroid cream makes everything worse. It is not smegma because I shower twice daily and keep the area clean. Does anyone else have this problem? I did recently test positive for yeast, I have tried fluconazole long-term and clotrimazole and it has not worked. It was just candida albicans, not any other from of yeast.

I am literally getting teary-eyed as I write this because I feel like I have tried everything and nothing has worked. Nothing even brings relief. Sad

I have tried all steroid creams, Probiotics, Yeast treatment, PH balancers, Herb suppliments, any form of antiseptic, healing cream, zinc cream, baking soda baths, antiboitics, nothing has worked....what the hell do I do? Evven had a laproscopy and hystoscopy but no internal cause was found.

Even someone to chat to would be nice...I was on the secret FB group but had to leave due to someone trying to hack me and I can't risk anyone finding out I have this problem as certain people would make life hell for me.
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Re: any advice please, I'm at my wits end :(

Post  sgw11 on Mon Oct 05, 2015 10:12 am

Hey sailor_moon,

I just thought I'd reply, I know what it's like waiting for a response and not getting any! I also suffer from visible redness and inflammation. I recently went to my gynecologist and she said that some women's vaginas will just always have a more swollen appearance. After I have sex (which is rarely unfortunately), I do notice swelling, so I usually put an ice pack on there afterwards to try and reduce the tenderness for the following day.

I do not experience any itching like you, so I can't really comment on that sorry! However I did have pain around my vestibule, but that has gone since being on amitriptyline oral medication, but I still have provoked pain on my vulva. I know how you feel, all I seem to be able to notice is how my vagina is feeling each day, when it feels irritated, when I'm in pain etc. It's exhausting! And it makes me upset too. I've had this for over 2 years now and I feel like I've done bloody everything! Since my pain has become more localized, I am a candidate for surgery, however like you, I am unsure if I even want to do it! So much recovery time for something that may only just reduce the pain, not get rid of it entirely.

I have also never been pregnant so I can't comment on that question.

Please feel free to message me, whenever you need. We should always help those around us, especially someone going through this!

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Re: any advice please, I'm at my wits end :(

Post  sailor_moon on Mon Oct 05, 2015 10:27 am

Than you for your reply. I really appreciate it. I haven't tried Ami yet but I have tried Lyrica for 6 months which did nothing but make me fatigued and fat! I will ask my doctor about it when I see him this week, but he said if it were nerve related Lyrica should have helped.. though Amitryptilene is the number 1 drug for vulvodynia. Did taking it reduce the redness? I get swelling too...it sucks.

Surgery is such a scary thought, especially if it fails, it is a lot of time,money and changes the appearance of your vulva. I would hate to be left looking deformed and still be in discomfort!

I ended up having a massive big cry to myself earlier. I used to hardly ever cry...now I feel that crying alone by myself is all I seem to do when I have time to myself. I try to talk to people I'm close to but it always gets turned back on me, like "You must be doing or using something to be causing this", "There are people so much worse off than you", "Crying isn't going to help you" ect. So I pretty much just give up on trying to discuss it now I think.

Was your pain unprovoked? The doctor told me that itching can be a "milder" form of nerve pain. That itch turns into burn. I never experience the itch and burn together, it is either one or the other.

Thankyou again for your reply. I'm very active on here and in return if you ever need to vent feel free to message me!

I have been suffering 2 and a half years, around the same time as you so I dare say we must be on a similar level emotionally. This condition really is hell.

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Re: any advice please, I'm at my wits end :(

Post  sgw11 on Mon Oct 05, 2015 11:50 am

Yeah I've been on Lyrica too and it did nothing except make me experience anxiety which I've never suffered from before, so I got off it after about 4 months. My redness and swelling is more attributable to sex, so I'm not sure if it reduced the redness in general sorry.

Yep, I've been crying a lot more lately too. I'm going to see a psychologist about it in a couple of weeks and see if I can do anything to stop this disorder from making me so upset. It's so hard to remain hopeful.

My pain was initially provoked, then in the past 6 months or so it did become more generalized, but since I've been on the amitriptyline (for about 3 months now), it has returned to provoked, which is a minor win i suppose! I used to feel a burning sensation too when the pain was more generalized, like from sitting down all day etc.

Thanks Smile yep sure is! no doubt about that.

I just want it to be over!

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Re: any advice please, I'm at my wits end :(

Post  miss.panda on Mon Oct 05, 2015 2:21 pm

Hi both,

I suffer from a redness down there too and it used to feel a bit swollen after sex. Doctors have always said to me that my vulva looks normal though and that some women just have ones that are more red than others. I don't think the swollen feeling is normal though?

Don't give up sailor_moon Smile I know its easy to feel that way though. As you haven't tried amitriptline yet maybe give that a go?


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Amitriptyline

Post  amyhp on Mon Oct 05, 2015 7:23 pm

lils.panda, Has Amitriptyline worked for you? I have done Lyrcia and Cymbalta before my surgery and they did not help at all. Surgery had helped my provoked pain, but my unprovoked pain is still here.

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Re: any advice please, I'm at my wits end :(

Post  miss.panda on Mon Oct 05, 2015 8:37 pm

Hi amyhopexoxo Smile I have used amitriptyline in the past but I don't think I persisted with it long enough and I think I only tried a small dose so I'm going to ask my doctor if I can try it or something else similar again. The past 2 years or so I've been feeling like jusat giving up with it all but I want to start trying again to find a solution. I'm really curious with what the surgery was like? What exactly did they do or remove? Would you recommend it? Thanks Smile

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Re: any advice please, I'm at my wits end :(

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