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» VULVODYNIA AND SUICIDE
Yesterday at 11:20 pm by Faezeh

» a video for you guys
Yesterday at 2:53 am by lavrose

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Yesterday at 2:45 am by lavrose

» New and need some help
Fri Feb 23, 2018 1:12 pm by fairlight10

» Acupuncture gave me my life back!
Thu Feb 22, 2018 11:25 pm by Bx11

» Anyone from New Jersey
Thu Feb 22, 2018 10:47 pm by LindafromNJ

» vaginal cream
Thu Feb 22, 2018 10:46 pm by LindafromNJ

» Acupuncture advice please
Thu Feb 22, 2018 2:25 am by ryn207

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 3

Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

Comments: 0

vaginal cream

Thu Feb 22, 2018 10:46 pm by LindafromNJ

I have been given ABC cream to start using for my condition. This is gabapentin, amitriptyline and baclofen cream. Has anyone tried this. Also has anyone used lidocaine. My doctor told me not to use it. It is so sore at the vaginal opening. Has anyone used it there. Please respond!!

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MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0


I feel depressed and hopeless...

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I feel depressed and hopeless...

Post  Guest on Mon Oct 05, 2015 5:23 pm

Hello everyone, I know I have written my story before but I wanted to write it again with a clear mind. I'm 23 years old and never had sex. I never had any pain until 7 or 8 months ago. I have been in extreme pain and I was diagnosed 2 months ago with VVS. I'm on Lyrica 75 mg in the morning and 150 mg in the evening. I haven't experienced much relief though I feel maybe only a little better.
My now-ex boyfriend was kissing me and I was in my underwear when I felt a severe pain after I felt his penis. And since then, I have been in a lot of pain. Because of other reasons we fought and broke up, and I have literally been crying every day for the last 8 months thinking how he ruined my life causing me this pain. I know that I have to keep a positive attitude and believe that VVS will be cured but the pain doesn't allow me.
Is it true that VVS happens to some of us but is hiding and when something triggers it, it just happens? Excuse my English please because I'm not from USA or UK.
What I want to know is if I'm right that it is he who caused me this?
I feel so depressed and futureless. Does this ever go away?

Guest
Guest


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Re: I feel depressed and hopeless...

Post  EverythingIsDifferentNow on Wed Oct 14, 2015 8:53 pm

yes it will go away, but not likely on its own. You need to fix it. Best solution? research, research, research, research. You will find YOUR OWN CURE that way. I did. Took me a few months but I found out that I had too much oxalate in my body and that I needed to exercise. I take calcium citrate pills now and don't eat spinach anymore. I used to have that stuff like three times a day every day.

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Re: I feel depressed and hopeless...

Post  jen007 on Wed Oct 14, 2015 11:04 pm

Your ex-boyfriend did not cause you to have this pain, he only helped you discover that you have pain. I never knew something was wrong with me until I attempted to have sex for the first time. It hurt so bad that I knew if sex felt that way then no one would be doing it. I agree with "EverythingIsDifferentNow," that you should do your research. Before doing anything on your own, consult your doctor! Also, try finding a vulvar specialist or a good gynecologist who will listen to you. A lot of the time, women like us get written off from doctors because this disorder is so rare. I don't know what country you are from, but from what I've read on here in the past, it's hard to find a specialist outside of the U.S.A. You could also try going to a women's health specialist.

Again, don't try anything on your own until you've gotten the O.K from a doctor. It's really important to talk to a specialist before doing things on your own. This disorder is a delicate one and can be thrown off kilter very easily, making it worse than ever. Don't blame your ex-boyfriend. I know it's hard not to when after trying to "be with him" you started to feel pain. Try to stay positive because there is relief for everyone. We all have different ways of managing this awful disorder. Keep your head up and know that yo have a community of people here to support you.

-Jen

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Re: I feel depressed and hopeless...

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