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I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

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Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

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MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

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New member desperate need of other vulvadynia sufferers

Fri Feb 08, 2019 6:55 pm by Tfc13

Hi there hope some1 reading this is going through the same shit as me!, I'm new to this so don't really know where to start , I'm Teresa , I've just been diagnosed with vestibular vulvadynia , after countless appointments with GPS being misdiagnosed, tested for god knows everything , eventually under my gynochologist ,who done all her necessary tests, I now have been given a diagnosis I'm in …

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Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 7

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

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I feel depressed and hopeless...

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I feel depressed and hopeless...

Post  Guest on Mon Oct 05, 2015 5:23 pm

Hello everyone, I know I have written my story before but I wanted to write it again with a clear mind. I'm 23 years old and never had sex. I never had any pain until 7 or 8 months ago. I have been in extreme pain and I was diagnosed 2 months ago with VVS. I'm on Lyrica 75 mg in the morning and 150 mg in the evening. I haven't experienced much relief though I feel maybe only a little better.
My now-ex boyfriend was kissing me and I was in my underwear when I felt a severe pain after I felt his penis. And since then, I have been in a lot of pain. Because of other reasons we fought and broke up, and I have literally been crying every day for the last 8 months thinking how he ruined my life causing me this pain. I know that I have to keep a positive attitude and believe that VVS will be cured but the pain doesn't allow me.
Is it true that VVS happens to some of us but is hiding and when something triggers it, it just happens? Excuse my English please because I'm not from USA or UK.
What I want to know is if I'm right that it is he who caused me this?
I feel so depressed and futureless. Does this ever go away?

Guest
Guest


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Re: I feel depressed and hopeless...

Post  EverythingIsDifferentNow on Wed Oct 14, 2015 8:53 pm

yes it will go away, but not likely on its own. You need to fix it. Best solution? research, research, research, research. You will find YOUR OWN CURE that way. I did. Took me a few months but I found out that I had too much oxalate in my body and that I needed to exercise. I take calcium citrate pills now and don't eat spinach anymore. I used to have that stuff like three times a day every day.

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Re: I feel depressed and hopeless...

Post  jen007 on Wed Oct 14, 2015 11:04 pm

Your ex-boyfriend did not cause you to have this pain, he only helped you discover that you have pain. I never knew something was wrong with me until I attempted to have sex for the first time. It hurt so bad that I knew if sex felt that way then no one would be doing it. I agree with "EverythingIsDifferentNow," that you should do your research. Before doing anything on your own, consult your doctor! Also, try finding a vulvar specialist or a good gynecologist who will listen to you. A lot of the time, women like us get written off from doctors because this disorder is so rare. I don't know what country you are from, but from what I've read on here in the past, it's hard to find a specialist outside of the U.S.A. You could also try going to a women's health specialist.

Again, don't try anything on your own until you've gotten the O.K from a doctor. It's really important to talk to a specialist before doing things on your own. This disorder is a delicate one and can be thrown off kilter very easily, making it worse than ever. Don't blame your ex-boyfriend. I know it's hard not to when after trying to "be with him" you started to feel pain. Try to stay positive because there is relief for everyone. We all have different ways of managing this awful disorder. Keep your head up and know that yo have a community of people here to support you.

-Jen

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Re: I feel depressed and hopeless...

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