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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 19

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6


I feel depressed and hopeless...

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I feel depressed and hopeless...

Post  Guest on Mon Oct 05, 2015 5:23 pm

Hello everyone, I know I have written my story before but I wanted to write it again with a clear mind. I'm 23 years old and never had sex. I never had any pain until 7 or 8 months ago. I have been in extreme pain and I was diagnosed 2 months ago with VVS. I'm on Lyrica 75 mg in the morning and 150 mg in the evening. I haven't experienced much relief though I feel maybe only a little better.
My now-ex boyfriend was kissing me and I was in my underwear when I felt a severe pain after I felt his penis. And since then, I have been in a lot of pain. Because of other reasons we fought and broke up, and I have literally been crying every day for the last 8 months thinking how he ruined my life causing me this pain. I know that I have to keep a positive attitude and believe that VVS will be cured but the pain doesn't allow me.
Is it true that VVS happens to some of us but is hiding and when something triggers it, it just happens? Excuse my English please because I'm not from USA or UK.
What I want to know is if I'm right that it is he who caused me this?
I feel so depressed and futureless. Does this ever go away?

Guest
Guest


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Re: I feel depressed and hopeless...

Post  EverythingIsDifferentNow on Wed Oct 14, 2015 8:53 pm

yes it will go away, but not likely on its own. You need to fix it. Best solution? research, research, research, research. You will find YOUR OWN CURE that way. I did. Took me a few months but I found out that I had too much oxalate in my body and that I needed to exercise. I take calcium citrate pills now and don't eat spinach anymore. I used to have that stuff like three times a day every day.

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Re: I feel depressed and hopeless...

Post  jen007 on Wed Oct 14, 2015 11:04 pm

Your ex-boyfriend did not cause you to have this pain, he only helped you discover that you have pain. I never knew something was wrong with me until I attempted to have sex for the first time. It hurt so bad that I knew if sex felt that way then no one would be doing it. I agree with "EverythingIsDifferentNow," that you should do your research. Before doing anything on your own, consult your doctor! Also, try finding a vulvar specialist or a good gynecologist who will listen to you. A lot of the time, women like us get written off from doctors because this disorder is so rare. I don't know what country you are from, but from what I've read on here in the past, it's hard to find a specialist outside of the U.S.A. You could also try going to a women's health specialist.

Again, don't try anything on your own until you've gotten the O.K from a doctor. It's really important to talk to a specialist before doing things on your own. This disorder is a delicate one and can be thrown off kilter very easily, making it worse than ever. Don't blame your ex-boyfriend. I know it's hard not to when after trying to "be with him" you started to feel pain. Try to stay positive because there is relief for everyone. We all have different ways of managing this awful disorder. Keep your head up and know that yo have a community of people here to support you.

-Jen

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Re: I feel depressed and hopeless...

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