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» I don't know what to do anymore
Yesterday at 5:05 am by SinclairSassy

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Tue May 22, 2018 7:22 pm by SinclairSassy

» Cleveland Clinic - Pain Management, Weston, FL
Tue May 22, 2018 7:13 pm by SinclairSassy

» Finally found a place for me...
Mon May 21, 2018 4:08 am by mtsp

» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


I feel depressed and hopeless...

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I feel depressed and hopeless...

Post  Guest on Mon Oct 05, 2015 5:23 pm

Hello everyone, I know I have written my story before but I wanted to write it again with a clear mind. I'm 23 years old and never had sex. I never had any pain until 7 or 8 months ago. I have been in extreme pain and I was diagnosed 2 months ago with VVS. I'm on Lyrica 75 mg in the morning and 150 mg in the evening. I haven't experienced much relief though I feel maybe only a little better.
My now-ex boyfriend was kissing me and I was in my underwear when I felt a severe pain after I felt his penis. And since then, I have been in a lot of pain. Because of other reasons we fought and broke up, and I have literally been crying every day for the last 8 months thinking how he ruined my life causing me this pain. I know that I have to keep a positive attitude and believe that VVS will be cured but the pain doesn't allow me.
Is it true that VVS happens to some of us but is hiding and when something triggers it, it just happens? Excuse my English please because I'm not from USA or UK.
What I want to know is if I'm right that it is he who caused me this?
I feel so depressed and futureless. Does this ever go away?

Guest
Guest


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Re: I feel depressed and hopeless...

Post  EverythingIsDifferentNow on Wed Oct 14, 2015 8:53 pm

yes it will go away, but not likely on its own. You need to fix it. Best solution? research, research, research, research. You will find YOUR OWN CURE that way. I did. Took me a few months but I found out that I had too much oxalate in my body and that I needed to exercise. I take calcium citrate pills now and don't eat spinach anymore. I used to have that stuff like three times a day every day.

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Re: I feel depressed and hopeless...

Post  jen007 on Wed Oct 14, 2015 11:04 pm

Your ex-boyfriend did not cause you to have this pain, he only helped you discover that you have pain. I never knew something was wrong with me until I attempted to have sex for the first time. It hurt so bad that I knew if sex felt that way then no one would be doing it. I agree with "EverythingIsDifferentNow," that you should do your research. Before doing anything on your own, consult your doctor! Also, try finding a vulvar specialist or a good gynecologist who will listen to you. A lot of the time, women like us get written off from doctors because this disorder is so rare. I don't know what country you are from, but from what I've read on here in the past, it's hard to find a specialist outside of the U.S.A. You could also try going to a women's health specialist.

Again, don't try anything on your own until you've gotten the O.K from a doctor. It's really important to talk to a specialist before doing things on your own. This disorder is a delicate one and can be thrown off kilter very easily, making it worse than ever. Don't blame your ex-boyfriend. I know it's hard not to when after trying to "be with him" you started to feel pain. Try to stay positive because there is relief for everyone. We all have different ways of managing this awful disorder. Keep your head up and know that yo have a community of people here to support you.

-Jen

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Re: I feel depressed and hopeless...

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