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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


Have got dialators!

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Re: Have got dialators!

Post  Mouse on Mon Jan 31, 2011 8:15 pm

Hey I'm a leftie as well!!!

I have the bunched up muscles on the left side and 95% of my pain comes from there. As I've mentioned before it does like to jump around a bit and expecially since physio has been making things interesting. I now get pain in the most random spots, right through my backside and down my legs, the physio said that would be from the squats. I'm going to confess today that I had forgotten to do those Smile

Since physio started I've noticed how much I tense everything up. Off for more this afternoon Yaaaayyy!!!

Mouse

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Re: Have got dialators!

Post  Sebby (Admin) on Mon Jan 31, 2011 8:19 pm


Another leftie!

Methinks I must create a poll, lets do some research of our own Wink
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Re: Have got dialators!

Post  tweety on Tue Feb 01, 2011 10:20 am

hey Sebby,

noticed you mentioned using KY. My physio mentioned using just vegetable oil... I find the consistency is a little more fluid and doesnt irritate.

just a thought... may make the whole "experience" more enjoyable?

tweety

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Re: Have got dialators!

Post  Sarah001 on Tue Feb 01, 2011 7:35 pm

Ok this pain on the left side thing is getting odder and odder, I've just been on a couple of other sites I use and found various people mentioning tightness in the left pelvic floor mainly too, there has to be something in this.... scratch
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Re: Have got dialators!

Post  Sebby (Admin) on Tue Feb 01, 2011 9:40 pm


My mum has athritis, suspected fibromyalgia and chronic facial pain..

I asked her if she had a side that she felt was more painful..she said the left!!!!!

I think there is deff something in this with chronic pain..it could be the nerves???? Hmmm
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Re: Have got dialators!

Post  Mouse on Tue Feb 01, 2011 10:10 pm

I asked my physio about the "leftie" theory she didn't know. Damn!!!

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Re: Have got dialators!

Post  Sarah001 on Wed Feb 02, 2011 10:17 am

I don't know Sebby, I've got Fibro and Hypermobility Syndrome and I find the right side is more painful on the external muscles but the left in the pelvic floor! Question I tried googling it but found nothing new except more case studies of women (and men on a prostate site) with tight left side pelvic floors. Curious... It's kind of like the pelvis usually rotates anteriorly on the right side when it's misaligned but nobody knows why, it makes no difference if the person is left or right handed, where they live in the world or what they do for a living it's still right side anterior 95% of the time. I hate not knowing the answer to things!!
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Re: Have got dialators!

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