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» Vestibulectomy
Yesterday at 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


Have got dialators!

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Re: Have got dialators!

Post  Mouse on Mon Jan 31, 2011 8:15 pm

Hey I'm a leftie as well!!!

I have the bunched up muscles on the left side and 95% of my pain comes from there. As I've mentioned before it does like to jump around a bit and expecially since physio has been making things interesting. I now get pain in the most random spots, right through my backside and down my legs, the physio said that would be from the squats. I'm going to confess today that I had forgotten to do those Smile

Since physio started I've noticed how much I tense everything up. Off for more this afternoon Yaaaayyy!!!

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Re: Have got dialators!

Post  Sebby (Admin) on Mon Jan 31, 2011 8:19 pm


Another leftie!

Methinks I must create a poll, lets do some research of our own Wink
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Re: Have got dialators!

Post  tweety on Tue Feb 01, 2011 10:20 am

hey Sebby,

noticed you mentioned using KY. My physio mentioned using just vegetable oil... I find the consistency is a little more fluid and doesnt irritate.

just a thought... may make the whole "experience" more enjoyable?

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Re: Have got dialators!

Post  Sarah001 on Tue Feb 01, 2011 7:35 pm

Ok this pain on the left side thing is getting odder and odder, I've just been on a couple of other sites I use and found various people mentioning tightness in the left pelvic floor mainly too, there has to be something in this.... scratch
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Re: Have got dialators!

Post  Sebby (Admin) on Tue Feb 01, 2011 9:40 pm


My mum has athritis, suspected fibromyalgia and chronic facial pain..

I asked her if she had a side that she felt was more painful..she said the left!!!!!

I think there is deff something in this with chronic pain..it could be the nerves???? Hmmm
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Re: Have got dialators!

Post  Mouse on Tue Feb 01, 2011 10:10 pm

I asked my physio about the "leftie" theory she didn't know. Damn!!!

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Re: Have got dialators!

Post  Sarah001 on Wed Feb 02, 2011 10:17 am

I don't know Sebby, I've got Fibro and Hypermobility Syndrome and I find the right side is more painful on the external muscles but the left in the pelvic floor! Question I tried googling it but found nothing new except more case studies of women (and men on a prostate site) with tight left side pelvic floors. Curious... It's kind of like the pelvis usually rotates anteriorly on the right side when it's misaligned but nobody knows why, it makes no difference if the person is left or right handed, where they live in the world or what they do for a living it's still right side anterior 95% of the time. I hate not knowing the answer to things!!
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Re: Have got dialators!

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