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» Cleveland Clinic - Pain Management, Weston, FL
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Mon May 21, 2018 4:08 am by mtsp

» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
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» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


New here - Questions

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New here - Questions

Post  syeraa on Fri Oct 09, 2015 4:50 pm

Hello ladies ! Well, an acquaintance of mine oriented me to this site, and I'm very glad I found it.
I am questioning myself as far as if I may have vulvodynia, and maybe you guys can help me. I know you're not doctors, and therefore can'T give me a diagnosis but you might be able to help regardless.

A few weeks ago, I started having burning sensations after sex. I thought at first it was yeast, so I bought the oral one dose tablet, and called it a day. The problem is, when I had sex again, OMG, it burned so much during sex and after, it was even worse. It burns in the whole vulva, it is swollen, and it burns all the way to inside the vagina. No problem having sex though it gets very uncomfortable. After, when I pee, it's like someone is pouring acid out of me. It is excruciating. I still had some discharges, so I decided to buy the local cream treatment, as I thought it still may be yeast. The burning calmed down, and I thought it was all good. So this morning, I had sex again. And the crazy pain came back. Now, I no longer have discharges, but my whole vulva is so red and sore and swollen and I'm burning inside and when I pee. It didn't hurt THAT much during sex but definitely was way uncomfortable and wanted him to finish. I saw 2 doctors, and none of them were able to help me.

I would like to have you ladies's input.

Thanks in advance !

Syera

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Re: New here - Questions

Post  sailor_moon on Tue Oct 13, 2015 9:51 am

Hi there,

Welcome to the forum! There are lots of lovely ladies on here to offer advice, wish it was more active though.

When you treated yourself for thrush did the symptoms completely go away until the next time you had sex? Or did you still experience symptoms?

Also, what did your discharge look like?Thick,watery,white,clear,yellow, sticky?

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Re: New here - Questions

Post  PainBlogger on Tue Oct 13, 2015 11:00 am

Have you had a urine sample checked for infection?

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Re: New here - Questions

Post  syeraa on Sun Nov 22, 2015 7:13 pm

Hi ! Sorry for the delay ! No, when I got treated for thrush, the symptoms didn't go away. I no longer have discharges, just pain with intercourse. They were more like residues than discharges, but I remember having that while having thrush in the past. They were white and sometimes greyish. I also have Lichen Sclerosis, which can provoke symptoms, but never inside the vagina. So, sexwise, what happens in more details is...at the beginning it's ok, but after a while, it starts burning inside, and when he finishes, it burns outside too, and hurts to pee -__-. I also noticed some incomfort with tampons, and a slight burning sensation, even when I don't have sex for a week or 2. I've had plenty of UTI's and thrush infections, and it is nothing like that. I had sex yesterday after 3 weeks of abstinence yesterday, and the same thing happened. It was enjoyable at first, and then started to get uncomfortable. The pain is worse after though. It's like all of my vagina swells and I can't pee right after. Then, it gets progressively better until say 24 hours later, and almost no pain left... Saw a obgyn and she treated me for thrush AGAIN. I mean... Ugh. Can anyone provide advice ? Thanks in advance Smile

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Re: New here - Questions

Post  PainBlogger on Sun Nov 22, 2015 9:17 pm

I'm not a doctor, but urethral inflammation could be a possibility given the difficulty in urinating. Do you think maybe what you're perceiving as vaginal pain could be urethral? Everything is close together down there. I know I sometimes have difficulty pinpointing the source of my pain.

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Re: New here - Questions

Post  syeraa on Tue Nov 24, 2015 12:39 am

You mean a UTI ? I've had plenty and none provoked that kind of pain. Pain is inside the vagina and also all over the vulva; it becomes swollen, very red and raw after sex. No UTI has ever given me those symptoms. I wish that's what it was though. I wish it's something else that's curable... :/

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Re: New here - Questions

Post  PainBlogger on Tue Nov 24, 2015 8:57 am

You're right, a UTI would not likely cause swelling and redness to the vulva. I just mentioned it as my physio/PT said she thought I had urethral inflammation after an examination, but I had no infection there at the time. So it is possible to have inflammation without an active infection. Sorry I can't be more help.

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Re: New here - Questions

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