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» Vestibulectomy today and no pain
Today at 3:28 pm by Dsrt16

» vestibulectomy success
Yesterday at 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Yesterday at 12:06 am by Jgreen81

» Pain aftee vestibulectimy
Yesterday at 12:03 am by Jgreen81

» Freaking out because I don't think surgery worked HELP!!!!
Yesterday at 12:01 am by Jgreen81

» Vulvodynia help
Wed Nov 15, 2017 1:04 pm by ekaterina1996

» FACEBOOK VULVODYNIA SUPPORT GROUP (SECRET)
Tue Nov 14, 2017 9:53 pm by Dsrt16

» Needing some reassurance
Sun Nov 12, 2017 3:04 pm by Nicmay

» Vulvodynia burning mouth and bladder discomfort
Fri Nov 10, 2017 7:26 pm by Zbrown

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 0

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


New here - Questions

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New here - Questions

Post  syeraa on Fri Oct 09, 2015 4:50 pm

Hello ladies ! Well, an acquaintance of mine oriented me to this site, and I'm very glad I found it.
I am questioning myself as far as if I may have vulvodynia, and maybe you guys can help me. I know you're not doctors, and therefore can'T give me a diagnosis but you might be able to help regardless.

A few weeks ago, I started having burning sensations after sex. I thought at first it was yeast, so I bought the oral one dose tablet, and called it a day. The problem is, when I had sex again, OMG, it burned so much during sex and after, it was even worse. It burns in the whole vulva, it is swollen, and it burns all the way to inside the vagina. No problem having sex though it gets very uncomfortable. After, when I pee, it's like someone is pouring acid out of me. It is excruciating. I still had some discharges, so I decided to buy the local cream treatment, as I thought it still may be yeast. The burning calmed down, and I thought it was all good. So this morning, I had sex again. And the crazy pain came back. Now, I no longer have discharges, but my whole vulva is so red and sore and swollen and I'm burning inside and when I pee. It didn't hurt THAT much during sex but definitely was way uncomfortable and wanted him to finish. I saw 2 doctors, and none of them were able to help me.

I would like to have you ladies's input.

Thanks in advance !

Syera

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Re: New here - Questions

Post  sailor_moon on Tue Oct 13, 2015 9:51 am

Hi there,

Welcome to the forum! There are lots of lovely ladies on here to offer advice, wish it was more active though.

When you treated yourself for thrush did the symptoms completely go away until the next time you had sex? Or did you still experience symptoms?

Also, what did your discharge look like?Thick,watery,white,clear,yellow, sticky?

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Re: New here - Questions

Post  PainBlogger on Tue Oct 13, 2015 11:00 am

Have you had a urine sample checked for infection?

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Re: New here - Questions

Post  syeraa on Sun Nov 22, 2015 7:13 pm

Hi ! Sorry for the delay ! No, when I got treated for thrush, the symptoms didn't go away. I no longer have discharges, just pain with intercourse. They were more like residues than discharges, but I remember having that while having thrush in the past. They were white and sometimes greyish. I also have Lichen Sclerosis, which can provoke symptoms, but never inside the vagina. So, sexwise, what happens in more details is...at the beginning it's ok, but after a while, it starts burning inside, and when he finishes, it burns outside too, and hurts to pee -__-. I also noticed some incomfort with tampons, and a slight burning sensation, even when I don't have sex for a week or 2. I've had plenty of UTI's and thrush infections, and it is nothing like that. I had sex yesterday after 3 weeks of abstinence yesterday, and the same thing happened. It was enjoyable at first, and then started to get uncomfortable. The pain is worse after though. It's like all of my vagina swells and I can't pee right after. Then, it gets progressively better until say 24 hours later, and almost no pain left... Saw a obgyn and she treated me for thrush AGAIN. I mean... Ugh. Can anyone provide advice ? Thanks in advance Smile

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Re: New here - Questions

Post  PainBlogger on Sun Nov 22, 2015 9:17 pm

I'm not a doctor, but urethral inflammation could be a possibility given the difficulty in urinating. Do you think maybe what you're perceiving as vaginal pain could be urethral? Everything is close together down there. I know I sometimes have difficulty pinpointing the source of my pain.

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Re: New here - Questions

Post  syeraa on Tue Nov 24, 2015 12:39 am

You mean a UTI ? I've had plenty and none provoked that kind of pain. Pain is inside the vagina and also all over the vulva; it becomes swollen, very red and raw after sex. No UTI has ever given me those symptoms. I wish that's what it was though. I wish it's something else that's curable... :/

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Re: New here - Questions

Post  PainBlogger on Tue Nov 24, 2015 8:57 am

You're right, a UTI would not likely cause swelling and redness to the vulva. I just mentioned it as my physio/PT said she thought I had urethral inflammation after an examination, but I had no infection there at the time. So it is possible to have inflammation without an active infection. Sorry I can't be more help.

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Re: New here - Questions

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