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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


New here - Questions

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New here - Questions

Post  syeraa on Fri Oct 09, 2015 4:50 pm

Hello ladies ! Well, an acquaintance of mine oriented me to this site, and I'm very glad I found it.
I am questioning myself as far as if I may have vulvodynia, and maybe you guys can help me. I know you're not doctors, and therefore can'T give me a diagnosis but you might be able to help regardless.

A few weeks ago, I started having burning sensations after sex. I thought at first it was yeast, so I bought the oral one dose tablet, and called it a day. The problem is, when I had sex again, OMG, it burned so much during sex and after, it was even worse. It burns in the whole vulva, it is swollen, and it burns all the way to inside the vagina. No problem having sex though it gets very uncomfortable. After, when I pee, it's like someone is pouring acid out of me. It is excruciating. I still had some discharges, so I decided to buy the local cream treatment, as I thought it still may be yeast. The burning calmed down, and I thought it was all good. So this morning, I had sex again. And the crazy pain came back. Now, I no longer have discharges, but my whole vulva is so red and sore and swollen and I'm burning inside and when I pee. It didn't hurt THAT much during sex but definitely was way uncomfortable and wanted him to finish. I saw 2 doctors, and none of them were able to help me.

I would like to have you ladies's input.

Thanks in advance !

Syera

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Re: New here - Questions

Post  sailor_moon on Tue Oct 13, 2015 9:51 am

Hi there,

Welcome to the forum! There are lots of lovely ladies on here to offer advice, wish it was more active though.

When you treated yourself for thrush did the symptoms completely go away until the next time you had sex? Or did you still experience symptoms?

Also, what did your discharge look like?Thick,watery,white,clear,yellow, sticky?

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Re: New here - Questions

Post  PainBlogger on Tue Oct 13, 2015 11:00 am

Have you had a urine sample checked for infection?

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Re: New here - Questions

Post  syeraa on Sun Nov 22, 2015 7:13 pm

Hi ! Sorry for the delay ! No, when I got treated for thrush, the symptoms didn't go away. I no longer have discharges, just pain with intercourse. They were more like residues than discharges, but I remember having that while having thrush in the past. They were white and sometimes greyish. I also have Lichen Sclerosis, which can provoke symptoms, but never inside the vagina. So, sexwise, what happens in more details is...at the beginning it's ok, but after a while, it starts burning inside, and when he finishes, it burns outside too, and hurts to pee -__-. I also noticed some incomfort with tampons, and a slight burning sensation, even when I don't have sex for a week or 2. I've had plenty of UTI's and thrush infections, and it is nothing like that. I had sex yesterday after 3 weeks of abstinence yesterday, and the same thing happened. It was enjoyable at first, and then started to get uncomfortable. The pain is worse after though. It's like all of my vagina swells and I can't pee right after. Then, it gets progressively better until say 24 hours later, and almost no pain left... Saw a obgyn and she treated me for thrush AGAIN. I mean... Ugh. Can anyone provide advice ? Thanks in advance Smile

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Re: New here - Questions

Post  PainBlogger on Sun Nov 22, 2015 9:17 pm

I'm not a doctor, but urethral inflammation could be a possibility given the difficulty in urinating. Do you think maybe what you're perceiving as vaginal pain could be urethral? Everything is close together down there. I know I sometimes have difficulty pinpointing the source of my pain.

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Re: New here - Questions

Post  syeraa on Tue Nov 24, 2015 12:39 am

You mean a UTI ? I've had plenty and none provoked that kind of pain. Pain is inside the vagina and also all over the vulva; it becomes swollen, very red and raw after sex. No UTI has ever given me those symptoms. I wish that's what it was though. I wish it's something else that's curable... :/

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Re: New here - Questions

Post  PainBlogger on Tue Nov 24, 2015 8:57 am

You're right, a UTI would not likely cause swelling and redness to the vulva. I just mentioned it as my physio/PT said she thought I had urethral inflammation after an examination, but I had no infection there at the time. So it is possible to have inflammation without an active infection. Sorry I can't be more help.

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Re: New here - Questions

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