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» Looking to meet up in LA/OC CA
Yesterday at 3:43 am by crypticcalico

» Vulvadynia
Mon Jul 24, 2017 11:35 pm by Linda Williams

» Just Diagnosed with Vulvadynia
Mon Jul 24, 2017 1:57 am by angelique2016

» Constant pain, I want to die.
Sat Jul 22, 2017 9:41 pm by Meggiemay

» What is Vulvodynia?
Sat Jul 22, 2017 9:21 pm by mary jane

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV


Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

Comments: 4

Just Diagnosed with Vulvadynia

Tue Aug 02, 2016 9:11 pm by CherryTree23

Well, I was just diagnosed today, yay...my symptoms are just burning pain in vaginal opening. This all came about after taking Bactrim, Monistat, Clindomycin and Diflucan. This doctor was extremely confident I have Vulvadynia. Also told me my vaginal skin isn't red. Yes, it is, mine isn't typically electric red. He prescribed Ampytripline (sp) said, I have a very mild case, and worse case …

Comments: 7

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 21

Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico


I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Vestibulectomy Scar Pain

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Post Vestibulectomy Scar Pain

Post  jen007 on Wed Oct 14, 2015 2:51 am

Hi Ladies!

Sorry I have neglected the forum for a while...things had been going pretty well since my surgery, until recently.

I've been experiencing pain on my scar from my vestibulectomy - mainly where the hymenectomy occurred. At first, I had what I believed to be a average yeast infection. I called up the doctor and got the usual, Diflucan. All seemed when after a couple of days accept for this pain on my skin around my scar. This happened once before with my last yeast infection, but cleared up after taking Diflucan. I'm planning on calling my doctor tomorrow to get advice/ be seen, but I wanted to know if anyone else out there who has had surgery has experienced this as well.

Hope everyone is doing well!



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Re: Post Vestibulectomy Scar Pain

Post  amyhp on Wed Oct 21, 2015 10:31 am

I had a full vestibulectomy in January and a revision in May. I have never gotten relief from my unprovoked pain, but lately I feel more flared then ever. When I feel around it seems like my suture line is still hurting me terribly near my urethra. I am so scared something is damaged.

Last edited by amyhopexoxo on Mon Jan 25, 2016 10:16 pm; edited 1 time in total


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Re: Post Vestibulectomy Scar Pain

Post  jen007 on Thu Oct 22, 2015 5:57 pm


Thanks for your reply! I have provoked vestibulodynia so most of my pain was on caused when something disturbed my area. At the moment it feels like I have unprovoked pain and I'm very discouraged. I'm worried I may have to go under the knife again to get a revision as well. My doctor thinks that it could be a lack of estrogen reaching the area...but I've been pretty much pain free for about 4 years now...I don't understand whats happening to me and I'm terrified. My scar under my uretha is also hurting me...it always hurt even a long period of time after surgery, but only when touched too hard...now it just feels like its burning all the time. The skin around my rectum is also being affected. I'm still having it treated for yeast, but if that doesn't work I'm going to start using an estrogen cream to see if that helps. If that doesn't work I'm going to have to go back down the guessing game treatment road again. I might even make an appointment with my surgeon/ specialist to see if there's anything he can do for me.



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Re: Post Vestibulectomy Scar Pain

Post  senozs1 on Wed Jan 20, 2016 12:02 am

Hello, I was wondering if 'scar tissue' and 'granulation tissue' are the same? I have a lot of pain after vestibulectomy, it's my 4th week and I feel worse than the first 3. Is there a way to speed my healing? Or do I have to live with this forever?


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Re: Post Vestibulectomy Scar Pain

Post  jen007 on Wed Jan 20, 2016 2:26 am


To answer your question, no, scar tissue is not the same as granulation tissue. Granulation tissue can be removed so it's nothing to worry about. It's actually common. I actually started to feel worse around the 4th week as well. Don't stress over it, we all heal differently. I would however call the surgeon who operated on you and ask if theres anything you can do about it or if he/she could do anything for you.

As far as a speedy recovery, there's nothing you can do about that. It's going to take time, 2 months is hardly a long time when it means you could potentially have a happy healthy vagina. Just rest as much as possible. Try not to walk too much. Bed rest is the only way you'll ever get better. I stayed in bed for pretty much the first 4 weeks. I had a lot of success because of that.

What steps are you taking to heal? Are you using a sitz bath? Ice? Are you on bed rest?



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Re: Post Vestibulectomy Scar Pain

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