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» Amitriptyline given for vulvodyina pain
Yesterday at 11:33 pm by WVR00

» Needing some reassurance
Yesterday at 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Yesterday at 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Yesterday at 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Thu Nov 16, 2017 12:06 am by Jgreen81

» Pain aftee vestibulectimy
Thu Nov 16, 2017 12:03 am by Jgreen81

» Freaking out because I don't think surgery worked HELP!!!!
Thu Nov 16, 2017 12:01 am by Jgreen81

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


Post Vestibulectomy Scar Pain

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Post Vestibulectomy Scar Pain

Post  jen007 on Wed Oct 14, 2015 2:51 am

Hi Ladies!

Sorry I have neglected the forum for a while...things had been going pretty well since my surgery, until recently.

I've been experiencing pain on my scar from my vestibulectomy - mainly where the hymenectomy occurred. At first, I had what I believed to be a average yeast infection. I called up the doctor and got the usual, Diflucan. All seemed when after a couple of days accept for this pain on my skin around my scar. This happened once before with my last yeast infection, but cleared up after taking Diflucan. I'm planning on calling my doctor tomorrow to get advice/ be seen, but I wanted to know if anyone else out there who has had surgery has experienced this as well.

Hope everyone is doing well!

-Jen

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Re: Post Vestibulectomy Scar Pain

Post  amyhp on Wed Oct 21, 2015 10:31 am

I had a full vestibulectomy in January and a revision in May. I have never gotten relief from my unprovoked pain, but lately I feel more flared then ever. When I feel around it seems like my suture line is still hurting me terribly near my urethra. I am so scared something is damaged.


Last edited by amyhopexoxo on Mon Jan 25, 2016 10:16 pm; edited 1 time in total

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Re: Post Vestibulectomy Scar Pain

Post  jen007 on Thu Oct 22, 2015 5:57 pm

amyhopexoxo,

Thanks for your reply! I have provoked vestibulodynia so most of my pain was on caused when something disturbed my area. At the moment it feels like I have unprovoked pain and I'm very discouraged. I'm worried I may have to go under the knife again to get a revision as well. My doctor thinks that it could be a lack of estrogen reaching the area...but I've been pretty much pain free for about 4 years now...I don't understand whats happening to me and I'm terrified. My scar under my uretha is also hurting me...it always hurt even a long period of time after surgery, but only when touched too hard...now it just feels like its burning all the time. The skin around my rectum is also being affected. I'm still having it treated for yeast, but if that doesn't work I'm going to start using an estrogen cream to see if that helps. If that doesn't work I'm going to have to go back down the guessing game treatment road again. I might even make an appointment with my surgeon/ specialist to see if there's anything he can do for me.

-Jen

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Re: Post Vestibulectomy Scar Pain

Post  senozs1 on Wed Jan 20, 2016 12:02 am

Hello, I was wondering if 'scar tissue' and 'granulation tissue' are the same? I have a lot of pain after vestibulectomy, it's my 4th week and I feel worse than the first 3. Is there a way to speed my healing? Or do I have to live with this forever?

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Re: Post Vestibulectomy Scar Pain

Post  jen007 on Wed Jan 20, 2016 2:26 am

senozs1,

To answer your question, no, scar tissue is not the same as granulation tissue. Granulation tissue can be removed so it's nothing to worry about. It's actually common. I actually started to feel worse around the 4th week as well. Don't stress over it, we all heal differently. I would however call the surgeon who operated on you and ask if theres anything you can do about it or if he/she could do anything for you.

As far as a speedy recovery, there's nothing you can do about that. It's going to take time, 2 months is hardly a long time when it means you could potentially have a happy healthy vagina. Just rest as much as possible. Try not to walk too much. Bed rest is the only way you'll ever get better. I stayed in bed for pretty much the first 4 weeks. I had a lot of success because of that.

What steps are you taking to heal? Are you using a sitz bath? Ice? Are you on bed rest?

-Jen

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Re: Post Vestibulectomy Scar Pain

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