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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 6

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


Post Vestibulectomy Scar Pain

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Post Vestibulectomy Scar Pain

Post  jen007 on Wed Oct 14, 2015 2:51 am

Hi Ladies!

Sorry I have neglected the forum for a while...things had been going pretty well since my surgery, until recently.

I've been experiencing pain on my scar from my vestibulectomy - mainly where the hymenectomy occurred. At first, I had what I believed to be a average yeast infection. I called up the doctor and got the usual, Diflucan. All seemed when after a couple of days accept for this pain on my skin around my scar. This happened once before with my last yeast infection, but cleared up after taking Diflucan. I'm planning on calling my doctor tomorrow to get advice/ be seen, but I wanted to know if anyone else out there who has had surgery has experienced this as well.

Hope everyone is doing well!

-Jen

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Re: Post Vestibulectomy Scar Pain

Post  amyhp on Wed Oct 21, 2015 10:31 am

I had a full vestibulectomy in January and a revision in May. I have never gotten relief from my unprovoked pain, but lately I feel more flared then ever. When I feel around it seems like my suture line is still hurting me terribly near my urethra. I am so scared something is damaged.


Last edited by amyhopexoxo on Mon Jan 25, 2016 10:16 pm; edited 1 time in total

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Re: Post Vestibulectomy Scar Pain

Post  jen007 on Thu Oct 22, 2015 5:57 pm

amyhopexoxo,

Thanks for your reply! I have provoked vestibulodynia so most of my pain was on caused when something disturbed my area. At the moment it feels like I have unprovoked pain and I'm very discouraged. I'm worried I may have to go under the knife again to get a revision as well. My doctor thinks that it could be a lack of estrogen reaching the area...but I've been pretty much pain free for about 4 years now...I don't understand whats happening to me and I'm terrified. My scar under my uretha is also hurting me...it always hurt even a long period of time after surgery, but only when touched too hard...now it just feels like its burning all the time. The skin around my rectum is also being affected. I'm still having it treated for yeast, but if that doesn't work I'm going to start using an estrogen cream to see if that helps. If that doesn't work I'm going to have to go back down the guessing game treatment road again. I might even make an appointment with my surgeon/ specialist to see if there's anything he can do for me.

-Jen

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Re: Post Vestibulectomy Scar Pain

Post  senozs1 on Wed Jan 20, 2016 12:02 am

Hello, I was wondering if 'scar tissue' and 'granulation tissue' are the same? I have a lot of pain after vestibulectomy, it's my 4th week and I feel worse than the first 3. Is there a way to speed my healing? Or do I have to live with this forever?

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Re: Post Vestibulectomy Scar Pain

Post  jen007 on Wed Jan 20, 2016 2:26 am

senozs1,

To answer your question, no, scar tissue is not the same as granulation tissue. Granulation tissue can be removed so it's nothing to worry about. It's actually common. I actually started to feel worse around the 4th week as well. Don't stress over it, we all heal differently. I would however call the surgeon who operated on you and ask if theres anything you can do about it or if he/she could do anything for you.

As far as a speedy recovery, there's nothing you can do about that. It's going to take time, 2 months is hardly a long time when it means you could potentially have a happy healthy vagina. Just rest as much as possible. Try not to walk too much. Bed rest is the only way you'll ever get better. I stayed in bed for pretty much the first 4 weeks. I had a lot of success because of that.

What steps are you taking to heal? Are you using a sitz bath? Ice? Are you on bed rest?

-Jen

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Re: Post Vestibulectomy Scar Pain

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