Log in

I forgot my password

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


Post Vestibulectomy Scar Pain

View previous topic View next topic Go down

Post Vestibulectomy Scar Pain

Post  jen007 on Wed Oct 14, 2015 2:51 am

Hi Ladies!

Sorry I have neglected the forum for a while...things had been going pretty well since my surgery, until recently.

I've been experiencing pain on my scar from my vestibulectomy - mainly where the hymenectomy occurred. At first, I had what I believed to be a average yeast infection. I called up the doctor and got the usual, Diflucan. All seemed when after a couple of days accept for this pain on my skin around my scar. This happened once before with my last yeast infection, but cleared up after taking Diflucan. I'm planning on calling my doctor tomorrow to get advice/ be seen, but I wanted to know if anyone else out there who has had surgery has experienced this as well.

Hope everyone is doing well!

-Jen

jen007

Posts : 151
Join date : 2012-11-05
Age : 25
Location : U.S.A

View user profile

Back to top Go down

Re: Post Vestibulectomy Scar Pain

Post  amyhp on Wed Oct 21, 2015 10:31 am

I had a full vestibulectomy in January and a revision in May. I have never gotten relief from my unprovoked pain, but lately I feel more flared then ever. When I feel around it seems like my suture line is still hurting me terribly near my urethra. I am so scared something is damaged.


Last edited by amyhopexoxo on Mon Jan 25, 2016 10:16 pm; edited 1 time in total

amyhp

Posts : 32
Join date : 2015-09-22

View user profile

Back to top Go down

Re: Post Vestibulectomy Scar Pain

Post  jen007 on Thu Oct 22, 2015 5:57 pm

amyhopexoxo,

Thanks for your reply! I have provoked vestibulodynia so most of my pain was on caused when something disturbed my area. At the moment it feels like I have unprovoked pain and I'm very discouraged. I'm worried I may have to go under the knife again to get a revision as well. My doctor thinks that it could be a lack of estrogen reaching the area...but I've been pretty much pain free for about 4 years now...I don't understand whats happening to me and I'm terrified. My scar under my uretha is also hurting me...it always hurt even a long period of time after surgery, but only when touched too hard...now it just feels like its burning all the time. The skin around my rectum is also being affected. I'm still having it treated for yeast, but if that doesn't work I'm going to start using an estrogen cream to see if that helps. If that doesn't work I'm going to have to go back down the guessing game treatment road again. I might even make an appointment with my surgeon/ specialist to see if there's anything he can do for me.

-Jen

jen007

Posts : 151
Join date : 2012-11-05
Age : 25
Location : U.S.A

View user profile

Back to top Go down

Re: Post Vestibulectomy Scar Pain

Post  senozs1 on Wed Jan 20, 2016 12:02 am

Hello, I was wondering if 'scar tissue' and 'granulation tissue' are the same? I have a lot of pain after vestibulectomy, it's my 4th week and I feel worse than the first 3. Is there a way to speed my healing? Or do I have to live with this forever?

senozs1

Posts : 22
Join date : 2015-10-06

View user profile

Back to top Go down

Re: Post Vestibulectomy Scar Pain

Post  jen007 on Wed Jan 20, 2016 2:26 am

senozs1,

To answer your question, no, scar tissue is not the same as granulation tissue. Granulation tissue can be removed so it's nothing to worry about. It's actually common. I actually started to feel worse around the 4th week as well. Don't stress over it, we all heal differently. I would however call the surgeon who operated on you and ask if theres anything you can do about it or if he/she could do anything for you.

As far as a speedy recovery, there's nothing you can do about that. It's going to take time, 2 months is hardly a long time when it means you could potentially have a happy healthy vagina. Just rest as much as possible. Try not to walk too much. Bed rest is the only way you'll ever get better. I stayed in bed for pretty much the first 4 weeks. I had a lot of success because of that.

What steps are you taking to heal? Are you using a sitz bath? Ice? Are you on bed rest?

-Jen

jen007

Posts : 151
Join date : 2012-11-05
Age : 25
Location : U.S.A

View user profile

Back to top Go down

Re: Post Vestibulectomy Scar Pain

Post  Sponsored content


Sponsored content


Back to top Go down

View previous topic View next topic Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum