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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6


Am I suitable for vestibulectomy?

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Am I suitable for vestibulectomy?

Post  senozs1 on Sat Oct 17, 2015 4:34 pm

Hello everyone! I was wondering if anyone knows who's suitable for a surgery? I read everywhere that unless you are carefully chosen, your surgery may fail. I have never had sex so I guess my VVS is primary. I have unprovoked localized pain. I haven't had a minute without the pain. Can anyone who has knowledge about vestibulectomy inform me?

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Re: Am I suitable for vestibulectomy?

Post  jen007 on Sun Oct 18, 2015 9:17 pm

Hi senozs1,

I have provoked vestibulodynia. A few years back I had a full Vestibulectomy. For me, all I had to do was get an exam by a surgeon, who then determined I was a candidate for surgery. This all took time tho. Surgery should always be a last resort decision. I tried different things for a year before deciding surgery was right for me.

I'm not sure how successful a vestibulectomy is for people with unprovoked issues...not to say it wouldn't help, I just haven't heard much about women getting surgery with unprovoked vestibulodynia/ vulvodynia. I would consult a gynecologist, womens health specialist or even a vulvodynia specialist...if you can find one. It took me a few years to find one. It also depends on where you are in the world as well. Most of the women I've spoken to on here are from other countries...I'm from the U.S.A. If you're from the U.S I can give you the name of the specialists I went to, if you'd like.

Hope this was helpful! Feel free to ask me any specific surgery related questions you may have!

-Jen

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Re: Am I suitable for vestibulectomy?

Post  Alana3 on Sun Oct 18, 2015 11:40 pm

Agree with jenn. I had one too but mine was for provoked as well. I went to a surgeon too and had the option after hell for years. It was very successful but again it only hurt when aggravated.
Good luck!

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Re: Am I suitable for vestibulectomy?

Post  sailor_moon on Mon Oct 19, 2015 1:28 am

I'd love to know an answer to this as well. From what I have heard it is not generally done with unprovoked as it quite often isn't a sole nerve problem and majority of the time unprovoked is from other causes.
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Query

Post  Cathxxa on Mon Oct 19, 2015 7:12 am

Whats onprovoked and provoked mean?

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Re: Am I suitable for vestibulectomy?

Post  senozs1 on Mon Oct 19, 2015 12:22 pm

Hello again, thanks everyone for your answers. The thing is I have localized vestibulitis, I went to a doctor and got diagnosed. I hear that even sitting can provoke some women with severe symptoms, I'm one of those people. I'm not sure but I guess when I sit, it provokes my pain and it lasts so long. Then I sit again, or I don't know wipe it, and it's provoked again. So it feels like unprovoked. (don't know if this makes any sense but it's my theory)
I don't have generalized vulvodynia, I know they can't have surgery (unfortunately..) So I thought maybe I'm a good candidate, I really hope I am because I can't take this anymore. It's been very tough for me. I'm 23 and I feel like my life is over, because I can't even get out of the bed. My pain is sooo severe..

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Re: Am I suitable for vestibulectomy?

Post  amyhp on Wed Oct 21, 2015 10:36 am

I have unprovoked localized pain and the surgery did not help my daily pain at all. I am in constant misery.

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Re: Am I suitable for vestibulectomy?

Post  Alana3 on Wed Oct 21, 2015 6:52 pm

Provoked- when touched it hurts
Unprovoked- hurts all the time for no apparent reason.

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Re: Am I suitable for vestibulectomy?

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