Log in

I forgot my password

Latest topics
» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Vestibulectomy
Sun Aug 13, 2017 9:54 am by infinitelywondering

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


Am I suitable for vestibulectomy?

View previous topic View next topic Go down

Am I suitable for vestibulectomy?

Post  senozs1 on Sat Oct 17, 2015 4:34 pm

Hello everyone! I was wondering if anyone knows who's suitable for a surgery? I read everywhere that unless you are carefully chosen, your surgery may fail. I have never had sex so I guess my VVS is primary. I have unprovoked localized pain. I haven't had a minute without the pain. Can anyone who has knowledge about vestibulectomy inform me?

senozs1

Posts : 22
Join date : 2015-10-06

View user profile

Back to top Go down

Re: Am I suitable for vestibulectomy?

Post  jen007 on Sun Oct 18, 2015 9:17 pm

Hi senozs1,

I have provoked vestibulodynia. A few years back I had a full Vestibulectomy. For me, all I had to do was get an exam by a surgeon, who then determined I was a candidate for surgery. This all took time tho. Surgery should always be a last resort decision. I tried different things for a year before deciding surgery was right for me.

I'm not sure how successful a vestibulectomy is for people with unprovoked issues...not to say it wouldn't help, I just haven't heard much about women getting surgery with unprovoked vestibulodynia/ vulvodynia. I would consult a gynecologist, womens health specialist or even a vulvodynia specialist...if you can find one. It took me a few years to find one. It also depends on where you are in the world as well. Most of the women I've spoken to on here are from other countries...I'm from the U.S.A. If you're from the U.S I can give you the name of the specialists I went to, if you'd like.

Hope this was helpful! Feel free to ask me any specific surgery related questions you may have!

-Jen

jen007

Posts : 151
Join date : 2012-11-05
Age : 24
Location : U.S.A

View user profile

Back to top Go down

Re: Am I suitable for vestibulectomy?

Post  Alana3 on Sun Oct 18, 2015 11:40 pm

Agree with jenn. I had one too but mine was for provoked as well. I went to a surgeon too and had the option after hell for years. It was very successful but again it only hurt when aggravated.
Good luck!

Alana3

Posts : 1086
Join date : 2012-09-25

View user profile

Back to top Go down

Re: Am I suitable for vestibulectomy?

Post  sailor_moon on Mon Oct 19, 2015 1:28 am

I'd love to know an answer to this as well. From what I have heard it is not generally done with unprovoked as it quite often isn't a sole nerve problem and majority of the time unprovoked is from other causes.
avatar
sailor_moon

Posts : 222
Join date : 2014-07-06
Location : Australia

View user profile

Back to top Go down

Query

Post  Cathxxa on Mon Oct 19, 2015 7:12 am

Whats onprovoked and provoked mean?

Cathxxa

Posts : 8
Join date : 2015-10-17

View user profile

Back to top Go down

Re: Am I suitable for vestibulectomy?

Post  senozs1 on Mon Oct 19, 2015 12:22 pm

Hello again, thanks everyone for your answers. The thing is I have localized vestibulitis, I went to a doctor and got diagnosed. I hear that even sitting can provoke some women with severe symptoms, I'm one of those people. I'm not sure but I guess when I sit, it provokes my pain and it lasts so long. Then I sit again, or I don't know wipe it, and it's provoked again. So it feels like unprovoked. (don't know if this makes any sense but it's my theory)
I don't have generalized vulvodynia, I know they can't have surgery (unfortunately..) So I thought maybe I'm a good candidate, I really hope I am because I can't take this anymore. It's been very tough for me. I'm 23 and I feel like my life is over, because I can't even get out of the bed. My pain is sooo severe..

senozs1

Posts : 22
Join date : 2015-10-06

View user profile

Back to top Go down

Re: Am I suitable for vestibulectomy?

Post  amyhp on Wed Oct 21, 2015 10:36 am

I have unprovoked localized pain and the surgery did not help my daily pain at all. I am in constant misery.

amyhp

Posts : 31
Join date : 2015-09-22

View user profile

Back to top Go down

Re: Am I suitable for vestibulectomy?

Post  Alana3 on Wed Oct 21, 2015 6:52 pm

Provoked- when touched it hurts
Unprovoked- hurts all the time for no apparent reason.

Alana3

Posts : 1086
Join date : 2012-09-25

View user profile

Back to top Go down

Re: Am I suitable for vestibulectomy?

Post  Sponsored content


Sponsored content


Back to top Go down

View previous topic View next topic Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum