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Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

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7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5


Am I suitable for vestibulectomy?

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Am I suitable for vestibulectomy?

Post  senozs1 on Sat Oct 17, 2015 4:34 pm

Hello everyone! I was wondering if anyone knows who's suitable for a surgery? I read everywhere that unless you are carefully chosen, your surgery may fail. I have never had sex so I guess my VVS is primary. I have unprovoked localized pain. I haven't had a minute without the pain. Can anyone who has knowledge about vestibulectomy inform me?

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Re: Am I suitable for vestibulectomy?

Post  jen007 on Sun Oct 18, 2015 9:17 pm

Hi senozs1,

I have provoked vestibulodynia. A few years back I had a full Vestibulectomy. For me, all I had to do was get an exam by a surgeon, who then determined I was a candidate for surgery. This all took time tho. Surgery should always be a last resort decision. I tried different things for a year before deciding surgery was right for me.

I'm not sure how successful a vestibulectomy is for people with unprovoked issues...not to say it wouldn't help, I just haven't heard much about women getting surgery with unprovoked vestibulodynia/ vulvodynia. I would consult a gynecologist, womens health specialist or even a vulvodynia specialist...if you can find one. It took me a few years to find one. It also depends on where you are in the world as well. Most of the women I've spoken to on here are from other countries...I'm from the U.S.A. If you're from the U.S I can give you the name of the specialists I went to, if you'd like.

Hope this was helpful! Feel free to ask me any specific surgery related questions you may have!

-Jen

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Re: Am I suitable for vestibulectomy?

Post  Alana3 on Sun Oct 18, 2015 11:40 pm

Agree with jenn. I had one too but mine was for provoked as well. I went to a surgeon too and had the option after hell for years. It was very successful but again it only hurt when aggravated.
Good luck!

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Re: Am I suitable for vestibulectomy?

Post  sailor_moon on Mon Oct 19, 2015 1:28 am

I'd love to know an answer to this as well. From what I have heard it is not generally done with unprovoked as it quite often isn't a sole nerve problem and majority of the time unprovoked is from other causes.
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Query

Post  Cathxxa on Mon Oct 19, 2015 7:12 am

Whats onprovoked and provoked mean?

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Re: Am I suitable for vestibulectomy?

Post  senozs1 on Mon Oct 19, 2015 12:22 pm

Hello again, thanks everyone for your answers. The thing is I have localized vestibulitis, I went to a doctor and got diagnosed. I hear that even sitting can provoke some women with severe symptoms, I'm one of those people. I'm not sure but I guess when I sit, it provokes my pain and it lasts so long. Then I sit again, or I don't know wipe it, and it's provoked again. So it feels like unprovoked. (don't know if this makes any sense but it's my theory)
I don't have generalized vulvodynia, I know they can't have surgery (unfortunately..) So I thought maybe I'm a good candidate, I really hope I am because I can't take this anymore. It's been very tough for me. I'm 23 and I feel like my life is over, because I can't even get out of the bed. My pain is sooo severe..

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Re: Am I suitable for vestibulectomy?

Post  amyhp on Wed Oct 21, 2015 10:36 am

I have unprovoked localized pain and the surgery did not help my daily pain at all. I am in constant misery.

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Re: Am I suitable for vestibulectomy?

Post  Alana3 on Wed Oct 21, 2015 6:52 pm

Provoked- when touched it hurts
Unprovoked- hurts all the time for no apparent reason.

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Re: Am I suitable for vestibulectomy?

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