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» Finally found a place for me...
Today at 4:08 am by mtsp

» UK Vulvodynia Clinics
Yesterday at 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

» There is hope after all!!
Wed May 16, 2018 2:50 am by Cbrimer28

» Getting to the point of wanting to End Everything ADVICE NEEDED
Mon May 14, 2018 6:49 pm by fairlight10

» Looking for advice!
Thu May 10, 2018 8:50 pm by KB365

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Am I suitable for vestibulectomy?

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Am I suitable for vestibulectomy?

Post  senozs1 on Sat Oct 17, 2015 4:34 pm

Hello everyone! I was wondering if anyone knows who's suitable for a surgery? I read everywhere that unless you are carefully chosen, your surgery may fail. I have never had sex so I guess my VVS is primary. I have unprovoked localized pain. I haven't had a minute without the pain. Can anyone who has knowledge about vestibulectomy inform me?

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Re: Am I suitable for vestibulectomy?

Post  jen007 on Sun Oct 18, 2015 9:17 pm

Hi senozs1,

I have provoked vestibulodynia. A few years back I had a full Vestibulectomy. For me, all I had to do was get an exam by a surgeon, who then determined I was a candidate for surgery. This all took time tho. Surgery should always be a last resort decision. I tried different things for a year before deciding surgery was right for me.

I'm not sure how successful a vestibulectomy is for people with unprovoked issues...not to say it wouldn't help, I just haven't heard much about women getting surgery with unprovoked vestibulodynia/ vulvodynia. I would consult a gynecologist, womens health specialist or even a vulvodynia specialist...if you can find one. It took me a few years to find one. It also depends on where you are in the world as well. Most of the women I've spoken to on here are from other countries...I'm from the U.S.A. If you're from the U.S I can give you the name of the specialists I went to, if you'd like.

Hope this was helpful! Feel free to ask me any specific surgery related questions you may have!

-Jen

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Re: Am I suitable for vestibulectomy?

Post  Alana3 on Sun Oct 18, 2015 11:40 pm

Agree with jenn. I had one too but mine was for provoked as well. I went to a surgeon too and had the option after hell for years. It was very successful but again it only hurt when aggravated.
Good luck!

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Re: Am I suitable for vestibulectomy?

Post  sailor_moon on Mon Oct 19, 2015 1:28 am

I'd love to know an answer to this as well. From what I have heard it is not generally done with unprovoked as it quite often isn't a sole nerve problem and majority of the time unprovoked is from other causes.
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Query

Post  Cathxxa on Mon Oct 19, 2015 7:12 am

Whats onprovoked and provoked mean?

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Re: Am I suitable for vestibulectomy?

Post  senozs1 on Mon Oct 19, 2015 12:22 pm

Hello again, thanks everyone for your answers. The thing is I have localized vestibulitis, I went to a doctor and got diagnosed. I hear that even sitting can provoke some women with severe symptoms, I'm one of those people. I'm not sure but I guess when I sit, it provokes my pain and it lasts so long. Then I sit again, or I don't know wipe it, and it's provoked again. So it feels like unprovoked. (don't know if this makes any sense but it's my theory)
I don't have generalized vulvodynia, I know they can't have surgery (unfortunately..) So I thought maybe I'm a good candidate, I really hope I am because I can't take this anymore. It's been very tough for me. I'm 23 and I feel like my life is over, because I can't even get out of the bed. My pain is sooo severe..

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Re: Am I suitable for vestibulectomy?

Post  amyhp on Wed Oct 21, 2015 10:36 am

I have unprovoked localized pain and the surgery did not help my daily pain at all. I am in constant misery.

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Re: Am I suitable for vestibulectomy?

Post  Alana3 on Wed Oct 21, 2015 6:52 pm

Provoked- when touched it hurts
Unprovoked- hurts all the time for no apparent reason.

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Re: Am I suitable for vestibulectomy?

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