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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 19

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

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New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6


Am I suitable for vestibulectomy?

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Am I suitable for vestibulectomy?

Post  senozs1 on Sat Oct 17, 2015 4:34 pm

Hello everyone! I was wondering if anyone knows who's suitable for a surgery? I read everywhere that unless you are carefully chosen, your surgery may fail. I have never had sex so I guess my VVS is primary. I have unprovoked localized pain. I haven't had a minute without the pain. Can anyone who has knowledge about vestibulectomy inform me?

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Re: Am I suitable for vestibulectomy?

Post  jen007 on Sun Oct 18, 2015 9:17 pm

Hi senozs1,

I have provoked vestibulodynia. A few years back I had a full Vestibulectomy. For me, all I had to do was get an exam by a surgeon, who then determined I was a candidate for surgery. This all took time tho. Surgery should always be a last resort decision. I tried different things for a year before deciding surgery was right for me.

I'm not sure how successful a vestibulectomy is for people with unprovoked issues...not to say it wouldn't help, I just haven't heard much about women getting surgery with unprovoked vestibulodynia/ vulvodynia. I would consult a gynecologist, womens health specialist or even a vulvodynia specialist...if you can find one. It took me a few years to find one. It also depends on where you are in the world as well. Most of the women I've spoken to on here are from other countries...I'm from the U.S.A. If you're from the U.S I can give you the name of the specialists I went to, if you'd like.

Hope this was helpful! Feel free to ask me any specific surgery related questions you may have!

-Jen

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Re: Am I suitable for vestibulectomy?

Post  Alana3 on Sun Oct 18, 2015 11:40 pm

Agree with jenn. I had one too but mine was for provoked as well. I went to a surgeon too and had the option after hell for years. It was very successful but again it only hurt when aggravated.
Good luck!

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Re: Am I suitable for vestibulectomy?

Post  sailor_moon on Mon Oct 19, 2015 1:28 am

I'd love to know an answer to this as well. From what I have heard it is not generally done with unprovoked as it quite often isn't a sole nerve problem and majority of the time unprovoked is from other causes.
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Query

Post  Cathxxa on Mon Oct 19, 2015 7:12 am

Whats onprovoked and provoked mean?

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Re: Am I suitable for vestibulectomy?

Post  senozs1 on Mon Oct 19, 2015 12:22 pm

Hello again, thanks everyone for your answers. The thing is I have localized vestibulitis, I went to a doctor and got diagnosed. I hear that even sitting can provoke some women with severe symptoms, I'm one of those people. I'm not sure but I guess when I sit, it provokes my pain and it lasts so long. Then I sit again, or I don't know wipe it, and it's provoked again. So it feels like unprovoked. (don't know if this makes any sense but it's my theory)
I don't have generalized vulvodynia, I know they can't have surgery (unfortunately..) So I thought maybe I'm a good candidate, I really hope I am because I can't take this anymore. It's been very tough for me. I'm 23 and I feel like my life is over, because I can't even get out of the bed. My pain is sooo severe..

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Re: Am I suitable for vestibulectomy?

Post  amyhp on Wed Oct 21, 2015 10:36 am

I have unprovoked localized pain and the surgery did not help my daily pain at all. I am in constant misery.

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Re: Am I suitable for vestibulectomy?

Post  Alana3 on Wed Oct 21, 2015 6:52 pm

Provoked- when touched it hurts
Unprovoked- hurts all the time for no apparent reason.

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Re: Am I suitable for vestibulectomy?

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