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Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

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Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

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anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2


NEW MEMBER_ Recent Vestibulectomy

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NEW MEMBER_ Recent Vestibulectomy

Post  ashley215 on Tue Oct 27, 2015 8:23 am

Hello,

I am new to this and I wanted to know if anyone can tell me what to except over the next few weeks.

I had surgery on 9/11 and it has been about six weeks since my surgery. I had a post-op appointment on 10/7( 4-week mark).

He stated that I was healing very well! And that I should not stress every little pain or sensation at that point because it is too early to determine anything. That is a lot easier said than done.

Recently, I have been experiencing a low-grade burning sensation(over the last week) and I'm afraid that this is yet another failed treatment. Is this normal after surgery? Is this a sign of healing? I also still have stitches in some areas( I have dissolveable stitches) .

This is the most stressful thing ever.. recent grad, no job and stitches in my vagina. Oh the joy!


ashley215

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Re: NEW MEMBER_ Recent Vestibulectomy

Post  jen007 on Tue Oct 27, 2015 4:06 pm

Hi Ashley,

I had a full vestibulectomy about 5 years ago. From what you're saying, it seems like you're doing just fine! Don't let the little pains and burns here and there discourage you. As your doctor said, it's too soon to tell. Just keep doing everything the doctor tells you. The low-grade burning is normal - I had that too! I also started to feel very itchy soon after that. That's just your surgery healing. Trust me, you're ok!

Have you been taking sitz baths? If not, they're very soothing - easier than trying to lower yourself into a tub! I did them about 3-4 times a day to keep it clean and sooth the area. Also, rest as much as possible! Just take it easy! Let your body heal!

Feel free to ask me any questions you may have!

-Jen

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NEW MEMBER_ RECENT VESTIBULECTOMY

Post  ashley215 on Tue Oct 27, 2015 8:25 pm

That's what people keep saying.. I am currently in week 7 Sad. Sadly, at this point I have no clue how to relax. I just keep picturing myself alone for the rest of my life with a defective vagina.

Question: I thought you were just about fully healed at 6 weeks? I guess I am freaking out because the pain is in the area I had the most trouble..

ashley215

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Re: NEW MEMBER_ Recent Vestibulectomy

Post  jen007 on Tue Oct 27, 2015 8:55 pm

Ashley,

I felt the same way, but TRUST ME, you're on the right track! Keep resting and taking it easy - it's key to your recovery. Don't exercise or do anything too strenuous.

The healing period after surgery is usually about 2 months - meaning you can start going back to normal activities with caution. Your stitches should be gone by then and you should be able to wear regular clothes again, so on and so forth. It can take up to 8 months to a year from surgery to be fully healed. It just depends on the rate your body heals. It's worth the wait TRUST ME.

Don't lose trust in your body. It will heal! You can't make any conclusions until your body is done healing. You won't be alone forever! I felt the same way. I had set backs at first. Now I have a new guy and we have sex on the regular and it doesn't even hurt. Just wait it out!

-Jen

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NEW MEMBER_ RECENT VESTIBULECTOMY

Post  ashley215 on Wed Oct 28, 2015 12:22 am

Thanks for replying Jen!

I will TRY my best to kind of relax. It's just stressful when you looking for a job and about to run out of insurance (because I turn 26 in December). I am concerned that the surgery will fail and I won't have a job/insurance (though I have been interviewing a lot) to pay for doctors visits and the costly medications.
Ugh, I just want to get back to normal. I used to be pretty fun lol. I don't know if I will ever see that fun girl again. Plus, when you have a condition like this maintaining friendships can be hard. Mainly, because they don't understand and are just happy that their vagina is not burning or in pain.
Welp, I TRY my best to ignore this burning and pain area.. And stop looking at it in the mirror. I am guiltily of looking at my vagina as soon as I got out of surgery. Crazy I know. lol . I could not help myself. November 17th ( 10 week mark) is my next appt and I hope all of these strange sensations will be gone..

I hope this is coming to a end because I am pretty hopeless at this point. Congrats on being pain free for FIVE YEARS.

ashley215

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Re: NEW MEMBER_ Recent Vestibulectomy

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