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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 6

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


NEW MEMBER_ Recent Vestibulectomy

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NEW MEMBER_ Recent Vestibulectomy

Post  ashley215 on Tue Oct 27, 2015 8:23 am

Hello,

I am new to this and I wanted to know if anyone can tell me what to except over the next few weeks.

I had surgery on 9/11 and it has been about six weeks since my surgery. I had a post-op appointment on 10/7( 4-week mark).

He stated that I was healing very well! And that I should not stress every little pain or sensation at that point because it is too early to determine anything. That is a lot easier said than done.

Recently, I have been experiencing a low-grade burning sensation(over the last week) and I'm afraid that this is yet another failed treatment. Is this normal after surgery? Is this a sign of healing? I also still have stitches in some areas( I have dissolveable stitches) .

This is the most stressful thing ever.. recent grad, no job and stitches in my vagina. Oh the joy!


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Re: NEW MEMBER_ Recent Vestibulectomy

Post  jen007 on Tue Oct 27, 2015 4:06 pm

Hi Ashley,

I had a full vestibulectomy about 5 years ago. From what you're saying, it seems like you're doing just fine! Don't let the little pains and burns here and there discourage you. As your doctor said, it's too soon to tell. Just keep doing everything the doctor tells you. The low-grade burning is normal - I had that too! I also started to feel very itchy soon after that. That's just your surgery healing. Trust me, you're ok!

Have you been taking sitz baths? If not, they're very soothing - easier than trying to lower yourself into a tub! I did them about 3-4 times a day to keep it clean and sooth the area. Also, rest as much as possible! Just take it easy! Let your body heal!

Feel free to ask me any questions you may have!

-Jen

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NEW MEMBER_ RECENT VESTIBULECTOMY

Post  ashley215 on Tue Oct 27, 2015 8:25 pm

That's what people keep saying.. I am currently in week 7 Sad. Sadly, at this point I have no clue how to relax. I just keep picturing myself alone for the rest of my life with a defective vagina.

Question: I thought you were just about fully healed at 6 weeks? I guess I am freaking out because the pain is in the area I had the most trouble..

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Re: NEW MEMBER_ Recent Vestibulectomy

Post  jen007 on Tue Oct 27, 2015 8:55 pm

Ashley,

I felt the same way, but TRUST ME, you're on the right track! Keep resting and taking it easy - it's key to your recovery. Don't exercise or do anything too strenuous.

The healing period after surgery is usually about 2 months - meaning you can start going back to normal activities with caution. Your stitches should be gone by then and you should be able to wear regular clothes again, so on and so forth. It can take up to 8 months to a year from surgery to be fully healed. It just depends on the rate your body heals. It's worth the wait TRUST ME.

Don't lose trust in your body. It will heal! You can't make any conclusions until your body is done healing. You won't be alone forever! I felt the same way. I had set backs at first. Now I have a new guy and we have sex on the regular and it doesn't even hurt. Just wait it out!

-Jen

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NEW MEMBER_ RECENT VESTIBULECTOMY

Post  ashley215 on Wed Oct 28, 2015 12:22 am

Thanks for replying Jen!

I will TRY my best to kind of relax. It's just stressful when you looking for a job and about to run out of insurance (because I turn 26 in December). I am concerned that the surgery will fail and I won't have a job/insurance (though I have been interviewing a lot) to pay for doctors visits and the costly medications.
Ugh, I just want to get back to normal. I used to be pretty fun lol. I don't know if I will ever see that fun girl again. Plus, when you have a condition like this maintaining friendships can be hard. Mainly, because they don't understand and are just happy that their vagina is not burning or in pain.
Welp, I TRY my best to ignore this burning and pain area.. And stop looking at it in the mirror. I am guiltily of looking at my vagina as soon as I got out of surgery. Crazy I know. lol . I could not help myself. November 17th ( 10 week mark) is my next appt and I hope all of these strange sensations will be gone..

I hope this is coming to a end because I am pretty hopeless at this point. Congrats on being pain free for FIVE YEARS.

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Re: NEW MEMBER_ Recent Vestibulectomy

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