Log in

I forgot my password

Latest topics
New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 2

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


NEW MEMBER_ Recent Vestibulectomy

View previous topic View next topic Go down

NEW MEMBER_ Recent Vestibulectomy

Post  ashley215 on Tue Oct 27, 2015 8:23 am

Hello,

I am new to this and I wanted to know if anyone can tell me what to except over the next few weeks.

I had surgery on 9/11 and it has been about six weeks since my surgery. I had a post-op appointment on 10/7( 4-week mark).

He stated that I was healing very well! And that I should not stress every little pain or sensation at that point because it is too early to determine anything. That is a lot easier said than done.

Recently, I have been experiencing a low-grade burning sensation(over the last week) and I'm afraid that this is yet another failed treatment. Is this normal after surgery? Is this a sign of healing? I also still have stitches in some areas( I have dissolveable stitches) .

This is the most stressful thing ever.. recent grad, no job and stitches in my vagina. Oh the joy!


ashley215

Posts : 6
Join date : 2015-10-27

View user profile

Back to top Go down

Re: NEW MEMBER_ Recent Vestibulectomy

Post  jen007 on Tue Oct 27, 2015 4:06 pm

Hi Ashley,

I had a full vestibulectomy about 5 years ago. From what you're saying, it seems like you're doing just fine! Don't let the little pains and burns here and there discourage you. As your doctor said, it's too soon to tell. Just keep doing everything the doctor tells you. The low-grade burning is normal - I had that too! I also started to feel very itchy soon after that. That's just your surgery healing. Trust me, you're ok!

Have you been taking sitz baths? If not, they're very soothing - easier than trying to lower yourself into a tub! I did them about 3-4 times a day to keep it clean and sooth the area. Also, rest as much as possible! Just take it easy! Let your body heal!

Feel free to ask me any questions you may have!

-Jen

jen007

Posts : 151
Join date : 2012-11-05
Age : 25
Location : U.S.A

View user profile

Back to top Go down

NEW MEMBER_ RECENT VESTIBULECTOMY

Post  ashley215 on Tue Oct 27, 2015 8:25 pm

That's what people keep saying.. I am currently in week 7 Sad. Sadly, at this point I have no clue how to relax. I just keep picturing myself alone for the rest of my life with a defective vagina.

Question: I thought you were just about fully healed at 6 weeks? I guess I am freaking out because the pain is in the area I had the most trouble..

ashley215

Posts : 6
Join date : 2015-10-27

View user profile

Back to top Go down

Re: NEW MEMBER_ Recent Vestibulectomy

Post  jen007 on Tue Oct 27, 2015 8:55 pm

Ashley,

I felt the same way, but TRUST ME, you're on the right track! Keep resting and taking it easy - it's key to your recovery. Don't exercise or do anything too strenuous.

The healing period after surgery is usually about 2 months - meaning you can start going back to normal activities with caution. Your stitches should be gone by then and you should be able to wear regular clothes again, so on and so forth. It can take up to 8 months to a year from surgery to be fully healed. It just depends on the rate your body heals. It's worth the wait TRUST ME.

Don't lose trust in your body. It will heal! You can't make any conclusions until your body is done healing. You won't be alone forever! I felt the same way. I had set backs at first. Now I have a new guy and we have sex on the regular and it doesn't even hurt. Just wait it out!

-Jen

jen007

Posts : 151
Join date : 2012-11-05
Age : 25
Location : U.S.A

View user profile

Back to top Go down

NEW MEMBER_ RECENT VESTIBULECTOMY

Post  ashley215 on Wed Oct 28, 2015 12:22 am

Thanks for replying Jen!

I will TRY my best to kind of relax. It's just stressful when you looking for a job and about to run out of insurance (because I turn 26 in December). I am concerned that the surgery will fail and I won't have a job/insurance (though I have been interviewing a lot) to pay for doctors visits and the costly medications.
Ugh, I just want to get back to normal. I used to be pretty fun lol. I don't know if I will ever see that fun girl again. Plus, when you have a condition like this maintaining friendships can be hard. Mainly, because they don't understand and are just happy that their vagina is not burning or in pain.
Welp, I TRY my best to ignore this burning and pain area.. And stop looking at it in the mirror. I am guiltily of looking at my vagina as soon as I got out of surgery. Crazy I know. lol . I could not help myself. November 17th ( 10 week mark) is my next appt and I hope all of these strange sensations will be gone..

I hope this is coming to a end because I am pretty hopeless at this point. Congrats on being pain free for FIVE YEARS.

ashley215

Posts : 6
Join date : 2015-10-27

View user profile

Back to top Go down

Re: NEW MEMBER_ Recent Vestibulectomy

Post  Sponsored content


Sponsored content


Back to top Go down

View previous topic View next topic Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum