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» What's next?
Yesterday at 4:01 pm by jennyk2

» Pain management - what works for me
Yesterday at 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

» Custom made leggings?
Sun Apr 22, 2018 4:52 am by CatJones

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


NEW MEMBER_ Recent Vestibulectomy

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NEW MEMBER_ Recent Vestibulectomy

Post  ashley215 on Tue Oct 27, 2015 8:23 am

Hello,

I am new to this and I wanted to know if anyone can tell me what to except over the next few weeks.

I had surgery on 9/11 and it has been about six weeks since my surgery. I had a post-op appointment on 10/7( 4-week mark).

He stated that I was healing very well! And that I should not stress every little pain or sensation at that point because it is too early to determine anything. That is a lot easier said than done.

Recently, I have been experiencing a low-grade burning sensation(over the last week) and I'm afraid that this is yet another failed treatment. Is this normal after surgery? Is this a sign of healing? I also still have stitches in some areas( I have dissolveable stitches) .

This is the most stressful thing ever.. recent grad, no job and stitches in my vagina. Oh the joy!


ashley215

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Re: NEW MEMBER_ Recent Vestibulectomy

Post  jen007 on Tue Oct 27, 2015 4:06 pm

Hi Ashley,

I had a full vestibulectomy about 5 years ago. From what you're saying, it seems like you're doing just fine! Don't let the little pains and burns here and there discourage you. As your doctor said, it's too soon to tell. Just keep doing everything the doctor tells you. The low-grade burning is normal - I had that too! I also started to feel very itchy soon after that. That's just your surgery healing. Trust me, you're ok!

Have you been taking sitz baths? If not, they're very soothing - easier than trying to lower yourself into a tub! I did them about 3-4 times a day to keep it clean and sooth the area. Also, rest as much as possible! Just take it easy! Let your body heal!

Feel free to ask me any questions you may have!

-Jen

jen007

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NEW MEMBER_ RECENT VESTIBULECTOMY

Post  ashley215 on Tue Oct 27, 2015 8:25 pm

That's what people keep saying.. I am currently in week 7 Sad. Sadly, at this point I have no clue how to relax. I just keep picturing myself alone for the rest of my life with a defective vagina.

Question: I thought you were just about fully healed at 6 weeks? I guess I am freaking out because the pain is in the area I had the most trouble..

ashley215

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Re: NEW MEMBER_ Recent Vestibulectomy

Post  jen007 on Tue Oct 27, 2015 8:55 pm

Ashley,

I felt the same way, but TRUST ME, you're on the right track! Keep resting and taking it easy - it's key to your recovery. Don't exercise or do anything too strenuous.

The healing period after surgery is usually about 2 months - meaning you can start going back to normal activities with caution. Your stitches should be gone by then and you should be able to wear regular clothes again, so on and so forth. It can take up to 8 months to a year from surgery to be fully healed. It just depends on the rate your body heals. It's worth the wait TRUST ME.

Don't lose trust in your body. It will heal! You can't make any conclusions until your body is done healing. You won't be alone forever! I felt the same way. I had set backs at first. Now I have a new guy and we have sex on the regular and it doesn't even hurt. Just wait it out!

-Jen

jen007

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NEW MEMBER_ RECENT VESTIBULECTOMY

Post  ashley215 on Wed Oct 28, 2015 12:22 am

Thanks for replying Jen!

I will TRY my best to kind of relax. It's just stressful when you looking for a job and about to run out of insurance (because I turn 26 in December). I am concerned that the surgery will fail and I won't have a job/insurance (though I have been interviewing a lot) to pay for doctors visits and the costly medications.
Ugh, I just want to get back to normal. I used to be pretty fun lol. I don't know if I will ever see that fun girl again. Plus, when you have a condition like this maintaining friendships can be hard. Mainly, because they don't understand and are just happy that their vagina is not burning or in pain.
Welp, I TRY my best to ignore this burning and pain area.. And stop looking at it in the mirror. I am guiltily of looking at my vagina as soon as I got out of surgery. Crazy I know. lol . I could not help myself. November 17th ( 10 week mark) is my next appt and I hope all of these strange sensations will be gone..

I hope this is coming to a end because I am pretty hopeless at this point. Congrats on being pain free for FIVE YEARS.

ashley215

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Re: NEW MEMBER_ Recent Vestibulectomy

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