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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 7

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6


Does anyone else have this symptom?

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Does anyone else have this symptom?

Post  Sadie1992 on Tue Oct 27, 2015 5:42 pm

My vulva pained started 3 years ago. I haven't been officially diagnosed but I have been to two Drs both who did nothing for me.... After much recearch, I've concluded I probably have vulvadynia. But, I have a symptom that could mean there's something else going on. sometimes when I have pain, my urine is cloudy and smells almost like ammonia.. I can have pain without the cloudy urine but I've never had the cloudy urine without the pain. Has anyone else heard of this symptom?

Sadie1992

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Re: Does anyone else have this symptom?

Post  WaahwaahUK on Tue Oct 27, 2015 7:34 pm

Has your urine been tested when you're in pain and its cloudy? I haven't had that symptom myself but it sounds like its worth getting it tested in case you have an underlying infection?

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Re: Does anyone else have this symptom?

Post  PainBlogger on Tue Oct 27, 2015 9:17 pm

The thing is, unfortunately, is that it's quite possible to have vulvodynia and then get urine infections as well. If you think about it, a lot of women who are normally healthy will get urine infections occasionally. When there's chronic pain in that general area it can be difficult to ascertain if there is something else more acute going on from time to time.

I have urethral burning a lot of the time but my urine is usually clear and I have Multistix at home which I use to check for infection (leukocytes) if I feel it's worse than usual. As Waahwaah says, it's worth getting your urine checked when its cloudy.

PainBlogger

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Re: Does anyone else have this symptom?

Post  Sadie1992 on Fri Oct 30, 2015 2:07 am

Thank you for your advice! I will definitely get it checked out. I don't think it's a normal UTI bc it comes and goes within 2 days and it happens relatively frequently. But, you're right. Now that I'm researching it sounds like it's some kind of infection. Thanks again!

Sadie1992

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Re: Does anyone else have this symptom?

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