Log in

I forgot my password

Latest topics
» Can you guys tell me your experiences with diflucan/Fluconazole?
Yesterday at 1:29 am by ryn207

» So frustrating!!
Yesterday at 1:25 am by ryn207

» Looking for suggestions or encouragement
Yesterday at 1:19 am by ryn207

» Looking for a friend..... and new problems
Mon Jan 15, 2018 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


first time with dilators..your thoughts please..

View previous topic View next topic Go down

first time with dilators..your thoughts please..

Post  Sebby (Admin) on Tue Jan 11, 2011 8:02 pm


Hi guys

Well I tried with the smallest dilator last night. Was nervous and couldnt relax that well but I did manage to insert it with out too much trouble I used lots of lube anyhow.

Well I did it for about 15 minutes, turning it in circular motions like grinding is how they described it on the instructions. Cant wait to see the physical therapist to get more direction tho.

I think I over did it! I expected to feel pain and sore after and the next day and yes today has been horrible so I wont be doing it this evening. I will only do it for 5 minutes next time and much more gently this time!

Anyway all I can describe is that Im extremly tight at the top of my vagina! might as well be steel and not tissue up there! not supprising as I was very nervous and I havnt had regular sex for nearly 2years.

Anyway this really got me thinking that it is my pelvic floor that is causing all this..so bloody tight and stubborn! been like that all my life and sex, examinations, tampons have always been difficult so I have always known I had vaginismus but I kinda managed till vulvodynia flared up 2 years ago.

I knew so little about all this pelvic floor thing and doubted it at first as drs kept looking at me funny when I mentioned it. They were all about drugs and creams.

Im sitting down (ouch! lol) to write my letters to the local womens physios to see which one feels they can treat me...

In the meantime I'll just have to be gentle

Also I have my bio-feedback equipment being delivered soon and a video conference consultaion with Dr Glazer soon so here we go!

Sebby
xx
avatar
Sebby (Admin)
Admin

Posts : 750
Join date : 2009-12-03
Age : 37
Location : London UK

View user profile http://vulvodyniasupport.forumotion.net

Back to top Go down

Re: first time with dilators..your thoughts please..

Post  [Sara] on Wed Jan 12, 2011 1:47 am

Pelvic floor dysfunction is a biotch. Suspect

My therapist told me to just start out inserting the dilator in and leaving it, for atleast 5 minutes and adding on a few more minutes each time if I have little to no pain. With my floor being so spasmodic and tight, she thinks that if I try moving and stretching things with the dilators that it may mess things up a bit and that it would be more helpful to just stretch the tissues by leaving the dilator in one place. When I started having symptoms most of my pain was at the opening, but after using the second size dilator (and through internal physical therapy) I actually have pain inside somewhere deeper as well. I think mine might be pure steel up there, too. affraid

I have had one session of biofeedback therapy and my therapist found out some interesting things. Of course, my contractions are irregular and weak, and when I am at rest there is still muscle activity from the spasms. She had an electrode on each butt cheek, one on either side of the "la-la" opening (that one's for you, naomi!), and one on my lower abs. My muscle groups don't work together like they should during contractions, and when I am at rest, my abs are so tight. Biofeedback therapy can be very helpful. It was neat to see exactly what my muscles were doing, seems like they all have minds of their own...why can't our bodies just work right? Rolling Eyes

[Sara]

Posts : 26
Join date : 2011-01-01

View user profile

Back to top Go down

Re: first time with dilators..your thoughts please..

Post  Sarah001 on Wed Jan 12, 2011 11:12 am

I'm really excited that you have the Glazer machine and web consultation coming up! I emailed him before I started with my biofeedback and almost went for it myself. I've been trying to find out what exactly the "Glazer Protocol" involves and found some info in a book preview online but I'm not sure if it's correct. I won't post here what I found in case it's wrong (I don't want anyone to think it's right if it isn't and do the wrong stuff!) but once you've had your appointment with him I'd be really interested to see if he gave you the exercises the book said he would.

As for dilators I think just inserting it for now is a better option, you can build up really slowly to moving it around and don't have to make yourself loads worse in the meantime. I found the dilators increased pain to begin with too and you just have to work out what you can stand. You could do some external work with a tennis ball first to loosen the pelvic floor a bit, you can put it under the perineum or along the edge of the sacrum and place your weight on it will hit them a bit too. My physio told me to do 10 quick flicks with the emphasis on release if I needed to relax the muscles in a hurry, you have to make sure you do the release bit though or obviously you just make things worse!

Can't wait to hear about your web appointment!
avatar
Sarah001

Posts : 1163
Join date : 2010-06-11
Age : 44
Location : UK

View user profile

Back to top Go down

Re: first time with dilators..your thoughts please..

Post  Sebby (Admin) on Wed Jan 12, 2011 8:56 pm


Thanks Guys, I will definitely be just insterting it and leaving it for like 5 minutes or so to start with!

I was due a flare up anyway as I have just come on my period early so its not suprising I set everything off!

Dr Glazer has emailed me and I have to download skype. Gonna do it on mums laptop as she has a webcam and I dont, just need to check if her one has a microphone..am a bit confused by it all lol.

As soon as I get my equipment through I can sort out the appointment

Will let you know how it all goes!

avatar
Sebby (Admin)
Admin

Posts : 750
Join date : 2009-12-03
Age : 37
Location : London UK

View user profile http://vulvodyniasupport.forumotion.net

Back to top Go down

Re: first time with dilators..your thoughts please..

Post  Aussie on Thu Mar 17, 2011 10:33 am

I find it helps me sleep if i insert the diolator and fall asleep with it in. I think the muscles relax most when your are just about to fall asleep so this is when I do my diolator work. Also I am suprised there isn't a therapist mentioned doing dr glaziers biofeedback program in the UK. There is here in Australia but he charges a fair bit.

Aussie

Posts : 227
Join date : 2011-03-15
Age : 29
Location : Queensland, Australia

View user profile

Back to top Go down

Re: first time with dilators..your thoughts please..

Post  Sebby (Admin) on Thu Mar 17, 2011 7:30 pm


There isn't a practitioner of his protocol in the uk, I even asked Dr Glazer myself! The UK is so behind is embarrassing!

Have you fallen asleep with it in? Id be too scared to do that...but im not sure why lol I do toss and turn quite a bit so who knows what would happen lol

_________________
Sebby
XxX

admin@vulvodyniasupportforum.com
avatar
Sebby (Admin)
Admin

Posts : 750
Join date : 2009-12-03
Age : 37
Location : London UK

View user profile http://vulvodyniasupport.forumotion.net

Back to top Go down

Re: first time with dilators..your thoughts please..

Post  Aussie on Fri Mar 18, 2011 1:33 am

Sebby,

Dr Glazer would say that, he wants your custom remember. Why would he tell you someone is practicing in the UK when you can buy his stuff off his website and he gets the money? The guy I am seeing told me he was the only one in Australia dong this time of work. I have since discovered this is not the case. I have managed to find a women's physio with heaps of experience in treating v and high tone pelvic floor dysfunction. I have an appointment today.

I do fall asleep with it in. Sometimes the pain is so bad it's the only way to fall asleep. You wouldn't break it by rolling over on it i have dropped mine on a tile floor and they somehow bounced?! Give it ago you may get some relief!

Claire

Aussie

Posts : 227
Join date : 2011-03-15
Age : 29
Location : Queensland, Australia

View user profile

Back to top Go down

Re: first time with dilators..your thoughts please..

Post  Sponsored content


Sponsored content


Back to top Go down

View previous topic View next topic Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum