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» Post Vestibulectomy
Tue Aug 22, 2017 6:48 pm by JGD13

» Vestibulectomy
Fri Aug 18, 2017 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


first time with dilators..your thoughts please..

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first time with dilators..your thoughts please..

Post  Sebby (Admin) on Tue Jan 11, 2011 8:02 pm


Hi guys

Well I tried with the smallest dilator last night. Was nervous and couldnt relax that well but I did manage to insert it with out too much trouble I used lots of lube anyhow.

Well I did it for about 15 minutes, turning it in circular motions like grinding is how they described it on the instructions. Cant wait to see the physical therapist to get more direction tho.

I think I over did it! I expected to feel pain and sore after and the next day and yes today has been horrible so I wont be doing it this evening. I will only do it for 5 minutes next time and much more gently this time!

Anyway all I can describe is that Im extremly tight at the top of my vagina! might as well be steel and not tissue up there! not supprising as I was very nervous and I havnt had regular sex for nearly 2years.

Anyway this really got me thinking that it is my pelvic floor that is causing all this..so bloody tight and stubborn! been like that all my life and sex, examinations, tampons have always been difficult so I have always known I had vaginismus but I kinda managed till vulvodynia flared up 2 years ago.

I knew so little about all this pelvic floor thing and doubted it at first as drs kept looking at me funny when I mentioned it. They were all about drugs and creams.

Im sitting down (ouch! lol) to write my letters to the local womens physios to see which one feels they can treat me...

In the meantime I'll just have to be gentle

Also I have my bio-feedback equipment being delivered soon and a video conference consultaion with Dr Glazer soon so here we go!

Sebby
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Re: first time with dilators..your thoughts please..

Post  [Sara] on Wed Jan 12, 2011 1:47 am

Pelvic floor dysfunction is a biotch. Suspect

My therapist told me to just start out inserting the dilator in and leaving it, for atleast 5 minutes and adding on a few more minutes each time if I have little to no pain. With my floor being so spasmodic and tight, she thinks that if I try moving and stretching things with the dilators that it may mess things up a bit and that it would be more helpful to just stretch the tissues by leaving the dilator in one place. When I started having symptoms most of my pain was at the opening, but after using the second size dilator (and through internal physical therapy) I actually have pain inside somewhere deeper as well. I think mine might be pure steel up there, too. affraid

I have had one session of biofeedback therapy and my therapist found out some interesting things. Of course, my contractions are irregular and weak, and when I am at rest there is still muscle activity from the spasms. She had an electrode on each butt cheek, one on either side of the "la-la" opening (that one's for you, naomi!), and one on my lower abs. My muscle groups don't work together like they should during contractions, and when I am at rest, my abs are so tight. Biofeedback therapy can be very helpful. It was neat to see exactly what my muscles were doing, seems like they all have minds of their own...why can't our bodies just work right? Rolling Eyes

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Re: first time with dilators..your thoughts please..

Post  Sarah001 on Wed Jan 12, 2011 11:12 am

I'm really excited that you have the Glazer machine and web consultation coming up! I emailed him before I started with my biofeedback and almost went for it myself. I've been trying to find out what exactly the "Glazer Protocol" involves and found some info in a book preview online but I'm not sure if it's correct. I won't post here what I found in case it's wrong (I don't want anyone to think it's right if it isn't and do the wrong stuff!) but once you've had your appointment with him I'd be really interested to see if he gave you the exercises the book said he would.

As for dilators I think just inserting it for now is a better option, you can build up really slowly to moving it around and don't have to make yourself loads worse in the meantime. I found the dilators increased pain to begin with too and you just have to work out what you can stand. You could do some external work with a tennis ball first to loosen the pelvic floor a bit, you can put it under the perineum or along the edge of the sacrum and place your weight on it will hit them a bit too. My physio told me to do 10 quick flicks with the emphasis on release if I needed to relax the muscles in a hurry, you have to make sure you do the release bit though or obviously you just make things worse!

Can't wait to hear about your web appointment!
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Re: first time with dilators..your thoughts please..

Post  Sebby (Admin) on Wed Jan 12, 2011 8:56 pm


Thanks Guys, I will definitely be just insterting it and leaving it for like 5 minutes or so to start with!

I was due a flare up anyway as I have just come on my period early so its not suprising I set everything off!

Dr Glazer has emailed me and I have to download skype. Gonna do it on mums laptop as she has a webcam and I dont, just need to check if her one has a microphone..am a bit confused by it all lol.

As soon as I get my equipment through I can sort out the appointment

Will let you know how it all goes!

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Re: first time with dilators..your thoughts please..

Post  Aussie on Thu Mar 17, 2011 10:33 am

I find it helps me sleep if i insert the diolator and fall asleep with it in. I think the muscles relax most when your are just about to fall asleep so this is when I do my diolator work. Also I am suprised there isn't a therapist mentioned doing dr glaziers biofeedback program in the UK. There is here in Australia but he charges a fair bit.

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Re: first time with dilators..your thoughts please..

Post  Sebby (Admin) on Thu Mar 17, 2011 7:30 pm


There isn't a practitioner of his protocol in the uk, I even asked Dr Glazer myself! The UK is so behind is embarrassing!

Have you fallen asleep with it in? Id be too scared to do that...but im not sure why lol I do toss and turn quite a bit so who knows what would happen lol

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Re: first time with dilators..your thoughts please..

Post  Aussie on Fri Mar 18, 2011 1:33 am

Sebby,

Dr Glazer would say that, he wants your custom remember. Why would he tell you someone is practicing in the UK when you can buy his stuff off his website and he gets the money? The guy I am seeing told me he was the only one in Australia dong this time of work. I have since discovered this is not the case. I have managed to find a women's physio with heaps of experience in treating v and high tone pelvic floor dysfunction. I have an appointment today.

I do fall asleep with it in. Sometimes the pain is so bad it's the only way to fall asleep. You wouldn't break it by rolling over on it i have dropped mine on a tile floor and they somehow bounced?! Give it ago you may get some relief!

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Re: first time with dilators..your thoughts please..

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