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» I think I've developed vulvodynia?? Please help!
Yesterday at 9:10 pm by Necromeowncer

» MY STORY & Vestibulectomy 2/8/17
Yesterday at 12:38 pm by Mel T

» New w/ Secondary Provoked Vestibuldynia
Sun Oct 22, 2017 3:47 am by Birdy

» Newly diagnosed
Sat Oct 21, 2017 9:50 pm by sarisbaris

» Prednisone Injections?
Wed Oct 18, 2017 5:07 am by sarisbaris

» Has anyone had continued success with gabapentin or Botox injections?
Wed Oct 18, 2017 4:47 am by sarisbaris

» Recent "Poke" Pain - So Confused/Losing My Mind
Wed Oct 18, 2017 2:37 am by sarisbaris

» What is Vulvodynia?
Tue Oct 17, 2017 11:57 pm by Jenjen

» CURED FROM VULVODYNIA - PAIN FREE FOR 2 YEARS
Mon Oct 16, 2017 2:22 am by Sagewoman

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1


first time with dilators..your thoughts please..

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first time with dilators..your thoughts please..

Post  Sebby (Admin) on Tue Jan 11, 2011 8:02 pm


Hi guys

Well I tried with the smallest dilator last night. Was nervous and couldnt relax that well but I did manage to insert it with out too much trouble I used lots of lube anyhow.

Well I did it for about 15 minutes, turning it in circular motions like grinding is how they described it on the instructions. Cant wait to see the physical therapist to get more direction tho.

I think I over did it! I expected to feel pain and sore after and the next day and yes today has been horrible so I wont be doing it this evening. I will only do it for 5 minutes next time and much more gently this time!

Anyway all I can describe is that Im extremly tight at the top of my vagina! might as well be steel and not tissue up there! not supprising as I was very nervous and I havnt had regular sex for nearly 2years.

Anyway this really got me thinking that it is my pelvic floor that is causing all this..so bloody tight and stubborn! been like that all my life and sex, examinations, tampons have always been difficult so I have always known I had vaginismus but I kinda managed till vulvodynia flared up 2 years ago.

I knew so little about all this pelvic floor thing and doubted it at first as drs kept looking at me funny when I mentioned it. They were all about drugs and creams.

Im sitting down (ouch! lol) to write my letters to the local womens physios to see which one feels they can treat me...

In the meantime I'll just have to be gentle

Also I have my bio-feedback equipment being delivered soon and a video conference consultaion with Dr Glazer soon so here we go!

Sebby
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Re: first time with dilators..your thoughts please..

Post  [Sara] on Wed Jan 12, 2011 1:47 am

Pelvic floor dysfunction is a biotch. Suspect

My therapist told me to just start out inserting the dilator in and leaving it, for atleast 5 minutes and adding on a few more minutes each time if I have little to no pain. With my floor being so spasmodic and tight, she thinks that if I try moving and stretching things with the dilators that it may mess things up a bit and that it would be more helpful to just stretch the tissues by leaving the dilator in one place. When I started having symptoms most of my pain was at the opening, but after using the second size dilator (and through internal physical therapy) I actually have pain inside somewhere deeper as well. I think mine might be pure steel up there, too. affraid

I have had one session of biofeedback therapy and my therapist found out some interesting things. Of course, my contractions are irregular and weak, and when I am at rest there is still muscle activity from the spasms. She had an electrode on each butt cheek, one on either side of the "la-la" opening (that one's for you, naomi!), and one on my lower abs. My muscle groups don't work together like they should during contractions, and when I am at rest, my abs are so tight. Biofeedback therapy can be very helpful. It was neat to see exactly what my muscles were doing, seems like they all have minds of their own...why can't our bodies just work right? Rolling Eyes

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Re: first time with dilators..your thoughts please..

Post  Sarah001 on Wed Jan 12, 2011 11:12 am

I'm really excited that you have the Glazer machine and web consultation coming up! I emailed him before I started with my biofeedback and almost went for it myself. I've been trying to find out what exactly the "Glazer Protocol" involves and found some info in a book preview online but I'm not sure if it's correct. I won't post here what I found in case it's wrong (I don't want anyone to think it's right if it isn't and do the wrong stuff!) but once you've had your appointment with him I'd be really interested to see if he gave you the exercises the book said he would.

As for dilators I think just inserting it for now is a better option, you can build up really slowly to moving it around and don't have to make yourself loads worse in the meantime. I found the dilators increased pain to begin with too and you just have to work out what you can stand. You could do some external work with a tennis ball first to loosen the pelvic floor a bit, you can put it under the perineum or along the edge of the sacrum and place your weight on it will hit them a bit too. My physio told me to do 10 quick flicks with the emphasis on release if I needed to relax the muscles in a hurry, you have to make sure you do the release bit though or obviously you just make things worse!

Can't wait to hear about your web appointment!
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Re: first time with dilators..your thoughts please..

Post  Sebby (Admin) on Wed Jan 12, 2011 8:56 pm


Thanks Guys, I will definitely be just insterting it and leaving it for like 5 minutes or so to start with!

I was due a flare up anyway as I have just come on my period early so its not suprising I set everything off!

Dr Glazer has emailed me and I have to download skype. Gonna do it on mums laptop as she has a webcam and I dont, just need to check if her one has a microphone..am a bit confused by it all lol.

As soon as I get my equipment through I can sort out the appointment

Will let you know how it all goes!

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Re: first time with dilators..your thoughts please..

Post  Aussie on Thu Mar 17, 2011 10:33 am

I find it helps me sleep if i insert the diolator and fall asleep with it in. I think the muscles relax most when your are just about to fall asleep so this is when I do my diolator work. Also I am suprised there isn't a therapist mentioned doing dr glaziers biofeedback program in the UK. There is here in Australia but he charges a fair bit.

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Re: first time with dilators..your thoughts please..

Post  Sebby (Admin) on Thu Mar 17, 2011 7:30 pm


There isn't a practitioner of his protocol in the uk, I even asked Dr Glazer myself! The UK is so behind is embarrassing!

Have you fallen asleep with it in? Id be too scared to do that...but im not sure why lol I do toss and turn quite a bit so who knows what would happen lol

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Re: first time with dilators..your thoughts please..

Post  Aussie on Fri Mar 18, 2011 1:33 am

Sebby,

Dr Glazer would say that, he wants your custom remember. Why would he tell you someone is practicing in the UK when you can buy his stuff off his website and he gets the money? The guy I am seeing told me he was the only one in Australia dong this time of work. I have since discovered this is not the case. I have managed to find a women's physio with heaps of experience in treating v and high tone pelvic floor dysfunction. I have an appointment today.

I do fall asleep with it in. Sometimes the pain is so bad it's the only way to fall asleep. You wouldn't break it by rolling over on it i have dropped mine on a tile floor and they somehow bounced?! Give it ago you may get some relief!

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