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Yesterday at 7:34 pm by Jo44

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Yesterday at 4:38 pm by emalita

» It feels like I’m going to have pain forever
Mon Jul 16, 2018 12:11 pm by mhhh

» It feels like I’m going to have pain forever
Mon Jul 16, 2018 10:01 am by dunkelma

» It feels like I’m going to have pain forever
Mon Jul 16, 2018 8:51 am by dunkelma

» Honey decreased my pain considerably!
Sun Jul 15, 2018 12:53 pm by mhhh

» Birth control pills can cause vestibulitis
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» Gabapentin gel and pregnancy
Sat Jul 14, 2018 4:15 pm by Georgie 121212

» From a concerned husband
Fri Jul 13, 2018 6:02 pm by emalita

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

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Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0


first time with dilators..your thoughts please..

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first time with dilators..your thoughts please..

Post  Sebby (Admin) on Tue Jan 11, 2011 8:02 pm


Hi guys

Well I tried with the smallest dilator last night. Was nervous and couldnt relax that well but I did manage to insert it with out too much trouble I used lots of lube anyhow.

Well I did it for about 15 minutes, turning it in circular motions like grinding is how they described it on the instructions. Cant wait to see the physical therapist to get more direction tho.

I think I over did it! I expected to feel pain and sore after and the next day and yes today has been horrible so I wont be doing it this evening. I will only do it for 5 minutes next time and much more gently this time!

Anyway all I can describe is that Im extremly tight at the top of my vagina! might as well be steel and not tissue up there! not supprising as I was very nervous and I havnt had regular sex for nearly 2years.

Anyway this really got me thinking that it is my pelvic floor that is causing all this..so bloody tight and stubborn! been like that all my life and sex, examinations, tampons have always been difficult so I have always known I had vaginismus but I kinda managed till vulvodynia flared up 2 years ago.

I knew so little about all this pelvic floor thing and doubted it at first as drs kept looking at me funny when I mentioned it. They were all about drugs and creams.

Im sitting down (ouch! lol) to write my letters to the local womens physios to see which one feels they can treat me...

In the meantime I'll just have to be gentle

Also I have my bio-feedback equipment being delivered soon and a video conference consultaion with Dr Glazer soon so here we go!

Sebby
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Re: first time with dilators..your thoughts please..

Post  [Sara] on Wed Jan 12, 2011 1:47 am

Pelvic floor dysfunction is a biotch. Suspect

My therapist told me to just start out inserting the dilator in and leaving it, for atleast 5 minutes and adding on a few more minutes each time if I have little to no pain. With my floor being so spasmodic and tight, she thinks that if I try moving and stretching things with the dilators that it may mess things up a bit and that it would be more helpful to just stretch the tissues by leaving the dilator in one place. When I started having symptoms most of my pain was at the opening, but after using the second size dilator (and through internal physical therapy) I actually have pain inside somewhere deeper as well. I think mine might be pure steel up there, too. affraid

I have had one session of biofeedback therapy and my therapist found out some interesting things. Of course, my contractions are irregular and weak, and when I am at rest there is still muscle activity from the spasms. She had an electrode on each butt cheek, one on either side of the "la-la" opening (that one's for you, naomi!), and one on my lower abs. My muscle groups don't work together like they should during contractions, and when I am at rest, my abs are so tight. Biofeedback therapy can be very helpful. It was neat to see exactly what my muscles were doing, seems like they all have minds of their own...why can't our bodies just work right? Rolling Eyes

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Re: first time with dilators..your thoughts please..

Post  Sarah001 on Wed Jan 12, 2011 11:12 am

I'm really excited that you have the Glazer machine and web consultation coming up! I emailed him before I started with my biofeedback and almost went for it myself. I've been trying to find out what exactly the "Glazer Protocol" involves and found some info in a book preview online but I'm not sure if it's correct. I won't post here what I found in case it's wrong (I don't want anyone to think it's right if it isn't and do the wrong stuff!) but once you've had your appointment with him I'd be really interested to see if he gave you the exercises the book said he would.

As for dilators I think just inserting it for now is a better option, you can build up really slowly to moving it around and don't have to make yourself loads worse in the meantime. I found the dilators increased pain to begin with too and you just have to work out what you can stand. You could do some external work with a tennis ball first to loosen the pelvic floor a bit, you can put it under the perineum or along the edge of the sacrum and place your weight on it will hit them a bit too. My physio told me to do 10 quick flicks with the emphasis on release if I needed to relax the muscles in a hurry, you have to make sure you do the release bit though or obviously you just make things worse!

Can't wait to hear about your web appointment!
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Re: first time with dilators..your thoughts please..

Post  Sebby (Admin) on Wed Jan 12, 2011 8:56 pm


Thanks Guys, I will definitely be just insterting it and leaving it for like 5 minutes or so to start with!

I was due a flare up anyway as I have just come on my period early so its not suprising I set everything off!

Dr Glazer has emailed me and I have to download skype. Gonna do it on mums laptop as she has a webcam and I dont, just need to check if her one has a microphone..am a bit confused by it all lol.

As soon as I get my equipment through I can sort out the appointment

Will let you know how it all goes!

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Re: first time with dilators..your thoughts please..

Post  Aussie on Thu Mar 17, 2011 10:33 am

I find it helps me sleep if i insert the diolator and fall asleep with it in. I think the muscles relax most when your are just about to fall asleep so this is when I do my diolator work. Also I am suprised there isn't a therapist mentioned doing dr glaziers biofeedback program in the UK. There is here in Australia but he charges a fair bit.

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Re: first time with dilators..your thoughts please..

Post  Sebby (Admin) on Thu Mar 17, 2011 7:30 pm


There isn't a practitioner of his protocol in the uk, I even asked Dr Glazer myself! The UK is so behind is embarrassing!

Have you fallen asleep with it in? Id be too scared to do that...but im not sure why lol I do toss and turn quite a bit so who knows what would happen lol

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Re: first time with dilators..your thoughts please..

Post  Aussie on Fri Mar 18, 2011 1:33 am

Sebby,

Dr Glazer would say that, he wants your custom remember. Why would he tell you someone is practicing in the UK when you can buy his stuff off his website and he gets the money? The guy I am seeing told me he was the only one in Australia dong this time of work. I have since discovered this is not the case. I have managed to find a women's physio with heaps of experience in treating v and high tone pelvic floor dysfunction. I have an appointment today.

I do fall asleep with it in. Sometimes the pain is so bad it's the only way to fall asleep. You wouldn't break it by rolling over on it i have dropped mine on a tile floor and they somehow bounced?! Give it ago you may get some relief!

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Re: first time with dilators..your thoughts please..

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