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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 2

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


Vulvovagional pain from scented toilet paper

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Vulvovagional pain from scented toilet paper

Post  jen007 on Tue Nov 03, 2015 6:28 pm

Hi Ladies,

I wanted to see if anyone has ever had experience with vagional pain caused by scented toilet paper or any scented products that affected your area.

I have been experiencing the new pain that I had thought was a yeast infection, but ended up not being one. My doctor had asked me if I had switched toilet papers or anything like that. At the time I said no, because I hadn't... at home anyway. I started working a new job a little over a month ago, which is when this new pain had started for me. Wondering why I had this pain it came to me to check the toilet paper at my job. Turns out it is a scented and quilted toilet paper. The timeline made sense amongst other things.

So, has anyone else had an issue similar to this? If so, how long did it take to go away?

Hope everyone is doing well and staying strong!

-Jen

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Re: Vulvovagional pain from scented toilet paper

Post  BpCookie on Tue Nov 10, 2015 3:58 pm

Hello Jen, Scented products can cause all sorts of problems from burning sensation to yeast infections. Its a good idea to cut out all scented products that you use in that area including body wash and butt wipes. Also change your laundry detergent to non scented and no dyes and don't bleach your undies. This should help the problem. This may sound like a pain in the butt but I would bring my own t.p. to work.

Hopefully this helps hun. Take care.

xoxo
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Re: Vulvovagional pain from scented toilet paper

Post  PainBlogger on Tue Nov 10, 2015 4:54 pm

I avoid all scented products in that area since my problems started. As BpCookie says, it's probably best to keep some unscented toilet paper with you in your bag to use at work or in public toilets. Your employer probably thinks they are treating the employees to some bathroom luxury, but, in reality, it's not doing you and possibly others any favours.

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Re: Vulvovagional pain from scented toilet paper

Post  jen007 on Tue Nov 10, 2015 7:10 pm

Thanks for the replies ladies! I stopped using the toilet paper at my work last week and started bringing in my own. I'm still feeling a bit of burning, but nothing like before. It's slowly but surely going away! I've never had such a reaction to something like that down there. My doctor and myself included thought my V had come back! Crazy how painful an allergic reaction can be. Can't wait for the rest of the irritation to go away!

Thanks again!

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Vulvovagional pain from scented toilet paper

Post  ashley215 on Tue Nov 17, 2015 2:40 am

Hey Jenn,

I glad to hear your doing better!!! We all need good news and hope!!

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Re: Vulvovagional pain from scented toilet paper

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