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» What's next?
Yesterday at 4:01 pm by jennyk2

» Pain management - what works for me
Yesterday at 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

» Custom made leggings?
Sun Apr 22, 2018 4:52 am by CatJones

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


Vulvovagional pain from scented toilet paper

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Vulvovagional pain from scented toilet paper

Post  jen007 on Tue Nov 03, 2015 6:28 pm

Hi Ladies,

I wanted to see if anyone has ever had experience with vagional pain caused by scented toilet paper or any scented products that affected your area.

I have been experiencing the new pain that I had thought was a yeast infection, but ended up not being one. My doctor had asked me if I had switched toilet papers or anything like that. At the time I said no, because I hadn't... at home anyway. I started working a new job a little over a month ago, which is when this new pain had started for me. Wondering why I had this pain it came to me to check the toilet paper at my job. Turns out it is a scented and quilted toilet paper. The timeline made sense amongst other things.

So, has anyone else had an issue similar to this? If so, how long did it take to go away?

Hope everyone is doing well and staying strong!

-Jen

jen007

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Re: Vulvovagional pain from scented toilet paper

Post  BpCookie on Tue Nov 10, 2015 3:58 pm

Hello Jen, Scented products can cause all sorts of problems from burning sensation to yeast infections. Its a good idea to cut out all scented products that you use in that area including body wash and butt wipes. Also change your laundry detergent to non scented and no dyes and don't bleach your undies. This should help the problem. This may sound like a pain in the butt but I would bring my own t.p. to work.

Hopefully this helps hun. Take care.

xoxo
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BpCookie

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Re: Vulvovagional pain from scented toilet paper

Post  PainBlogger on Tue Nov 10, 2015 4:54 pm

I avoid all scented products in that area since my problems started. As BpCookie says, it's probably best to keep some unscented toilet paper with you in your bag to use at work or in public toilets. Your employer probably thinks they are treating the employees to some bathroom luxury, but, in reality, it's not doing you and possibly others any favours.

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Re: Vulvovagional pain from scented toilet paper

Post  jen007 on Tue Nov 10, 2015 7:10 pm

Thanks for the replies ladies! I stopped using the toilet paper at my work last week and started bringing in my own. I'm still feeling a bit of burning, but nothing like before. It's slowly but surely going away! I've never had such a reaction to something like that down there. My doctor and myself included thought my V had come back! Crazy how painful an allergic reaction can be. Can't wait for the rest of the irritation to go away!

Thanks again!

jen007

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Vulvovagional pain from scented toilet paper

Post  ashley215 on Tue Nov 17, 2015 2:40 am

Hey Jenn,

I glad to hear your doing better!!! We all need good news and hope!!

ashley215

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Re: Vulvovagional pain from scented toilet paper

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