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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

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Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

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Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

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New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 9

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 12

Can A Cut In Vestibule cause Vulvodynia?

Thu Mar 01, 2018 1:07 am by rockylife

Can a cut in the vestibule area cause vulvodynia? Is it possible that some nerve a were damaged that’s why I feel this pain in my area without visible lesions?

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Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

Comments: 3

Post Vestibulectomy questions

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Post Vestibulectomy questions

Post  *jenn* on Sat Nov 14, 2015 6:45 am


I have been suffering from provoked vestibulectomy for about 5 years and had a modified vestibulectomy on August 30 of this year and had some questions about the healing process as I am still having pain. I have gone to all of my post-surgery check-ups with my doctor who said that my healing is doing well and I passed the q-tip test for the first time. I was told by my doctor that if I can get my dilators in without pain then I can attempt to have sex.

I was able to get the dilators is without problems(but I was able to do this before the surgery as well as there was only provoked pain and no vaginimus) so I attempted to have sex with my boyfriend. The burning sensation that I had before the surgery was gone but there is still pain that feels like a rash or something and my vagina was sore for a few days afterwards. I want to know if the surgery was a failure or if I just need more time to heal? Has anyone had this surgery that can give me a timeline for when/if they were able to have pain free sex? I do not know anyone else that suffers from this condition and I am getting very depressed thinking that my last resort for a normal sex life may have failed. If anyone can give me any advise it would be appreciated.



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Re: Post Vestibulectomy questions

Post  jen007 on Sat Nov 14, 2015 3:31 pm

Hi Jenn,

I too had been suffering from PVD until I had a full vestibulectomy about 5 years ago. I would say cool it on the sex for a bit. I didn't try having sex until about 4-5 months after surgery and even then I was still quite uncomfortable. I probably didn't have pain free sex until about 8 months post op. Use the dilators...they work wonders. I used them everyday for a long time. If you do have sex, take it real slow. Also, try positions that won't irritate you. I found that doggy style worked best a few months after surgery. All the feelings you are feeling sound pretty normal. Just take it slow, use a lot of lube and even some lidocaine gel. Don't freak yourself out, found what it sounds like you're doing fine. Just take it easy on sex...I was only able to have sex once a week or so after the first few months. Now I can have as much sex as I want.

Let me know if you have any questions!



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