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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 7

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6


Chiripractor and Actupuncture?

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Chiripractor and Actupuncture?

Post  sailor_moon on Sun Nov 15, 2015 12:43 am

Hi ladies,

My next step will be to try a Chiropractor as I have a bad back and when I had my laproscopy surgery they put my back out while moving me and the tingling nerve pain I have down one side of my crotch and butt cheek and thigh got so much worse. It makes me wonder if this is all a nerve issue nd I have a trapped nerve but I do not see how a nerve issue would cause my tissue to become inflammed and red?

I have also heard quite a few good reports about acupuncture being helpful too. Apparantly it helps "reprogramme" the nerve ending pathways.

Has anyone had any experience with either? I'd appreciate any advice.
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Re: Chiripractor and Actupuncture?

Post  PainBlogger on Mon Nov 16, 2015 5:06 pm

I've been having acupuncture since last year. I think it does help somewhat and I think the effects build up over time. It's difficult to know though exactly what treatment is helping most when one is trying several different things at once like new drugs, diet etc.

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Re: Chiripractor and Actupuncture?

Post  sailor_moon on Mon Nov 16, 2015 7:26 pm

Yes it does make it very difficult when you are trying so many things at once in a desperate attempt to be rid of this horrible condition.

I have to be on a specific diet anyway as I have Chronic gastritis ( similar to Chrones Disease).

I haven't tried Ami yet, if Chiropractor and acupuncture doesn't help then I feel that will be my only next option. Or my doctor might let me try injections. I'd rather have injections to taking oral meds to be honest, I'd rather have the pain of needles than have the awful dopey side effects and weight gain of Amitryptilene.

How exactly does the acupuncture work?
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Re: Chiripractor and Actupuncture?

Post  PainBlogger on Tue Nov 17, 2015 2:48 pm

I'm not entirely sure how the acupuncture is supposed to work. I have both needles and electroacupuncture in each treatment session. I've had various different patterns of needles tried. Most recently, there seems to be a pattern where a couple of days after each session my pain starts to calm down and is then better for a couple of weeks before gradually worsening again until the next treatment. Which is what leads me to believe that the combination of needles/electrodes I'm having in recent treatments is helping somewhat. Aside from the very occasional small bruise, it's side effect free.

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