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» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Vestibulectomy
Sun Aug 13, 2017 9:54 am by infinitelywondering

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


Chiripractor and Actupuncture?

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Chiripractor and Actupuncture?

Post  sailor_moon on Sun Nov 15, 2015 12:43 am

Hi ladies,

My next step will be to try a Chiropractor as I have a bad back and when I had my laproscopy surgery they put my back out while moving me and the tingling nerve pain I have down one side of my crotch and butt cheek and thigh got so much worse. It makes me wonder if this is all a nerve issue nd I have a trapped nerve but I do not see how a nerve issue would cause my tissue to become inflammed and red?

I have also heard quite a few good reports about acupuncture being helpful too. Apparantly it helps "reprogramme" the nerve ending pathways.

Has anyone had any experience with either? I'd appreciate any advice.
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Re: Chiripractor and Actupuncture?

Post  PainBlogger on Mon Nov 16, 2015 5:06 pm

I've been having acupuncture since last year. I think it does help somewhat and I think the effects build up over time. It's difficult to know though exactly what treatment is helping most when one is trying several different things at once like new drugs, diet etc.

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Re: Chiripractor and Actupuncture?

Post  sailor_moon on Mon Nov 16, 2015 7:26 pm

Yes it does make it very difficult when you are trying so many things at once in a desperate attempt to be rid of this horrible condition.

I have to be on a specific diet anyway as I have Chronic gastritis ( similar to Chrones Disease).

I haven't tried Ami yet, if Chiropractor and acupuncture doesn't help then I feel that will be my only next option. Or my doctor might let me try injections. I'd rather have injections to taking oral meds to be honest, I'd rather have the pain of needles than have the awful dopey side effects and weight gain of Amitryptilene.

How exactly does the acupuncture work?
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Re: Chiripractor and Actupuncture?

Post  PainBlogger on Tue Nov 17, 2015 2:48 pm

I'm not entirely sure how the acupuncture is supposed to work. I have both needles and electroacupuncture in each treatment session. I've had various different patterns of needles tried. Most recently, there seems to be a pattern where a couple of days after each session my pain starts to calm down and is then better for a couple of weeks before gradually worsening again until the next treatment. Which is what leads me to believe that the combination of needles/electrodes I'm having in recent treatments is helping somewhat. Aside from the very occasional small bruise, it's side effect free.

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Re: Chiripractor and Actupuncture?

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