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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 19

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6


Chiripractor and Actupuncture?

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Chiripractor and Actupuncture?

Post  sailor_moon on Sun Nov 15, 2015 12:43 am

Hi ladies,

My next step will be to try a Chiropractor as I have a bad back and when I had my laproscopy surgery they put my back out while moving me and the tingling nerve pain I have down one side of my crotch and butt cheek and thigh got so much worse. It makes me wonder if this is all a nerve issue nd I have a trapped nerve but I do not see how a nerve issue would cause my tissue to become inflammed and red?

I have also heard quite a few good reports about acupuncture being helpful too. Apparantly it helps "reprogramme" the nerve ending pathways.

Has anyone had any experience with either? I'd appreciate any advice.
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Re: Chiripractor and Actupuncture?

Post  PainBlogger on Mon Nov 16, 2015 5:06 pm

I've been having acupuncture since last year. I think it does help somewhat and I think the effects build up over time. It's difficult to know though exactly what treatment is helping most when one is trying several different things at once like new drugs, diet etc.

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Re: Chiripractor and Actupuncture?

Post  sailor_moon on Mon Nov 16, 2015 7:26 pm

Yes it does make it very difficult when you are trying so many things at once in a desperate attempt to be rid of this horrible condition.

I have to be on a specific diet anyway as I have Chronic gastritis ( similar to Chrones Disease).

I haven't tried Ami yet, if Chiropractor and acupuncture doesn't help then I feel that will be my only next option. Or my doctor might let me try injections. I'd rather have injections to taking oral meds to be honest, I'd rather have the pain of needles than have the awful dopey side effects and weight gain of Amitryptilene.

How exactly does the acupuncture work?
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Re: Chiripractor and Actupuncture?

Post  PainBlogger on Tue Nov 17, 2015 2:48 pm

I'm not entirely sure how the acupuncture is supposed to work. I have both needles and electroacupuncture in each treatment session. I've had various different patterns of needles tried. Most recently, there seems to be a pattern where a couple of days after each session my pain starts to calm down and is then better for a couple of weeks before gradually worsening again until the next treatment. Which is what leads me to believe that the combination of needles/electrodes I'm having in recent treatments is helping somewhat. Aside from the very occasional small bruise, it's side effect free.

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