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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

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Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

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New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

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Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

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New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

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Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

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Sex in Society

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Sex in Society

Post  [Sara] on Wed Jan 12, 2011 1:59 am

How does it make you ladies feel when the media is so focused on sex? Seems you can't watch a movie anymore without nudity and sex and it makes me really uncomfortable. I don't really find it offensive, it just makes me feel weird if my husband sees it because I wonder where his mind goes. It also just makes me downright depressed about my condition and the fact that my chances of ever having a normal sex life is very slim. I have society telling me that men want sex and think about it all the time, and penetrative sex for that matter. It's thrown around so casually...and makes me feel more "broken" than I already am. I know my hubby is by my side and supportive 100%, but I feel crazy sometimes because my mind wanders where it shouldn't and worries about things that probably don't matter.

Sigh. Stupid vaginas not working properly. Sad

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Re: Sex in Society

Post  noni on Wed Jan 12, 2011 3:15 pm

The world is fucked up.
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Re: Sex in Society

Post  Sebby (Admin) on Wed Jan 12, 2011 9:14 pm


lol noni..I like that, straight to the point!

I to find it hard when people talk about sex and I dont buy womens magazines anymore as all they bloody talk about is sex and shoes! the shoes I can handle lol

It does make me feel depressed and the thought that I haven't much chance of a regular sex life at the moment really worries me. I do try to stay positive and say that at some point some treatment is gonna work.

Its hard though as often the thought that im 30 and single and want a boyfriend and a baby one day scares and upsets me so much.

Those who do not know about my condition have started to ask about baby's etc since i turned 30...only a few days ago! and I dont know what to say! I dont want everyone knowing about the vulvodynia so I just keep up this pretence that im not maternal Sad I can see myself at some point exploding with "well maybe I can't have a baby!' I do think people should think before opening their mouth as many women have various gyne conditions and fertility issues so why dont they think of that!

I am just praying some treatment works well enough for me to be able to have intercourse regularly enough..dont have to be everyday, dont have to be several times a week, even just once a week or a few times a month would do me!

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Re: Sex in Society

Post  Mouse on Wed Jan 12, 2011 9:32 pm

Hey Sarah,

You made me smile. People are just interested in your life - fuck them the nosey bastards! My mother-in-law told me on the phone last night that she can't wait to hear how I get on at my physio today ....ARE YOU SHITTING ME??? I hate to think what my husband has told her but I do know it gets me out of visiting her and that has to be a bonus sunny

I think the answer to the baby question is a clear and to the point "I have a chronic pain condition in my pelvis ... (and if you are brave enough) that prevents me from having sex" if they come back for more after that - then a punch in the face should cover it.

I'm picking that when your hoo-ha is fixed it will be sex every day for a while.

V.

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Re: Sex in Society

Post  Sebby (Admin) on Thu Jan 13, 2011 8:24 pm


LOL a punch in the face..good option! Yeah I often just call what I have chronic pelvic pain..I think I will say it if I do get any stupid comments..

I think the whole fear is I don't want people to pity me I guess..everytime they look at me thinking.. 'oh im glad im not her' and it seems to admit finding sex difficult is like (in this society) admitting im an alien lol. Makes me feel defective and not only not a proper women but not a proper human being.. I know many girls with this feel the same way its just a shame we have to beat ourselves up on top of having a chronic pain condition.

If my hoo-ha does get fixed I will feel sorry for any cute men I come across, they will get harrassed good and proper! lol
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Re: Sex in Society

Post  Mouse on Thu Jan 13, 2011 9:25 pm

Hahahaaa a plural even!!! And a punch in the face fixes most things even if it is imaginery.

People are too busy/lazy to be thinking "poor you". A little gem I came across years ago is what other people think of you is none of your business - hmmm I think that was a self awareness class. Be kind to yourself love and don't be thinking about what other people are thinking about - it's exhausting!


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Re: Sex in Society

Post  naomi on Sun Jan 16, 2011 11:22 pm

yeh I hate the pity thing....unforch I have myself to blame for that as most friends and my family know exactly what is wrong with me...otherwise I get paranoid they think im just a mardy, moody cow!

I only buy the cheapy magazines that have all the weird and wonderful stories... i.e. 'I married my brother without realising'...'the weeklies' they call them in the uk. I cant buy the other mags as they are all sex sex sex.

I love reading and nearly always miss out chunks in books as they get their jiggy on....damn it do pep think about anything else?!!

It does really get me down and I honestly dont know how I keep my head above water. Apart from keeping up with you guys on facebook most days...that seems to perk me up if im feeling real low.

As with the babies thing.... I am so effing scared as to how my life ids going the pan out that the last thing im thinking about is bringing another poor sod into the world!!....scares the life out of me. What Ive been thinking about a lot recently is the idea of adoption. There are so many poor little souls out there who have it so bad, id love to care for a child (ren) as much as i could. I know folk say "ohhh but it wouldnt be ur own flesh and blood" but that really doesnt bother me. It sounds silly to say but if I can look a little fluffy bunny rabbit as much as i do...im pretty sure I could love a child as much Smile

I just want to feel happy again. Truely happy, even if i know i will have to put up with this condition (which the specialists tell me I most probably will). Now thats gona be the hard bit. I cant remember the last time I felt happy/contentment.
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Re: Sex in Society

Post  noni on Mon Jan 17, 2011 9:34 pm

Naomi im sorry that you cant remember the last time you were happy or content. I guess that would apply to many of us, i dunno.

All I can say is... lifes a bitch, indeed.
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Re: Sex in Society

Post  Sebby (Admin) on Mon Jan 17, 2011 10:33 pm


I can so relate to that Naomi..I really can't remember a day over the last couple of years that I have felt content in life.

As for adoption..I dont think anyone would legally sign a child over to me! Maybe they would loan me one for the weekend? lol Think my mental health background would go way against me. I mean I know it was a good few years ago now but in my youth I was self harming and was admitted to hospital :/ Depression was out of control at the time.

Im quite glad at least that time is behind me but it never stops me thiking about possible relapse..that has to be my greatest fear

In the meantime, I learn to manage it and live with it. No its not fair we are suffering and cant find our happiness when all we long for is a button to restore mental and physical health.

I will continue to pray for this for all of us..in the meantime we have each other Smile cheers
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Re: Sex in Society

Post  naomi on Mon Jan 17, 2011 11:09 pm

def! Its having faith as well...im not religious so am going to a buddist/spirtual churchy place in cheltenham on saturday...its an open day so thought id check it out. Need to calm this difficult and unruly mind of mine!!

we could share a baby between us Sebby! pass the buck when we are feeling rubbish Smile

got that book 'Vulvodynia Heros' in the post today, dont know if its any good but its a bit of bed time ready for me....instead of mills and boon stupid sex stuff.....urghhhhh who'd have sex....dirty filthy stuff! so last year (well 2 years in my case) Smile If u want to read the book after me i'll post it to you...it could do the rounds xx
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Re: Sex in Society

Post  Sebby (Admin) on Tue Jan 18, 2011 10:29 pm


Def let me know what the book is like! Oh and that sharing a baby thing sounds like a great idea! lol

Sometimes my faith (christian) is the only thing that keeps me going. I can be a rock bottom but I hang on, sometimes so barely that I think I may die from how im feeling! but I pray and pray and Im lifted out...so I continue to pray...

xx
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Re: Sex in Society

Post  noni on Wed Jan 19, 2011 4:38 am

Dont worry, we all have angels looking out for us. In my early years I had a spiritual encounter with an other wordly being...really. And in my hard times I reflect on that day, and I think the spirit revealed itself to me for a reason.

We are suffering for a reason....to learn and grow from this. To help eachother. To become stronger and to become closer to the source (god, the creator, whatever u wanna call it).

I`m not trying to be hokey or a bible thumper...but I really believe we are meant to learn from our hardships, and ultimately help eachother out.

Peace out.
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Re: Sex in Society

Post  nadja on Wed Jan 19, 2011 4:33 pm

Ohhhh Wow Noni tell me more about you're encounter with a spirit? I am REALLY into all of that and have been even before I got this....
I also believe that a positive has to come out of this... I had some sharman work done on me again yesterday as I was really bad and it's all to do with moving the energy and dealing with my demon (which everyone has) and I really need to change my job I am not happy with it - I feel so bored and fed up.
My Mum has been reading 2012 book and it mentions in there about assemblage points:-
http://www.assemblagepointassociation.com/register.html

I have booked myself in with Tom the guy that does it in Devon it costs 110 pounds but will give it a try Smile


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Re: Sex in Society

Post  Sebby (Admin) on Wed Jan 19, 2011 8:26 pm


I do feel that noni that essentially the hardships get us closer to God and ultimatly closer to the plan he or she! has for us.

I have deff become closer over the last year. I pray more and read my bible more even if its just to dip into it to read a few uplifting verses.

Hmmm I do happen to be woundering what my plan is though!

Lets hope ours is to ultimatly find the cure for this conditon!!

Lets keep researching, bugging drs and sharing information. Together we are stronger xx sunny
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Re: Sex in Society

Post  noni on Wed Jan 19, 2011 8:44 pm

Hey Nadja just be weary of psychics and all those other guys, I have been suckered a couple of times....geeeez all that money I could have spent on hamburgers..mmmmm.

They all told me I have a lot of neg energy around me and that I need to be cleansed for an additional five hundred bucks...hahahaha....im not super bright, but not that stupid either.

Sebby, you`re right on track girl, look at this website, you are saving us from going INSANE you are an angel in human form

Take care.
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Re: Sex in Society

Post  Sebby (Admin) on Wed Jan 19, 2011 8:56 pm


Thank you noni..im so touched I love you

I couldnt do it without all the wonderful input from you guys.

That you have chosen to trust and share on this forum is so special to me

Godbless you all xx Smile
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Re: Sex in Society

Post  nadja on Thu Jan 20, 2011 8:25 am

Noni did none of it work for you then?
You didn't mention about you're spiritual experience please do tell?
Also question do any ladies experience pains around the groin area front and back that in turn effects the legs as I have pain all around there too currently its not good Sad

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Re: Sex in Society

Post  Sebby (Admin) on Thu Jan 20, 2011 8:50 pm


I got terrible muscle pain in my right leg a week ago and was even limping..I still dont know how this happened!

Then after that goes I now have terrible muscle pain all over my back..but funny enough mainly on my right side!

I think its the way I sit as having a painful vulva makes you sit funny :/

I also think as well as my pelvic floor my whole back and pelvis area is tight and goes into spasm, I really do need the physiotherapist!

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Re: Sex in Society

Post  noni on Fri Jan 21, 2011 1:57 am

Yeah, in terms of the spiritual thing:

I saw an appirition when I was 13, right around my most rebelious time... drugs, skipping school...I was not high at the time though rest assured. But it had a profound impact on me, I turned my life around after that, as I recall. It was kinda a while ago but, yeah, gives me strength.

As for the psychics, they just prey on people. Really fucked up, but that has been my experience. I need to manage my money better, really, haha.

Nadja, I also get strange rectal sensations...embarassing....yeah stinging and burning...I dunno, it sucks.

I just need to mellow out, I have been researching homeopathic methods for this monster of a condition or whatever you wanna call it...I will be trying sea buckthorn oil...for my inflamed bits, shall I say.

But shit I cant stay away from junk food. I need to taper off with binging (is taht how you spell it?) at midnight to deal with stress.
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Re: Sex in Society

Post  Sebby (Admin) on Sat Jan 22, 2011 11:37 pm


I totally binge on milk, chocolate and bread...all the bad 'yeast' things!!

Im gonna try to change that asap..dunno what Im gonna eat tho!! Rolling Eyes
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Re: Sex in Society

Post  nadja on Tue Feb 01, 2011 5:02 pm

Well ladies I went and had my assemblage point recentred on Saturday in Devon and it was good I feel a lot better from it and not sooooo down Smile it was out of place so they used the coloured lights and gemstones on me which was good. You should try it google Tom Blaen

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Re: Sex in Society

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