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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 19

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6


Has anyone diagnosed with Vulvodynia also have Urethral sensations after voiding?

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Has anyone diagnosed with Vulvodynia also have Urethral sensations after voiding?

Post  JS007 on Mon Nov 16, 2015 4:43 pm

Hi, I have been suffering with what appears to be Vulvodynia after 5 months of not knowing what is going on down there. I am currently on Amitryptiline 30mg, started on 10mg. I have been referred to GYNO (NHS) and am back for another appointment with them in due course. The symptons at the start seemed to be urinary - felt like I needed the toilet more often? funny sensations down there after going to the toilet, initially felt like pelvic muscles would not settle down afterwards. like many of you the GP thought it was lots of different things including Overactive Bladder, UTI and even thrush! I have had the aching, burning sensation, soreness - but no visible signs of anything. I would be keen to know if any one has experienced the discomfort with Vulvodynia and the Urethral opening - especially the funny sensation after voiding? thanks!

JS007

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Re: Has anyone diagnosed with Vulvodynia also have Urethral sensations after voiding?

Post  PainBlogger on Mon Nov 16, 2015 5:03 pm

Yes, a lot of my pain seems to be urethral in origin and triggered by voiding. My problems started with a concurrent UTI and thrush last year and although the infections are long gone, I've not been right since. I also have trouble with bladder emptying. It does empty fully, but not in one continuous stream so I have to stay on the toilet for a few minutes to make sure it's all emptied. I get days where I feel like I need to pass urine very frequently although I am able to hold it because sometimes I know there can't possibly be much urine to empty. I get pelvic floor muscle pain and the muscles are hypertonic. I'm currently on duloxetine for it and having acupuncture. I had quite a few sessions of physio and that did help reduce the frequency that I need to void my bladder.

PainBlogger

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http://vulvodyniasupport.forumotion.net/t2200-has-anyone-diagnosed-with-vulvodynia-also-have-urethral-sensations-after-voiding

Post  Jo44 on Mon Dec 14, 2015 7:07 pm

Hi JS007

My problems started in Nov 2014, with a UTI, then it felt like it was still there even though samples came back negative. After about 3 weeks of feeling like I still had it and courses of antibiotics etc I then developed burning and soreness on my vulva.

I got put on Amitriptyline initially by the GP but by Feb of this year and increasing to 60mgs she decided to refer me to a Gynaecologist. I saw him that month and by then the burning had subsided but I had pelvic discomfort, urethral discomfort and soreness in the vulva. He wanted me to reduce the Amitriptyline and start Lyrica/Pregabalin at 150mgs a day. By April I was still having urethral discomfort and a feeling in my urethra like I still needed to pee even after going. He decided to take me into hospital and do a biopsy of the vulval tissue and a urethral rigid Cystocopy and dilatation. This did help so maybe it needed stretching a bit!

However, I have had many weeks in between where I have had no V paid at all and it's been amazing and then for no reason it starts up again, which is depressing! I'm in a flare again right now! My Gyni now isn't sure it's Vulvodynia anymore so I'm feeling very lost and will be ringing my GP tomorrow to discuss it! I'm still on Amitriptyline and Lyrica, although I did try and reduce the Lyrica as if gone upto 225mgs for about 6 weeks before getting bad fatigue, foggy head, headaches, back tension etc! We thought it might've been the Lyrica and although those things got better my soreness is bad again! Oh what to do!

So sorry it's long winded Hun.

Jo44

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Re: Has anyone diagnosed with Vulvodynia also have Urethral sensations after voiding?

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