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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1


Has anyone diagnosed with Vulvodynia also have Urethral sensations after voiding?

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Has anyone diagnosed with Vulvodynia also have Urethral sensations after voiding?

Post  JS007 on Mon Nov 16, 2015 4:43 pm

Hi, I have been suffering with what appears to be Vulvodynia after 5 months of not knowing what is going on down there. I am currently on Amitryptiline 30mg, started on 10mg. I have been referred to GYNO (NHS) and am back for another appointment with them in due course. The symptons at the start seemed to be urinary - felt like I needed the toilet more often? funny sensations down there after going to the toilet, initially felt like pelvic muscles would not settle down afterwards. like many of you the GP thought it was lots of different things including Overactive Bladder, UTI and even thrush! I have had the aching, burning sensation, soreness - but no visible signs of anything. I would be keen to know if any one has experienced the discomfort with Vulvodynia and the Urethral opening - especially the funny sensation after voiding? thanks!

JS007

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Re: Has anyone diagnosed with Vulvodynia also have Urethral sensations after voiding?

Post  PainBlogger on Mon Nov 16, 2015 5:03 pm

Yes, a lot of my pain seems to be urethral in origin and triggered by voiding. My problems started with a concurrent UTI and thrush last year and although the infections are long gone, I've not been right since. I also have trouble with bladder emptying. It does empty fully, but not in one continuous stream so I have to stay on the toilet for a few minutes to make sure it's all emptied. I get days where I feel like I need to pass urine very frequently although I am able to hold it because sometimes I know there can't possibly be much urine to empty. I get pelvic floor muscle pain and the muscles are hypertonic. I'm currently on duloxetine for it and having acupuncture. I had quite a few sessions of physio and that did help reduce the frequency that I need to void my bladder.

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http://vulvodyniasupport.forumotion.net/t2200-has-anyone-diagnosed-with-vulvodynia-also-have-urethral-sensations-after-voiding

Post  Jo44 on Mon Dec 14, 2015 7:07 pm

Hi JS007

My problems started in Nov 2014, with a UTI, then it felt like it was still there even though samples came back negative. After about 3 weeks of feeling like I still had it and courses of antibiotics etc I then developed burning and soreness on my vulva.

I got put on Amitriptyline initially by the GP but by Feb of this year and increasing to 60mgs she decided to refer me to a Gynaecologist. I saw him that month and by then the burning had subsided but I had pelvic discomfort, urethral discomfort and soreness in the vulva. He wanted me to reduce the Amitriptyline and start Lyrica/Pregabalin at 150mgs a day. By April I was still having urethral discomfort and a feeling in my urethra like I still needed to pee even after going. He decided to take me into hospital and do a biopsy of the vulval tissue and a urethral rigid Cystocopy and dilatation. This did help so maybe it needed stretching a bit!

However, I have had many weeks in between where I have had no V paid at all and it's been amazing and then for no reason it starts up again, which is depressing! I'm in a flare again right now! My Gyni now isn't sure it's Vulvodynia anymore so I'm feeling very lost and will be ringing my GP tomorrow to discuss it! I'm still on Amitriptyline and Lyrica, although I did try and reduce the Lyrica as if gone upto 225mgs for about 6 weeks before getting bad fatigue, foggy head, headaches, back tension etc! We thought it might've been the Lyrica and although those things got better my soreness is bad again! Oh what to do!

So sorry it's long winded Hun.

Jo44

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