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» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Vestibulectomy
Sun Aug 13, 2017 9:54 am by infinitelywondering

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

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» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


Has anyone diagnosed with Vulvodynia also have Urethral sensations after voiding?

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Has anyone diagnosed with Vulvodynia also have Urethral sensations after voiding?

Post  JS007 on Mon Nov 16, 2015 4:43 pm

Hi, I have been suffering with what appears to be Vulvodynia after 5 months of not knowing what is going on down there. I am currently on Amitryptiline 30mg, started on 10mg. I have been referred to GYNO (NHS) and am back for another appointment with them in due course. The symptons at the start seemed to be urinary - felt like I needed the toilet more often? funny sensations down there after going to the toilet, initially felt like pelvic muscles would not settle down afterwards. like many of you the GP thought it was lots of different things including Overactive Bladder, UTI and even thrush! I have had the aching, burning sensation, soreness - but no visible signs of anything. I would be keen to know if any one has experienced the discomfort with Vulvodynia and the Urethral opening - especially the funny sensation after voiding? thanks!

JS007

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Re: Has anyone diagnosed with Vulvodynia also have Urethral sensations after voiding?

Post  PainBlogger on Mon Nov 16, 2015 5:03 pm

Yes, a lot of my pain seems to be urethral in origin and triggered by voiding. My problems started with a concurrent UTI and thrush last year and although the infections are long gone, I've not been right since. I also have trouble with bladder emptying. It does empty fully, but not in one continuous stream so I have to stay on the toilet for a few minutes to make sure it's all emptied. I get days where I feel like I need to pass urine very frequently although I am able to hold it because sometimes I know there can't possibly be much urine to empty. I get pelvic floor muscle pain and the muscles are hypertonic. I'm currently on duloxetine for it and having acupuncture. I had quite a few sessions of physio and that did help reduce the frequency that I need to void my bladder.

PainBlogger

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http://vulvodyniasupport.forumotion.net/t2200-has-anyone-diagnosed-with-vulvodynia-also-have-urethral-sensations-after-voiding

Post  Jo44 on Mon Dec 14, 2015 7:07 pm

Hi JS007

My problems started in Nov 2014, with a UTI, then it felt like it was still there even though samples came back negative. After about 3 weeks of feeling like I still had it and courses of antibiotics etc I then developed burning and soreness on my vulva.

I got put on Amitriptyline initially by the GP but by Feb of this year and increasing to 60mgs she decided to refer me to a Gynaecologist. I saw him that month and by then the burning had subsided but I had pelvic discomfort, urethral discomfort and soreness in the vulva. He wanted me to reduce the Amitriptyline and start Lyrica/Pregabalin at 150mgs a day. By April I was still having urethral discomfort and a feeling in my urethra like I still needed to pee even after going. He decided to take me into hospital and do a biopsy of the vulval tissue and a urethral rigid Cystocopy and dilatation. This did help so maybe it needed stretching a bit!

However, I have had many weeks in between where I have had no V paid at all and it's been amazing and then for no reason it starts up again, which is depressing! I'm in a flare again right now! My Gyni now isn't sure it's Vulvodynia anymore so I'm feeling very lost and will be ringing my GP tomorrow to discuss it! I'm still on Amitriptyline and Lyrica, although I did try and reduce the Lyrica as if gone upto 225mgs for about 6 weeks before getting bad fatigue, foggy head, headaches, back tension etc! We thought it might've been the Lyrica and although those things got better my soreness is bad again! Oh what to do!

So sorry it's long winded Hun.

Jo44

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Re: Has anyone diagnosed with Vulvodynia also have Urethral sensations after voiding?

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