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» Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia
Yesterday at 8:15 pm by WVR00

» What helped (and practically cured) my Vulvodynia
Yesterday at 4:43 pm by Katiej

» How I cured my Vulvodynia!
Yesterday at 8:24 am by Katiej

» Amitriptyline given for vulvodyina pain
Sat Nov 18, 2017 11:33 pm by WVR00

» Needing some reassurance
Sat Nov 18, 2017 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Sat Nov 18, 2017 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Sat Nov 18, 2017 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 0

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4


New member - did your problems start with a UTI

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New member - did your problems start with a UTI

Post  Niknak on Fri Nov 20, 2015 4:21 pm

Well at last I think I may have an answer to my problems! Things started 5 months ago when I got what I thought was cystitis - quick call to the doc and I got prescribed antibiotics, the burning urine feeling went but I was left with a constant soreness - I was prescribed more antibiotics, then 2 lots of thrush treatment (even though I had no symptoms of thrush) steroid cream then more antibiotics for BV (even though no signs of BV). I finally had enough so luckily through work I have private health care so I got referred to a urologist/gynecologist - he put me on 3 month course of antibiotics to stop bladder infections and had a look in my uretha/bladder with a camera, he said everything looked fine but after performing a swab/smear he said I was very dry so it could be down to a lack of estrogen (I had recently come off the combined pill and went on the mini pill - all these problems started after I started the mini pill). So I am still on the antibiotics (not really sure why as I don't think it's cystitis related) and I'm now back on the combined pill and on estrogen cream - i don't think it's working, I'm constantly crying with frustration as I don't know for sure why this pain/soreness is happening - after breaking down in tears numerous times in the docs I just keep being told it could take months for my hormones to get back to normal. I thought I was mad but having just found this forum today I think it may be vulvodynia...so I'm next seeing the consultant in 3 weeks where I'll mention vulvodynia. What is the normal first go to treatment for vulvodynia? Does anyone else have a similar story to mine with contraceptive? Did your hormones balancing out help? Thank you for any help you can offer xxxx

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Re: New member - did your problems start with a UTI

Post  PainBlogger on Fri Nov 20, 2015 5:12 pm

My problems started when I got a UTI and thrush at the same time last year. I'd never had thrush before and wasn't particularly prone to UTIs. I wasn't on any type of contraceptive pill. I had antibiotics and antifungals (cream, pessaries and tablets) and the infections went but I was left with pain, particularly after emptying my bladder but also on the surface of my skin and internally.

Normal first go to treatment - I think it very much depends on the doctor. I was given lidocaine gel (local anaesthetic) to use for six weeks at night on a cotton wool pad. When that didn't break the pain cycle I was given cimetidine (which is an interstitial cystitis treatment) to try. I was already on amitriptyline for nerve pain elsewhere in my body, but the doctor suggested I try increasing the dose of amitriptyline. I think amitriptyline is possibly the most popular first line oral treatment for nerve pain as it is so cheap and has been used for decades. If you end up seeing a pain management specialist they may be more likely to suggest drugs such as pregabalin or gabapentin for nerve pain. I'm not sure that a gynaecologist/urologist would have so much experience at prescribing those. My gynaecologist basically told me there was nothing visible and discharged me from her clinic, which is how I ended up under the care of a pain management specialist who has more experience of dealing with chronic pelvic pain issues.

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Re: New member - did your problems start with a UTI

Post  Niknak on Fri Nov 20, 2015 5:27 pm

Thank you for responding...that's really helpful, I was prescribed lidocaine gel after begging for something but was told to only used it twice a week so gave up on it, it's been prescribed in small syringe type applicators that I put onto cotton wool pads and wipe into the entrance of my vagina...I've only been prescribed 14 doses but now I might try this nightly to break the cycle? So it's safe to use every night?

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Re: New member - did your problems start with a UTI

Post  PainBlogger on Fri Nov 20, 2015 9:53 pm

It is safe to use nightly, but it's best to check with your doctor before altering the dose of anything. Presumably you'll need to get another prescription for more applicators? I don't think nightly for fourteen days would be long enough to break the pain cycle. It's usually 6 to 8 weeks. I had the 11ml size syringe applicators (Instillagel) and was able to get two days use per syringe. It's ever such runny stuff, not the easiest thing to apply...

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Re: New member - did your problems start with a UTI

Post  sgw11 on Sat Nov 21, 2015 12:16 am

Yep I am the same. Mine started with what felt like a UTI. I kept going to the doctor and getting urine tests done. No bacteria ever cultured but they prescribed me antibiotics anyway. Sometimes the feeling would go away, but it always came back. I was eventually put on macrodantin by my GP which is a preventative antibiotic for UTIs (mind you they still had only grown culture once). I was also treated for thrush and swabs were taken, but nothing would come up. The feelings kept coming and I finally decided to go to a gynaecologist. That's when I was diagnosed with vulvodynia.

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Re: New member - did your problems start with a UTI

Post  sgw11 on Sun Dec 20, 2015 7:05 am

Just a quick question, were you guys having sex when the symptoms started? Or was there no event that triggered it? I'm just curious because mine started when I was having sex, however I have previously had pain-free sex before all this happened.

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Re: New member - did your problems start with a UTI

Post  PainBlogger on Sun Dec 20, 2015 9:06 am

It had been a few days if I recall correctly. Then I got the thrush symptoms first (which I'd never had before ever) and the UTI symptoms (which I'd only had very rarely in the past and not in relation to sex necessarily) a couple of days after those. I also had previously pain-free sex.

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Re: New member - did your problems start with a UTI

Post  sgw11 on Sun Dec 20, 2015 9:11 am

That's interesting. I had had a few UTI symptoms in the past but nothing major either. But same thing, it felt like a UTI but kind of itchy as well, but with no discharge to indicate it was thrush. Yet over and over again I was prescribed antibiotics (when no bacteria was ever cultured except once) or I was told to go buy fluconazole, yet the swabs also never picked up anything. Thanks for replying.


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Re: New member - did your problems start with a UTI

Post  tinkerbelle2 on Mon Feb 01, 2016 8:54 pm

Hi Niknak! Welcome to the forum, but sorry as well that you're here... No I think mine started with a UTI too, but around a similar time I also had thrush and was on the pill! And I was on antibiotics for the UTI. So it could've been any of the above that disrupted things. Mine has a lot of similarities with yours by the sounds of it!
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Re: New member - did your problems start with a UTI

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