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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
Post Vestibulectomy Scar Pain
3 posters
Page 1 of 1
Post Vestibulectomy Scar Pain
Hi Ladies!
Sorry I have neglected the forum for a while...things had been going pretty well since my surgery, until recently.
I've been experiencing pain on my scar from my vestibulectomy - mainly where the hymenectomy occurred. At first, I had what I believed to be a average yeast infection. I called up the doctor and got the usual, Diflucan. All seemed when after a couple of days accept for this pain on my skin around my scar. This happened once before with my last yeast infection, but cleared up after taking Diflucan. I'm planning on calling my doctor tomorrow to get advice/ be seen, but I wanted to know if anyone else out there who has had surgery has experienced this as well.
Hope everyone is doing well!
-Jen
Sorry I have neglected the forum for a while...things had been going pretty well since my surgery, until recently.
I've been experiencing pain on my scar from my vestibulectomy - mainly where the hymenectomy occurred. At first, I had what I believed to be a average yeast infection. I called up the doctor and got the usual, Diflucan. All seemed when after a couple of days accept for this pain on my skin around my scar. This happened once before with my last yeast infection, but cleared up after taking Diflucan. I'm planning on calling my doctor tomorrow to get advice/ be seen, but I wanted to know if anyone else out there who has had surgery has experienced this as well.
Hope everyone is doing well!
-Jen
jen007- Posts : 152
Join date : 2012-11-05
Age : 31
Location : U.S.A
Re: Post Vestibulectomy Scar Pain
I had a full vestibulectomy in January and a revision in May. I have never gotten relief from my unprovoked pain, but lately I feel more flared then ever. When I feel around it seems like my suture line is still hurting me terribly near my urethra. I am so scared something is damaged.
Last edited by amyhopexoxo on Mon Jan 25, 2016 10:16 pm; edited 1 time in total
amyhp- Posts : 34
Join date : 2015-09-22
Re: Post Vestibulectomy Scar Pain
amyhopexoxo,
Thanks for your reply! I have provoked vestibulodynia so most of my pain was on caused when something disturbed my area. At the moment it feels like I have unprovoked pain and I'm very discouraged. I'm worried I may have to go under the knife again to get a revision as well. My doctor thinks that it could be a lack of estrogen reaching the area...but I've been pretty much pain free for about 4 years now...I don't understand whats happening to me and I'm terrified. My scar under my uretha is also hurting me...it always hurt even a long period of time after surgery, but only when touched too hard...now it just feels like its burning all the time. The skin around my rectum is also being affected. I'm still having it treated for yeast, but if that doesn't work I'm going to start using an estrogen cream to see if that helps. If that doesn't work I'm going to have to go back down the guessing game treatment road again. I might even make an appointment with my surgeon/ specialist to see if there's anything he can do for me.
-Jen
Thanks for your reply! I have provoked vestibulodynia so most of my pain was on caused when something disturbed my area. At the moment it feels like I have unprovoked pain and I'm very discouraged. I'm worried I may have to go under the knife again to get a revision as well. My doctor thinks that it could be a lack of estrogen reaching the area...but I've been pretty much pain free for about 4 years now...I don't understand whats happening to me and I'm terrified. My scar under my uretha is also hurting me...it always hurt even a long period of time after surgery, but only when touched too hard...now it just feels like its burning all the time. The skin around my rectum is also being affected. I'm still having it treated for yeast, but if that doesn't work I'm going to start using an estrogen cream to see if that helps. If that doesn't work I'm going to have to go back down the guessing game treatment road again. I might even make an appointment with my surgeon/ specialist to see if there's anything he can do for me.
-Jen
jen007- Posts : 152
Join date : 2012-11-05
Age : 31
Location : U.S.A
Re: Post Vestibulectomy Scar Pain
Hello, I was wondering if 'scar tissue' and 'granulation tissue' are the same? I have a lot of pain after vestibulectomy, it's my 4th week and I feel worse than the first 3. Is there a way to speed my healing? Or do I have to live with this forever?
senozs1- Posts : 22
Join date : 2015-10-06
Re: Post Vestibulectomy Scar Pain
senozs1,
To answer your question, no, scar tissue is not the same as granulation tissue. Granulation tissue can be removed so it's nothing to worry about. It's actually common. I actually started to feel worse around the 4th week as well. Don't stress over it, we all heal differently. I would however call the surgeon who operated on you and ask if theres anything you can do about it or if he/she could do anything for you.
As far as a speedy recovery, there's nothing you can do about that. It's going to take time, 2 months is hardly a long time when it means you could potentially have a happy healthy vagina. Just rest as much as possible. Try not to walk too much. Bed rest is the only way you'll ever get better. I stayed in bed for pretty much the first 4 weeks. I had a lot of success because of that.
What steps are you taking to heal? Are you using a sitz bath? Ice? Are you on bed rest?
-Jen
To answer your question, no, scar tissue is not the same as granulation tissue. Granulation tissue can be removed so it's nothing to worry about. It's actually common. I actually started to feel worse around the 4th week as well. Don't stress over it, we all heal differently. I would however call the surgeon who operated on you and ask if theres anything you can do about it or if he/she could do anything for you.
As far as a speedy recovery, there's nothing you can do about that. It's going to take time, 2 months is hardly a long time when it means you could potentially have a happy healthy vagina. Just rest as much as possible. Try not to walk too much. Bed rest is the only way you'll ever get better. I stayed in bed for pretty much the first 4 weeks. I had a lot of success because of that.
What steps are you taking to heal? Are you using a sitz bath? Ice? Are you on bed rest?
-Jen
jen007- Posts : 152
Join date : 2012-11-05
Age : 31
Location : U.S.A
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Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
Sat Jun 15, 2019 5:07 pm by mary jane
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer