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Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

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I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

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MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3

New member desperate need of other vulvadynia sufferers

Fri Feb 08, 2019 6:55 pm by Tfc13

Hi there hope some1 reading this is going through the same shit as me!, I'm new to this so don't really know where to start , I'm Teresa , I've just been diagnosed with vestibular vulvadynia , after countless appointments with GPS being misdiagnosed, tested for god knows everything , eventually under my gynochologist ,who done all her necessary tests, I now have been given a diagnosis I'm in …

Comments: 5


Anyone Completely Cured?

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Post  senozs1 on Sat Nov 28, 2015 7:55 pm

Hello everyone!

I've been struggling with provoked localized vulvodynia for some time. I feel like I can't take it anyome, and what I wanted to know is if there's anyone out there who's completely cured? Thank you, and I hope all of us get better

senozs1

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Post  Sebby (Admin) on Sat Nov 28, 2015 10:21 pm

Welcome to the forum.

I went from having constant pain to only now having pain on contact which is an improvement but not cured. I think mine just settled after taking lyrica which is an anticonvulsant. I believe I need to now focus on my pelvic floor to sort the provoked pain as I also have vaginismus which is tight vaginal muscles making sex and smear tests painful.
Unfortunately at present I cannot afford a private physio but I am going to try again and find one on the NHS, not easy tho!
Although if you read through some of the posts a few ladies have said they have been cured by various means. I think Vulval pain has different causes for different people.

I hope you find our community supportive and helpful in your recovery journey.

Godbless x
Sebby
Sebby (Admin)
Sebby (Admin)
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Post  sarisbaris on Thu Dec 31, 2015 7:18 am

Yes. I am completely cured. It wasn't by accident. Its a long story with a good ending and a baby! Wink just go to the 'vulvodynia info' forum and my post is titled 'cured from vulvodynia...'

There is hope! You might need to go out of your comfort zone and find a good 'woo woo' doctor! Let me know if you have any questions.

sarisbaris

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Post  A2015 on Mon Aug 29, 2016 6:26 pm

Hi senozs1,

Yes, I am completely cured and I had localised provoked vulvodynia. Do read my recent post 'PAIN FREE - VESTIBULODYNIA IN REMISSION'. Hopefully there are some similarities, and really don't give up hope that it can go away.

A2015

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Post  Alana3 on Mon Aug 29, 2016 8:19 pm

Yup had the surgery in 2012! All good now! Localized provoked vulvodynia. Let me know if I can help you with anything you might want to try Smile

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Post  lindsey_taylor on Mon Aug 29, 2016 11:24 pm

I have had this issue for a couple of years, although was only recently diagnosed. Seeing these posts of people completely cured of this problem gives me hope. Thank you all.

lindsey_taylor

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Post  web96 on Sun Sep 04, 2016 5:10 am

I'm pretty much cured from my provoked Vestibulodynia, besides some residual nerve pain (not much to be done about that, should diminish over time). I am able to live a normal life, ride bikes, have sex etc. Check out the link in my sig for my story if you haven't already seen it.

Good luck with your healing!!
web96
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Post  Sandra4372 on Wed Sep 14, 2016 1:07 am

I almost am cured by magnetic dilators my pt told me to get. Only hurts a little when I put them in, then it goes away.

Sandra4372

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