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» New here would very much appreciate advice at the end of my rope
Fri Jan 11, 2019 1:46 am by Jma990o

» Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg

» Looking for suggestions or encouragement
Thu Jan 03, 2019 11:09 am by Gaby

» Clinical Trial for Vulvodynia Treatment
Wed Dec 19, 2018 7:13 pm by wramirez

» New and need advice and help
Thu Dec 13, 2018 9:48 am by Derry59

» Things that have worked for me
Tue Dec 11, 2018 11:32 am by Amethyst

» Found relief after more than 15 years of pain!
Tue Dec 11, 2018 11:17 am by Amethyst

» I'm new to this forum and would love some advice! :)
Tue Dec 11, 2018 3:06 am by Cin124

» I think I know what causes vulvodynia-it's the memory of pain
Sat Dec 08, 2018 1:24 pm by foxysugarpants

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 2

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 0

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 6

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 4

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4


Anyone Completely Cured?

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Anyone Completely Cured?

Post  senozs1 on Sat Nov 28, 2015 7:55 pm

Hello everyone!

I've been struggling with provoked localized vulvodynia for some time. I feel like I can't take it anyome, and what I wanted to know is if there's anyone out there who's completely cured? Thank you, and I hope all of us get better

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Re: Anyone Completely Cured?

Post  Sebby (Admin) on Sat Nov 28, 2015 10:21 pm

Welcome to the forum.

I went from having constant pain to only now having pain on contact which is an improvement but not cured. I think mine just settled after taking lyrica which is an anticonvulsant. I believe I need to now focus on my pelvic floor to sort the provoked pain as I also have vaginismus which is tight vaginal muscles making sex and smear tests painful.
Unfortunately at present I cannot afford a private physio but I am going to try again and find one on the NHS, not easy tho!
Although if you read through some of the posts a few ladies have said they have been cured by various means. I think Vulval pain has different causes for different people.

I hope you find our community supportive and helpful in your recovery journey.

Godbless x
Sebby
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Re: Anyone Completely Cured?

Post  sarisbaris on Thu Dec 31, 2015 7:18 am

Yes. I am completely cured. It wasn't by accident. Its a long story with a good ending and a baby! Wink just go to the 'vulvodynia info' forum and my post is titled 'cured from vulvodynia...'

There is hope! You might need to go out of your comfort zone and find a good 'woo woo' doctor! Let me know if you have any questions.

sarisbaris

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Re: Anyone Completely Cured?

Post  A2015 on Mon Aug 29, 2016 6:26 pm

Hi senozs1,

Yes, I am completely cured and I had localised provoked vulvodynia. Do read my recent post 'PAIN FREE - VESTIBULODYNIA IN REMISSION'. Hopefully there are some similarities, and really don't give up hope that it can go away.

A2015

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Re: Anyone Completely Cured?

Post  Alana3 on Mon Aug 29, 2016 8:19 pm

Yup had the surgery in 2012! All good now! Localized provoked vulvodynia. Let me know if I can help you with anything you might want to try Smile

Alana3

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Re: Anyone Completely Cured?

Post  lindsey_taylor on Mon Aug 29, 2016 11:24 pm

I have had this issue for a couple of years, although was only recently diagnosed. Seeing these posts of people completely cured of this problem gives me hope. Thank you all.

lindsey_taylor

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Re: Anyone Completely Cured?

Post  web96 on Sun Sep 04, 2016 5:10 am

I'm pretty much cured from my provoked Vestibulodynia, besides some residual nerve pain (not much to be done about that, should diminish over time). I am able to live a normal life, ride bikes, have sex etc. Check out the link in my sig for my story if you haven't already seen it.

Good luck with your healing!!
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almost

Post  Sandra4372 on Wed Sep 14, 2016 1:07 am

I almost am cured by magnetic dilators my pt told me to get. Only hurts a little when I put them in, then it goes away.

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Re: Anyone Completely Cured?

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