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Yesterday at 4:01 pm by jennyk2

» Pain management - what works for me
Yesterday at 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

» Custom made leggings?
Sun Apr 22, 2018 4:52 am by CatJones

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


Anyone Completely Cured?

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Anyone Completely Cured?

Post  senozs1 on Sat Nov 28, 2015 7:55 pm

Hello everyone!

I've been struggling with provoked localized vulvodynia for some time. I feel like I can't take it anyome, and what I wanted to know is if there's anyone out there who's completely cured? Thank you, and I hope all of us get better

senozs1

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Re: Anyone Completely Cured?

Post  Sebby (Admin) on Sat Nov 28, 2015 10:21 pm

Welcome to the forum.

I went from having constant pain to only now having pain on contact which is an improvement but not cured. I think mine just settled after taking lyrica which is an anticonvulsant. I believe I need to now focus on my pelvic floor to sort the provoked pain as I also have vaginismus which is tight vaginal muscles making sex and smear tests painful.
Unfortunately at present I cannot afford a private physio but I am going to try again and find one on the NHS, not easy tho!
Although if you read through some of the posts a few ladies have said they have been cured by various means. I think Vulval pain has different causes for different people.

I hope you find our community supportive and helpful in your recovery journey.

Godbless x
Sebby
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Re: Anyone Completely Cured?

Post  sarisbaris on Thu Dec 31, 2015 7:18 am

Yes. I am completely cured. It wasn't by accident. Its a long story with a good ending and a baby! Wink just go to the 'vulvodynia info' forum and my post is titled 'cured from vulvodynia...'

There is hope! You might need to go out of your comfort zone and find a good 'woo woo' doctor! Let me know if you have any questions.

sarisbaris

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Re: Anyone Completely Cured?

Post  A2015 on Mon Aug 29, 2016 6:26 pm

Hi senozs1,

Yes, I am completely cured and I had localised provoked vulvodynia. Do read my recent post 'PAIN FREE - VESTIBULODYNIA IN REMISSION'. Hopefully there are some similarities, and really don't give up hope that it can go away.

A2015

A2015

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Re: Anyone Completely Cured?

Post  Alana3 on Mon Aug 29, 2016 8:19 pm

Yup had the surgery in 2012! All good now! Localized provoked vulvodynia. Let me know if I can help you with anything you might want to try Smile

Alana3

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Re: Anyone Completely Cured?

Post  lindsey_taylor on Mon Aug 29, 2016 11:24 pm

I have had this issue for a couple of years, although was only recently diagnosed. Seeing these posts of people completely cured of this problem gives me hope. Thank you all.

lindsey_taylor

Posts : 57
Join date : 2016-06-06
Age : 32
Location : Georgia, United States

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Re: Anyone Completely Cured?

Post  web96 on Sun Sep 04, 2016 5:10 am

I'm pretty much cured from my provoked Vestibulodynia, besides some residual nerve pain (not much to be done about that, should diminish over time). I am able to live a normal life, ride bikes, have sex etc. Check out the link in my sig for my story if you haven't already seen it.

Good luck with your healing!!
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almost

Post  Sandra4372 on Wed Sep 14, 2016 1:07 am

I almost am cured by magnetic dilators my pt told me to get. Only hurts a little when I put them in, then it goes away.

Sandra4372

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Re: Anyone Completely Cured?

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