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» Just Diagnosed with Vulvadynia
Today at 1:57 am by angelique2016

» Vulvadynia
Yesterday at 7:45 am by mary jane

» Constant pain, I want to die.
Sat Jul 22, 2017 9:41 pm by Meggiemay

» What is Vulvodynia?
Sat Jul 22, 2017 9:21 pm by mary jane

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV

» anyone from southern california in here?
Tue Jul 18, 2017 2:38 am by crypticcalico

Just Diagnosed with Vulvadynia

Tue Aug 02, 2016 9:11 pm by CherryTree23

Well, I was just diagnosed today, yay...my symptoms are just burning pain in vaginal opening. This all came about after taking Bactrim, Monistat, Clindomycin and Diflucan. This doctor was extremely confident I have Vulvadynia. Also told me my vaginal skin isn't red. Yes, it is, mine isn't typically electric red. He prescribed Ampytripline (sp) said, I have a very mild case, and worse case …

Comments: 7

Vulvadynia

Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

Comments: 3

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 21

Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12


Anyone Completely Cured?

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Anyone Completely Cured?

Post  senozs1 on Sat Nov 28, 2015 7:55 pm

Hello everyone!

I've been struggling with provoked localized vulvodynia for some time. I feel like I can't take it anyome, and what I wanted to know is if there's anyone out there who's completely cured? Thank you, and I hope all of us get better

senozs1

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Re: Anyone Completely Cured?

Post  Sebby (Admin) on Sat Nov 28, 2015 10:21 pm

Welcome to the forum.

I went from having constant pain to only now having pain on contact which is an improvement but not cured. I think mine just settled after taking lyrica which is an anticonvulsant. I believe I need to now focus on my pelvic floor to sort the provoked pain as I also have vaginismus which is tight vaginal muscles making sex and smear tests painful.
Unfortunately at present I cannot afford a private physio but I am going to try again and find one on the NHS, not easy tho!
Although if you read through some of the posts a few ladies have said they have been cured by various means. I think Vulval pain has different causes for different people.

I hope you find our community supportive and helpful in your recovery journey.

Godbless x
Sebby
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Re: Anyone Completely Cured?

Post  sarisbaris on Thu Dec 31, 2015 7:18 am

Yes. I am completely cured. It wasn't by accident. Its a long story with a good ending and a baby! Wink just go to the 'vulvodynia info' forum and my post is titled 'cured from vulvodynia...'

There is hope! You might need to go out of your comfort zone and find a good 'woo woo' doctor! Let me know if you have any questions.

sarisbaris

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Re: Anyone Completely Cured?

Post  A2015 on Mon Aug 29, 2016 6:26 pm

Hi senozs1,

Yes, I am completely cured and I had localised provoked vulvodynia. Do read my recent post 'PAIN FREE - VESTIBULODYNIA IN REMISSION'. Hopefully there are some similarities, and really don't give up hope that it can go away.

A2015

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Re: Anyone Completely Cured?

Post  Alana3 on Mon Aug 29, 2016 8:19 pm

Yup had the surgery in 2012! All good now! Localized provoked vulvodynia. Let me know if I can help you with anything you might want to try Smile

Alana3

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Re: Anyone Completely Cured?

Post  lindsey_taylor on Mon Aug 29, 2016 11:24 pm

I have had this issue for a couple of years, although was only recently diagnosed. Seeing these posts of people completely cured of this problem gives me hope. Thank you all.

lindsey_taylor

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Re: Anyone Completely Cured?

Post  web96 on Sun Sep 04, 2016 5:10 am

I'm pretty much cured from my provoked Vestibulodynia, besides some residual nerve pain (not much to be done about that, should diminish over time). I am able to live a normal life, ride bikes, have sex etc. Check out the link in my sig for my story if you haven't already seen it.

Good luck with your healing!!
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almost

Post  Sandra4372 on Wed Sep 14, 2016 1:07 am

I almost am cured by magnetic dilators my pt told me to get. Only hurts a little when I put them in, then it goes away.

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Re: Anyone Completely Cured?

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