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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

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Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5


pudental neuralgia. HELP :(

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pudental neuralgia. HELP :(

Post  sailor_moon on Wed Dec 02, 2015 10:43 am

OK so I think I definitely now have some form of pudental neuralgia....I am now experiencing the most nerve like pain EVER. In 2 weeks I can now not sit down without pain going from my left vestibule/butt cheek area that feels like someone digging in their thumb really really hard..and it radiates down my leg. It is virtually constant but 10X worse when I sit. Along with my usual itching and burning. I am not overweight so this is not the cause. I believe the cause is from being forced to lift things at work that are too heavy [yes, forced, if i don't do it i risk losing my job which means losing my home!I live in a small town with very limited employment ] and perhaps from exercise as I used to be extremely fit and was when all this started.

This pain has graduallly gotten worse over time and has always been dismissed.....great, thanks doctors, due to your negligence I now have an even greater chance of permanent pain that can't be fixed. All at 27 years of age [this has ruined my life since I was 25]

The more I read the more I realise how hard it is to treat. I bought a doughnut cushion that does virtually sweet F.A and am trying to avoid sitting....hard when I travel 1/2 hour to work each way and suffer chronic fatigue and exhaustion.

I was on Lyrica for 6 months which did nothing.

My specialist is away til Jan. He suspected pudental neuralgia but because I have had so many other problems [endometriosis, PCOS, candida, low estrogen, pH imbalance, chronic gastritis] so he could not diagnose it without ruling out everything else. I am going to my GP in 4 days but I don't know what he can do besides scans which probably won't show anything.

Anyone else suffer from PN or similar? Any advice? I don't know any successful treatments besides surgery, and being in australia hardly anyone knows much about this problem Sad
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sailor_moon

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Re: pudental neuralgia. HELP :(

Post  amyhp on Mon Dec 07, 2015 12:07 am

Just private messaged you!

amyhp

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