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» VULVODYNIA AND SUICIDE
Yesterday at 11:20 pm by Faezeh

» a video for you guys
Yesterday at 2:53 am by lavrose

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Yesterday at 2:45 am by lavrose

» New and need some help
Fri Feb 23, 2018 1:12 pm by fairlight10

» Acupuncture gave me my life back!
Thu Feb 22, 2018 11:25 pm by Bx11

» Anyone from New Jersey
Thu Feb 22, 2018 10:47 pm by LindafromNJ

» vaginal cream
Thu Feb 22, 2018 10:46 pm by LindafromNJ

» Acupuncture advice please
Thu Feb 22, 2018 2:25 am by ryn207

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

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Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

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vaginal cream

Thu Feb 22, 2018 10:46 pm by LindafromNJ

I have been given ABC cream to start using for my condition. This is gabapentin, amitriptyline and baclofen cream. Has anyone tried this. Also has anyone used lidocaine. My doctor told me not to use it. It is so sore at the vaginal opening. Has anyone used it there. Please respond!!

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MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0


Next stop, Gabapentin...

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Next stop, Gabapentin...

Post  WaahwaahUK on Mon Dec 07, 2015 7:43 pm

So my GP said he can't prescribe me lyrica / pregabalin without me trying gabapentin first. So, I now have a prescription for gabapentin. I'm ever so slightly terrified as have heard mixed stories about side effects etc but have decided to try and stay positive. Who knows? It may work for me...
I'm still having physio for nerve issues with my pelvis. Finding that soooooo hard as it causes major flares in pain but persevering.
Just thought I'd post an update. At the moment, no one can say for sure what's caused my pain, however I think I have come to the conclusion so far that this time last year after being treated with lots of different meds like steroid creams and pessaries for an infection, my nerves have gone berserk. I've had subsequent pelvic issues from holding myself so tight for months on end. Physio is addressing that, and I'm hoping, the right meds will help calm my crazy nerve pain. Hmmm...

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Re: Next stop, Gabapentin...

Post  PainBlogger on Mon Dec 07, 2015 10:58 pm

I've taken gabapentin in the past for my non-pelvic pain issues and I didn't have any adverse effects. I went up to 100mg, four times a day then eventually was switched to pregabalin as another dr preferred pregabalin for his patients. That was all before my pelvic pain started. But, yeah, I had no problems with gabapentin. I hope you have some success with it.

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Re: Next stop, Gabapentin...

Post  WaahwaahUK on Tue Dec 08, 2015 5:09 pm

PainBlogger just wanted to say thank you for your input on my posts since I've been here. I really appreciate it. It's so valuable just hearing someone say something like that about their experience sometimes. Going to give it a shot from tonight. Pregabalin seems to be an issue where I live due to cost.

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Re: Next stop, Gabapentin...

Post  PainBlogger on Tue Dec 08, 2015 9:18 pm

You're welcome. If my protracted experiences with various medications etc ( Rolling Eyes ) can be of use to others then at least that is something positive Very Happy . Yes, pregabalin is newer and more expensive than gabapentin. Both can take a few days to get used to hence the dose is normally increased slowly.

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Re: Next stop, Gabapentin...

Post  WaahwaahUK on Wed Dec 09, 2015 4:32 pm

I just find your manner very down to earth, and encouraging. So thanks! Hard to explain without sounding weird!

One thing I want to do is write down in detail things that I've tried and things that have helped a little because without this forum, I would honestly never have known where to go to or what directions to try... It's just not something many people know or have experience of. And of course, so many potential causes or additional / related issues.

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Re: Next stop, Gabapentin...

Post  WaahwaahUK on Sat Dec 12, 2015 10:49 am

4 nights on 100mg gabapentin and I couldn't face it any more... I'm so disappointed as I was determined to ride out any initial side effects... I had extreme night terrors and nausea and dizziness that I had to call in sick to work. I couldn't function. I go to work in pain every day as it is. So, I've stopped it for now. Going to try and continue with physio, magnesium, bicarb baths, epsom salt baths, wine (occasionally) and thinking about trying lidocaine for a period of time. The raw soreness I could do with some help in calming and wondering if that might help over a period of time.

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Re: Next stop, Gabapentin...

Post  PainBlogger on Sat Dec 12, 2015 12:26 pm

Sad That's not good. A drug that makes you feel worse than you did to start with has to get the heave ho. If you can face trying something else and your GP is agreeable then there's pregabalin or duloxetine - and, as you say, lidocaine. I was better after eight weeks of lidocaine 2% (Instillagel 11ml syringes - one syringe lasted two nights) on cotton wool at night than I was before it. It did calm down the surface burning quite a lot. We all react differently to different drugs it's such a nuisance that it's not more of a predictable science. I'm going to hopefully increase my duloxetine when I see my doctor before Christmas. I'm sure it is helping me somewhat and (logically, though these things don't always follow...) if I up the dose it'll hopefully help a bit more.

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Re: Next stop, Gabapentin...

Post  WaahwaahUK on Sat Dec 12, 2015 4:53 pm

Yes I was so disappointed, as I really was ready to persist with initial side effects if I had bay but I just couldn't take it... I don't think he'll let me try pregabalin. He seemed reluctant due to cost. I may ask about duloxetine. Thank you. Really glad to hear its working somewhat for you. I'm feeling it all today - really aching and sore. I think I got so tense on the gabapentin which hasn't helped. Even my jaw hurt like crazy! Anyway, I've bought over the counter vagisil today to try a little of and make sure I don't flare with it first and then will hopefully give that a go.

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Re: Next stop, Gabapentin...

Post  PainBlogger on Sat Dec 12, 2015 5:06 pm

I hope it gives you some relief. Bear in mind that it may contain fragrance in the added ingredients (at least the similar Lanacaine does, or used to) so if you do get any irritation from it, it may be that rather than the lidocaine.

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Re: Next stop, Gabapentin...

Post  WaahwaahUK on Sat Dec 12, 2015 5:30 pm

I've just seen it says that on the tube! Thanks for the warning. I think I'll try it somewhere close but not currently sore first.

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Re: Next stop, Gabapentin...

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