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I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

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Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

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New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

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MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

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New member desperate need of other vulvadynia sufferers

Fri Feb 08, 2019 6:55 pm by Tfc13

Hi there hope some1 reading this is going through the same shit as me!, I'm new to this so don't really know where to start , I'm Teresa , I've just been diagnosed with vestibular vulvadynia , after countless appointments with GPS being misdiagnosed, tested for god knows everything , eventually under my gynochologist ,who done all her necessary tests, I now have been given a diagnosis I'm in …

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Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 7

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

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Next stop, Gabapentin...

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Next stop, Gabapentin...

Post  WaahwaahUK on Mon Dec 07, 2015 7:43 pm

So my GP said he can't prescribe me lyrica / pregabalin without me trying gabapentin first. So, I now have a prescription for gabapentin. I'm ever so slightly terrified as have heard mixed stories about side effects etc but have decided to try and stay positive. Who knows? It may work for me...
I'm still having physio for nerve issues with my pelvis. Finding that soooooo hard as it causes major flares in pain but persevering.
Just thought I'd post an update. At the moment, no one can say for sure what's caused my pain, however I think I have come to the conclusion so far that this time last year after being treated with lots of different meds like steroid creams and pessaries for an infection, my nerves have gone berserk. I've had subsequent pelvic issues from holding myself so tight for months on end. Physio is addressing that, and I'm hoping, the right meds will help calm my crazy nerve pain. Hmmm...

WaahwaahUK

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Re: Next stop, Gabapentin...

Post  PainBlogger on Mon Dec 07, 2015 10:58 pm

I've taken gabapentin in the past for my non-pelvic pain issues and I didn't have any adverse effects. I went up to 100mg, four times a day then eventually was switched to pregabalin as another dr preferred pregabalin for his patients. That was all before my pelvic pain started. But, yeah, I had no problems with gabapentin. I hope you have some success with it.

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Re: Next stop, Gabapentin...

Post  WaahwaahUK on Tue Dec 08, 2015 5:09 pm

PainBlogger just wanted to say thank you for your input on my posts since I've been here. I really appreciate it. It's so valuable just hearing someone say something like that about their experience sometimes. Going to give it a shot from tonight. Pregabalin seems to be an issue where I live due to cost.

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Re: Next stop, Gabapentin...

Post  PainBlogger on Tue Dec 08, 2015 9:18 pm

You're welcome. If my protracted experiences with various medications etc ( Rolling Eyes ) can be of use to others then at least that is something positive Very Happy . Yes, pregabalin is newer and more expensive than gabapentin. Both can take a few days to get used to hence the dose is normally increased slowly.

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Re: Next stop, Gabapentin...

Post  WaahwaahUK on Wed Dec 09, 2015 4:32 pm

I just find your manner very down to earth, and encouraging. So thanks! Hard to explain without sounding weird!

One thing I want to do is write down in detail things that I've tried and things that have helped a little because without this forum, I would honestly never have known where to go to or what directions to try... It's just not something many people know or have experience of. And of course, so many potential causes or additional / related issues.

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Re: Next stop, Gabapentin...

Post  WaahwaahUK on Sat Dec 12, 2015 10:49 am

4 nights on 100mg gabapentin and I couldn't face it any more... I'm so disappointed as I was determined to ride out any initial side effects... I had extreme night terrors and nausea and dizziness that I had to call in sick to work. I couldn't function. I go to work in pain every day as it is. So, I've stopped it for now. Going to try and continue with physio, magnesium, bicarb baths, epsom salt baths, wine (occasionally) and thinking about trying lidocaine for a period of time. The raw soreness I could do with some help in calming and wondering if that might help over a period of time.

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Re: Next stop, Gabapentin...

Post  PainBlogger on Sat Dec 12, 2015 12:26 pm

Sad That's not good. A drug that makes you feel worse than you did to start with has to get the heave ho. If you can face trying something else and your GP is agreeable then there's pregabalin or duloxetine - and, as you say, lidocaine. I was better after eight weeks of lidocaine 2% (Instillagel 11ml syringes - one syringe lasted two nights) on cotton wool at night than I was before it. It did calm down the surface burning quite a lot. We all react differently to different drugs it's such a nuisance that it's not more of a predictable science. I'm going to hopefully increase my duloxetine when I see my doctor before Christmas. I'm sure it is helping me somewhat and (logically, though these things don't always follow...) if I up the dose it'll hopefully help a bit more.

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Re: Next stop, Gabapentin...

Post  WaahwaahUK on Sat Dec 12, 2015 4:53 pm

Yes I was so disappointed, as I really was ready to persist with initial side effects if I had bay but I just couldn't take it... I don't think he'll let me try pregabalin. He seemed reluctant due to cost. I may ask about duloxetine. Thank you. Really glad to hear its working somewhat for you. I'm feeling it all today - really aching and sore. I think I got so tense on the gabapentin which hasn't helped. Even my jaw hurt like crazy! Anyway, I've bought over the counter vagisil today to try a little of and make sure I don't flare with it first and then will hopefully give that a go.

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Re: Next stop, Gabapentin...

Post  PainBlogger on Sat Dec 12, 2015 5:06 pm

I hope it gives you some relief. Bear in mind that it may contain fragrance in the added ingredients (at least the similar Lanacaine does, or used to) so if you do get any irritation from it, it may be that rather than the lidocaine.

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Re: Next stop, Gabapentin...

Post  WaahwaahUK on Sat Dec 12, 2015 5:30 pm

I've just seen it says that on the tube! Thanks for the warning. I think I'll try it somewhere close but not currently sore first.

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Re: Next stop, Gabapentin...

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