Log in

I forgot my password

Latest topics
I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


Is this even vulvodynia !!!!

Go down

Is this even vulvodynia !!!!

Post  Ouch123 on Wed Dec 09, 2015 11:57 pm

Hi all,
I would like to explain my symptoms and see if it fits.

I am burning from the top of my labia all the way past my anus, to my sacral region. The pain is sometimes a pinch in a specific labial area, but mostly its just all over. There is sharp pain in my "crack" between my anus and sacrael area, as well as labia and vaginal opening. I was diagnosed with herpes last month. I have never had an outbreak, they just found it on a blood test. I was told that although my herpes wasn't active, I had been exposed at some point. I suspect that maybe this is a herpes thing instead of a true vulvodynia thing. I don't know how long I had the hsv2 virus, maybe a long time. I don't know, my doc just sort of shrugged and said "they are both nerve problems".
Text book vulvodyna seems to be a little more localized than I am describing. I'm particularly interest to know if those of you with vulvodynia suffer sacral pain. Any insight.

Unfortunately, I cant take antivirals like Valtrex. I am in an unbelievable amount of pain. I don't really know what to do and I am extremely frustrated by the lack of urgency on the part of my doctors. I'm taking gabapentin, but I cant take it during the day. It helps me to get a little relief at night so I can sleep.
this seems like a weird place to say this, but, I really don't see a way to keep living. I see that people suffer with this condition for years. I am 50, no kids, no husband. I really just don't see the point. I am not depressed or impulsive. I actually work in the mental health field and feel like I have a pretty good handle on my own neurosis and mental health issues. I feel pretty sad about it really, I don't really want to die, but I don't see any way to stay living. I'm between an 8-10 on the pain scale all day every day (in tears from pain at times), and I have absolutely no chance of ever developing a meaningful intimate relationship.
Don't worry, I'm not on the ledge, its a decision I will make after I have exhausted treatment options, but at this point, I haven't been presented with any treatment options other than gabapentin. Sorry for the morbid disclosure....

Ouch123

Posts : 19
Join date : 2015-08-29

View user profile

Back to top Go down

Re: Is this even vulvodynia !!!!

Post  PainBlogger on Thu Dec 10, 2015 9:07 am

It may be worth you getting a physio/PT who specialises in pelvic pain to assess you. I don't know where you are in the world so whether you'd need a doctor's referral. But various nerve issues or lower spinal issues could cause pain in the sacral region and around the coccyx. Pudendal neuralgia can cause vulval pain. There are other treatments other than drugs, especially if the herpes virus is not the actual cause of your symptoms.

I do get some sacral pain, but I have fibromyalgia so I get pain pretty much everywhere. There are a couple of books you may find useful reading: Amy Stein's 'Heal Pelvic Pain' and Isa Herrera's 'Ending Female Pain'.

I know at the moment you feel you've no chance of ever developing a meaningful intimate relationship, but, with all due respect, that's not an outcome that is set in stone. Try to take one day at a time. I hope your symptoms improve soon.

PainBlogger

Posts : 219
Join date : 2015-07-27

View user profile

Back to top Go down

Re: Is this even vulvodynia !!!!

Post  Ouch123 on Thu Dec 10, 2015 4:24 pm

I just came from my new doc. She said my v was indeed atypical as i am not sensitive to touch. Its more a nreve thing. I dont really know if thats good or bad, but thats what it is. My guess is that its post herpetic neuralgia, which tends to resolve after a few months. I feel like i can cope a bit better if i know there is a possibility of relief eventually.
Thanks for your response

Ouch123

Posts : 19
Join date : 2015-08-29

View user profile

Back to top Go down

Re: Is this even vulvodynia !!!!

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top


 
Permissions in this forum:
You cannot reply to topics in this forum