Log in

I forgot my password

Latest topics
Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 19

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6


Is this even vulvodynia !!!!

View previous topic View next topic Go down

Is this even vulvodynia !!!!

Post  Ouch123 on Wed Dec 09, 2015 11:57 pm

Hi all,
I would like to explain my symptoms and see if it fits.

I am burning from the top of my labia all the way past my anus, to my sacral region. The pain is sometimes a pinch in a specific labial area, but mostly its just all over. There is sharp pain in my "crack" between my anus and sacrael area, as well as labia and vaginal opening. I was diagnosed with herpes last month. I have never had an outbreak, they just found it on a blood test. I was told that although my herpes wasn't active, I had been exposed at some point. I suspect that maybe this is a herpes thing instead of a true vulvodynia thing. I don't know how long I had the hsv2 virus, maybe a long time. I don't know, my doc just sort of shrugged and said "they are both nerve problems".
Text book vulvodyna seems to be a little more localized than I am describing. I'm particularly interest to know if those of you with vulvodynia suffer sacral pain. Any insight.

Unfortunately, I cant take antivirals like Valtrex. I am in an unbelievable amount of pain. I don't really know what to do and I am extremely frustrated by the lack of urgency on the part of my doctors. I'm taking gabapentin, but I cant take it during the day. It helps me to get a little relief at night so I can sleep.
this seems like a weird place to say this, but, I really don't see a way to keep living. I see that people suffer with this condition for years. I am 50, no kids, no husband. I really just don't see the point. I am not depressed or impulsive. I actually work in the mental health field and feel like I have a pretty good handle on my own neurosis and mental health issues. I feel pretty sad about it really, I don't really want to die, but I don't see any way to stay living. I'm between an 8-10 on the pain scale all day every day (in tears from pain at times), and I have absolutely no chance of ever developing a meaningful intimate relationship.
Don't worry, I'm not on the ledge, its a decision I will make after I have exhausted treatment options, but at this point, I haven't been presented with any treatment options other than gabapentin. Sorry for the morbid disclosure....

Ouch123

Posts : 19
Join date : 2015-08-29

View user profile

Back to top Go down

Re: Is this even vulvodynia !!!!

Post  PainBlogger on Thu Dec 10, 2015 9:07 am

It may be worth you getting a physio/PT who specialises in pelvic pain to assess you. I don't know where you are in the world so whether you'd need a doctor's referral. But various nerve issues or lower spinal issues could cause pain in the sacral region and around the coccyx. Pudendal neuralgia can cause vulval pain. There are other treatments other than drugs, especially if the herpes virus is not the actual cause of your symptoms.

I do get some sacral pain, but I have fibromyalgia so I get pain pretty much everywhere. There are a couple of books you may find useful reading: Amy Stein's 'Heal Pelvic Pain' and Isa Herrera's 'Ending Female Pain'.

I know at the moment you feel you've no chance of ever developing a meaningful intimate relationship, but, with all due respect, that's not an outcome that is set in stone. Try to take one day at a time. I hope your symptoms improve soon.

PainBlogger

Posts : 212
Join date : 2015-07-27

View user profile

Back to top Go down

Re: Is this even vulvodynia !!!!

Post  Ouch123 on Thu Dec 10, 2015 4:24 pm

I just came from my new doc. She said my v was indeed atypical as i am not sensitive to touch. Its more a nreve thing. I dont really know if thats good or bad, but thats what it is. My guess is that its post herpetic neuralgia, which tends to resolve after a few months. I feel like i can cope a bit better if i know there is a possibility of relief eventually.
Thanks for your response

Ouch123

Posts : 19
Join date : 2015-08-29

View user profile

Back to top Go down

Re: Is this even vulvodynia !!!!

Post  Sponsored content


Sponsored content


Back to top Go down

View previous topic View next topic Back to top


 
Permissions in this forum:
You cannot reply to topics in this forum