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» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

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» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Advice on taking Amitryptiline

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Advice on taking Amitryptiline

Post  sailor_moon on Sat Dec 12, 2015 12:27 am

So, I have finally given in and started taking Ami 10mg for the past 3 days. Can anyone please tell me how long it takes before you see any result with it?

I had sex this morning and I have that raw sore feeling along with itching. Not severe, but enough to make me uncomfortable enough to not want to leave the house.

Has anyone with inflammation and redness in the area had any success with this?

Also, will this dose make me put on weight? And how much of a dose do you have to be on to get fat? Im struggling to stay in a healthy weight range as it is being unable to exercise due to the discomfort.
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Re: Advice on taking Amitryptiline

Post  PainBlogger on Sat Dec 12, 2015 8:49 am

I'd say you need to give it 4 - 8 weeks before you can make any firm conclusions, though hopefully you'll see a benefit before then. I did put on a little weight on amitriptyline (went up to 30mg), but I was on pregabalin at the same time and both are known to cause weight gain. My guess is the weight gain was more due to the 450mg/day of pregabalin. I'm not sure exactly how much weight, but it *wasn't* enough to put me up a clothes size - maybe half a stone?

As for redness and inflammation - I don't have that, so I can't advise on that, but hopefully the above is of some help. Good luck with it.

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Re: Advice on taking Amitryptiline

Post  sailor_moon on Sat Dec 12, 2015 9:11 am

Thanks for your reply Painblogger. I was on 300mg Pregabalin and I only put on 2 kgs in the 6 months I was on it. But it did absolutely nothing for me pain wise either.

Currently had 3 sessions with a chiropractor and my symptoms haven't been as severe. It takes 6 to 8 sessions they say before you get any real result so I'll keep up with it as my back is bad anyway!

Did you find ami made a significant difference on its own or did you have to combine Pregabalin with it to get any form of result?
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Re: Advice on taking Amitryptiline

Post  WaahwaahUK on Sat Dec 12, 2015 10:43 am

I didn't have any weight gain on nortriptyline which is I think the same type of drug or at least very smiliar. Stay on it if you can 2-3 months to see if it helps. Lots of people find it does. I didn't but that's just me. I'm having physio with an osteopath and I would say, physio may cause flares but don't be disheartened if it does. For me, ultimately I think I'm seeing a very gradual improvement overall in my symptoms. I occasionally have a tickle rather than an itch, which I think is nerve related, as well as constant pain and a raw sore feeling that goes up and down in intensity.

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Re: Advice on taking Amitryptiline

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