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» Vestibulectomy today and no pain
Today at 3:28 pm by Dsrt16

» vestibulectomy success
Yesterday at 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Yesterday at 12:06 am by Jgreen81

» Pain aftee vestibulectimy
Yesterday at 12:03 am by Jgreen81

» Freaking out because I don't think surgery worked HELP!!!!
Yesterday at 12:01 am by Jgreen81

» Vulvodynia help
Wed Nov 15, 2017 1:04 pm by ekaterina1996

» FACEBOOK VULVODYNIA SUPPORT GROUP (SECRET)
Tue Nov 14, 2017 9:53 pm by Dsrt16

» Needing some reassurance
Sun Nov 12, 2017 3:04 pm by Nicmay

» Vulvodynia burning mouth and bladder discomfort
Fri Nov 10, 2017 7:26 pm by Zbrown

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 0

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


Advice on taking Amitryptiline

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Advice on taking Amitryptiline

Post  sailor_moon on Sat Dec 12, 2015 12:27 am

So, I have finally given in and started taking Ami 10mg for the past 3 days. Can anyone please tell me how long it takes before you see any result with it?

I had sex this morning and I have that raw sore feeling along with itching. Not severe, but enough to make me uncomfortable enough to not want to leave the house.

Has anyone with inflammation and redness in the area had any success with this?

Also, will this dose make me put on weight? And how much of a dose do you have to be on to get fat? Im struggling to stay in a healthy weight range as it is being unable to exercise due to the discomfort.
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Re: Advice on taking Amitryptiline

Post  PainBlogger on Sat Dec 12, 2015 8:49 am

I'd say you need to give it 4 - 8 weeks before you can make any firm conclusions, though hopefully you'll see a benefit before then. I did put on a little weight on amitriptyline (went up to 30mg), but I was on pregabalin at the same time and both are known to cause weight gain. My guess is the weight gain was more due to the 450mg/day of pregabalin. I'm not sure exactly how much weight, but it *wasn't* enough to put me up a clothes size - maybe half a stone?

As for redness and inflammation - I don't have that, so I can't advise on that, but hopefully the above is of some help. Good luck with it.

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Re: Advice on taking Amitryptiline

Post  sailor_moon on Sat Dec 12, 2015 9:11 am

Thanks for your reply Painblogger. I was on 300mg Pregabalin and I only put on 2 kgs in the 6 months I was on it. But it did absolutely nothing for me pain wise either.

Currently had 3 sessions with a chiropractor and my symptoms haven't been as severe. It takes 6 to 8 sessions they say before you get any real result so I'll keep up with it as my back is bad anyway!

Did you find ami made a significant difference on its own or did you have to combine Pregabalin with it to get any form of result?
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Re: Advice on taking Amitryptiline

Post  WaahwaahUK on Sat Dec 12, 2015 10:43 am

I didn't have any weight gain on nortriptyline which is I think the same type of drug or at least very smiliar. Stay on it if you can 2-3 months to see if it helps. Lots of people find it does. I didn't but that's just me. I'm having physio with an osteopath and I would say, physio may cause flares but don't be disheartened if it does. For me, ultimately I think I'm seeing a very gradual improvement overall in my symptoms. I occasionally have a tickle rather than an itch, which I think is nerve related, as well as constant pain and a raw sore feeling that goes up and down in intensity.

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Re: Advice on taking Amitryptiline

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