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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 19

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider


I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6

Advice on taking Amitryptiline

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Advice on taking Amitryptiline

Post  sailor_moon on Sat Dec 12, 2015 12:27 am

So, I have finally given in and started taking Ami 10mg for the past 3 days. Can anyone please tell me how long it takes before you see any result with it?

I had sex this morning and I have that raw sore feeling along with itching. Not severe, but enough to make me uncomfortable enough to not want to leave the house.

Has anyone with inflammation and redness in the area had any success with this?

Also, will this dose make me put on weight? And how much of a dose do you have to be on to get fat? Im struggling to stay in a healthy weight range as it is being unable to exercise due to the discomfort.

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Re: Advice on taking Amitryptiline

Post  PainBlogger on Sat Dec 12, 2015 8:49 am

I'd say you need to give it 4 - 8 weeks before you can make any firm conclusions, though hopefully you'll see a benefit before then. I did put on a little weight on amitriptyline (went up to 30mg), but I was on pregabalin at the same time and both are known to cause weight gain. My guess is the weight gain was more due to the 450mg/day of pregabalin. I'm not sure exactly how much weight, but it *wasn't* enough to put me up a clothes size - maybe half a stone?

As for redness and inflammation - I don't have that, so I can't advise on that, but hopefully the above is of some help. Good luck with it.


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Re: Advice on taking Amitryptiline

Post  sailor_moon on Sat Dec 12, 2015 9:11 am

Thanks for your reply Painblogger. I was on 300mg Pregabalin and I only put on 2 kgs in the 6 months I was on it. But it did absolutely nothing for me pain wise either.

Currently had 3 sessions with a chiropractor and my symptoms haven't been as severe. It takes 6 to 8 sessions they say before you get any real result so I'll keep up with it as my back is bad anyway!

Did you find ami made a significant difference on its own or did you have to combine Pregabalin with it to get any form of result?

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Re: Advice on taking Amitryptiline

Post  WaahwaahUK on Sat Dec 12, 2015 10:43 am

I didn't have any weight gain on nortriptyline which is I think the same type of drug or at least very smiliar. Stay on it if you can 2-3 months to see if it helps. Lots of people find it does. I didn't but that's just me. I'm having physio with an osteopath and I would say, physio may cause flares but don't be disheartened if it does. For me, ultimately I think I'm seeing a very gradual improvement overall in my symptoms. I occasionally have a tickle rather than an itch, which I think is nerve related, as well as constant pain and a raw sore feeling that goes up and down in intensity.


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Re: Advice on taking Amitryptiline

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