Log in

I forgot my password

Latest topics
» New here would very much appreciate advice at the end of my rope
Fri Jan 11, 2019 1:46 am by Jma990o

» Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg

» Looking for suggestions or encouragement
Thu Jan 03, 2019 11:09 am by Gaby

» Clinical Trial for Vulvodynia Treatment
Wed Dec 19, 2018 7:13 pm by wramirez

» New and need advice and help
Thu Dec 13, 2018 9:48 am by Derry59

» Things that have worked for me
Tue Dec 11, 2018 11:32 am by Amethyst

» Found relief after more than 15 years of pain!
Tue Dec 11, 2018 11:17 am by Amethyst

» I'm new to this forum and would love some advice! :)
Tue Dec 11, 2018 3:06 am by Cin124

» I think I know what causes vulvodynia-it's the memory of pain
Sat Dec 08, 2018 1:24 pm by foxysugarpants

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 2

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 0

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 6

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 4

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4


Reached a plateau...

Go down

Reached a plateau...

Post  WaahwaahUK on Thu Jan 14, 2016 1:13 pm

Thought it was time to post an update on this ever quiet forum! Wink

I've been seeing an osteopath for several months now and I've definitely seen a slow and gradual decrease in my pain, with the odd flare up. I've got to generally being about a 2/10 on a good day, and 3 or 4/10 on a bad day. In the summer last year I was 7 fairly constant. 7 for me meant constant pain, real difficulty walking all the time, very little rest due to the pain, and generally a huge impact on my daily functioning. 2 or 3 now means I can walk with pain, but it's bearable. And I'm able to function with the pain. I don't ever want to see an 8 or above as that for me personally would be not being able to get up. I have quite a high pain threshold. So, I'm seeing improvements with physio more than anything else I've tried. I had to stop medication because of really awful side effects and no difference in the pain. I'm now scared as my osteopath said to me this week, I've reached a plateau. Which I have. I know. And I want to get beyond that and improve some more.... So I have more exercises now, and he's hoping to address it, but yeah I'm scared. What if this is as good as it gets?

Just felt like writing it down somewhere. If I can help anyone with advice on my particular journey so far, feel free to ask. If you look at my previous posts you can see how it started for me.

I do feel, pelvic floor issues are present for me and the physio is helping. I never realised a burning raw feeling down there could be nerve, muscle related!

Anyway, good luck to anyone reading this suffering.

WaahwaahUK

Posts : 117
Join date : 2015-07-31

View user profile

Back to top Go down

Re: Reached a plateau...

Post  PainBlogger on Thu Jan 14, 2016 11:30 pm

I feel similarly: my unprovoked pain is a lot better than it was even a few months ago, but my pelvic floor muscles are still ridiculously tight. I've not seen the physio for a while, just been plodding on with exercises whilst the duloxetine kicked in. I'm going back in a few days though and hoping I can try something new. I think my nerves have calmed down a lot, but trying to do dilator exercises is triggering my pain and giving me cystitis-like burning.

I hope your additional exercises help. And writing stuff down is often helpful. Smile I'll update when I've had my next appointment.

PainBlogger

Posts : 219
Join date : 2015-07-27

View user profile

Back to top Go down

Re: Reached a plateau...

Post  WaahwaahUK on Sat Jan 16, 2016 5:45 pm

Thanks for keeping in touch! Yes have some PNF stretching to do now. My osteopath said my hamstrings are really tight also which makes sense as I feel the vulva and labia pain on my left side when I stretch them. All seems linked. Had a bit of a flare today, 3 days after osteopath appointment which seems to happen for me. Hoping it settles tomorrow. I know I've come a long way pain wise, it's just hard to imagine if it will ever be 'normal' again in terms of not having this type of pain. I've always had back and pelvic issues but the additional gynae related pain is so depressing... However, I tell myself if I can see improvement then that surely means one day I could be out of this cycle! Lovely to hear from you again. Keep me posted!

WaahwaahUK

Posts : 117
Join date : 2015-07-31

View user profile

Back to top Go down

Re: Reached a plateau...

Post  PainBlogger on Mon Jan 18, 2016 12:33 pm

Hi Waahwaah,

Well, the physio assessed my pelvic floor muscles (which was unpleasant but not as painful as I feared it was going to be considering the pain I've been getting with home exercises). It's mainly the superficial PFMs that are overly tight and causing me the problems. She checked to see if I was getting referred pain when she put pressure on various areas and it was predominantly localised in that I was feeling the pain where she was touching and not out in my hip or up in my bladder etc.

Despite the discomfort of the assessment, I did feel better after it. She suggested I do my exercises in the mornings instead of later in the day as the PFMs should be more relaxed in the morning. I've tried that and it has been easier since the appointment, so I've just got to persist at trying to get those superficial PFMs stretched out and less tense. It's a real 'two steps forward, one step back' process and such slow going, but what can I do but persist. I'm not giving up. Smile When I think how I was 18 months ago I am so much better, I just still have things that I can't do and that's incredibly frustrating. But I do believe (now!) that I will be able to do them again. It just may take a while...

I'm still doing external stretches as well for my adductors and buttocks (piriformis) and also this first exercise (as demonstrated in the video) on this page: http://www.pelvicpainrehab.com/pelvic-pain/2011/pelvic-pain-and-exercise-what-exercises-can-help-treat-my-pain/

The physio also suggested I try a breathing exercise call 4, 7, 8 breathing, so you may want to do a search for that and give it a go. It's a simple technique for reducing tension. In short: Empty lungs > breathe in for a count of 4 (not 4 seconds necessarily) > hold for count of 7 > breathe out for count of 8. I find on the breathing out I feel a bit desperate to breathe in again towards the end, but that's normal apparently. So, I'm going to practise this when I'm emptying my bladder and a couple of other times a day and see if it helps at all. The good thing with breathing exercises is they are side-effect free (unless maybe one has asthma or another respiratory issue).

It's definitely wise to keep on telling yourself that one day you can be free of the pain cycle. I thought very negatively for the first 6 months I had this problem and negative thinking does no good. I feel a lot better in myself since a) I changed my way of thinking (which wasn't easy and was gradual) and b) since I've worked out which treatments help me and which are best left alone.

I hope your latest flare is going now Smile

PainBlogger

Posts : 219
Join date : 2015-07-27

View user profile

Back to top Go down

Re: Reached a plateau...

Post  WaahwaahUK on Mon Jan 18, 2016 6:20 pm

Thanks so much for that info, I'm going to look into those things you mentioned! I know what you mean about it being a slow process. Tell me about it! I do feel its worthwhile though, as like you, when I think back to where I was say 6 months ago I know I've improved. Keep me posted! I've really struggled last fee days with new exercises. I think I overdid them. It was because hubby was helping and said he didn't think I was stretching that much but I said, I have to start off small and work my way up. Should have listened to my own advice really as sooooo sore today! So back to taking it gentle and listening to my body one step at a time.

WaahwaahUK

Posts : 117
Join date : 2015-07-31

View user profile

Back to top Go down

Re: Reached a plateau...

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum