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» I'm sorry im rambling
Today at 5:49 am by Jet227

» Diagnosed Recently
Thu Feb 14, 2019 6:35 pm by davesjen

» New and need advice and help
Wed Feb 13, 2019 12:42 pm by feeling desperate

» New here would very much appreciate advice at the end of my rope
Wed Feb 13, 2019 12:33 pm by feeling desperate

» MonaLisa Touch
Sat Feb 09, 2019 3:46 pm by Julquint

» New member desperate need of other vulvadynia sufferers
Sat Feb 09, 2019 10:09 am by Tfc13

» The pain CAN get better - What's worked for me
Sat Feb 09, 2019 8:17 am by Ginger

» Remission and relapse and again and again
Thu Feb 07, 2019 1:10 pm by mary jane

» Long term pain after partial vestibulectomy?
Wed Feb 06, 2019 1:56 pm by mary jane

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 0

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 1

New member desperate need of other vulvadynia sufferers

Fri Feb 08, 2019 6:55 pm by Tfc13

Hi there hope some1 reading this is going through the same shit as me!, I'm new to this so don't really know where to start , I'm Teresa , I've just been diagnosed with vestibular vulvadynia , after countless appointments with GPS being misdiagnosed, tested for god knows everything , eventually under my gynochologist ,who done all her necessary tests, I now have been given a diagnosis I'm in …

Comments: 5

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 7

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0


MUST READ- ALL MEMBERS

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MUST READ- ALL MEMBERS

Post  sadone on Sun Jan 17, 2016 4:12 pm

Please Please watch this piece on youtube and flood the comment section. The anchor on this program has a despicable reaction to vulvodynia. Share with any groups. Let's get this youtube removed.

https://www.youtube.com/watch?v=e9EL0G58OP8

sadone

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PLEASE respond

Post  sadone on Tue Jan 26, 2016 12:34 am

We need to take action. contact the nva. www.nva.org. let them know that you want this youtube removed. i worry that it is going to make women with V despondent. Please take action. We only have each other.

We have to advocate for ourselves. Personally, I was devastated by the video. But it is inaccurate and insensitive.

If we don't advocate for ourselves, then nothing will happen to help us.

https://www.youtube.com/watch?v=e9EL0G58OP8

If this vid causes one suicide, we only have ourselves to blame for not acting.

PLEASE....


sadone

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Re: MUST READ- ALL MEMBERS

Post  meelie on Tue Feb 02, 2016 3:22 pm

I disagree. I think that there should be more media coverage of this horrid curse. Maybe if there were more on it and the world learned that it exists there will be more work done to fix it. I don't think any one with this curse could get anymore despondent that they already are. In fact it makes me feel a little better about it that my curse is being talked about in the real world and that now maybe people will believe me when I have the courage to come out and tell someone about it. I have people who roll their eyes or otherwise acts like they think it's made up or all in my head. So I am glad it is out and should be out more. "coming out" is the only way to get things done. Letting the rest of the world know what is happening is the only way to changes made. Maybe it will get more doctors to do research so more of us can get help in our home towns instead of having to travel hours to someone claiming to know about. Those are my thoughts.

meelie

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Thank you

Post  sadone on Sat Feb 27, 2016 6:35 am

Thanks, Meelie for your reply. I agree that it should be talked about. What I didn't like about the video was the guy saying that he would not date someone with V and ninety nine percent of guys wouldn't either. And that he had no advice to offer.

That was insulting. And the comments were horrendous. People were making fun of the condition.


That was the part that was cruel and showed no empathy. Anyway, it drove me over the edge. I had to make an appointment with my therapist after seeing it. It really upset me terribly. I worry that I will be alone forever bc of this. And after a break up with my bf this made me feel like giving up on life even more.

Anyway, I wrote to TYT and my therapist is going to do the same. Just talking about it now is making me really upset. Sad already I am having suicide ideation... this youtube made me worse.

sadone

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Re: MUST READ- ALL MEMBERS

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