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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


Pain after Vestibulectomy - Solved ?

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Pain after Vestibulectomy - Solved ?

Post  jen007 on Mon Feb 08, 2016 7:19 pm

Hi Ladies,

For those of you who haven't seen my more recent posts, you can type in "vestibulectomy" in the search bar to see my most recent posts on my recent new pain.

Luckily enough, I got an opportunity to be seen by my surgeon, Dr. Andrew Goldstein, this past Saturday. He examined me quite a bit before finding what he felt was the source of my newly discovered pain. He found a small lump under my skin, which turned out to be a small cyst - the size of a bb gun pellet. He could only find one and when he pressed on it, it cause me to feel the awful pain I had been sitting on for the past 3 months. He called it a "Skenes Gland Cyst" - never heard of this before. He told me they are actually quite common after a vestibulectomy, but that mine appeared in somewhat of a weird location. He removed it right then and there in his office. I had no time to think about it. It just happened - somewhat traumatizing, but hopefully worth it. The cut wasn't too too big, but did required 6 stitches. Similar to my vestibulectomy recovery, I'm on bed rest for a bit. The total healing period is 6 weeks. I need to ice it constantly and take sitz baths.

I hope this helps other women who discover some random pain near the urethra! He told me they're hard for doctors to find because they are under the skin and are not visible. You have to feel for them by doing a careful examination.

I'll be doing an update in about a month to let you all know if the procedure helped/ worked.

-Jen

jen007

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Re: Pain after Vestibulectomy - Solved ?

Post  amyhp on Tue Feb 09, 2016 12:46 am

I am so glad he found the cause! I bet you are so relieved!

amyhp

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Re: Pain after Vestibulectomy - Solved ?

Post  jen007 on Tue Feb 09, 2016 1:13 am

amyhopexoxo,

I'm hoping that by removing the cyst, my pain will be over. He seemed pretty confident that the cyst was the source of my pain. In a way I do feel better knowing there was something to be removed, but I'll only feel happy when I know for sure. These next 6 weeks are gonna be slow, but hopefully worth it!


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Re: Pain after Vestibulectomy - Solved ?

Post  amyhp on Tue Feb 09, 2016 2:09 am

Please keep me updated!
I spoke with him on the phone and he is so confused on why I am still in pain.

amyhp

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Re: Pain after Vestibulectomy - Solved ?

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