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» Just Diagnosed with Vulvadynia
Today at 1:57 am by angelique2016

» Vulvadynia
Yesterday at 7:45 am by mary jane

» Constant pain, I want to die.
Sat Jul 22, 2017 9:41 pm by Meggiemay

» What is Vulvodynia?
Sat Jul 22, 2017 9:21 pm by mary jane

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV

» anyone from southern california in here?
Tue Jul 18, 2017 2:38 am by crypticcalico

Just Diagnosed with Vulvadynia

Tue Aug 02, 2016 9:11 pm by CherryTree23

Well, I was just diagnosed today, yay...my symptoms are just burning pain in vaginal opening. This all came about after taking Bactrim, Monistat, Clindomycin and Diflucan. This doctor was extremely confident I have Vulvadynia. Also told me my vaginal skin isn't red. Yes, it is, mine isn't typically electric red. He prescribed Ampytripline (sp) said, I have a very mild case, and worse case …

Comments: 7


Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

Comments: 3

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 21

Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico


I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Pain after Vestibulectomy - Solved ?

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Pain after Vestibulectomy - Solved ?

Post  jen007 on Mon Feb 08, 2016 7:19 pm

Hi Ladies,

For those of you who haven't seen my more recent posts, you can type in "vestibulectomy" in the search bar to see my most recent posts on my recent new pain.

Luckily enough, I got an opportunity to be seen by my surgeon, Dr. Andrew Goldstein, this past Saturday. He examined me quite a bit before finding what he felt was the source of my newly discovered pain. He found a small lump under my skin, which turned out to be a small cyst - the size of a bb gun pellet. He could only find one and when he pressed on it, it cause me to feel the awful pain I had been sitting on for the past 3 months. He called it a "Skenes Gland Cyst" - never heard of this before. He told me they are actually quite common after a vestibulectomy, but that mine appeared in somewhat of a weird location. He removed it right then and there in his office. I had no time to think about it. It just happened - somewhat traumatizing, but hopefully worth it. The cut wasn't too too big, but did required 6 stitches. Similar to my vestibulectomy recovery, I'm on bed rest for a bit. The total healing period is 6 weeks. I need to ice it constantly and take sitz baths.

I hope this helps other women who discover some random pain near the urethra! He told me they're hard for doctors to find because they are under the skin and are not visible. You have to feel for them by doing a careful examination.

I'll be doing an update in about a month to let you all know if the procedure helped/ worked.



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Re: Pain after Vestibulectomy - Solved ?

Post  amyhp on Tue Feb 09, 2016 12:46 am

I am so glad he found the cause! I bet you are so relieved!


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Re: Pain after Vestibulectomy - Solved ?

Post  jen007 on Tue Feb 09, 2016 1:13 am


I'm hoping that by removing the cyst, my pain will be over. He seemed pretty confident that the cyst was the source of my pain. In a way I do feel better knowing there was something to be removed, but I'll only feel happy when I know for sure. These next 6 weeks are gonna be slow, but hopefully worth it!


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Re: Pain after Vestibulectomy - Solved ?

Post  amyhp on Tue Feb 09, 2016 2:09 am

Please keep me updated!
I spoke with him on the phone and he is so confused on why I am still in pain.


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Re: Pain after Vestibulectomy - Solved ?

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