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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


Pain after Vestibulectomy - Solved ?

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Pain after Vestibulectomy - Solved ?

Post  jen007 on Mon Feb 08, 2016 7:19 pm

Hi Ladies,

For those of you who haven't seen my more recent posts, you can type in "vestibulectomy" in the search bar to see my most recent posts on my recent new pain.

Luckily enough, I got an opportunity to be seen by my surgeon, Dr. Andrew Goldstein, this past Saturday. He examined me quite a bit before finding what he felt was the source of my newly discovered pain. He found a small lump under my skin, which turned out to be a small cyst - the size of a bb gun pellet. He could only find one and when he pressed on it, it cause me to feel the awful pain I had been sitting on for the past 3 months. He called it a "Skenes Gland Cyst" - never heard of this before. He told me they are actually quite common after a vestibulectomy, but that mine appeared in somewhat of a weird location. He removed it right then and there in his office. I had no time to think about it. It just happened - somewhat traumatizing, but hopefully worth it. The cut wasn't too too big, but did required 6 stitches. Similar to my vestibulectomy recovery, I'm on bed rest for a bit. The total healing period is 6 weeks. I need to ice it constantly and take sitz baths.

I hope this helps other women who discover some random pain near the urethra! He told me they're hard for doctors to find because they are under the skin and are not visible. You have to feel for them by doing a careful examination.

I'll be doing an update in about a month to let you all know if the procedure helped/ worked.

-Jen

jen007

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Re: Pain after Vestibulectomy - Solved ?

Post  amyhp on Tue Feb 09, 2016 12:46 am

I am so glad he found the cause! I bet you are so relieved!

amyhp

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Re: Pain after Vestibulectomy - Solved ?

Post  jen007 on Tue Feb 09, 2016 1:13 am

amyhopexoxo,

I'm hoping that by removing the cyst, my pain will be over. He seemed pretty confident that the cyst was the source of my pain. In a way I do feel better knowing there was something to be removed, but I'll only feel happy when I know for sure. These next 6 weeks are gonna be slow, but hopefully worth it!


jen007

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Re: Pain after Vestibulectomy - Solved ?

Post  amyhp on Tue Feb 09, 2016 2:09 am

Please keep me updated!
I spoke with him on the phone and he is so confused on why I am still in pain.

amyhp

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Re: Pain after Vestibulectomy - Solved ?

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