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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1


Anyone had some relief with accupuncture?

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Anyone had some relief with accupuncture?

Post  WaahwaahUK on Wed Feb 17, 2016 3:51 pm

I'm considering trying something alongside the treatment I'm having from an osteopath, like accupuncture. Would be interested to hear if anyone has found it useful please?

WaahwaahUK

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Re: Anyone had some relief with accupuncture?

Post  PainBlogger on Wed Feb 17, 2016 5:19 pm

I have found it useful - I think... It's not always easy to tell when trying several different treatment approaches simultaneously. But looking at my pain diary over the past six months (when I started doing it daily) my worst flare ups tended to be about three weeks after an acupuncture session (which I've been having monthly) and would calm down again after the acupuncture. I'm continuing to have it monthly. I think the effects may be cumulative with each treatment. It's not exactly cheap, but the side effects are so minimal (the occasional small bruise) that I'd urge everyone to at least give it a go if they can afford a few sessions.

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Re: Anyone had some relief with accupuncture?

Post  WaahwaahUK on Wed Feb 17, 2016 8:11 pm

Great, thank you for the reply. Did you ask them to target certain areas? I've never tried it. I feel like the osteopathy approach is helping slowly, with a few hiccups on the way! I've had some setbacks with exercises that I've struggled with that we are reevaluating. I'm also doing a daily pain diary and it's helping me notice patterns etc.

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Re: Anyone had some relief with accupuncture?

Post  PainBlogger on Wed Feb 17, 2016 9:26 pm

He's treating me for my other pains including migraines too, so I'm not sure which of the needles are for what. He's tried various different patterns and also uses electroacupuncture at the same time as the needles are in, which involves sticky pads like TENS machine pads on either my feet or shins (or on my ear a few times). None of the needles go any nearer to the actual problem areas than around my knee or just below my belly button though I have had trigger points needled (which is where the needle is just in for ten seconds or so) in piriformis muscles and adductors (inner thigh).

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Re: Anyone had some relief with accupuncture?

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