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» I don't know what to do anymore
Sat May 26, 2018 5:21 pm by Aquaben

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Tue May 22, 2018 7:22 pm by SinclairSassy

» Cleveland Clinic - Pain Management, Weston, FL
Tue May 22, 2018 7:13 pm by SinclairSassy

» Finally found a place for me...
Mon May 21, 2018 4:08 am by mtsp

» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Anyone had some relief with accupuncture?

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Anyone had some relief with accupuncture?

Post  WaahwaahUK on Wed Feb 17, 2016 3:51 pm

I'm considering trying something alongside the treatment I'm having from an osteopath, like accupuncture. Would be interested to hear if anyone has found it useful please?

WaahwaahUK

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Re: Anyone had some relief with accupuncture?

Post  PainBlogger on Wed Feb 17, 2016 5:19 pm

I have found it useful - I think... It's not always easy to tell when trying several different treatment approaches simultaneously. But looking at my pain diary over the past six months (when I started doing it daily) my worst flare ups tended to be about three weeks after an acupuncture session (which I've been having monthly) and would calm down again after the acupuncture. I'm continuing to have it monthly. I think the effects may be cumulative with each treatment. It's not exactly cheap, but the side effects are so minimal (the occasional small bruise) that I'd urge everyone to at least give it a go if they can afford a few sessions.

PainBlogger

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Re: Anyone had some relief with accupuncture?

Post  WaahwaahUK on Wed Feb 17, 2016 8:11 pm

Great, thank you for the reply. Did you ask them to target certain areas? I've never tried it. I feel like the osteopathy approach is helping slowly, with a few hiccups on the way! I've had some setbacks with exercises that I've struggled with that we are reevaluating. I'm also doing a daily pain diary and it's helping me notice patterns etc.

WaahwaahUK

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Re: Anyone had some relief with accupuncture?

Post  PainBlogger on Wed Feb 17, 2016 9:26 pm

He's treating me for my other pains including migraines too, so I'm not sure which of the needles are for what. He's tried various different patterns and also uses electroacupuncture at the same time as the needles are in, which involves sticky pads like TENS machine pads on either my feet or shins (or on my ear a few times). None of the needles go any nearer to the actual problem areas than around my knee or just below my belly button though I have had trigger points needled (which is where the needle is just in for ten seconds or so) in piriformis muscles and adductors (inner thigh).

PainBlogger

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Re: Anyone had some relief with accupuncture?

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