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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 6

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Big news! Please read!

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Big news! Please read!

Post  sailor_moon on Thu Feb 18, 2016 7:12 am

So ladies, some big news here!!

I saw my doctor 2 weeks ago and he felt and pressed certain areas on my thighs, pelvis, outer and inner labia and on the inner wall of my vagina. He pressed on my left side where my thigh meets my outer labia and I was squirming in pain! He then pressed on the inside wall, left side of my vagina, same reaction. No pain on the right hand side whatsoever when he pressed.

Today I came back to get an anesthetic and steroid injection into where my thigh meets my outer labia. F*ck it hurt like a bitch! OWIIIEE!!But then, a few minutes later, I could feel no itch, burn or pain when he pressed as hard as he could, and I could feel the anesthetic and steroids travelling up to the nerves in my vestibules and urethral areas where I itch and burn. No itch, burn in 7 hours and my inflammation has significantly reduced!

Now the doctor is most convinced it is definitely entrapment of the pudental nerve. He wants me to give it a month for me to see how the first injection goes, he is going to chase up some of the specialists he works with who deal specifically with this problem and next time I go back in a months time he will do another injection and have organised another form of more specific treatment for me.

Now for the ladies who havnt read my 3 year journey, My symptoms started very suddenly- Chronic itch, excruciating vestibule burning and inflamed, red raw patches. Unprovoked, almost 24/7 discomfort. Irritation typically gets worse throughout the day. Had 2 biopsies that only showed non specific inflammation. Saw at least 15 doctors, tried every treatment under the sun. Got told it was all in my head and that I needed antidepressants and councilling. Boss threatened to fire me because of all the time I was taking off because of the time it took to see incompetent doctors.

I am still not getting my hopes up because I have had this for so long, and managing a trapped pudental nerve can be very difficult! But I myself finally have some form of hope again, for the first time in a very very long time.

I will definitely keep you updated on what is happening, the road to recovery may have just begun for me.

If anyone can offer me some advice on this pudental nerve business, I would very very much appreciate it! Very Happy


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Re: Big news! Please read!

Post  PainBlogger on Thu Feb 18, 2016 9:02 am

Whilst management may (but not necessarily) be a challenge, at least there is now some progress for you. I'm really glad you're able to feel somewhat more hopeful and that you've had some relief from the inflammation, burning and itching. That's good news. Smile


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Re: Big news! Please read!

Post  WaahwaahUK on Thu Feb 18, 2016 8:47 pm

This sounds really positive for you! I have suspected pudendal nerve issues, and find it affects my thighs at times, my back and all sorts. Keep us posted and good luck!


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Re: Big news! Please read!

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