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» Vestibulectomy today and no pain
Today at 3:28 pm by Dsrt16

» vestibulectomy success
Yesterday at 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Yesterday at 12:06 am by Jgreen81

» Pain aftee vestibulectimy
Yesterday at 12:03 am by Jgreen81

» Freaking out because I don't think surgery worked HELP!!!!
Yesterday at 12:01 am by Jgreen81

» Vulvodynia help
Wed Nov 15, 2017 1:04 pm by ekaterina1996

» FACEBOOK VULVODYNIA SUPPORT GROUP (SECRET)
Tue Nov 14, 2017 9:53 pm by Dsrt16

» Needing some reassurance
Sun Nov 12, 2017 3:04 pm by Nicmay

» Vulvodynia burning mouth and bladder discomfort
Fri Nov 10, 2017 7:26 pm by Zbrown

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 0

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


Big news! Please read!

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Big news! Please read!

Post  sailor_moon on Thu Feb 18, 2016 7:12 am

So ladies, some big news here!!

I saw my doctor 2 weeks ago and he felt and pressed certain areas on my thighs, pelvis, outer and inner labia and on the inner wall of my vagina. He pressed on my left side where my thigh meets my outer labia and I was squirming in pain! He then pressed on the inside wall, left side of my vagina, same reaction. No pain on the right hand side whatsoever when he pressed.

Today I came back to get an anesthetic and steroid injection into where my thigh meets my outer labia. F*ck it hurt like a bitch! OWIIIEE!!But then, a few minutes later, I could feel no itch, burn or pain when he pressed as hard as he could, and I could feel the anesthetic and steroids travelling up to the nerves in my vestibules and urethral areas where I itch and burn. No itch, burn in 7 hours and my inflammation has significantly reduced!

Now the doctor is most convinced it is definitely entrapment of the pudental nerve. He wants me to give it a month for me to see how the first injection goes, he is going to chase up some of the specialists he works with who deal specifically with this problem and next time I go back in a months time he will do another injection and have organised another form of more specific treatment for me.

Now for the ladies who havnt read my 3 year journey, My symptoms started very suddenly- Chronic itch, excruciating vestibule burning and inflamed, red raw patches. Unprovoked, almost 24/7 discomfort. Irritation typically gets worse throughout the day. Had 2 biopsies that only showed non specific inflammation. Saw at least 15 doctors, tried every treatment under the sun. Got told it was all in my head and that I needed antidepressants and councilling. Boss threatened to fire me because of all the time I was taking off because of the time it took to see incompetent doctors.

I am still not getting my hopes up because I have had this for so long, and managing a trapped pudental nerve can be very difficult! But I myself finally have some form of hope again, for the first time in a very very long time.

I will definitely keep you updated on what is happening, the road to recovery may have just begun for me.

If anyone can offer me some advice on this pudental nerve business, I would very very much appreciate it! Very Happy

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Re: Big news! Please read!

Post  PainBlogger on Thu Feb 18, 2016 9:02 am

Whilst management may (but not necessarily) be a challenge, at least there is now some progress for you. I'm really glad you're able to feel somewhat more hopeful and that you've had some relief from the inflammation, burning and itching. That's good news. Smile

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Re: Big news! Please read!

Post  WaahwaahUK on Thu Feb 18, 2016 8:47 pm

This sounds really positive for you! I have suspected pudendal nerve issues, and find it affects my thighs at times, my back and all sorts. Keep us posted and good luck!

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Re: Big news! Please read!

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