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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Big news! Please read!

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Big news! Please read!

Post  sailor_moon on Thu Feb 18, 2016 7:12 am

So ladies, some big news here!!

I saw my doctor 2 weeks ago and he felt and pressed certain areas on my thighs, pelvis, outer and inner labia and on the inner wall of my vagina. He pressed on my left side where my thigh meets my outer labia and I was squirming in pain! He then pressed on the inside wall, left side of my vagina, same reaction. No pain on the right hand side whatsoever when he pressed.

Today I came back to get an anesthetic and steroid injection into where my thigh meets my outer labia. F*ck it hurt like a bitch! OWIIIEE!!But then, a few minutes later, I could feel no itch, burn or pain when he pressed as hard as he could, and I could feel the anesthetic and steroids travelling up to the nerves in my vestibules and urethral areas where I itch and burn. No itch, burn in 7 hours and my inflammation has significantly reduced!

Now the doctor is most convinced it is definitely entrapment of the pudental nerve. He wants me to give it a month for me to see how the first injection goes, he is going to chase up some of the specialists he works with who deal specifically with this problem and next time I go back in a months time he will do another injection and have organised another form of more specific treatment for me.

Now for the ladies who havnt read my 3 year journey, My symptoms started very suddenly- Chronic itch, excruciating vestibule burning and inflamed, red raw patches. Unprovoked, almost 24/7 discomfort. Irritation typically gets worse throughout the day. Had 2 biopsies that only showed non specific inflammation. Saw at least 15 doctors, tried every treatment under the sun. Got told it was all in my head and that I needed antidepressants and councilling. Boss threatened to fire me because of all the time I was taking off because of the time it took to see incompetent doctors.

I am still not getting my hopes up because I have had this for so long, and managing a trapped pudental nerve can be very difficult! But I myself finally have some form of hope again, for the first time in a very very long time.

I will definitely keep you updated on what is happening, the road to recovery may have just begun for me.

If anyone can offer me some advice on this pudental nerve business, I would very very much appreciate it! Very Happy


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Re: Big news! Please read!

Post  PainBlogger on Thu Feb 18, 2016 9:02 am

Whilst management may (but not necessarily) be a challenge, at least there is now some progress for you. I'm really glad you're able to feel somewhat more hopeful and that you've had some relief from the inflammation, burning and itching. That's good news. Smile


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Re: Big news! Please read!

Post  WaahwaahUK on Thu Feb 18, 2016 8:47 pm

This sounds really positive for you! I have suspected pudendal nerve issues, and find it affects my thighs at times, my back and all sorts. Keep us posted and good luck!


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Re: Big news! Please read!

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