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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci


I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering


I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Big news! Please read!

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Big news! Please read!

Post  sailor_moon on Thu Feb 18, 2016 7:12 am

So ladies, some big news here!!

I saw my doctor 2 weeks ago and he felt and pressed certain areas on my thighs, pelvis, outer and inner labia and on the inner wall of my vagina. He pressed on my left side where my thigh meets my outer labia and I was squirming in pain! He then pressed on the inside wall, left side of my vagina, same reaction. No pain on the right hand side whatsoever when he pressed.

Today I came back to get an anesthetic and steroid injection into where my thigh meets my outer labia. F*ck it hurt like a bitch! OWIIIEE!!But then, a few minutes later, I could feel no itch, burn or pain when he pressed as hard as he could, and I could feel the anesthetic and steroids travelling up to the nerves in my vestibules and urethral areas where I itch and burn. No itch, burn in 7 hours and my inflammation has significantly reduced!

Now the doctor is most convinced it is definitely entrapment of the pudental nerve. He wants me to give it a month for me to see how the first injection goes, he is going to chase up some of the specialists he works with who deal specifically with this problem and next time I go back in a months time he will do another injection and have organised another form of more specific treatment for me.

Now for the ladies who havnt read my 3 year journey, My symptoms started very suddenly- Chronic itch, excruciating vestibule burning and inflamed, red raw patches. Unprovoked, almost 24/7 discomfort. Irritation typically gets worse throughout the day. Had 2 biopsies that only showed non specific inflammation. Saw at least 15 doctors, tried every treatment under the sun. Got told it was all in my head and that I needed antidepressants and councilling. Boss threatened to fire me because of all the time I was taking off because of the time it took to see incompetent doctors.

I am still not getting my hopes up because I have had this for so long, and managing a trapped pudental nerve can be very difficult! But I myself finally have some form of hope again, for the first time in a very very long time.

I will definitely keep you updated on what is happening, the road to recovery may have just begun for me.

If anyone can offer me some advice on this pudental nerve business, I would very very much appreciate it! Very Happy


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Re: Big news! Please read!

Post  PainBlogger on Thu Feb 18, 2016 9:02 am

Whilst management may (but not necessarily) be a challenge, at least there is now some progress for you. I'm really glad you're able to feel somewhat more hopeful and that you've had some relief from the inflammation, burning and itching. That's good news. Smile


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Re: Big news! Please read!

Post  WaahwaahUK on Thu Feb 18, 2016 8:47 pm

This sounds really positive for you! I have suspected pudendal nerve issues, and find it affects my thighs at times, my back and all sorts. Keep us posted and good luck!


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