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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 19

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider


I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6

Big news! Please read!

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Big news! Please read!

Post  sailor_moon on Thu Feb 18, 2016 7:12 am

So ladies, some big news here!!

I saw my doctor 2 weeks ago and he felt and pressed certain areas on my thighs, pelvis, outer and inner labia and on the inner wall of my vagina. He pressed on my left side where my thigh meets my outer labia and I was squirming in pain! He then pressed on the inside wall, left side of my vagina, same reaction. No pain on the right hand side whatsoever when he pressed.

Today I came back to get an anesthetic and steroid injection into where my thigh meets my outer labia. F*ck it hurt like a bitch! OWIIIEE!!But then, a few minutes later, I could feel no itch, burn or pain when he pressed as hard as he could, and I could feel the anesthetic and steroids travelling up to the nerves in my vestibules and urethral areas where I itch and burn. No itch, burn in 7 hours and my inflammation has significantly reduced!

Now the doctor is most convinced it is definitely entrapment of the pudental nerve. He wants me to give it a month for me to see how the first injection goes, he is going to chase up some of the specialists he works with who deal specifically with this problem and next time I go back in a months time he will do another injection and have organised another form of more specific treatment for me.

Now for the ladies who havnt read my 3 year journey, My symptoms started very suddenly- Chronic itch, excruciating vestibule burning and inflamed, red raw patches. Unprovoked, almost 24/7 discomfort. Irritation typically gets worse throughout the day. Had 2 biopsies that only showed non specific inflammation. Saw at least 15 doctors, tried every treatment under the sun. Got told it was all in my head and that I needed antidepressants and councilling. Boss threatened to fire me because of all the time I was taking off because of the time it took to see incompetent doctors.

I am still not getting my hopes up because I have had this for so long, and managing a trapped pudental nerve can be very difficult! But I myself finally have some form of hope again, for the first time in a very very long time.

I will definitely keep you updated on what is happening, the road to recovery may have just begun for me.

If anyone can offer me some advice on this pudental nerve business, I would very very much appreciate it! Very Happy


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Re: Big news! Please read!

Post  PainBlogger on Thu Feb 18, 2016 9:02 am

Whilst management may (but not necessarily) be a challenge, at least there is now some progress for you. I'm really glad you're able to feel somewhat more hopeful and that you've had some relief from the inflammation, burning and itching. That's good news. Smile


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Re: Big news! Please read!

Post  WaahwaahUK on Thu Feb 18, 2016 8:47 pm

This sounds really positive for you! I have suspected pudendal nerve issues, and find it affects my thighs at times, my back and all sorts. Keep us posted and good luck!


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Re: Big news! Please read!

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